TO STAN- SAW GENERATION RESCUE VIDEO

May 30, 2006

Hi Stan,

I saw Ethan's video on GR's website 3 mos ago when I started with a

DAN dr for 3.5 year old son Dylan. First off I must commend you on

having the strength to film Ethan when he " wasn't at his best " . I must

tell you that I never thought my son was viral kid. That is until I

got his blood test results and it show elevated levels of MMR titers

and a whopping over 1200+ for herpes 6. We started Dylan gf-cf (he

isn't a celiac but wanted to remove any possible inflammatory

stuff)..he loved it. Our dr. then gave us a vitamin, probiotic,and

fish oil (I already had Dylan on fish oil) and methyl b-12 cream (I

was too chicken to give the shot). I did see an increase in hand

stimming for Dylan sometime eye stims too (very painful for me to

watch). Dylan has been in EI since 18 mos and transitioned to a

special nursery school in fall of last year. He is doing very well

but the language is WAY behind. He gets the methyl b-12 shots noe (I

got over myself) and glutathione cream. My dr. suggested that we move

onto ACTOS and the VALTREX. I wante dto go a little more natural and

would like to try the OLE. I know you went the VALTREX route, was

there a reason you opted for that over OLE??? I am also afraid of the

regression (which I see some days with Dylan and it freaks me out)and

the rashes, etc. How did you deal??? I don't know if metally I could

handle making him sick. Also do you have any experience with ACTOS,

(my dr. thinks it will help DYlan with his methylation cycle)? Thanks

again for Ethan's video...it gave me so much hope. I still watch it

when I am at a low point. BIG HUGS to him for being such a trooper

and beating the " beast " back!

Debbie Stone

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