Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 Stacey, We've dealt with chronic constipation since about 3 mths old - he's almost 7 yrs old. Although lately, +/- 6 mths, it's been better. We did the Glycolax (Mirolax) for almost two years. It's not good to be on it that long. The body gets lazy and can't go on it's own. but - doctors orders. An ultrasound can indicate blockage as we found out during a renal ultrasound. Just as a side note the Urologist said, " your son is constipated " . A simple x-ray can show a blockage also. They aren't nearly as uncomfortable as a colonoscopy. It's also my understanding that they can indicate kinks. The ER doctor told me that there were not any areas of concern for blockage and walked me through the whole x-ray. It made me cry. He was full of it, literally. One thing that has helped is antibiotics. That was stumbled onto accidentally during a strep episode last spring break. After two full weeks of high dose antibiotics, there was no constipation and the bowel movements were normal for several months. Since then I've gotten one other round of antibiotics for him. Augmenten works the best. I've given him one dose of twice in the past 6 months. Also, he eats two or three of the danactive yogurts, and sometimes one of the breakstone's cottage cheese, and a danactive every day. I keep him away from hard cheese and foods that are gassy - only occassionally let him have broccolli, etc. and make sure that he has lots of fruit and veggies and water every day. I also give him apple juice and cranberry juice in his water with supper because they seem to help a little bit as well. No greasy foods, no junk foods, no cokes. I've mentioned it before... I think the whole digestive tract is a little out of sync just like the brain is. It works, it just works a little differently and we have to figure out the food formula to make it work better. Most of the doctors that we've seen say they don't think it's related to the autism because most of the autistic patients they see have chronic diarrhea. I've been told that he just gets preoccupied and doesn't want to go, I've been told that it's his only way of controlling his life, I think maybe some of both and some of other things as well. He's been walking on his own for less than a year and only the past several months reaching and climbing which I think the stretching has helped with his movements. If you aren't into the food thing already, I would really urge you to look into some simple diet changes to see if will help. Good Luck. all4cam@... wrote: Thanks Tonya and everyone else, Lot's to think about and ask the doc at our visit this week. Thank you, Stacey Date: 2007/09/01 Sat PM 04:20:06 CDT To: Texas-Autism-Advocacy Subject: RE: Colonoscopy? My experience with colonoscopy is with adults, not children. That said, I've know of them showing things like blockage or polyps. My GUESS is that they could also show a narrowing or a twist if one was there. Don't know what else they could show. Tonya From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Stacey Sent: Saturday, September 01, 2007 4:13 PM To: Texas-Autism-Advocacy Subject: Colonoscopy? Hello all, I'm hoping to get some feedback on colonoscopy. My son is 10yrs old ,autistic. Lately he's been suffering with chronic constipation.He can go days at a time before I have to intervene (enema).I took him to the G.I doc and he suggested miralax to get him regular.We have an appt coming up and I want to discuss having another endoscopy and his first colonoscopy.My son has very bad pain and no history of having chronic constipation or anything else. I don't want to have him scoped again (had endoscopy 2yrs ago for reflux) but I can't assume that everything is ok. What medically could possibly be the reason for chronic constipation? Then Im thinking if I get the colonoscopy done will it answer why ? Any input would be greatly appreciated. Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 Stacey, We've dealt with chronic constipation since about 3 mths old - he's almost 7 yrs old. Although lately, +/- 6 mths, it's been better. We did the Glycolax (Mirolax) for almost two years. It's not good to be on it that long. The body gets lazy and can't go on it's own. but - doctors orders. An ultrasound can indicate blockage as we found out during a renal ultrasound. Just as a side note the Urologist said, " your son is constipated " . A simple x-ray can show a blockage also. They aren't nearly as uncomfortable as a colonoscopy. It's also my understanding that they can indicate kinks. The ER doctor told me that there were not any areas of concern for blockage and walked me through the whole x-ray. It made me cry. He was full of it, literally. One thing that has helped is antibiotics. That was stumbled onto accidentally during a strep episode last spring break. After two full weeks of high dose antibiotics, there was no constipation and the bowel movements were normal for several months. Since then I've gotten one other round of antibiotics for him. Augmenten works the best. I've given him one dose of twice in the past 6 months. Also, he eats two or three of the danactive yogurts, and sometimes one of the breakstone's cottage cheese, and a danactive every day. I keep him away from hard cheese and foods that are gassy - only occassionally let him have broccolli, etc. and make sure that he has lots of fruit and veggies and water every day. I also give him apple juice and cranberry juice in his water with supper because they seem to help a little bit as well. No greasy foods, no junk foods, no cokes. I've mentioned it before... I think the whole digestive tract is a little out of sync just like the brain is. It works, it just works a little differently and we have to figure out the food formula to make it work better. Most of the doctors that we've seen say they don't think it's related to the autism because most of the autistic patients they see have chronic diarrhea. I've been told that he just gets preoccupied and