Re: New to group - Thanks for support!

[Guest guest]

Welcome, .

I'm sure you'll find the hope and encouragement here

to get you through, and that you'll soon see your

" darling baby girl " again.

F.

--- shellyleidig <shellyleidig@...> wrote:

> Hi everyone!

> I am the mother of a 9 year old daughter who was

> recently (in May)

> diagnosed with Moderate - Severe OCD. Symptoms

> started around

> September '06 (minor things just enough to make me

> raise an eyebrow

> at the time - counting that she couldn't stop [she

> would say " I

> can't get these stinking numbers out of my head]

> touching her thumbs

> to her fingers over & over, etc), then this past

> March, the flood

> gates came down. I was in denial trying to " hope it

> would pass " .

> Of course it didn't. Took her to her pediatrician,

> who referred her

> to a child psychiatrist. As you all already know,

> this was a

> horrible day for me. I went through about a month

> of mourning - I

> felt like I had lost my darling baby girl, who has

> always been truly

> a drop of sunshine - down to her golden blonde

> curls! Saw

> Psychiatrist in May, and have been all over the

> board with dosages

> of Luvox. Currently up to 200 mg/day. Psychiatrist

> said she may

> start her on Risperdal next week in addition to the

> Luvox. I have

> been through so much with her, seeing her true OCD

> (she doesn't talk

> to anyone about it but me & her dad, and my mother

> [her

> grandmother]) She has a lot of obsessions that

> center on God & the

> devil (Scrupulosity?) also, has started worrying

> about ghosts being

> around her (because she said sometimes she feels

> really cold)

> (tactile hallucinations or just a coincidence?)

> It is so hard trying to explain this to other

> people. They think

> she can " just stop worrying. " Her psychiatrist has

> referred us to

> a therapist for CBT in addition to the meds.

> Hopefully this will

> help.

> Anyway, didn't mean to ramble, just glad to have

> people to talk to

> that understand. Any advice you have that may be

> helpful if always

> welcome. Thank you so much for being here! It

> means so much to

> have a place to go that I don't have to worry about

> people being

> judgmental!

> Sincerely,

>

>

>

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[Guest guest]

Hi ,

I'm sure you will find a lot of great support here. I have a 10 year

old daughter who was diagnosed this past March when she was still 9.

I never took her to a psychiatrist, but we do go to a child

psychologist who specializes in CBT for OCD (specifically ERP, or

exposure and response prevention). Just to give you some hope, we

have seen GREAT improvement since we started therapy. She has a few

mild symptoms remaining that we are still working on, but I doubt she

would even be diagnosed with OCD at the point we are now.

She also had obsessions dealing with God--she had periods of time

when she felt she didn't believe in God, and then she was afraid she

was going straight to hell, and that she was a bad person. She never

counted, but she did do a lot of checking (faucets, doors, items that

had been given to her, etc.). She also had some

contamination/handwashing issues (this is the area that we're still

working on, but it is better than it was).

I remember how difficult it was when we were first starting out with

treatment, and I just wanted to let you know that it will get

better! Once you get her started with CBT (make sure it's someone

that treats a lot of kids with OCD with ERP) I think you'll see

improvement quickly! Feel free to e-mail me privately if you want to.

I can give you a list of some good books to read about kids with OCD

if you are interested (if you haven't gotten them already!).

Take care,

>

> Hi everyone!

> I am the mother of a 9 year old daughter who was recently (in May)

> diagnosed with Moderate - Severe OCD. Symptoms started around

> September '06 (minor things just enough to make me raise an eyebrow

> at the time - counting that she couldn't stop [she would say " I

> can't get these stinking numbers out of my head] touching her

thumbs

> to her fingers over & over, etc), then this past March, the flood

> gates came down. I was in denial trying to " hope it would pass " .

> Of course it didn't. Took her to her pediatrician, who referred

her

> to a child psychiatrist. As you all already know, this was a

> horrible day for me. I went through about a month of mourning - I

> felt like I had lost my darling baby girl, who has always been

truly

> a drop of sunshine - down to her golden blonde curls! Saw

> Psychiatrist in May, and have been all over the board with dosages

> of Luvox. Currently up to 200 mg/day. Psychiatrist said she may

> start her on Risperdal next week in addition to the Luvox. I have

> been through so much with her, seeing her true OCD (she doesn't

talk

> to anyone about it but me & her dad, and my mother [her

> grandmother]) She has a lot of obsessions that center on God & the

> devil (Scrupulosity?) also, has started worrying about ghosts being

> around her (because she said sometimes she feels really cold)

> (tactile hallucinations or just a coincidence?)

