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[Guest guest]

hey john, genotype plays a factor. age, weight,and overall health,if your geno 2's n 3's its about 85% chance of reaching svr.once 2's reach svr after 1 yeaR its almost 95% stay svr. genos 1 and others around 50% across.i may be wrong but thats my story n im sticking 2 it. lets not forget the biggest factor in this is Gods will.faith is the biggest factor i think.john domke wrote: Hi Suzie...I am new to this site and only joined to help convince a friend of mine that is in his 7th week of tx...I completed tx about 4yrs ago and am free of the bug or it is in remission or whatever...anyways you mentioned that success is better than 50% and I was to believe it was only 5% that did not clear...is you 50% a correct number ??? I hope you are doing well today....boy from Michigan.. Re: Re: Welcome Hi Lydia, If you're looking for answers - we got 'em. Check out the files section at the bottom of this page for some of them. Personally, I don't have much faith in holistic medicine vs HCV but some of us have had some good results. The thing is, some herbs etc aren't liver friendly. I'd say check with your doctor first before trying anything OTC. The current tx has a much better track record than the ones I tried back in the day & the chances of SVR are over 50% with the latest combo - peg-interferon & ribivirin, depending on what virus genotype you have. I just can't do tx anymore because I'm in ESLD or I'd try again in a New York

minute. Your husband has to get himself a good doctor, a G I or Hepatologist. Has he had a biopsy or ultrasound yet? There should be a file on questions to ask your doctor & one on what to do for the newly diagnosed, if they're not there just ask & we'll repost them. Welcome again, SuZie P.S. We all seem to be animal lovers here, so wlecome to the cats & dogs tooilovebutterboy <Lydia58optonline (DOT) net> wrote: Hi,I'm new to all this. My husband was just dx'd (picked up that lingoquick) w/

Hep C. He's a nurse & probably picked it up from a patient butwho knows? He's probably had it for 15-20 years and has just startedfeeling poorly the last 3-4 years (lethargic, pains in joints, lowerback, etc.) He just thought he was feeling the pangs of getting older(he's 48). He first tested positive for Rheumatoid arthritis, but thedoctor did some further testing & we got the pos Hep C. I've been testedas well & we're waiting for the outcome.We both have so many questions. We're reading all the books we can find,but they seem rather conflicting. Some praise treatment (interfuron) ,some say holistic is the only way to go.I'm sure I'll have lots more questions as time goes on. Thanks for beinghere.PS-We have 2 cats (Jimmy & Sassy) who are brother & sister ,17-years-old & going strong. As well as 4 dogs (Cocker Spaniels)Lydia Next time I'm coming back as a cat Tim Parsons knoxville,tn 37931 x107

work www.knoxville1.com

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[Guest guest]

Welcome home ,we will be happy to help you cope with a husband with

Stills.You must be very special,not so many spouses or signiigant others are

that way.It sounds like the classic Stills problems,pain,fevers,sweats weakness

etc, etc, etc. It is very important to have your hubby find a good

Rheumatologist in your area,I beleive we have a list on the web site,or tell us

where you live and someone probably lives near or has had experience with your

area.Until you get on the right cocktail of drugs for your particular

problems,you will feel bad.With the right drugs you probably will still have

times when you aren't well,but as time goes on they usually become managable. It

is very depressing at times to know that your life has changed,maybe forever,so

stick in there and with your love and encouragement your hubby will learn to

cope.Everyone is different in the way they deal with it,but if you come

here,chances are someone has suffered the same feelings and will know what

to say.I hope things improve soon.Feel free to vent here too,we will listen.

Elly

---------------------------------

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[Guest guest]

Hi ,

I'm so happy you found us,we will provide a wealth of information and a soft

(very soft) place to fall when you need it.I think everyone would agree, that we

had no idea anything like Stills disease existed, even when our Drs. diagnosed

us.I know I never would have guessed I would have something no one had ever

heard of! When I found this group I felt like I had won the lottery, finally

others knew what I felt like.Not only will these members help you deal with

Stills,but they will listen and commiserate with you about every hardship in

your life,from a spouse who doesn't understand (how could they really) and ideas

to help them,to moments when you loose a pet.I have never run into so many

empathetic people in one place,and all while they are suffering themselves.It's

amazing and restores your faith in humanity.So welcome home ,you've come to

the right place.May you enjoy a pain free day.