doesn't want to go, I've been told that it's his only way of controlling his life, I think maybe some of both and some of other things as well. He's been walking on his own for less than a year and only the past several months reaching and climbing which I think the stretching has helped with his movements. If you aren't into the food thing already, I would really urge you to look into some simple diet changes to see if will help. Good Luck. all4cam@... wrote: Thanks Tonya and everyone else, Lot's to think about and ask the doc at our visit this week. Thank you, Stacey Date: 2007/09/01 Sat PM 04:20:06 CDT To: Texas-Autism-Advocacy Subject: RE: Colonoscopy? My experience with colonoscopy is with adults, not children. That said, I've know of them showing things like blockage or polyps. My GUESS is that they could also show a narrowing or a twist if one was there. Don't know what else they could show. Tonya From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Stacey Sent: Saturday, September 01, 2007 4:13 PM To: Texas-Autism-Advocacy Subject: Colonoscopy? Hello all, I'm hoping to get some feedback on colonoscopy. My son is 10yrs old ,autistic. Lately he's been suffering with chronic constipation.He can go days at a time before I have to intervene (enema).I took him to the G.I doc and he suggested miralax to get him regular.We have an appt coming up and I want to discuss having another endoscopy and his first colonoscopy.My son has very bad pain and no history of having chronic constipation or anything else. I don't want to have him scoped again (had endoscopy 2yrs ago for reflux) but I can't assume that everything is ok. What medically could possibly be the reason for chronic constipation? Then Im thinking if I get the colonoscopy done will it answer why ? Any input would be greatly appreciated. Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 Stacey, We've dealt with chronic constipation since about 3 mths old - he's almost 7 yrs old. Although lately, +/- 6 mths, it's been better. We did the Glycolax (Mirolax) for almost two years. It's not good to be on it that long. The body gets lazy and can't go on it's own. but - doctors orders. An ultrasound can indicate blockage as we found out during a renal ultrasound. Just as a side note the Urologist said, " your son is constipated " . A simple x-ray can show a blockage also. They aren't nearly as uncomfortable as a colonoscopy. It's also my understanding that they can indicate kinks. The ER doctor told me that there were not any areas of concern for blockage and walked me through the whole x-ray. It made me cry. He was full of it, literally. One thing that has helped is antibiotics. That was stumbled onto accidentally during a strep episode last spring break. After two full weeks of high dose antibiotics, there was no constipation and the bowel movements were normal for several months. Since then I've gotten one other round of antibiotics for him. Augmenten works the best. I've given him one dose of twice in the past 6 months. Also, he eats two or three of the danactive yogurts, and sometimes one of the breakstone's cottage cheese, and a danactive every day. I keep him away from hard cheese and foods that are gassy - only occassionally let him have broccolli, etc. and make sure that he has lots of fruit and veggies and water every day. I also give him apple juice and cranberry juice in his water with supper because they seem to help a little bit as well. No greasy foods, no junk foods, no cokes. I've mentioned it before... I think the whole digestive tract is a little out of sync just like the brain is. It works, it just works a little differently and we have to figure out the food formula to make it work better. Most of the doctors that we've seen say they don't think it's related to the autism because most of the autistic patients they see have chronic diarrhea. I've been told that he just gets preoccupied and doesn't want to go, I've been told that it's his only way of controlling his life, I think maybe some of both and some of other things as well. He's been walking on his own for less than a year and only the past several months reaching and climbing which I think the stretching has helped with his movements. If you aren't into the food thing already, I would really urge you to look into some simple diet changes to see if will help. Good Luck. all4cam@... wrote: Thanks Tonya and everyone else, Lot's to think about and ask the doc at our visit this week. Thank you, Stacey Date: 2007/09/01 Sat PM 04:20:06 CDT To: Texas-Autism-Advocacy Subject: RE: Colonoscopy? My experience with colonoscopy is with adults, not children. That said, I've know of them showing things like blockage or polyps. My GUESS is that they could also show a narrowing or a twist if one was there. Don't know what else they could show. Tonya From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Stacey Sent: Saturday, September 01, 2007 4:13 PM To: Texas-Autism-Advocacy Subject: Colonoscopy? Hello all, I'm hoping to get some feedback on colonoscopy. My son is 10yrs old ,autistic. Lately he's been suffering with chronic constipation.He can go days at a time before I have to intervene (enema).I took him to the G.I doc and he suggested miralax to get him regular.We have an appt coming up and I want to discuss having another endoscopy and his first colonoscopy.My son has very bad pain and no history of having chronic constipation or anything else. I don't want to have him scoped again (had endoscopy 2yrs ago for reflux) but I can't assume that everything is ok. What medically could possibly be the reason for chronic constipation? Then Im thinking if I get the colonoscopy done will it answer why ? Any input would be greatly appreciated. Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2007 Report Share Posted September 2, 2007 My son has been chronically constipated since he was 1 year old. He drinks minimum of 6-8 cups of fluids daily. His constipation preceded his onset of Autism between 15 and 18 months old. Prior to that he had regular BMs. I also nursed him until he was 26 months old. We are getting ready to get him scoped with Dr. Krigsman at Thoughtful House in Austin for several reasons one of which ofcourse his constipation. He was on Miralax for 1.5 years, but it is unacceptable to me to be on medication all his life without finding the reason for his constipation. Re: Colonoscopy? > > > > Both of my kids have had at least one if not more colonoscopies. My son > was young...about 4...and had blood in his stool. Turned out he had > both polyps and lymphoid hyperplasia. > > My daughter has chronic constipation. When she had her colonoscopy, > there really wasn't a medical issue anyone could pinpoint as a cause > EXCEPT that she has really weak and poorly coordinated muscles in her > abdomen, causing her to have problems with muscle control required to > push and empty. (sorry to be graphic) > > She ended up with some physical therapy and biofeedback bowel > retraining (about 4 series of sessions...for most people it just takes > one series of sessions) and keeping her on stool softener for years and > years. That took care of the problem and those additional problems that > were caused from the chronic constipation. (bladder issues and > infections) > > Chronic constipation is really not that uncommon for these kids as well > as for kids with cerebral palsy. > > nna > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2007 Report Share Posted September 2, 2007 & , I really appreciate your thoughts and sharing your experiences with me.I have noticed that my son suddenly doesn;t love drinking water the way he always has.So that could be a factor as well. I've actually started making him tea,ice tea and he'll drink that so thats better than none.And ,I completely agree about the miralax..I don't want him to be dependent on that because he shouldn't be on it for a long period of time.I hope we both find the cause of our children's discomfort. Good luck to you! Stacey Date: 2007/09/02 Sun PM 12:59:50 CDT To: Texas-Autism-Advocacy Subject: Re: Colonoscopy? My son has been chronically constipated since he was 1 year old. He drinks minimum of 6-8 cups of fluids daily. His constipation preceded his onset of Autism between 15 and 18 months old. Prior to that he had regular BMs. I also nursed him until he was 26 months old. We are getting ready to get him scoped with Dr. Krigsman at Thoughtful House in Austin for several reasons one of which ofcourse his constipation. He was on Miralax for 1.5 years, but it is unacceptable to me to be on medication all his life without finding the reason for his constipation. Re: Colonoscopy? > > > > Both of my kids have had at least one if not more colonoscopies. My son > was young...about 4...and had blood in his stool. Turned out he had > both polyps and lymphoid hyperplasia. > > My daughter has chronic constipation. When she had her colonoscopy, > there really wasn't a medical issue anyone could pinpoint as a cause > EXCEPT that she has really weak and poorly coordinated muscles in her > abdomen, causing her to have problems with muscle control required to > push and empty. (sorry to be graphic) > > She ended up with some physical therapy and biofeedback bowel > retraining (about 4 series of sessions...for most people it just takes > one series of sessions) and keeping her on stool softener for years and > years. That took care of the problem and those additional problems that > were caused from the chronic constipation. (bladder issues and > infections) > > Chronic constipation is really not that uncommon for these kids as well > as for kids with cerebral palsy. > > nna > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2007 Report Share Posted September 2, 2007 Miralax has pretty harmful effects on behavior in some kids with autism. I don't remember the exact mechanism (I heard an autism researcher by the name of Owens explain it a couple of times). I can probably dig it up from my files. I have also personally seen the negative effect at work with some children. There is a natural alternative called Oxypowder that I hear being discussed on biomedical lists that many parents like (I have never tried it with me or my son as his problems usually go in the other extreme). Here is the website in case you want to check it out: http://www.oxypowder.com/ Some suplements that can be helpful for constipation; Magnesium, Vitamin C and fiber Nagla (who is NOT a doctor or nutritionist, and I don't play one on TV either. Just a person who reads a lot of biomedical information). Nagla Hello all, > > I'm hoping to get some feedback on colonoscopy. My son is 10yrs > old ,autistic. Lately he's been suffering with chronic constipation.He > can go days at a time before I have to intervene (enema).I took him to > the G.I doc and he suggested miralax to get him regular.We have an appt > coming up and I want to discuss having another endoscopy and his first > colonoscopy.My son has very bad pain and no history of having chronic > constipation or anything else. I don't want to have him scoped again > (had endoscopy 2yrs ago for reflux) but I can't assume that everything > is ok. What medically could possibly be the reason for chronic > constipation? Then Im thinking if I get the colonoscopy done will it > answer why ? Any input would be greatly appreciated. > > Stacey > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2007 Report Share Posted September 2, 2007 Food allergies and food intolerances can have this effect. For my son it was the opposite of constipation and it was due to gluten and casein intolerance. Once we did a gluten free. casein free diet, his problem was resolved. From my limited understanding, constipation is usually associated with dairy intolerance. You might want to do a food allergy test and try to figure out what is causing him problems. Just some suggestions. Nagla > > Hello all, > > I'm hoping to get some feedback on colonoscopy. My son is 10yrs > old ,autistic. Lately he's been suffering