FRUSTRATED

[Guest guest]

I need some input…I feel like we`re spinning our wheels with this belly

pain. Trevor has been diagnosed with gastroparesis, severe bacterial

overgrowth, has a fundo and g- tube, and cvid. He just had an endoscopy

and colonoscopy. The endoscopy showed the wrap was still wrapped, but

not as tight as she'd like it. The colonoscopy showed focal acute

cryptitis and a crypt abscess. GI wasn't to concerned about the

cystitis, she assumed it's from the clean out. After looking at the

slides again the consensus is the crypt abscess is " not significant " .

Then why mention it? I was hoping it gave us an answer to his belly

pain. He eats next to nothing, and doesn't tolerate g- tube feeds

because of pain. He rolls in pain daily along with long bouts of

retching. She put him on zofran every eight hours ,which took the edge

off, and of course the insurance company won't approve it, even with a

pre-auth.

Does anyone have these issues or some answers? GI is trying to get to

the bottom of it, but I'm ready to loose it watching him in so much

pain.