Elly

__________________________________________________

[Guest guest]

Hi ,

I'm so happy you found us,we will provide a wealth of information and a soft

(very soft) place to fall when you need it.I think everyone would agree, that we

had no idea anything like Stills disease existed, even when our Drs. diagnosed

us.I know I never would have guessed I would have something no one had ever

heard of! When I found this group I felt like I had won the lottery, finally

others knew what I felt like.Not only will these members help you deal with

Stills,but they will listen and commiserate with you about every hardship in

your life,from a spouse who doesn't understand (how could they really) and ideas

to help them,to moments when you loose a pet.I have never run into so many

empathetic people in one place,and all while they are suffering themselves.It's

amazing and restores your faith in humanity.So welcome home ,you've come to

the right place.May you enjoy a pain free day.

Elly

__________________________________________________

[Guest guest]

Hi ,

I'm so happy you found us,we will provide a wealth of information and a soft

(very soft) place to fall when you need it.I think everyone would agree, that we

had no idea anything like Stills disease existed, even when our Drs. diagnosed

us.I know I never would have guessed I would have something no one had ever

heard of! When I found this group I felt like I had won the lottery, finally

others knew what I felt like.Not only will these members help you deal with

Stills,but they will listen and commiserate with you about every hardship in

your life,from a spouse who doesn't understand (how could they really) and ideas

to help them,to moments when you loose a pet.I have never run into so many

empathetic people in one place,and all while they are suffering themselves.It's

amazing and restores your faith in humanity.So welcome home ,you've come to

the right place.May you enjoy a pain free day.

Elly

__________________________________________________

[Guest guest]

Hi Dave-

I am 33 years old and have been dealing with this dragon for almost 7 years to

the day. I am going to be having my 8 year anniversary with Stills on April 23.

I don't really know if that is something we should be celebrating though. (LOL)

I know that stress plays a huge part in our disease. Stress was the first thing

that the doctors told me I needed to " try " and control. How... is my question?

Life is stressful with or without Stills. But I guess just " trying " to stay away

from as many stressful situations as possible. It is great that you have good

Health benefits and a supportive family. That is so important. And now you have

us.

As for as exercise..... if you can try and get into a pool and exercise. My

physical therapist and I would swim 3x a week (during the summer). It is way

easier on your joints then exercising out of water. But of course you should

talk it over with your doctor before starting any kind of exercise program.

Right now i don't have much of a " program " I just try and move around through

out the day. Usually carting my son around and going to his baseball games.

I have alot of difficulty decreasing my prednisone. I started off on 80mg, 7

years ago. along with MTX. And today I am on 8mg of prednisone and Remicade. The

lowest I have been on prednisone is 4mg. And that only lasted a couple of weeks

and I was right back up to 20mg. Be patient. Prednisone can be your best friend

that you hate. It helps us feel better but we are consistently trying to

decrease the mg due to the side effects it has on our poor body's. I have heard

alot of good things about Kineret. I am glad that you are finding relief with

it.

Well Welcome again and I am glad that you found us. I hope that you are having a

painfree weekend. Hopefully we will be hearing alot from you. Take care!!

Love and Support,

Keri in CA

Budde

Hello everyone,

I am writing to introduce myself as the newest member of this stills group. I

am 30 years old and live outside of Detroit Michigan. Four months ago I was

diagnosed with stills after spending 15 days in the hospital. My symptoms were

pretty typical. Spiking fevers up to 103, light rash, night sweats, body aches,

knee pain and a sore throat. I thought I was pretty tough before I got sick but

this dragon kicked my butt!!

1. How much does everyone think stress can be a part in causing flares?

2. What excersises do you do to help with Stills?

Thanks and I will talk to everyone soon!

Dave

_________________________________________________________________

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[Guest guest]

Hi Dave-

I am 33 years old and have been dealing with this dragon for almost 7 years to

the day. I am going to be having my 8 year anniversary with Stills on April 23.

I don't really know if that is something we should be celebrating though. (LOL)

I know that stress plays a huge part in our disease. Stress was the first thing

that the doctors told me I needed to " try " and control. How... is my question?

Life is stressful with or without Stills. But I guess just " trying " to stay away

from as many stressful situations as possible. It is great that you have good

Health benefits and a supportive family. That is so important. And now you have

us.

As for as exercise..... if you can try and get into a pool and exercise. My

physical therapist and I would swim 3x a week (during the summer). It is way

easier on your joints then exercising out of water. But of course you should

talk it over with your doctor before starting any kind of exercise program.

Right now i don't have much of a " program " I just try and move around through

out the day. Usually carting my son around and going to his baseball games.

I have alot of difficulty decreasing my prednisone. I started off on 80mg, 7

years ago. along with MTX. And today I am on 8mg of prednisone and Remicade. The

lowest I have been on prednisone is 4mg. And that only lasted a couple of weeks

and I was right back up to 20mg. Be patient. Prednisone can be your best friend

that you hate. It helps us feel better but we are consistently trying to

decrease the mg due to the side effects it has on our poor body's. I have heard

alot of good things about Kineret. I am glad that you are finding relief with

it.

Well Welcome again and I am glad that you found us. I hope that you are having a

painfree weekend. Hopefully we will be hearing alot from you. Take care!!

Love and Support,

Keri in CA

Budde

Hello everyone,

I am writing to introduce myself as the newest member of this stills group. I

am 30 years old and live outside of Detroit Michigan. Four months ago I was

diagnosed with stills after spending 15 days in the hospital. My symptoms were

pretty typical. Spiking fevers up to 103, light rash, night sweats, body aches,

knee pain and a sore throat. I thought I was pretty tough before I got sick but

this dragon kicked my butt!!

1. How much does everyone think stress can be a part in causing flares?

2. What excersises do you do to help with Stills?

Thanks and I will talk to everyone soon!

Dave

_________________________________________________________________

Pack up or back up–use SkyDrive to transfer files or keep extra copies. Learn

how.

http://www.windowslive.com/skydrive/overview.html?ocid=TXT_TAGLM_WL_Refresh_skyd\

rive_packup_042008

[Guest guest]

Hi Dave-

I am 33 years old and have been dealing with this dragon for almost 7 years to

the day. I am going to be having my 8 year anniversary with Stills on April 23.

I don't really know if that is something we should be celebrating though. (LOL)

I know that stress plays a huge part in our disease. Stress was the first thing

that the doctors told me I needed to " try " and control. How... is my question?

Life is stressful with or without Stills. But I guess just " trying " to stay away

from as many stressful situations as possible. It is great that you have good

Health benefits and a supportive family. That is so important. And now you have

us.

As for as exercise..... if you can try and get into a pool and exercise. My

physical therapist and I would swim 3x a week (during the summer). It is way

easier on your joints then exercising out of water. But of course you should

talk it over with your doctor before starting any kind of exercise program.

Right now i don't have much of a " program " I just try and move around through

out the day. Usually carting my son around and going to his baseball games.

I have alot of difficulty decreasing my prednisone. I started off on 80mg, 7

years ago. along with MTX. And today I am on 8mg of prednisone and Remicade. The

lowest I have been on prednisone is 4mg. And that only lasted a couple of weeks

and I was right back up to 20mg. Be patient. Prednisone can be your best friend

that you hate. It helps us feel better but we are consistently trying to

decrease the mg due to the side effects it has on our poor body's. I have heard

alot of good things about Kineret. I am glad that you are finding relief with

it.

Well Welcome again and I am glad that you found us. I hope that you are having a

painfree weekend. Hopefully we will be hearing alot from you. Take care!!

Love and Support,

Keri in CA

Budde

Hello everyone,

I am writing to introduce myself as the newest member of this stills group. I

am 30 years old and live outside of Detroit Michigan. Four months ago I was

diagnosed with stills after spending 15 days in the hospital. My symptoms were

pretty typical. Spiking fevers up to 103, light rash, night sweats, body aches,

knee pain and a sore throat. I thought I was pretty tough before I got sick but

this dragon kicked my butt!!

1. How much does everyone think stress can be a part in causing flares?

2. What excersises do you do to help with Stills?

Thanks and I will talk to everyone soon!

