Guest guest Posted March 24, 2007 Report Share Posted March 24, 2007 Hello Barbara, I just turned 50 this last Nov. I was told about hep c before it was hep c, but non A non B, so this tells you how long I have been dealing with this. I went through 18 months of just Interferon Alpha A back in the early 90's. Only to find out I too, am a non responder. And the Interferon left me so sick, that I too, could not try any new treatments. But, if I could I would. I am Geno type 1A I am now end stage liver disease, and trying to be placed on the transplant list with a meld score of 11. Although I was a 14, but I believe through the low salt low protein diet, this helped to bring it down.I have complication of hep c from enlarged spleen, Hyper Portal Tension, and low sugar. Weight is hard for me to gain. At 127 and 5.8 But, I never stop to worry about none of this, I keep on keeping on, knowing I'm going to fight this battle till the end. Though it all I have kept a positive attitude. I have bleed out once, and been band 22 times. I just won't give up this battle I fight. I know God holds our hands. I have so much to live for. Though I have one child born to me, I went on to raise 8, seven boys and one girl. Life has it's good days, and it has it's better days. I am grateful to have a day. Star1956 ~Barbara~/Anya <anya@...> wrote: Hi all, I'm a 54 year old goddess seeking knowledge, friendship and willing to share. I live in Beautiful British Columbia, Canada and enjoy the short winters (the shorter the better..lol). I was diagnosed around 4 years ago after a few people from the group that was going strong around 35 years ago tested positive. They kept their secret to themselves for a few years (while I went merrily along to Red Cross donating my blood.. sheesh). I 'think' I'm a type 2b. Went through treatment for 6 months but after 6 months tested again and the treatment didn't work. Then I was diagnosed after another 6 months with diabetes. I have sweats and when the flu goes around I never know if I have the flu or if its the Hep C rearing its head. I understand that I will never be able to have treatment again and although it was hell, if there was a chance of getting rid of this disease I would do treatment again. I'm happily married with a beautiful son, daughter-in-law and gorgeous grandson with another grandchild due in November '07. I've just gone through a very deep dark place and am seeing the sunlight again. Thanks to everyone for sharing. Hugz and white light blessingz, Anya~~~~~~~~"Once in a while, right in the middle of an ordinary life, love gives us a fairy tale." It's here! Your new message!Get new email alerts with the free Toolbar. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2007 Report Share Posted March 24, 2007 Dear Star: Thanks for your intro and you're right, being grateful to have a day is a wonderful gift. Take care Anya~~~~~~~~"Once in a while, right in the middle of an ordinary life, love gives us a fairy tale." Anya/ Short intro and bio time again :Star1956 Hello Barbara, I just turned 50 this last Nov. I was told about hep c before it was hep c, but non A non B, so this tells you how long I have been dealing with this. I went through 18 months of just Interferon Alpha A back in the early 90's. Only to find out I too, am a non responder. And the Interferon left me so sick, that I too, could not try any new treatments. But, if I could I would. I am Geno type 1A I am now end stage liver disease, and trying to be placed on the transplant list with a meld score of 11. Although I was a 14, but I believe through the low salt low protein diet, this helped to bring it down.I have complication of hep c from enlarged spleen, Hyper Portal Tension, and low sugar. Weight is hard for me to gain. At 127 and 5.8 But, I never stop to worry about none of this, I keep on keeping on, knowing I'm going to fight this battle till the end. Though it all I have kept a positive attitude. I have bleed out once, and been band 22 times. I just won't give up this battle I fight. I know God holds our hands. I have so much to live for. Though I have one child born to me, I went on to raise 8, seven boys and one girl. Life has it's good days, and it has it's better days. I am grateful to have a day. Star1956 ~Barbara~/Anya <anyasunwave (DOT) net> wrote: Hi all, I'm a 54 year old goddess seeking knowledge, friendship and willing to share. I live in Beautiful British Columbia, Canada and enjoy the short winters (the shorter the better..lol). I was diagnosed around 4 years ago after a few people from the group that was going strong around 35 years ago tested positive. They kept their secret to themselves for a few years (while I went merrily along to Red Cross donating my blood.. sheesh). I 'think' I'm a type 2b. Went through treatment for 6 months but after 6 months tested again and the treatment didn't work. Then I was diagnosed after another 6 months with diabetes. I have sweats and when the flu goes around I never know if I have the flu or if its the Hep C rearing its head. I understand that I will never be able to have treatment again and although it was hell, if there was a chance of getting rid of this disease I would do treatment again. I'm happily married with a beautiful son, daughter-in-law and gorgeous grandson with another grandchild due in November '07. I've just gone through a very deep dark place and am seeing the sunlight again. Thanks to everyone for sharing. Hugz and white light blessingz, Anya~~~~~~~~"Once in a while, right in the middle of an ordinary life, love gives us a fairy tale." It's here! Your new message!Get new email alerts with the free Toolbar. Quote Link to comment Share on other sites More sharing options...
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