Re: [!! SPAM] Re: Re: experiences of breakspear hospital

September 11, 2010

Have they still got a waiting list?

On 11/09/2010 11:20, Mum231ASD@... wrote:

Â

This is my impression also, totally cool with AC protocol,

didn't even have to ask what is was, not into fads and explains his

rationale very well which is high praise coming from me

Â

Mandi x

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In a message dated 11/09/2010 11:09:20 GMT Daylight Time,

biomed@... writes:

Â

Hi Nevin

I don't get the impression he is a DAN, we think he very much looks at

the individual child.

He has really helped us with J. He put his neck on the line for us,

isn't afraid to challenge existing opinions if he thinks the child is

missing out.

Eileen

> >

> > Whilst at advance a few weeks ago, I was talking to a family

who were using Breakspear.

> >

> > I am interested in others experiences here before we go ahead

and book an appointment.

> >

> > I've only seen a couple of references to the hospital on here

previously and they seemed to be of mixed opinion.

> >

> > Many thanks

> >

> > Alison R

> >

>

September 11, 2010

This sounds like what we're looking for. I want someone to look very individually at Charlie. He's had lots of symptons that don't seem to be typically asd but also loads that are. He has no diagnosis but is under assessment. I don't have a good relationship with his NHS paed - he think's I'm nutty and has tried to get me referred to a physc.

No tests have been done on Charlie other than standard blood tests, skin prick allergy tests (all neg) PH study when he was a baby (which was fine). I pushed for metabollic appt but had obviously been 'warned' about me and the water was clouded before I walked through the door. He did however want to do micro nutrient and amino acid testing because of his concern re: Charlies restricted diet.

These came back fine except low vit D and glutamate. Not surprising as he had been on bio med for a year and nutritional deficiencies had already been addressed.From this paed concluded Charlie does not have any nutritional deficiencies of metabollic disorder - Of course I pointed that their testing was very limited and low vitD and glutamate themselves are very significant. (Although the glutamate thing has puzzled me and nutritionist does not know why it is low either (ANY IDEAS - IT WAS A BLOOD TEST)!

He was previously under dermatology, gastro, allergy but their focus became more on me than Charlie so we slowly knocked them off one by one. None were actually doing anyhting to help Charlie or open to any of my research findings or nutritionist info.

At 4 months one gastro consultant wanted to do scope and colonoscopy. We refused as we thought he was too young for anasthetic and my husband reacts very badly to anasthetics. Its just too scary. When discussed with a different consultant he didn't think it was nec. or that it would change treatment (which was loads of meds full of E's and preservative which made him 100 times worse).

What type of testing do Breakspear offer - is there any non invasive tests not available on NHS.I'd better ring to see how long their waiting list is.

Thanks for all you feedbackAlison ROn 11 September 2010 14:45, Jane Hogan <jane_hogan@...> wrote: