Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 HI Lynn and thank you very much.. I am 44 and the mother of 2, I work full time and hurt most all the time. I understand about the drug cocktail..I'd like to throw it all out the window. I was diagnosed at 6 with JRA and from what I have been reading this is just the next step. So all my life I have dealt with pain..it's funny cause I ran track in high school..knees are showing that big time now. Do you work? It;s getting harder for me..but my husband lost his job because his company under..so stress is a large part of my life right now.. Have a great night and I look forward to meeting more of the group soon.. Welcome , Welcome to the group. How long have you been sick? I have been sick since the end of 2001. I was just diagnosed myself in April of 2003. I have had a few days here and there without pain but I pretty much have some pain most of the time. Time will tell with new medications and stuff. My doctors are still messing with my drug " Cocktail " trying to find the best mix for me. Anyway, we are glad to have you here. You will find a warm, welcoming group of people that understand what you are going thru. Feel free to ask any questions. How old are you? I am 38 myself. Anyway, glad you found us. Lynn Dudenhoefer ldudette@... --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.518 / Virus Database: 316 - Release Date: 9/11/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 Hi , Welcome to our group. I hope you're hunkered down or live way inland. This hurricane looks pretty bad. I just got back from NC a few days ago. My daughter moved there last year. They live only about 45 min. from the coast so I have to say I'm more than a little nervous for them. Again, welcome to the Still's family. You'll learn lots and it's a fun group. Be good to yourself, Barb in SLC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 Thank you for the welcome..it helps knowing that I'm not in this alone. The stress is bad, but hey we have eachother and that's a great thing in life. Gotta run now..LOL..like I can run..we're getting things off the deck incase we have the high winds.. Thank you again for the welcome. Re: Re: non vegasees HI, I am new to the group. My name is and I live in NC. How long have you had Still's and does it ever stop hurting???????? I have been dealing with this for a long time..just have gotten the " name " . looking on the web site has helped a great deal. Now I know what all the red places are about on my neck and knees.. How much fun can one person have??? LOL Hope you are having a good day! . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2004 Report Share Posted February 4, 2004 Welcome , I do hope that we can be of support and comfort for you at anytime. Best wishes for your son Eddie to get better very soon. Pattymelt ----Original Message Follows---- From: " Luzzi" I'm new to this whole Stills group, and actually it is my son who suffers. But the mail and Stills site has been very helpful. This last flare has really been horrible. Eddie ended up in the hospital (today is day 13) and intubated with such severe lung inflamation that the nurses said they'd never seen lungs that bad. Mom of Eddie.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2004 Report Share Posted February 4, 2004 Welcome , I do hope that we can be of support and comfort for you at anytime. Best wishes for your son Eddie to get better very soon. Pattymelt ----Original Message Follows---- From: " Luzzi" I'm new to this whole Stills group, and actually it is my son who suffers. But the mail and Stills site has been very helpful. This last flare has really been horrible. Eddie ended up in the hospital (today is day 13) and intubated with such severe lung inflamation that the nurses said they'd never seen lungs that bad. Mom of Eddie.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 , I am sure that you don't hear this enough---On behalf of me,and the 755 other members of this list-serv, THANK YOU, THANK YOU, THANK YOU!!! You said, " All of you have contributed to, learned from, shared with, and helped make GA-ParentNetwork and Autism Georgia the best listservs around. " We say Thank YOU for making these resources available! You have been a wonderful inspiration, mentor and guide for us. Rome, Georgia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 , I am truly humbled by your nice sentiments. You, my friend, are an inspiration to all of us . I am so grateful for everyone on these groups and amazed by how many families we reach. Just to share the numbers, the total number of members of these groups is 1380- that's an incredible wealth of knowledge that just amazes me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 , I am truly humbled by your nice sentiments. You, my friend, are an inspiration to all of us . I am so grateful for everyone on these groups and amazed by how many families we reach. Just to share the numbers, the total number of members of these groups is 1380- that's an incredible wealth of knowledge that just amazes me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 Hello my name to the group is doglionboat otherwise known as Bazooka Yes I am new today.I am in another Yahoo group and once in a while I search the groups for places of interest today I found this place. I am 64 years old I was born,raised and live in Los Angeles,California. I had a motorcycle accident in 1970 . My left leg was severly damaged including nerve damage.It would not heal so they did an "open reducion" and of course they required blood. From that blood I got what was called "Serum Hepatitis" or "Hepatitis B" Everything was fine I lived with even not knowing I had HEP C until a year ago January.Then I found out I had HEP C. I live W/ 2 German shepherd dogs they are my only family.No brothers No Sisters I am what is called "an only" .I am here hopefully so I won't be so alone.Soon I may need to take Chemo .I should know soon. I need the support this group could give me and I can help give others. Regards Bazooka Welcome Welcome to the family, What do you want us to call you? We have a loving little family here. I'm SuZie, resident of the GWN (Great White North) a k a Thunder Bay, Ontario, Canada. We have some other Canadians here, also some Americans & I believe one Italian. The Group covers the spectrum. There are four or five of us Post transplant, a few on tx(treatment), some in SVR - Sustained Viral Response & some like me & Del who don't respond to tx & are now ESLD -End Stage Liver Disease & waiting for the go ahead for t p. I was dx'd in the early '90s but my docs & I believe I got it in the late "60s when I was heavily self-medicated. I was told I had "serum Hepatitis" which is now split into HBV & HCV. It was fun & I believe worth it. Now I live up here with my roommate SpYke - the Galactic Overlord in Training (aka a cat) He's almost got me trained now. You'll hear more of him later. Anyways, welcome to the family. Jump in, the water's fine. Tell us about yourself & your disease or just sit & lurk for a while, it's up to you. If you have any questions, ask away. There is no such thing as a stupid question to quote our fearless leader. If we don't have the answer, we'll find it somewhere. Check out the web site, there are some mini-bios there & a lot of files that may contain some of the answers you're looking. Welcome, SuZie & Sir SpYke the Fuzzy Next time I'm coming back as a cat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 Oh, Bazooka. You don't have to be alone. This group is here with you, if they know you need them. Life sucks sometimes. Accidents then dealing with the aftermath for the rest of our lives. If we are together, we are not alone. Hugs, VickieG Segal wrote: Hello my name to the group is doglionboat otherwise known as Bazooka Yes I am new today.I am in another Yahoo group and once in a while I search the groups for places of interest today I found this place. I am 64 years old I was born,raised and live in Los Angeles,California. I had a motorcycle accident in 1970 . My left leg was severly damaged including nerve damage.It would not heal so they did an "open reducion" and of course they required blood. From that blood I got what was called "Serum Hepatitis" or "Hepatitis B" Everything was fine I lived with even not knowing I had HEP C until a year ago January.Then I found out I had HEP C. I live W/ 2 German shepherd dogs they are my only family.No brothers No Sisters I am what is called "an only" .I am here hopefully so I won't be so alone.Soon I may need to take Chemo .I should know soon. I need the support this group could give me and I can help give others. Regards Bazooka Welcome Welcome to the family, What do you want us to call you? We have a loving little family here. I'm SuZie, resident of the GWN (Great White North) a k a Thunder Bay, Ontario, Canada. We have some other Canadians here, also some Americans & I believe one Italian. The Group covers the spectrum. There are four or five of us Post transplant, a few on tx(treatment), some in SVR - Sustained Viral Response & some like me & Del who don't respond to tx & are now ESLD -End Stage Liver Disease & waiting for the go ahead for t p. I was dx'd in the early '90s but my docs & I believe I got it in the late "60s when I was heavily self-medicated. I was told I had "serum Hepatitis" which is now split into HBV & HCV. It was fun & I believe worth it. Now I live up here with my roommate SpYke - the Galactic Overlord in Training (aka a cat) He's almost got me trained now. You'll hear more of him later. Anyways, welcome to the family. Jump in, the water's fine. Tell us about yourself & your disease or just sit & lurk for a while, it's up to you. If you have any questions, ask away. There is no such thing as a stupid question to quote our fearless leader. If we don't have the answer, we'll find it somewhere. Check out the web site, there are some mini-bios there & a lot of files that may contain some of the answers you're looking. Welcome, SuZie & Sir SpYke the Fuzzy Next time I'm coming back as a cat Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 I have three german shephers,one is from the SPCA and is half german shepherd and half lab.He looks mostly lab but the facial markings of a german Shepherd.How come you have to go through C hemo.Do you have friends that can help you with the dogs? Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of SegalSent: June 29, 2007 8:12 PMTo: HepatitisCSupportGroupForDummies Subject: Re: Welcome Hello my name to the group is doglionboat otherwise known as Bazooka Yes I am new today.I am in another Yahoo group and once in a while I search the groups for places of interest today I found this place. I am 64 years old I was born,raised and live in Los Angeles,California. I had a motorcycle accident in 1970 . My left leg was severly damaged including nerve damage.It would not heal so they did an "open reducion" and of course they required blood. From that blood I got what was called "Serum Hepatitis" or "Hepatitis B" Everything was fine I lived with even not knowing I had HEP C until a year ago January.Then I found out I had HEP C. I live W/ 2 German shepherd dogs they are my only family.No brothers No Sisters I am what is called "an only" .I am here hopefully so I won't be so alone.Soon I may need to take Chemo .I should know soon. I need the support this group could give me and I can help give others. Regards Bazooka Welcome Welcome to the family, What do you want us to call you? We have a loving little family here. I'm SuZie, resident of the GWN (Great White North) a k a Thunder Bay, Ontario, Canada. We have some other Canadians here, also some Americans & I believe one Italian. The Group covers the spectrum. There are four or five of us Post transplant, a few on tx(treatment), some in SVR - Sustained Viral Response & some like me & Del who don't respond to tx & are now ESLD -End Stage Liver Disease & waiting for the go ahead for t p. I was dx'd in the early '90s but my docs & I believe I got it in the late "60s when I was heavily self-medicated. I was told I had "serum Hepatitis" which is now split into HBV & HCV. It was fun & I believe worth it. Now I live up here with my roommate SpYke - the Galactic Overlord in Training (aka a cat) He's almost got me trained now. You'll hear more of him later. Anyways, welcome to the family. Jump in, the water's fine. Tell us about yourself & your disease or just sit & lurk for a while, it's up to you. If you have any questions, ask away. There is no such thing as a stupid question to quote our fearless leader. If we don't have the answer, we'll find it somewhere. Check out the web site, there are some mini-bios there & a lot of files that may contain some of the answers you're looking. Welcome, SuZie & Sir SpYke the Fuzzy Next time I'm coming back as a cat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 I have three german shephers,one is from the SPCA and is half german shepherd and half lab.He looks mostly lab but the facial markings of a german Shepherd.How come you have to go through C hemo.Do you have friends that can help you with the dogs? Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of SegalSent: June 29, 2007 8:12 PMTo: HepatitisCSupportGroupForDummies Subject: Re: Welcome Hello my name to the group is doglionboat otherwise known as Bazooka Yes I am new today.I am in another Yahoo group and once in a while I search the groups for places of interest today I found this place. I am 64 years old I was born,raised and live in Los Angeles,California. I had a motorcycle accident in 1970 . My left leg was severly damaged including nerve damage.It would not heal so they did an "open reducion" and of course they required blood. From that blood I got what was called "Serum Hepatitis" or "Hepatitis B" Everything was fine I lived with even not knowing I had HEP C until a year ago January.Then I found out I had HEP C. I live W/ 2 German shepherd dogs they are my only family.No brothers No Sisters I am what is called "an only" .I am here hopefully so I won't be so alone.Soon I may need to take Chemo .I should know soon. I need the support this group could give me and I can help give others. Regards Bazooka Welcome Welcome to the family, What do you want us to call you? We have a loving little family here. I'm SuZie, resident of the GWN (Great White North) a k a Thunder Bay, Ontario, Canada. We have some other Canadians here, also some Americans & I believe one Italian. The Group covers the spectrum. There are four or five of us Post transplant, a few on tx(treatment), some in SVR - Sustained Viral Response & some like me & Del who don't respond to tx & are now ESLD -End Stage Liver Disease & waiting for the go ahead for t p. I was dx'd in the early '90s but my docs & I believe I got it in the late "60s when I was heavily self-medicated. I was told I had "serum Hepatitis" which is now split into HBV & HCV. It was fun & I believe worth it. Now I live up here with my roommate SpYke - the Galactic Overlord in Training (aka a cat) He's almost got me trained now. You'll hear more of him later. Anyways, welcome to the family. Jump in, the water's fine. Tell us about yourself & your disease or just sit & lurk for a while, it's up to you. If you have any questions, ask away. There is no such thing as a stupid question to quote our fearless leader. If we don't have the answer, we'll find it somewhere. Check out the web site, there are some mini-bios there & a lot of files that may contain some of the answers you're looking. Welcome, SuZie & Sir SpYke the Fuzzy Next time I'm coming back as a cat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 I have three german shephers,one is from the SPCA and is half german shepherd and half lab.He looks mostly lab but the facial markings of a german Shepherd.How come you have to go through C hemo.Do you have friends that can help you with the dogs? Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of SegalSent: June 29, 2007 8:12 PMTo: HepatitisCSupportGroupForDummies Subject: Re: Welcome Hello my name to the group is doglionboat otherwise known as Bazooka Yes I am new today.I am in another Yahoo group and once in a while I search the groups for places of interest today I found this place. I am 64 years old I was born,raised and live in Los Angeles,California. I had a motorcycle accident in 1970 . My left leg was severly damaged including nerve damage.It would not heal so they did an "open reducion" and of course they required blood. From that blood I got what was called "Serum Hepatitis" or "Hepatitis B" Everything was fine I lived with even not knowing I had HEP C until a year ago January.Then I found out I had HEP C. I live W/ 2 German shepherd dogs they are my only family.No brothers No Sisters I am what is called "an only" .I am here hopefully so I won't be so alone.Soon I may need to take Chemo .I should know soon. I need the support this group could give me and I can help give others. Regards Bazooka Welcome Welcome to the family, What do you want us to call you? We have a loving little family here. I'm SuZie, resident of the GWN (Great White North) a k a Thunder Bay, Ontario, Canada. We have some other Canadians here, also some Americans & I believe one Italian. The Group covers the spectrum. There are four or five of us Post transplant, a few on tx(treatment), some in SVR - Sustained Viral Response & some like me & Del who don't respond to tx & are now ESLD -End Stage Liver Disease & waiting for the go ahead for t p. I was dx'd in the early '90s but my docs & I believe I got it in the late "60s when I was heavily self-medicated. I was told I had "serum Hepatitis" which is now split into HBV & HCV. It was fun & I believe worth it. Now I live up here with my roommate SpYke - the Galactic Overlord in Training (aka a cat) He's almost got me trained now. You'll hear more of him later. Anyways, welcome to the family. Jump in, the water's fine. Tell us about yourself & your disease or just sit & lurk for a while, it's up to you. If you have any questions, ask away. There is no such thing as a stupid question to quote our fearless leader. If we don't have the answer, we'll find it somewhere. Check out the web site, there are some mini-bios there & a lot of files that may contain some of the answers you're looking. Welcome, SuZie & Sir SpYke the Fuzzy Next time I'm coming back as a cat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Hi, I'm new to all this. My husband was just dx'd (picked up that lingo quick) w/ Hep C. He's a nurse & probably picked it up from a patient but who knows? He's probably had it for 15-20 years and has just started feeling poorly the last 3-4 years (lethargic, pains in joints, lower back, etc.) He just thought he was feeling the pangs of getting older (he's 48). He first tested positive for Rheumatoid arthritis, but the doctor did some further testing & we got the pos Hep C. I've been tested as well & we're waiting for the outcome. We both have so many questions. We're reading all the books we can find, but they seem rather conflicting. Some praise treatment (interfuron), some say holistic is the only way to go. I'm sure I'll have lots more questions as time goes on. Thanks for being here. PS-We have 2 cats (Jimmy & Sassy) who are brother & sister , 17-years-old & going strong. As well as 4 dogs (Cocker Spaniels) Lydia > > Welcome to the family, > We have a loving little family here. I'm SuZie, resident of the GWN (Great White North) a k a Thunder Bay, Ontario, Canada. We have some other Canadians here, also some Americans & I believe one Italian. This Group covers the spectrum. There are four or five of us Post transplant, quite a few on tx(treatment) right now, some waitingto start tx, some in SVR - Sustained Viral Response & some like me & Del who don't respond to tx & are now ESLD -End Stage Liver Disease & waiting for the go ahead for t p. > I was dx'd in the early '90s but my docs & I believe I got it in the late '60s when I was heavily self-medicated. I was told I had " serum Hepatitis " which is now split into HBV & HCV. It was fun & I believe worth it. > Now I live up here with my roommate SpYke - the Galactic Overlord in Training (aka a cat) He's almost got me trained now. You'll hear more of him later. > Anyways, welcome to the family. If you have any questions, ask away. There is no such thing as a stupid question. If we don't have the answer, we'll find it somewhere. Check out the web site, there are some mini-bios there so you'll know who's who when they talk to you or you to them. > Welcome, > SuZie & Sir SpYke the Fuzzy > > > Next time I'm coming back as a cat > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Hi, I'm new to all this. My husband was just dx'd (picked up that lingo quick) w/ Hep C. He's a nurse & probably picked it up from a patient but who knows? He's probably had it for 15-20 years and has just started feeling poorly the last 3-4 years (lethargic, pains in joints, lower back, etc.) He just thought he was feeling the pangs of getting older (he's 48). He first tested positive for Rheumatoid arthritis, but the doctor did some further testing & we got the pos Hep C. I've been tested as well & we're waiting for the outcome. We both have so many questions. We're reading all the books we can find, but they seem rather conflicting. Some praise treatment (interfuron), some say holistic is the only way to go. I'm sure I'll have lots more questions as time goes on. Thanks for being here. PS-We have 2 cats (Jimmy & Sassy) who are brother & sister , 17-years-old & going strong. As well as 4 dogs (Cocker Spaniels) Lydia > > Welcome to the family, > We have a loving little family here. I'm SuZie, resident of the GWN (Great White North) a k a Thunder Bay, Ontario, Canada. We have some other Canadians here, also some Americans & I believe one Italian. This Group covers the spectrum. There are four or five of us Post transplant, quite a few on tx(treatment) right now, some waitingto start tx, some in SVR - Sustained Viral Response & some like me & Del who don't respond to tx & are now ESLD -End Stage Liver Disease & waiting for the go ahead for t p. > I was dx'd in the early '90s but my docs & I believe I got it in the late '60s when I was heavily self-medicated. I