Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 My sister has picked up active Lyme - unfortunately bitten by a tick in rural France. Got the classic bulls-eye rash etc poor thing. She's been taking the antibiotics and doing a ton of other stuff (any more suggestions always welcome!) but her main question is where is the best place to get tested in the UK? Is Breakspear any good for this? Understandably she'd like to check she's clear before stopping the antibiotics rather than chance it -- which is of course is what's being suggested by the NHS/ her GP. No testing being offered. Testing for Lyme is notoriously difficult and unreliable -- and I know a proportion of our kids are suspected of having chronic Lyme so someone on here might be able to advise. My sister lives in Swansea but will obvs travel as necessary. Thanks very much in advance. Sharon x Sent using BlackBerry® from Orange Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 Hi Sharon, This would be a good place to ask EuroLyme/ also http://www.lymediseaseaction.org.uk/ and for interest ... lymestrategies/?yguid=300738048 As I understand, the important thing is to take a longer course of antibiotics initially. Sandyxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 Breakspear do test for Lyme – probably her best bet. Lilias Ahmeira treats a lot of people with Lyme and is a great person to contact for treatments. KiB500 has had great success at getting rid of Lyme – I have a large power point presentation on it that I can email you if you like. Many thanks L Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 Breakspear do test for Lyme – probably her best bet. Lilias Ahmeira treats a lot of people with Lyme and is a great person to contact for treatments. KiB500 has had great success at getting rid of Lyme – I have a large power point presentation on it that I can email you if you like. Many thanks L Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 Thanks so much Sandy. My sister has joined the Euro Lyme group which looks very useful - I didn't know about that.Sharon xSent using BlackBerry® from OrangeFrom: "Sandy and Tim" <sandyandtim@...>Sender: Autism Treatment Date: Wed, 30 Jun 2010 07:17:35 -0000<Autism Treatment >Reply Autism Treatment Subject: Re: OT: Testing for Lyme Hi Sharon,This would be a good place to askEuroLyme/also http://www.lymediseaseaction.org.uk/and for interest ...lymestrategies/?yguid=300738048As I understand, the important thing is to take a longer course of antibiotics initially.Sandyxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 Hi LucindaThanks for the Lyme info. My sister called the Breakspear and will probably go there to be tested. I'd like to see your powerpoint and have emailed you off list.Thanks again (from both of us!)SharonSent using BlackBerry® from OrangeFrom: <lucindamiller@...>Sender: Autism Treatment Date: Wed, 30 Jun 2010 11:01:47 +0100<Autism Treatment >Reply Autism Treatment Subject: Re:OT: Testing for Lyme Breakspear do test for Lyme – probably her best bet. Lilias Ahmeira treats a lot of people with Lyme and is agreat person to contact for treatments. KiB500 has had great success at getting rid of Lyme –I have a large power point presentation on it that I can email you if you like. Many thanks L Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 Lucinda Could you possibly send me the presentation as well? We are seeing Lilias angain after the holiday. Kasia > > Breakspear do test for Lyme - probably her best bet. > > > > Lilias Ahmeira treats a lot of people with Lyme and is a great person to > contact for treatments. > > > > KiB500 has had great success at getting rid of Lyme - I have a large power > point presentation on it that I can email you if you like. > > > > Many thanks > > > > L > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 Lucinda Could you possibly send me the presentation as well? We are seeing Lilias angain after the holiday. Kasia > > Breakspear do test for Lyme - probably her best bet. > > > > Lilias Ahmeira treats a lot of people with Lyme and is a great person to > contact for treatments. > > > > KiB500 has had great success at getting rid of Lyme - I have a large power > point presentation on it that I can email you if you like. > > > > Many thanks > > > > L > Quote Link to comment Share on other sites More sharing options...
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