> It is so hard trying to explain this to other people. They think

> she can " just stop worrying. " Her psychiatrist has referred us to

> a therapist for CBT in addition to the meds. Hopefully this will

> help.

> Anyway, didn't mean to ramble, just glad to have people to talk to

> that understand. Any advice you have that may be helpful if always

> welcome. Thank you so much for being here! It means so much to

> have a place to go that I don't have to worry about people being

> judgmental!

> Sincerely,

>

>

[Guest guest]

Hi ,

Welcome!

I have two kids with diagnosed ocd, ages 10 and 5. I can really sympathize with

you.

You know, after you mentioned the things your daughter says she feels, it

reminds me of the things my kids have said. My daughter actually still says

things like, " I feel like someone is around me and it never goes away "

My son, who has the bad thought type ocd used to say that he felt people going

by him, and could actually feel the wind as they passed. It really scared me,

but alot of that has passed for now.

It sounds like your doing all you can.The meds should help!

Hugs to you !

Judy

[Guest guest]

Welcome, . Glad you are here. It sounds like you are on the

right track. When you talk to the therapist, make sure they do ERP

(exposure and response prevention), that is especially important.

They need to be exposed to the things OCD is demanding they do, so

that they can fight it and become desensitized to it. We have noticed

a big improvement with our son's rituals since we started exposure

therapy. It can be hard to find someone who knows what they are doing

with it, so hopefully the therapist you were referred to will know it.

Learning how to fight OCD and boss it back, will give your daughter

life long tools to use to keep control over her OCD.

Our son deals with physical rituals and intrusive thoughts, which

includes scrupulosity. He was diagnosed at 7 and is now 15. We've

gone through good times and bad as it waxes and wanes. He had a HUGE

relapse this year and it took us months to get it under control (still

have some bad days here and there), but it's worth the fight, because

he's come a long way from being on our sofa, white-faced, in the fetal

position, not eating or sleeping, or even communicating for the most

part.

You'll find people who understand here who are very supportive. And

people who've been through what you are going through who have great

advice. Again, welcome.

BJ

>

> Hi everyone!

> I am the mother of a 9 year old daughter who was recently (in May)

> diagnosed with Moderate - Severe OCD. Symptoms started around

> September '06 (minor things just enough to make me raise an eyebrow

> at the time - counting that she couldn't stop [she would say " I

> can't get these stinking numbers out of my head] touching her thumbs

> to her fingers over & over, etc), then this past March, the flood

> gates came down. I was in denial trying to " hope it would pass " .

> Of course it didn't. Took her to her pediatrician, who referred her

> to a child psychiatrist. As you all already know, this was a

> horrible day for me. I went through about a month of mourning - I

> felt like I had lost my darling baby girl, who has always been truly

> a drop of sunshine - down to her golden blonde curls! Saw

> Psychiatrist in May, and have been all over the board with dosages

> of Luvox. Currently up to 200 mg/day. Psychiatrist said she may

> start her on Risperdal next week in addition to the Luvox. I have

> been through so much with her, seeing her true OCD (she doesn't talk

> to anyone about it but me & her dad, and my mother [her

> grandmother]) She has a lot of obsessions that center on God & the

> devil (Scrupulosity?) also, has started worrying about ghosts being

> around her (because she said sometimes she feels really cold)

> (tactile hallucinations or just a coincidence?)

> It is so hard trying to explain this to other people. They think

> she can " just stop worrying. " Her psychiatrist has referred us to

> a therapist for CBT in addition to the meds. Hopefully this will

> help.

> Anyway, didn't mean to ramble, just glad to have people to talk to

> that understand. Any advice you have that may be helpful if always

> welcome. Thank you so much for being here! It means so much to

> have a place to go that I don't have to worry about people being

> judgmental!