with chronic constipation.He > can go days at a time before I have to intervene (enema).I took him to > the G.I doc and he suggested miralax to get him regular.We have an appt > coming up and I want to discuss having another endoscopy and his first > colonoscopy.My son has very bad pain and no history of having chronic > constipation or anything else. I don't want to have him scoped again > (had endoscopy 2yrs ago for reflux) but I can't assume that everything > is ok. What medically could possibly be the reason for chronic > constipation? Then Im thinking if I get the colonoscopy done will it > answer why ? Any input would be greatly appreciated. > > Stacey > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2007 Report Share Posted September 2, 2007 (LOL!!!) asccnagla wrote: Miralax has pretty harmful effects on behavior in some kids with autism. I don't remember the exact mechanism (I heard an autism researcher by the name of Owens explain it a couple of times). I can probably dig it up from my files. I have also personally seen the negative effect at work with some children. There is a natural alternative called Oxypowder that I hear being discussed on biomedical lists that many parents like (I have never tried it with me or my son as his problems usually go in the other extreme). Here is the website in case you want to check it out: http://www.oxypowder.com/ Some suplements that can be helpful for constipation; Magnesium, Vitamin C and fiber Nagla (who is NOT a doctor or nutritionist, and I don't play one on TV either. Just a person who reads a lot of biomedical information). Nagla Hello all, > > I'm hoping to get some feedback on colonoscopy. My son is 10yrs > old ,autistic. Lately he's been suffering with chronic constipation.He > can go days at a time before I have to intervene (enema).I took him to > the G.I doc and he suggested miralax to get him regular.We have an appt > coming up and I want to discuss having another endoscopy and his first > colonoscopy.My son has very bad pain and no history of having chronic > constipation or anything else. I don't want to have him scoped again > (had endoscopy 2yrs ago for reflux) but I can't assume that everything > is ok. What medically could possibly be the reason for chronic > constipation? Then Im thinking if I get the colonoscopy done will it > answer why ? Any input would be greatly appreciated. > > Stacey > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2007 Report Share Posted September 2, 2007 (LOL!!!) asccnagla wrote: Miralax has pretty harmful effects on behavior in some kids with autism. I don't remember the exact mechanism (I heard an autism researcher by the name of Owens explain it a couple of times). I can probably dig it up from my files. I have also personally seen the negative effect at work with some children. There is a natural alternative called Oxypowder that I hear being discussed on biomedical lists that many parents like (I have never tried it with me or my son as his problems usually go in the other extreme). Here is the website in case you want to check it out: http://www.oxypowder.com/ Some suplements that can be helpful for constipation; Magnesium, Vitamin C and fiber Nagla (who is NOT a doctor or nutritionist, and I don't play one on TV either. Just a person who reads a lot of biomedical information). Nagla Hello all, > > I'm hoping to get some feedback on colonoscopy. My son is 10yrs > old ,autistic. Lately he's been suffering with chronic constipation.He > can go days at a time before I have to intervene (enema).I took him to > the G.I doc and he suggested miralax to get him regular.We have an appt > coming up and I want to discuss having another endoscopy and his first > colonoscopy.My son has very bad pain and no history of having chronic > constipation or anything else. I don't want to have him scoped again > (had endoscopy 2yrs ago for reflux) but I can't assume that everything > is ok. What medically could possibly be the reason for chronic > constipation? Then Im thinking if I get the colonoscopy done will it > answer why ? Any input would be greatly appreciated. > > Stacey > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 I have an 11 year old son who has suffered with all of the mentioned issues. In the last 1 1/2 years we have seen a naturopath who has treated him for allergies to various foods, environmental, etc. triggers. We have been recently introduced to another naturopath who uses the protocol of Dr. Bob Marshall and his Premier Research Labs products (out of Round Rock, TX). While these treatments have never been covered by our insurance and have been very costly, we have seen remarkable results in our son. We are working on gut issues and restoring neurotransmitter health right now, so I can't yet tell you the outcome. However, we are pleased with the amazing progress in speech and social interest our son has developed in this short time. While there may be " medical " tests & treatments that identify problems in our children's bodies and treat those particular symptoms; I would rather treat the core causes to attain long term results. I have often beat myself up for not trying specific treatments as I learned about them just to see if they would work, but I have also realized that the things we have done have tremendously improved his quality of life. The choices that we have made on which treatments to try have not been the easiest, quickest, or least expensive. Honestly, I have mulled them over until the cows came home, but each time the results have been worth it. You may have already tried the nutritional route, but you could start with something simple like cod liver oil (we use Nordic Naturals ProOmega pills) and see if they make any improvement before you get the colonoscopy. Chances are good that you would have time to try something like this while you are waiting for the colonoscopy appointment. If it works, then you may not have to go through the colonoscopy experience. Otherwise, Nalga and have offered the best