was told I had " serum Hepatitis " which is now split into HBV & HCV. It was fun & I believe worth it. > Now I live up here with my roommate SpYke - the Galactic Overlord in Training (aka a cat) He's almost got me trained now. You'll hear more of him later. > Anyways, welcome to the family. If you have any questions, ask away. There is no such thing as a stupid question. If we don't have the answer, we'll find it somewhere. Check out the web site, there are some mini-bios there so you'll know who's who when they talk to you or you to them. > Welcome, > SuZie & Sir SpYke the Fuzzy > > > Next time I'm coming back as a cat > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Hi, I'm new to all this. My husband was just dx'd (picked up that lingo quick) w/ Hep C. He's a nurse & probably picked it up from a patient but who knows? He's probably had it for 15-20 years and has just started feeling poorly the last 3-4 years (lethargic, pains in joints, lower back, etc.) He just thought he was feeling the pangs of getting older (he's 48). He first tested positive for Rheumatoid arthritis, but the doctor did some further testing & we got the pos Hep C. I've been tested as well & we're waiting for the outcome. We both have so many questions. We're reading all the books we can find, but they seem rather conflicting. Some praise treatment (interfuron), some say holistic is the only way to go. I'm sure I'll have lots more questions as time goes on. Thanks for being here. PS-We have 2 cats (Jimmy & Sassy) who are brother & sister , 17-years-old & going strong. As well as 4 dogs (Cocker Spaniels) Lydia > > Welcome to the family, > We have a loving little family here. I'm SuZie, resident of the GWN (Great White North) a k a Thunder Bay, Ontario, Canada. We have some other Canadians here, also some Americans & I believe one Italian. This Group covers the spectrum. There are four or five of us Post transplant, quite a few on tx(treatment) right now, some waitingto start tx, some in SVR - Sustained Viral Response & some like me & Del who don't respond to tx & are now ESLD -End Stage Liver Disease & waiting for the go ahead for t p. > I was dx'd in the early '90s but my docs & I believe I got it in the late '60s when I was heavily self-medicated. I was told I had " serum Hepatitis " which is now split into HBV & HCV. It was fun & I believe worth it. > Now I live up here with my roommate SpYke - the Galactic Overlord in Training (aka a cat) He's almost got me trained now. You'll hear more of him later. > Anyways, welcome to the family. If you have any questions, ask away. There is no such thing as a stupid question. If we don't have the answer, we'll find it somewhere. Check out the web site, there are some mini-bios there so you'll know who's who when they talk to you or you to them. > Welcome, > SuZie & Sir SpYke the Fuzzy > > > Next time I'm coming back as a cat > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Hi Lydia. Welcome to the best place you can be right now! I don't know how you found it, that doesn't matter (could it be HCV related?? haha) As you are aware it seems, it really doesn't matter, at this point, where anyone got it. We just GOT IT!! I did the same thing hubby did, regarding the pains... and my friends confirmed by saying the pains were just what happens.. welcome to the world of getting older!! I'm 54, now, and will be 55 next year! I'm not much on the techno/medical/information side of this disease, I just have it! hahahaha... It's very good your reading and learning about HEP C.. You have a priceless source of info here, that we love to share, and help others with. It's sincere, open, and compassionate. You will probably discover that nothing is the same for anybody. No matter what, it seems. The only thing that you can count on remaining the same, is that nothing will remain the same. Four cockers!!! WoW! Do they have long hair? I have a shihtzu, Kirby, and his hair mats up as soon as it starts getting even a little too long. He is shaggy lookin' like his daddy right now!!! There are good sides to this disease, and you will become aware of them... That is something I have seen in myself, and everyone else seems to agree as they experienced it too. It's really quite an awakening, that for me, I don't believe would've happened without having HEP C. It's good you have each other, and I just wanted to say Hi, and welcome! Delilovebutterboy wrote: Hi,I'm new to all this. My husband was just dx'd (picked up that lingoquick) w/ Hep C. He's a nurse & probably picked it up from a patient butwho knows? He's probably had it for 15-20 years and has just startedfeeling poorly the last 3-4 years (lethargic, pains in joints, lowerback, etc.) He just thought he was feeling the pangs of getting older(he's 48). He first tested positive for Rheumatoid arthritis, but thedoctor did some further testing & we got the pos Hep C. I've been testedas well & we're waiting for the outcome.We both have so many questions. We're reading all the books we can find,but they seem rather conflicting. Some praise treatment (interfuron),some say holistic is the only way to go.I'm sure I'll have lots more questions as time goes on. Thanks for beinghere.PS-We have 2 cats (Jimmy & Sassy) who are brother & sister ,17-years-old & going strong. As well as 4 dogs (Cocker Spaniels)Lydia>> Welcome to the family,> We have a loving little family here. I'm SuZie, resident of the GWN(Great White North) a k a Thunder Bay, Ontario, Canada. We have someother Canadians here, also some Americans & I believe one Italian. ThisGroup covers the spectrum. There are four or five of us Post transplant,quite a few on tx(treatment) right now, some waitingto start tx, some inSVR - Sustained Viral Response & some like me & Del who don't respond totx & are now ESLD -End Stage Liver Disease & waiting for the go aheadfor t p.