Dave

_________________________________________________________________

Pack up or back up–use SkyDrive to transfer files or keep extra copies. Learn

how.

http://www.windowslive.com/skydrive/overview.html?ocid=TXT_TAGLM_WL_Refresh_skyd\

rive_packup_042008

[Guest guest]

Hi there ! I'm Ellen from South Florida by way of New York

State. I was diagnosed 13 years ago and told to move someplace

warm. Ergo, Florida with all the other complaining, joint creeking,

doctor visiting people in this state. I'm all of 44 years old by the

way.

My dear, I'm so glad you found us. I haven't read all the posts yet

but I'm sure you've all ready been informed how much of a family we

are and I'd also like to welcome you to the fold. I'm sorry you've

had to experience this illness but you're safe here to express

yourself, to get information, to ask questions all of sorts and just

chat about anything you want.

Now, if you look at the top of the posting here; where it says " from "

you'll see my email address. Each person that posts to you, their

email will show up there are well. If you feel the need to email

privately to someone, please do. That's what family is for.

OK kid, enough with the postings and emails and housework. Go relax,

put your feet up for a little while and just rest. It's something

you need to do anyway to heal. I promise you we'll be here when

you're ready to post again.

Take care and be well and welcome home.

Ellen

[Guest guest]

Hi !

I dont post very often but related to your introduction.

I have SLE and Sjogrens Syndrome and have many joint problems due to the illnesses and also see a rheumatologist as my specialist as you do with RA.

I have been on many meds also and have had a horrible time tolerating them and always seem to be changing things around! What are you taking currently? I am originally from Kansas and know your area well. I have traveled all over your state and been to all the main cities.

Welcome to the group and I hope this finds you as well as possible!

Have a good day

Colleen in NY **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1221322977x1201367197/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=62 & bcd=JunestepsfooterNO62)

[Guest guest]

Hey Colleen, Nice to meet you! My Rheumy told me I have Sjogren's too and gave

me some med for the dry mouth. But I don't think I have it at least my eyes are

not affected. Yes it is very hard to find each individual's meds " cocktail " it

can take many years. I take Rituxan, Methotrexate, Prednisone, muscle relaxers,

sleep meds, vicodin, Metoprolol for my heart and HBP, Lyrica for neuropathy,

water pill for heart, Metformin for diabetic symptoms, Simvastatin, Asthma meds

for lung involvement... I think that's all heeheee Where do you live in KS? I

live in Independence I'm sure you know where that is. I'm actually doing really

good today and I hope you are too!! Michele

>

> Hi !

>

> I dont post very often but related to your introduction.

>

> I have SLE and Sjogrens Syndrome and have many joint problems due to the

> illnesses and also see a rheumatologist as my specialist as you do with RA.

>

> I have been on many meds also and have had a horrible time tolerating them

> and always seem to be changing things around! What are you taking

> currently? I am originally from Kansas and know your area well. I have

traveled all

> over your state and been to all the main cities.

>

> Welcome to the group and I hope this finds you as well as possible!

> Have a good day

> Colleen in NY

>

>

> **************

> A Good Credit Score is 700 or Above. See yours

> in just 2 easy steps!

>

(http://pr.atwola.com/promoclk/100126575x1221322977x1201367197/aol?redir=http://\

www.freecreditreport.com/pm/default.aspx?sc=668072 & amp;

> hmpgID=62 & amp;bcd=JunestepsfooterNO62)

>

[Guest guest]

Welcome to the group Bek.

This is a good group. My name is Ellen. I live in Texas. I have several problems to. When I go `back to the doctor next week, I will probally have something else wrong.

God Bless

Ellen

[Guest guest]

Welcome to all the new members who have joined us in the last few

weeks. If you haven't taken the time to browse through the group's

archives, I would recommend you do so sometimes. Don't expect to be

able to read through all of the posts - there are way too many - but

perhaps look for those with topics you have questions on. Don't be

afraid to ask questions, or to share your successes and frustrations.

Even your failures - it is one way to find out that you are not alone

The group exists to share information and lend support, so don't

think you are being a nuisance by asking questions or sharing what is

happening in your life. That is what we are here for.

[moderator]