suggestions. White flour (gluten) and white sugar do terrible things to our bodies. Most cancers, parasites, viruses, and bacteria feed on white sugar and white flour. Without the sugar / flour in our bodies for the various infecting agents to feed off of and flourish, the culprit will die off and our children's body can eliminate them naturally. In our kiddos, most of this terrible stuff happens in their gut and causes the constipation, diarreah, pain, etc. Best of luck to you and you child's belly! Blessings, Yianna > > > > Hello all, > > > > I'm hoping to get some feedback on colonoscopy. My son is 10yrs > > old ,autistic. Lately he's been suffering with chronic > constipation.He > > can go days at a time before I have to intervene (enema).I took him > to > > the G.I doc and he suggested miralax to get him regular.We have an > appt > > coming up and I want to discuss having another endoscopy and his > first > > colonoscopy.My son has very bad pain and no history of having > chronic > > constipation or anything else. I don't want to have him scoped > again > > (had endoscopy 2yrs ago for reflux) but I can't assume that > everything > > is ok. What medically could possibly be the reason for chronic > > constipation? Then Im thinking if I get the colonoscopy done will > it > > answer why ? Any input would be greatly appreciated. > > > > Stacey > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 I have an 11 year old son who has suffered with all of the mentioned issues. In the last 1 1/2 years we have seen a naturopath who has treated him for allergies to various foods, environmental, etc. triggers. We have been recently introduced to another naturopath who uses the protocol of Dr. Bob Marshall and his Premier Research Labs products (out of Round Rock, TX). While these treatments have never been covered by our insurance and have been very costly, we have seen remarkable results in our son. We are working on gut issues and restoring neurotransmitter health right now, so I can't yet tell you the outcome. However, we are pleased with the amazing progress in speech and social interest our son has developed in this short time. While there may be " medical " tests & treatments that identify problems in our children's bodies and treat those particular symptoms; I would rather treat the core causes to attain long term results. I have often beat myself up for not trying specific treatments as I learned about them just to see if they would work, but I have also realized that the things we have done have tremendously improved his quality of life. The choices that we have made on which treatments to try have not been the easiest, quickest, or least expensive. Honestly, I have mulled them over until the cows came home, but each time the results have been worth it. You may have already tried the nutritional route, but you could start with something simple like cod liver oil (we use Nordic Naturals ProOmega pills) and see if they make any improvement before you get the colonoscopy. Chances are good that you would have time to try something like this while you are waiting for the colonoscopy appointment. If it works, then you may not have to go through the colonoscopy experience. Otherwise, Nalga and have offered the best suggestions. White flour (gluten) and white sugar do terrible things to our bodies. Most cancers, parasites, viruses, and bacteria feed on white sugar and white flour. Without the sugar / flour in our bodies for the various infecting agents to feed off of and flourish, the culprit will die off and our children's body can eliminate them naturally. In our kiddos, most of this terrible stuff happens in their gut and causes the constipation, diarreah, pain, etc. Best of luck to you and you child's belly! Blessings, Yianna > > > > Hello all, > > > > I'm hoping to get some feedback on colonoscopy. My son is 10yrs > > old ,autistic. Lately he's been suffering with chronic > constipation.He > > can go days at a time before I have to intervene (enema).I took him > to > > the G.I doc and he suggested miralax to get him regular.We have an > appt > > coming up and I want to discuss having another endoscopy and his > first > > colonoscopy.My son has very bad pain and no history of having > chronic > > constipation or anything else. I don't want to have him scoped > again > > (had endoscopy 2yrs ago for reflux) but I can't assume that > everything > > is ok. What medically could possibly be the reason for chronic > > constipation? Then Im thinking if I get the colonoscopy done will > it > > answer why ? Any input would be greatly appreciated. > > > > Stacey > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 I have an 11 year old son who has suffered with all of the mentioned issues. In the last 1 1/2 years we have seen a naturopath who has treated him for allergies to various foods, environmental, etc. triggers. We have been recently introduced to another naturopath who uses the protocol of Dr. Bob Marshall and his Premier Research Labs products (out of Round Rock, TX). While these treatments have never been covered by our insurance and have been very costly, we have seen remarkable results in our son. We are working on gut issues and restoring neurotransmitter health right now, so I can't yet tell you the outcome. However, we are pleased with the amazing progress in speech and social interest our son has developed in this short time. While there may be " medical " tests & treatments that identify problems in our children's bodies and treat those particular symptoms; I would rather treat the core causes to attain long term results. I have often beat myself up for not trying specific treatments as I learned about them just to see if they would work, but I have also realized that the things we have done have tremendously improved his quality of life. The choices that we have made on which treatments to try have not been the easiest, quickest, or least expensive. Honestly, I have mulled them over until the cows came home, but each time the results have been worth it. You may have already tried the nutritional route, but you could start with something simple like cod liver oil (we use Nordic Naturals ProOmega pills) and see if they make any improvement before you get the colonoscopy. Chances are good that you would have time to try something like this while you are waiting for the colonoscopy appointment. If it works, then you may not have to go through the colonoscopy experience. Otherwise, Nalga and have offered the best suggestions. White flour (gluten) and white sugar do terrible things to our bodies. Most cancers, parasites, viruses, and bacteria feed on white sugar and white flour. Without the sugar / flour in our bodies for the various infecting agents to feed off of and flourish, the culprit will die off and our children's body can eliminate them naturally. In our kiddos, most of this terrible stuff happens in their gut and causes the constipation, diarreah, pain, etc. Best of luck to you and you child's belly! Blessings, Yianna > > > > Hello all, > > > > I'm hoping to get some feedback on colonoscopy. My son is 10yrs > > old ,autistic. Lately he's been suffering with chronic > constipation.He > > can go days at a time before I have to intervene (enema).I took him > to > > the G.I doc and he suggested miralax to get him regular.We have an > appt > > coming up and I want to discuss having another endoscopy and his > first > > colonoscopy.My son has very bad pain and no history of having > chronic > > constipation or anything else. I don't want to have him scoped > again > > (had endoscopy 2yrs ago for reflux) but I can't assume that > everything > > is ok. What medically could possibly be the reason for chronic > > constipation? Then Im thinking if I get the colonoscopy done will > it > > answer why ? Any input would be greatly appreciated. > > > > Stacey > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Yianna, Yes,so many good suggestions and tips which I am truely grateful for from all of you! I to have looked at diets and other things out there but I truely just want to deal with the core issue and if I can do that without meds or invasive proceedures (Enema's are a nightmare!)or even colonoscopy then I have to do that for my son. We saw the G.I. doc today and he's very conservative and takes his time assessing the situation and we have a fantastic communicative relationship so he shared with me some " red flags " that would warrent doing a colonoscopy and we are not experiencing any of those things >Thank God. So he's doing much better now and I've noticed his " personality " coming back obviously contributed by the fact that he feels much better . I have decided to monitor this closely since he also has not had miralax for 7days now and has been having BM's without my intervention so I pray this is over. One thing that I've done is my best friend sent me some tea that she grows and he loves it and it seems as though since he's started drinking it that things have improved . I'll double check the ingredients and post it hear for others to see as well. Stacey Date: 2007/09/03 Mon AM 10:52:34 CDT To: Texas-Autism-Advocacy Subject: Re: Colonoscopy? I have an 11 year old son who has suffered with all of the mentioned issues. In the last 1 1/2 years we have seen a naturopath who has treated him for allergies to various foods, environmental, etc. triggers. We have been recently introduced to another naturopath who uses the protocol of Dr. Bob Marshall and his Premier Research Labs products (out of Round Rock, TX). While these treatments have never been covered by our insurance and have been very costly, we have seen remarkable results in our son. We are working on gut issues and restoring neurotransmitter health right now, so I can't yet tell you the outcome. However, we are pleased with the amazing progress in speech and social interest our son has developed in this short time. While there may be " medical " tests & treatments that identify problems in our children's bodies and treat those particular symptoms; I would rather treat the core causes to attain long term results. I have often beat myself up for not trying specific treatments as I learned about them just to see if they would work, but I have also realized that the things we have done have tremendously improved his quality of life. The choices that we have made on which treatments to try have not been the easiest, quickest, or least expensive. Honestly, I have mulled them over until the cows came home, but each time the results have been worth it. You may have already tried the nutritional route, but you could start with something simple like cod liver oil (we use Nordic Naturals ProOmega pills) and see if they make any improvement before you get the colonoscopy. Chances are good that you would have time to try something like this while you are waiting for the colonoscopy appointment. If it works, then you may not have to go through the colonoscopy experience. Otherwise, Nalga and have offered the best suggestions. White flour (gluten) and white sugar do terrible things to our bodies. Most cancers, parasites, viruses, and bacteria feed on white sugar and white flour. Without the sugar / flour in our bodies for the various infecting agents to feed off of and flourish, the culprit will die off and our children's body can eliminate them naturally. In our kiddos, most of this terrible stuff happens in their gut and causes the constipation, diarreah, pain, etc. Best of luck to you and you child's belly! Blessings, Yianna > > > > Hello all, > > > > I'm hoping to get some feedback on colonoscopy. My son is 10yrs > > old ,autistic. Lately he's been suffering with chronic > constipation.He > > can go days at a time before I have to intervene (enema).I took him > to > > the G.I doc and he suggested miralax to get him regular.We have an > appt > > coming up and I want to discuss having another endoscopy and his > first > > colonoscopy.My son has very bad pain and no history of having > chronic > > constipation