> I was dx'd in the early '90s but my docs & I believe I got it in thelate '60s when I was heavily self-medicated. I was told I had "serumHepatitis" which is now split into HBV & HCV. It was fun & I believeworth it.> Now I live up here with my roommate SpYke - the Galactic Overlord inTraining (aka a cat) He's almost got me trained now. You'll hear more ofhim later.> Anyways, welcome to the family. If you have any questions, ask away.There is no such thing as a stupid question. If we don't have theanswer, we'll find it somewhere. Check out the web site, there are somemini-bios there so you'll know who's who when they talk to you or you tothem.> Welcome,> SuZie & Sir SpYke the Fuzzy>>> Next time I'm coming back as a cat> Got a little couch potato? Check out fun summer activities for kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Hi Lydia. Welcome to the best place you can be right now! I don't know how you found it, that doesn't matter (could it be HCV related?? haha) As you are aware it seems, it really doesn't matter, at this point, where anyone got it. We just GOT IT!! I did the same thing hubby did, regarding the pains... and my friends confirmed by saying the pains were just what happens.. welcome to the world of getting older!! I'm 54, now, and will be 55 next year! I'm not much on the techno/medical/information side of this disease, I just have it! hahahaha... It's very good your reading and learning about HEP C.. You have a priceless source of info here, that we love to share, and help others with. It's sincere, open, and compassionate. You will probably discover that nothing is the same for anybody. No matter what, it seems. The only thing that you can count on remaining the same, is that nothing will remain the same. Four cockers!!! WoW! Do they have long hair? I have a shihtzu, Kirby, and his hair mats up as soon as it starts getting even a little too long. He is shaggy lookin' like his daddy right now!!! There are good sides to this disease, and you will become aware of them... That is something I have seen in myself, and everyone else seems to agree as they experienced it too. It's really quite an awakening, that for me, I don't believe would've happened without having HEP C. It's good you have each other, and I just wanted to say Hi, and welcome! Delilovebutterboy wrote: Hi,I'm new to all this. My husband was just dx'd (picked up that lingoquick) w/ Hep C. He's a nurse & probably picked it up from a patient butwho knows? He's probably had it for 15-20 years and has just startedfeeling poorly the last 3-4 years (lethargic, pains in joints, lowerback, etc.) He just thought he was feeling the pangs of getting older(he's 48). He first tested positive for Rheumatoid arthritis, but thedoctor did some further testing & we got the pos Hep C. I've been testedas well & we're waiting for the outcome.We both have so many questions. We're reading all the books we can find,but they seem rather conflicting. Some praise treatment (interfuron),some say holistic is the only way to go.I'm sure I'll have lots more questions as time goes on. Thanks for beinghere.PS-We have 2 cats (Jimmy & Sassy) who are brother & sister ,17-years-old & going strong. As well as 4 dogs (Cocker Spaniels)Lydia>> Welcome to the family,> We have a loving little family here. I'm SuZie, resident of the GWN(Great White North) a k a Thunder Bay, Ontario, Canada. We have someother Canadians here, also some Americans & I believe one Italian. ThisGroup covers the spectrum. There are four or five of us Post transplant,quite a few on tx(treatment) right now, some waitingto start tx, some inSVR - Sustained Viral Response & some like me & Del who don't respond totx & are now ESLD -End Stage Liver Disease & waiting for the go aheadfor t p.> I was dx'd in the early '90s but my docs & I believe I got it in thelate '60s when I was heavily self-medicated. I was told I had "serumHepatitis" which is now split into HBV & HCV. It was fun & I believeworth it.> Now I live up here with my roommate SpYke - the Galactic Overlord inTraining (aka a cat) He's almost got me trained now. You'll hear more ofhim later.> Anyways, welcome to the family. If you have any questions, ask away.There is no such thing as a stupid question. If we don't have theanswer, we'll find it somewhere. Check out the web site, there are somemini-bios there so you'll know who's who when they talk to you or you tothem.> Welcome,> SuZie & Sir SpYke the Fuzzy>>> Next time I'm coming back as a cat> Got a little couch potato? Check out fun summer activities for kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Hi Lydia, If you're looking for answers - we got 'em. Check out the files section at the bottom of this page for some of them. Personally, I don't have much faith in holistic medicine vs HCV but some of us have had some good results. The thing is, some herbs etc aren't liver friendly. I'd say check with your doctor first before trying anything OTC. The current tx has a much better track record than the ones I tried back in the day & the chances of SVR are over 50% with the latest combo - peg-interferon & ribivirin, depending on what virus genotype you have. I just can't do tx anymore because I'm in ESLD or I'd try again in a New York minute. Your husband has to get himself a good doctor, a G I or