Re: donating my brain to science

October 17, 2003

Tricia,

Try a whole one. They did not work for me either, I would take one and read for

another 2 or 3 hours. My neighbor would take one and barely make it to her bed

before she was out, and then one night the fire alarms went off (very loud) and

she did not wake up. I convinced her to get off it. My doctor told me he had

had patients walk thru plate glass doors on it. Yikes. Never did squat for me.

My doctor had me try tylenol pm and dramamine, both helped me sleep.

Lynn

" donating my brain to science "

This is my subject for today. Should I " donate " or will they pay me

for it now, and let me use it until " that time comes " and I no longer

am in need of it? But, *if* they *pay* for it...they might find a way to

get it sooner..and I'm not sure I like that thought.

This isn't Off Topic, because it has everything to do with Stills Disease

and the medicines given to treat it, and it's consequences.

Over the past few years, my doctor's have prescribed many different

anti-depressants (not because I was depressed)but, to help ease pain,

and to help me sleep. " My brain, " rejected each and every one...

much to my disappointment. They either did nothing, or made me

very ill. Never did they do what they were made to do.

Over the past few months, I have tried a couple of different medications

for anti-seizures. Not to control seizures, but to ease the pain of

Peripherel

Neuropathy. Here, the meds did help to relieve the pain, *but,* had to be

stopped (even though they were " easy on the brain and body ones. " ) due

to severe side effects. The brain said.. " no, don't want it. "

Saw my GP Tuesday, he prescribed Ambien to help sleep, and hopefully

" sleep through the pain. " Ha! He suggested I take only 1/2 pill (5mg) as

these are very potent meds. Finally got the script filled yesterday. It was

with great anticipation I got ready for bed last night. Thought " wow,

finally

I'm going to sleep for 7 or 8 hours! " I made sure I was in bed soon after

taking

that pill, as I didn't want to take a chance of sleeping while standing..I

waited,

and waited, and waited. Heard hubby snoring up a storm, and the clock kept

ticking. Finally I slept...for 2 hours. I took the other half of the pill.

Slept another

2 hours. The brain says " no " one more time. I'm getting a little bit tired

of this.

Oh, and at 4 a.m. I finally took a Xanax anyway..and slept a couple more

hours.

So, would you take a whole Ambien and try again? Or just forget it?

" brain tired in WIsconsin,

Tricia

" I Hope You Dance! "

October 17, 2003

Tricia,

Try a whole one. They did not work for me either, I would take one and read for

another 2 or 3 hours. My neighbor would take one and barely make it to her bed

before she was out, and then one night the fire alarms went off (very loud) and

she did not wake up. I convinced her to get off it. My doctor told me he had

had patients walk thru plate glass doors on it. Yikes. Never did squat for me.

My doctor had me try tylenol pm and dramamine, both helped me sleep.

Lynn

" donating my brain to science "

This is my subject for today. Should I " donate " or will they pay me

for it now, and let me use it until " that time comes " and I no longer

am in need of it? But, *if* they *pay* for it...they might find a way to

get it sooner..and I'm not sure I like that thought.

This isn't Off Topic, because it has everything to do with Stills Disease

and the medicines given to treat it, and it's consequences.

Over the past few years, my doctor's have prescribed many different

anti-depressants (not because I was depressed)but, to help ease pain,

and to help me sleep. " My brain, " rejected each and every one...

much to my disappointment. They either did nothing, or made me

very ill. Never did they do what they were made to do.

Over the past few months, I have tried a couple of different medications

for anti-seizures. Not to control seizures, but to ease the pain of

Peripherel

Neuropathy. Here, the meds did help to relieve the pain, *but,* had to be

stopped (even though they were " easy on the brain and body ones. " ) due

to severe side effects. The brain said.. " no, don't want it. "

Saw my GP Tuesday, he prescribed Ambien to help sleep, and hopefully

" sleep through the pain. " Ha! He suggested I take only 1/2 pill (5mg) as

these are very potent meds. Finally got the script filled yesterday. It was

with great anticipation I got ready for bed last night. Thought " wow,

finally

I'm going to sleep for 7 or 8 hours! " I made sure I was in bed soon after

taking

that pill, as I didn't want to take a chance of sleeping while standing..I

waited,

and waited, and waited. Heard hubby snoring up a storm, and the clock kept

ticking. Finally I slept...for 2 hours. I took the other half of the pill.

Slept another

2 hours. The brain says " no " one more time. I'm getting a little bit tired

of this.

Oh, and at 4 a.m. I finally took a Xanax anyway..and slept a couple more

hours.

So, would you take a whole Ambien and try again? Or just forget it?

" brain tired in WIsconsin,

Tricia

" I Hope You Dance! "

October 17, 2003

Dear Sue,

My dearest friend...isn't the insomnia the pits? Usually I take Xanax.

For about 10 years now, and I think it's wearing out it's welcome.

The Ambien would only be once in awhile anyhow.

Sue, I have tried everything to get to sleep at night! Everything that

has ever been suggested! Sometimes...I don't have a problem...

but, usually do.

By the way...how are you sleeping lately?

Will talk with you personal e-mail later.

Take care hon.

Love, Tricia

" I Hope You Dance! "

& & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & &

-- Re: " donating my brain to science "

Oh Tricia,

my dear, sweet friend. I cannot believe that this is happening to you. I

have taken the whole Ambien, but I must say at times, it has taken the same

effect on me. At times, I haven't fallen asleep for hours. Sometimes I

have laid there for four to five hours before falling asleep, before getting

a good night sleep. I am truly sorry that this is still happening. I don

t know why this keeps happening to you. Have you tried a nice warm bath or

a warm cup of tea or warm milk, and do you turn off all the lights, TV and

little lights, such as the alarm clock? I was once told to turn around the

clock also, so that the room is completely dark, with no lights at all. The

doc said that any little light is enough to keep one awake and distract us

and lose valuable sleep time. I did it for a while...turned the clock the

other way and etc.....it did work, but then.....bob starts his snoring and

before I know it, I am kicking him in the leg and awake with frustrations

too. Oh friend...wish that there was something that I could do for you.

I would try it again Tricia, and if it still doesn't work, I would call him.

I will write you personally friend. Love and hugs.

Love, sue #2

October 17, 2003

tricia,

my insomnia isn't too bad, but i feel that all this nytol is no good for me

either, but they took away the ambien, and you know with this disease, you

need your sleep.

i am just truly sorry for all of this tricia. i wish there was something i

could do.

i am going to email you. corona fell in the warehouse today, and almost

broke his leg. he tore some ligaments and is in a full cast for two weeks.

i just brought him home from the vet. i cried all day. it never stops.

love you friend.

love sue #2