Question about all of this ...

May 5, 2008

Ok so ... we just recently got a diagnosis for my boys and these PIDD's.

My youngest son has low IGA and IGG levels and 2 of his subclass

levels are low and the others are right on the borderline of low and

he has hypogammaglobulinemia. On his T-cell panel test, he had one

level that was low, on his helper cells, and there were 2 that his

immuno said she would just keep a check on. She said at this point she

wasn't calling it CVID and didn't feel the need to start IVIG's, she's

just doing the daily antibiotics to try and prevent infections. Like

I've said in the past, we've been lucky enough so far to only have

pneumonia twice, have ear infections, strep throat (even after the

tonsils were removed) asthma, reflux, a heart murmur that seems to be

finally getting better; his tracheomalacia has finally gotten better,

but I guess is the reason for the asthma (not really sure if these are

relative). My oldest son on has the low IGA and IGG and has the

hypogamma. None of his subclass levels were low and his t-cell panel

tests were all in the mid-norm range. Even though he had a TON of

allergies than my youngest son didn't have (which IDF said could be

b/c of the deficiencies anyway and they might give a false negative on

skin testing with this stuff?) My question is this ...

The immuno wants to bring my oldest son in to give him the

pneumovax(sp?) vaccine and then watch his labs to see if he builds

titers to it. But she's never mentioned doing this with my younger

son. Shouldn't she want to do this with him as well?? Am I wrong to

think that? Especially since, according to the labs, it looks like my

youngest one has more " issues " going on. I just don't really

understand some of this stuff and am curious about it. It has been a

whirlwind of Dr's visits and test since December and I am just looking

for some advice on this subject. Thanks!

Deska

mom to Jayden 6; Phoenix 10 both with low IGA/IGG

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