Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 Hi Steve, My joints are not currently hurting me, but the inflammation of my liver, spleen and other internal organs hurt terribly. It seems that my Stills disease is effecting more of the internal organs then the joints right now, but...In the beginning of all this, 2 yrs ago, my CRP was over 30 and every joint, muscle, and internal organ hurt so bad that I was bedridden for 4 months taking the "BIG GUN" pain killers. And in away, after all this time, I have learned to cope better with the pain then I did for the first yr of this disease. Are you in a lot of pain right now? I am sorry, but I am so far behind in my mail, that I've only read the last 2 days or so, so I am sorry to hear that things are not going well with you right now. How has your SED rate been? My doc seems concerned about that number along with the CRP at this time. I am not on any treatment at the moment, except for my diabetes, which is uncontrolled due to inflammation of the pancreas. I am being observed every two weeks and giving blood to keep track of what's going on. Hope this helps a bit. Lorie in Seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 Hi Steve, My CRP is currently normal (listed as 0.2 on my last bloodwork). What's strange is I couldn't find a number for the CRP from my early bloodwork when I was first sick (back in the early 1990's). All it said by the CRP was "positive"?? I did find one test that showed my sed rate at 112 from back then. That is usually normal now too most of the time. Anyone else know how high their sed rate (or ESR) has been? Trish in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 My Sed rate was 150 at onset of disease Trish,when last tested it was at 75 again it did get as low as 9 though close to normal huh. d.Canada Re: RE: CRP-Steve Hi Steve, My CRP is currently normal (listed as 0.2 on my last bloodwork). What's strange is I couldn't find a number for the CRP from my early bloodwork when I was first sick (back in the early 1990's). All it said by the CRP was "positive"?? I did find one test that showed my sed rate at 112 from back then. That is usually normal now too most of the time. Anyone else know how high their sed rate (or ESR) has been? Trish in PAVisit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 My Sed rate was 150 at onset of disease Trish,when last tested it was at 75 again it did get as low as 9 though close to normal huh. d.Canada Re: RE: CRP-Steve Hi Steve, My CRP is currently normal (listed as 0.2 on my last bloodwork). What's strange is I couldn't find a number for the CRP from my early bloodwork when I was first sick (back in the early 1990's). All it said by the CRP was "positive"?? I did find one test that showed my sed rate at 112 from back then. That is usually normal now too most of the time. Anyone else know how high their sed rate (or ESR) has been? Trish in PAVisit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
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