or anything else. I don't want to have him scoped > again > > (had endoscopy 2yrs ago for reflux) but I can't assume that > everything > > is ok. What medically could possibly be the reason for chronic > > constipation? Then Im thinking if I get the colonoscopy done will > it > > answer why ? Any input would be greatly appreciated. > > > > Stacey > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Yianna, Yes,so many good suggestions and tips which I am truely grateful for from all of you! I to have looked at diets and other things out there but I truely just want to deal with the core issue and if I can do that without meds or invasive proceedures (Enema's are a nightmare!)or even colonoscopy then I have to do that for my son. We saw the G.I. doc today and he's very conservative and takes his time assessing the situation and we have a fantastic communicative relationship so he shared with me some " red flags " that would warrent doing a colonoscopy and we are not experiencing any of those things >Thank God. So he's doing much better now and I've noticed his " personality " coming back obviously contributed by the fact that he feels much better . I have decided to monitor this closely since he also has not had miralax for 7days now and has been having BM's without my intervention so I pray this is over. One thing that I've done is my best friend sent me some tea that she grows and he loves it and it seems as though since he's started drinking it that things have improved . I'll double check the ingredients and post it hear for others to see as well. Stacey Date: 2007/09/03 Mon AM 10:52:34 CDT To: Texas-Autism-Advocacy Subject: Re: Colonoscopy? I have an 11 year old son who has suffered with all of the mentioned issues. In the last 1 1/2 years we have seen a naturopath who has treated him for allergies to various foods, environmental, etc. triggers. We have been recently introduced to another naturopath who uses the protocol of Dr. Bob Marshall and his Premier Research Labs products (out of Round Rock, TX). While these treatments have never been covered by our insurance and have been very costly, we have seen remarkable results in our son. We are working on gut issues and restoring neurotransmitter health right now, so I can't yet tell you the outcome. However, we are pleased with the amazing progress in speech and social interest our son has developed in this short time. While there may be " medical " tests & treatments that identify problems in our children's bodies and treat those particular symptoms; I would rather treat the core causes to attain long term results. I have often beat myself up for not trying specific treatments as I learned about them just to see if they would work, but I have also realized that the things we have done have tremendously improved his quality of life. The choices that we have made on which treatments to try have not been the easiest, quickest, or least expensive. Honestly, I have mulled them over until the cows came home, but each time the results have been worth it. You may have already tried the nutritional route, but you could start with something simple like cod liver oil (we use Nordic Naturals ProOmega pills) and see if they make any improvement before you get the colonoscopy. Chances are good that you would have time to try something like this while you are waiting for the colonoscopy appointment. If it works, then you may not have to go through the colonoscopy experience. Otherwise, Nalga and have offered the best suggestions. White flour (gluten) and white sugar do terrible things to our bodies. Most cancers, parasites, viruses, and bacteria feed on white sugar and white flour. Without the sugar / flour in our bodies for the various infecting agents to feed off of and flourish, the culprit will die off and our children's body can eliminate them naturally. In our kiddos, most of this terrible stuff happens in their gut and causes the constipation, diarreah, pain, etc. Best of luck to you and you child's belly! Blessings, Yianna > > > > Hello all, > > > > I'm hoping to get some feedback on colonoscopy. My son is 10yrs > > old ,autistic. Lately he's been suffering with chronic > constipation.He > > can go days at a time before I have to intervene (enema).I took him > to > > the G.I doc and he suggested miralax to get him regular.We have an > appt > > coming up and I want to discuss having another endoscopy and his > first > > colonoscopy.My son has very bad pain and no history of having > chronic > > constipation or anything else. I don't want to have him scoped > again > > (had endoscopy 2yrs ago for reflux) but I can't assume that > everything > > is ok. What medically could possibly be the reason for chronic > > constipation? Then Im thinking if I get the colonoscopy done will > it > > answer why ? Any input would be greatly appreciated. > > > > Stacey > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 You might also want to consider starting your son off on pro-biotics and/or digestive enzymes which can be obtained at most vitamin stores or at Whole Foods. They may be able to help your son restore a more natural gut flora as well as aid him in digestion of foods that he may be sensitive to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 You might also want to consider starting your son off on pro-biotics and/or digestive enzymes which can be obtained at most vitamin stores or at Whole Foods. They may be able to help your son restore a more natural gut flora as well as aid him in digestion of foods that he may be sensitive to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 You might also want to consider starting your son off on pro-biotics and/or digestive enzymes which can be obtained at most vitamin stores or at Whole Foods. They may be able to help your son restore a more natural gut flora as well as aid him in digestion of foods that he may be sensitive to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 I don't know much about probiotics is it just a supplement