> Sincerely,

>

>

[Guest guest]

Welcome, . Glad you are here. It sounds like you are on the

right track. When you talk to the therapist, make sure they do ERP

(exposure and response prevention), that is especially important.

They need to be exposed to the things OCD is demanding they do, so

that they can fight it and become desensitized to it. We have noticed

a big improvement with our son's rituals since we started exposure

therapy. It can be hard to find someone who knows what they are doing

with it, so hopefully the therapist you were referred to will know it.

Learning how to fight OCD and boss it back, will give your daughter

life long tools to use to keep control over her OCD.

Our son deals with physical rituals and intrusive thoughts, which

includes scrupulosity. He was diagnosed at 7 and is now 15. We've

gone through good times and bad as it waxes and wanes. He had a HUGE

relapse this year and it took us months to get it under control (still

have some bad days here and there), but it's worth the fight, because

he's come a long way from being on our sofa, white-faced, in the fetal

position, not eating or sleeping, or even communicating for the most

part.

You'll find people who understand here who are very supportive. And

people who've been through what you are going through who have great

advice. Again, welcome.

BJ

>

> Hi everyone!

> I am the mother of a 9 year old daughter who was recently (in May)

> diagnosed with Moderate - Severe OCD. Symptoms started around

> September '06 (minor things just enough to make me raise an eyebrow

> at the time - counting that she couldn't stop [she would say " I

> can't get these stinking numbers out of my head] touching her thumbs

> to her fingers over & over, etc), then this past March, the flood

> gates came down. I was in denial trying to " hope it would pass " .

> Of course it didn't. Took her to her pediatrician, who referred her

> to a child psychiatrist. As you all already know, this was a

> horrible day for me. I went through about a month of mourning - I

> felt like I had lost my darling baby girl, who has always been truly

> a drop of sunshine - down to her golden blonde curls! Saw

> Psychiatrist in May, and have been all over the board with dosages

> of Luvox. Currently up to 200 mg/day. Psychiatrist said she may

> start her on Risperdal next week in addition to the Luvox. I have

> been through so much with her, seeing her true OCD (she doesn't talk

> to anyone about it but me & her dad, and my mother [her

> grandmother]) She has a lot of obsessions that center on God & the

> devil (Scrupulosity?) also, has started worrying about ghosts being

> around her (because she said sometimes she feels really cold)

> (tactile hallucinations or just a coincidence?)

> It is so hard trying to explain this to other people. They think

> she can " just stop worrying. " Her psychiatrist has referred us to

> a therapist for CBT in addition to the meds. Hopefully this will

> help.

> Anyway, didn't mean to ramble, just glad to have people to talk to

> that understand. Any advice you have that may be helpful if always

> welcome. Thank you so much for being here! It means so much to

> have a place to go that I don't have to worry about people being

> judgmental!

> Sincerely,

>

>

[Guest guest]

BJ,

Thanks for your encouragement! I so hope she have success with it!

I am looking forward to getting her in to see the therapist. Hoping

it won't take too long to see results. Meds have helped a good bit,

but she's still having breakdowns occasionally to the point of

crying. Can't wait 'til she can " boss back OCD " .

Blessings,

in GA

In , " svdbyhislove " <BJClosner@...>

wrote:

>

> Welcome, . Glad you are here. It sounds like you are on the

> right track. When you talk to the therapist, make sure they do ERP

> (exposure and response prevention), that is especially important.

> They need to be exposed to the things OCD is demanding they do, so

> that they can fight it and become desensitized to it. We have

noticed

> a big improvement with our son's rituals since we started exposure

> therapy. It can be hard to find someone who knows what they are

doing

> with it, so hopefully the therapist you were referred to will know

it.

> Learning how to fight OCD and boss it back, will give your

daughter

> life long tools to use to keep control over her OCD.

>

> Our son deals with physical rituals and intrusive thoughts, which

> includes scrupulosity. He was diagnosed at 7 and is now 15. We've

> gone through good times and bad as it waxes and wanes. He had a

HUGE

> relapse this year and it took us months to get it under control

(still

> have some bad days here and there), but it's worth the fight,

because

> he's come a long way from being on our sofa, white-faced, in the

fetal

> position, not eating or sleeping, or even communicating for the

most

> part.

>

> You'll find people who understand here who are very supportive.