Hepatologist. Has he had a biopsy or ultrasound yet? There should be a file on questions to ask your doctor & one on what to do for the newly diagnosed, if they're not there just ask & we'll repost them. Welcome again, SuZie P.S. We all seem to be animal lovers here, so wlecome to the cats & dogs tooilovebutterboy wrote: Hi,I'm new to all this. My husband was just dx'd (picked up that lingoquick) w/ Hep C. He's a nurse & probably picked it up from a patient butwho knows? He's probably had it for 15-20 years and has just startedfeeling poorly the last 3-4 years (lethargic, pains in joints, lowerback, etc.) He just thought he was feeling the pangs of getting older(he's 48). He first tested positive for Rheumatoid arthritis, but thedoctor did some further testing & we got the pos Hep C. I've been testedas well & we're waiting for the outcome.We both have so many questions. We're reading all the books we can find,but they seem rather conflicting. Some praise treatment (interfuron),some say holistic is the only way to go.I'm sure I'll have lots more questions as time goes on. Thanks for beinghere.PS-We have 2 cats (Jimmy & Sassy) who are brother & sister ,17-years-old & going strong. As well as 4 dogs (Cocker Spaniels)Lydia Next time I'm coming back as a cat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Hi Lydia, If you're looking for answers - we got 'em. Check out the files section at the bottom of this page for some of them. Personally, I don't have much faith in holistic medicine vs HCV but some of us have had some good results. The thing is, some herbs etc aren't liver friendly. I'd say check with your doctor first before trying anything OTC. The current tx has a much better track record than the ones I tried back in the day & the chances of SVR are over 50% with the latest combo - peg-interferon & ribivirin, depending on what virus genotype you have. I just can't do tx anymore because I'm in ESLD or I'd try again in a New York minute. Your husband has to get himself a good doctor, a G I or Hepatologist. Has he had a biopsy or ultrasound yet? There should be a file on questions to ask your doctor & one on what to do for the newly diagnosed, if they're not there just ask & we'll repost them. Welcome again, SuZie P.S. We all seem to be animal lovers here, so wlecome to the cats & dogs tooilovebutterboy wrote: Hi,I'm new to all this. My husband was just dx'd (picked up that lingoquick) w/ Hep C. He's a nurse & probably picked it up from a patient butwho knows? He's probably had it for 15-20 years and has just startedfeeling poorly the last 3-4 years (lethargic, pains in joints, lowerback, etc.) He just thought he was feeling the pangs of getting older(he's 48). He first tested positive for Rheumatoid arthritis, but thedoctor did some further testing & we got the pos Hep C. I've been testedas well & we're waiting for the outcome.We both have so many questions. We're reading all the books we can find,but they seem rather conflicting. Some praise treatment (interfuron),some say holistic is the only way to go.I'm sure I'll have lots more questions as time goes on. Thanks for beinghere.PS-We have 2 cats (Jimmy & Sassy) who are brother & sister ,17-years-old & going strong. As well as 4 dogs (Cocker Spaniels)Lydia Next time I'm coming back as a cat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Hi Lydia, If you're looking for answers - we got 'em. Check out the files section at the bottom of this page for some of them. Personally, I don't have much faith in holistic medicine vs HCV but some of us have had some good results. The thing is, some herbs etc aren't liver friendly. I'd say check with your doctor first before trying anything OTC. The current tx has a much better track record than the ones I tried back in the day & the chances of SVR are over 50% with the latest combo - peg-interferon & ribivirin, depending on what virus genotype you have. I just can't do tx anymore because I'm in ESLD or I'd try again in a New York minute. Your husband has to get himself a good doctor, a G I or Hepatologist. Has he had a biopsy or ultrasound yet? There should be a file on questions to ask your doctor & one on what to do for the newly diagnosed, if they're not there just ask & we'll repost them. Welcome again, SuZie P.S. We all seem to be animal lovers here, so wlecome to the cats & dogs tooilovebutterboy wrote: Hi,I'm new to all this. My husband was just dx'd (picked up that lingoquick) w/ Hep C. He's a nurse & probably picked it up from a patient butwho knows? He's probably had it for 15-20 years and has just startedfeeling poorly the last 3-4 years (lethargic, pains in joints, lowerback, etc.) He just thought he was feeling the pangs of getting older(he's 48). He first tested positive for Rheumatoid arthritis, but thedoctor did some further testing & we got the pos Hep C. I've been testedas well & we're waiting for the outcome.We both have so many questions. We're reading all the books we can find,but they seem rather conflicting. Some praise treatment (interfuron),some say holistic is the only way to go.I'm sure I'll have lots more questions as time goes on. Thanks for beinghere.PS-We have 2 cats (Jimmy & Sassy) who are brother & sister ,17-years-old & going strong. As well as 4 dogs (Cocker Spaniels)Lydia Next time I'm coming back as a cat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Hi, Lydia. Welcome. I'm VickieG, aka: onelildeltagirl. I'm 58 as of July 24th and started tx on June 26th. this year. I'm in my 7th. week of treatment. I've had hep c since 1984 or 1985 after transfusions after having a car