in between meals? Is there a way to determine which type or brand is best? Stacey Date: 2007/09/05 Wed PM 09:44:28 CDT To: Texas-Autism-Advocacy Subject: Re: Colonoscopy? You might also want to consider starting your son off on pro-biotics and/or digestive enzymes which can be obtained at most vitamin stores or at Whole Foods. They may be able to help your son restore a more natural gut flora as well as aid him in digestion of foods that he may be sensitive to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 Stacey, Go to http://search.store.yahoo.com/cgi-bin/nsearch?catalog=yhst-45941283498886 & query=\ hlc I give my two son's HLC High Potency made by Pharmax. It comes in capsules or packets that you can mix into a drink. The bottle says to take with a meal or what your physician recommends. There are others out there, but this one is recommended by our DAN!. Lots of families I know are using this. It has helped decrease yeast in labs for my son. Mirielle Re: Colonoscopy? You might also want to consider starting your son off on pro-biotics and/or digestive enzymes which can be obtained at most vitamin stores or at Whole Foods. They may be able to help your son restore a more natural gut flora as well as aid him in digestion of foods that he may be sensitive to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2012 Report Share Posted August 2, 2012 Hello Group, I know that there are many opinions on whether or not to have a colonoscopy. If one decides to do this, does anyone know the time frame for positve people? Is it every five years...or the more typical every ten? Assuming a clear result on the prior test. Thank you for any info. -dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2012 Report Share Posted August 2, 2012 If you are poz and 50 or older, there is only one opinion. Get a colonoscopy. If no polyps are detected, I think the norm is every 5 years for poz people. I wouldn't wait a decade. The prep is not the most pleasant experience, but it is quite bearable. Schedule a great dinner with friends for the evening after the procedure, so you have something pleasant to look forward to. Focus on that. Yuck now, lobster later. And really do the full prep, so that they don't have to repeat the procedure and that the chances of missing a polyp are minimal. I took my Bose headphones and iphone (which I use as a classical music station Internet tuner) into the bathroom and just spent the hours and hours doing the prep. In a message dated 8/2/2012 9:57:57 A.M. Eastern Daylight Time, openskye51@... writes: Hello Group,I know that there are many opinions on whether or not to have a colonoscopy.If one decides to do this, does anyone know the time frame for positve people? Is it every five years...or the more typical every ten? Assuming a clear result on the prior test.Thank you for any info.-dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2012 Report Share Posted August 3, 2012 Dave,As we know, HIV patients are living longer because of the medications. HIV infection places higher stressors on the body even if it is under control. Some researcher think that HIV'ers are aging faster (e.g., inflammation, bone loss, mental decline, etc).There are way too many variables to say what is a sound frequency schedule, such as your age, overall health, family history, viral load, CD4 count and the list goes on. Medicine is not an exact science. What may work for one patient is useless in another AND sometimes may not work consistently in the same patient. Unfortunately, this is one of those things that may fall under the category of too many unknowns. The fact is that as a whole, the poz community is going through uncharted territory. Most physicians may subscribe to the school of thought: Better be safe than sorry.There was an article on TheBody.com on the topic and I am sure there are lots more:http://www.thebody.com/content/art53718.html<http://www.thebody.com/content/art53718.html> A cat has nine lives and fears nothing, a man has only one and many fears but he conquers one at a time. 's own personal quote Have a Buddhist approach and think of it like a total cleansing of the "second brain," that way your first one will arrive at peace and tranquility.I hate to say it, but go with your gut feeling (no pun intended) whether you have the physical/emotional strength for another colonoscopy around the corner. I dare to say that you do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2012 Report Share Posted August 3, 2012 Dave,As we know, HIV patients are living longer because of the medications. HIV infection places higher stressors on the body even if it is under control. Some researcher think that HIV'ers are aging faster (e.g., inflammation, bone loss, mental decline, etc).There are way too many variables to say what is a sound frequency schedule, such as your age, overall health, family history, viral load, CD4 count and the list goes on. Medicine is not an exact science. What may work for one patient is useless in another AND sometimes may not work consistently in the same patient. Unfortunately, this is one of those things that may fall under the category of too many unknowns. The fact is that as a whole, the poz community is going through uncharted territory. Most physicians may subscribe to the school of thought: Better be safe than sorry.There was an article on TheBody.com on the topic and I am sure there are lots more:http://www.thebody.com/content/art53718.html<http://www.thebody.com/content/art53718.html> A cat has nine lives and fears nothing, a man has only one and many fears but he conquers one at a time. 's own personal quote Have a Buddhist approach and think of it like a total cleansing of the "second brain," that way your first one will arrive at peace and tranquility.I hate to say it, but go with your gut feeling (no pun intended) whether you have the physical/emotional strength for another colonoscopy around the corner. I dare to say that you do. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.