And

> people who've been through what you are going through who have

great

> advice. Again, welcome.

>

> BJ

>

>

> >

> > Hi everyone!

> > I am the mother of a 9 year old daughter who was recently (in

May)

> > diagnosed with Moderate - Severe OCD. Symptoms started around

> > September '06 (minor things just enough to make me raise an

eyebrow

> > at the time - counting that she couldn't stop [she would say " I

> > can't get these stinking numbers out of my head] touching her

thumbs

> > to her fingers over & over, etc), then this past March, the

flood

> > gates came down. I was in denial trying to " hope it would

pass " .

> > Of course it didn't. Took her to her pediatrician, who referred

her

> > to a child psychiatrist. As you all already know, this was a

> > horrible day for me. I went through about a month of mourning -

I

> > felt like I had lost my darling baby girl, who has always been

truly

> > a drop of sunshine - down to her golden blonde curls! Saw

> > Psychiatrist in May, and have been all over the board with

dosages

> > of Luvox. Currently up to 200 mg/day. Psychiatrist said she

may

> > start her on Risperdal next week in addition to the Luvox. I

have

> > been through so much with her, seeing her true OCD (she doesn't

talk

> > to anyone about it but me & her dad, and my mother [her

> > grandmother]) She has a lot of obsessions that center on God &

the

> > devil (Scrupulosity?) also, has started worrying about ghosts

being

> > around her (because she said sometimes she feels really cold)

> > (tactile hallucinations or just a coincidence?)

> > It is so hard trying to explain this to other people. They

think

> > she can " just stop worrying. " Her psychiatrist has referred us

to

> > a therapist for CBT in addition to the meds. Hopefully this

will

> > help.

> > Anyway, didn't mean to ramble, just glad to have people to talk

to

> > that understand. Any advice you have that may be helpful if

always

> > welcome. Thank you so much for being here! It means so much to

> > have a place to go that I don't have to worry about people being

> > judgmental!

> > Sincerely,

> >

> >

>

[Guest guest]

BJ,

Thanks for your encouragement! I so hope she have success with it!

I am looking forward to getting her in to see the therapist. Hoping

it won't take too long to see results. Meds have helped a good bit,

but she's still having breakdowns occasionally to the point of

crying. Can't wait 'til she can " boss back OCD " .

Blessings,

in GA

In , " svdbyhislove " <BJClosner@...>

wrote:

>

> Welcome, . Glad you are here. It sounds like you are on the

> right track. When you talk to the therapist, make sure they do ERP

> (exposure and response prevention), that is especially important.

> They need to be exposed to the things OCD is demanding they do, so

> that they can fight it and become desensitized to it. We have

noticed

> a big improvement with our son's rituals since we started exposure

> therapy. It can be hard to find someone who knows what they are

doing

> with it, so hopefully the therapist you were referred to will know

it.

> Learning how to fight OCD and boss it back, will give your

daughter

> life long tools to use to keep control over her OCD.

>

> Our son deals with physical rituals and intrusive thoughts, which

> includes scrupulosity. He was diagnosed at 7 and is now 15. We've

> gone through good times and bad as it waxes and wanes. He had a

HUGE

> relapse this year and it took us months to get it under control

(still

> have some bad days here and there), but it's worth the fight,

because

> he's come a long way from being on our sofa, white-faced, in the

fetal

> position, not eating or sleeping, or even communicating for the

most

> part.

>

> You'll find people who understand here who are very supportive.

And

> people who've been through what you are going through who have

great

> advice. Again, welcome.

>

> BJ

>

>

> >

> > Hi everyone!

> > I am the mother of a 9 year old daughter who was recently (in

May)

> > diagnosed with Moderate - Severe OCD. Symptoms started around

> > September '06 (minor things just enough to make me raise an

eyebrow

> > at the time - counting that she couldn't stop [she would say " I

> > can't get these stinking numbers out of my head] touching her

thumbs

> > to her fingers over & over, etc), then this past March, the

flood

> > gates came down. I was in denial trying to " hope it would

pass " .

> > Of course it didn't. Took her to her pediatrician, who referred

her

> > to a child psychiatrist. As you all already know, this was a

> > horrible day for me. I went through about a month of mourning -

I

> > felt like I had lost my darling baby girl, who has always been

truly

> > a drop of sunshine - down to her golden blonde curls! Saw

> > Psychiatrist in May, and have been all over the board with

dosages

> > of Luvox. Currently up to 200 mg/day. Psychiatrist said she

may

> > start her on Risperdal next week in addition to the Luvox. I

have

> > been through so much with her, seeing her true OCD (she doesn't

talk

> > to anyone about it but me & her dad, and my mother [her

> > grandmother]) She has a lot of obsessions that center on God &

the

> > devil (Scrupulosity?) also, has started worrying about ghosts

being

> > around her (because she said sometimes she feels really cold)

> > (tactile hallucinations or just a coincidence?)

> > It is so hard trying to explain this to other people. They

think

> > she can " just stop worrying. " Her psychiatrist has referred us

to

> > a therapist for CBT in addition to the meds. Hopefully this

will

> > help.

> > Anyway, didn't mean to ramble, just glad to have people to talk

to

> > that understand. Any advice you have that may be helpful if

always

> > welcome. Thank you so much for being here! It means so much to

> > have a place to go that I don't have to worry about people being

> > judgmental!

> > Sincerely,

> >

> >

>

[Guest guest]

,

Thanks for your encouragement! Every now and then, I sort of find

myself laughing at her - not in a mean spirited way, but sometimes

it's either laugh or cry! The other day, I walked by her bathroom,

and she was scrubbed with soap bubbles to up above her elbows. I

asked her what she was doing, she said she had seen a spider, and

was afraid it was on her. I don't know why I laughed at her, but at

the time, it just seemed funny (again, either laugh or cry! )

Looking forward to the relief that CBT will (hopefully!!!) bring!

Not sure what to do about school starting - do I tell her teacher or

not? Don't want her teacher to be biased against Makayla, but I

also don't want her to get into trouble if she has a bad day. (But

is pretty good at controling it at school, but has serious melt

downs when she gets home. It's tears from the time she gets home

until she goes to bed). Psychiatrist said to not tell the teacher.

If OCD becomes an issue at school, then schedule a conference.

What do you do about school? I homeschooled her for her 1st grade

year (not because of any problems, just wanted to spend more time

with her!) (she's now going into 4th grade). I loved it.

Considered doing it again, but Not sure what's best for her.

Thanks for your help and listening ear! Blessings to you and your

family.

Sincerely,

in GA

> >

> > Hi everyone!

> > I am the mother of a 9 year old daughter who was recently (in

May)

> > diagnosed with Moderate - Severe OCD. Symptoms started around

> > September '06 (minor things just enough to make me raise an

eyebrow

> > at the time - counting that she couldn't stop [she would say " I

> > can't get these stinking numbers out of my head] touching her

> thumbs

> > to her fingers over & over, etc), then this past March, the

flood

> > gates came down. I was in denial trying to " hope it would

pass " .

> > Of course it didn't. Took her to her pediatrician, who referred

> her

> > to a child psychiatrist. As you all already know, this was a

> > horrible day for me. I went through about a month of mourning -

I

> > felt like I had lost my darling baby girl, who has always been

> truly

> > a drop of sunshine - down to her golden blonde curls! Saw

> > Psychiatrist in May, and have been all over the board with

dosages

> > of Luvox. Currently up to 200 mg/day. Psychiatrist said she

may

> > start her on Risperdal next week in addition to the Luvox. I

have

> > been through so much with her, seeing her true OCD (she doesn't

> talk

> > to anyone about it but me & her dad, and my mother [her

> > grandmother]) She has a lot of obsessions that center on God &

the

> > devil (Scrupulosity?) also, has started worrying about ghosts

being

> > around her (because she said sometimes she feels really cold)

> > (tactile hallucinations or just a coincidence?)

> > It is so hard trying to explain this to other people. They

think

> > she can " just stop worrying. " Her psychiatrist has referred us

to

> > a therapist for CBT in addition to the meds. Hopefully this

will

> > help.

> > Anyway, didn't mean to ramble, just glad to have people to talk

to

> > that understand. Any advice you have that may be helpful if

always

> > welcome. Thank you so much for being here! It means so much to

> > have a place to go that I don't have to worry about people being

> > judgmental!

> > Sincerely,

> >

> >

>