accident. This group has helped me more than I can say. I hope you and your hubby will join in and learn and contribute as well. Hugs, VickieGilovebutterboy wrote: Hi,I'm new to all this. My husband was just dx'd (picked up that lingoquick) w/ Hep C. He's a nurse & probably picked it up from a patient butwho knows? He's probably had it for 15-20 years and has just startedfeeling poorly the last 3-4 years (lethargic, pains in joints, lowerback, etc.) He just thought he was feeling the pangs of getting older(he's 48). He first tested positive for Rheumatoid arthritis, but thedoctor did some further testing & we got the pos Hep C. I've been testedas well & we're waiting for the outcome.We both have so many questions. We're reading all the books we can find,but they seem rather conflicting. Some praise treatment (interfuron),some say holistic is the only way to go.I'm sure I'll have lots more questions as time goes on. Thanks for beinghere.PS-We have 2 cats (Jimmy & Sassy) who are brother & sister ,17-years-old & going strong. As well as 4 dogs (Cocker Spaniels)Lydia>> Welcome to the family,> We have a loving little family here. I'm SuZie, resident of the GWN(Great White North) a k a Thunder Bay, Ontario, Canada. We have someother Canadians here, also some Americans & I believe one Italian. ThisGroup covers the spectrum. There are four or five of us Post transplant,quite a few on tx(treatment) right now, some waitingto start tx, some inSVR - Sustained Viral Response & some like me & Del who don't respond totx & are now ESLD -End Stage Liver Disease & waiting for the go aheadfor t p.> I was dx'd in the early '90s but my docs & I believe I got it in thelate '60s when I was heavily self-medicated. I was told I had "serumHepatitis" which is now split into HBV & HCV. It was fun & I believeworth it.> Now I live up here with my roommate SpYke - the Galactic Overlord inTraining (aka a cat) He's almost got me trained now. You'll hear more ofhim later.> Anyways, welcome to the family. If you have any questions, ask away.There is no such thing as a stupid question. If we don't have theanswer, we'll find it somewhere. Check out the web site, there are somemini-bios there so you'll know who's who when they talk to you or you tothem.> Welcome,> SuZie & Sir SpYke the Fuzzy>>> Next time I'm coming back as a cat> Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Hi, Lydia. Welcome. I'm VickieG, aka: onelildeltagirl. I'm 58 as of July 24th and started tx on June 26th. this year. I'm in my 7th. week of treatment. I've had hep c since 1984 or 1985 after transfusions after having a car accident. This group has helped me more than I can say. I hope you and your hubby will join in and learn and contribute as well. Hugs, VickieGilovebutterboy wrote: Hi,I'm new to all this. My husband was just dx'd (picked up that lingoquick) w/ Hep C. He's a nurse & probably picked it up from a patient butwho knows? He's probably had it for 15-20 years and has just startedfeeling poorly the last 3-4 years (lethargic, pains in joints, lowerback, etc.) He just thought he was feeling the pangs of getting older(he's 48). He first tested positive for Rheumatoid arthritis, but thedoctor did some further testing & we got the pos Hep C. I've been testedas well & we're waiting for the outcome.We both have so many questions. We're reading all the books we can find,but they seem rather conflicting. Some praise treatment (interfuron),some say holistic is the only way to go.I'm sure I'll have lots more questions as time goes on. Thanks for beinghere.PS-We have 2 cats (Jimmy & Sassy) who are brother & sister ,17-years-old & going strong. As well as 4 dogs (Cocker Spaniels)Lydia>> Welcome to the family,> We have a loving little family here. I'm SuZie, resident of the GWN(Great White North) a k a Thunder Bay, Ontario, Canada. We have someother Canadians here, also some Americans & I believe one Italian. ThisGroup covers the spectrum. There are four or five of us Post transplant,quite a few on tx(treatment) right now, some waitingto start tx, some inSVR - Sustained Viral Response & some like me & Del who don't respond totx & are now ESLD -End Stage Liver Disease & waiting for the go aheadfor t p.> I was dx'd in the early '90s but my docs & I believe I got it in thelate '60s when I was heavily self-medicated. I was told I had "serumHepatitis" which is now split into HBV & HCV. It was fun & I believeworth it.> Now I live up here with my roommate SpYke - the Galactic Overlord inTraining (aka a cat) He's almost got me trained now. You'll hear more ofhim later.> Anyways, welcome to the family. If you have any questions, ask away.There is no such thing as a stupid question. If we don't have theanswer, we'll find it somewhere. Check out the web site, there are somemini-bios there so you'll know who's who when they talk to you or you tothem.> Welcome,> SuZie & Sir SpYke the Fuzzy>>> Next time I'm coming back as a cat> Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 Hi, Lydia. Welcome. I'm VickieG, aka: onelildeltagirl. I'm 58 as of July 24th and started tx on June 26th. this year. I'm in my 7th. week of treatment. I've had hep c since 1984 or 1985 after transfusions after having a car accident. This group has helped me more than I can say. I hope you and your hubby will join in and learn and contribute as well. Hugs, VickieGilovebutterboy wrote: Hi,I'm new to all this. My husband was just dx'd (picked up that lingoquick) w/ Hep C. He's a nurse & probably picked it up from a patient butwho knows? He's probably had it for 15-20 years and has just startedfeeling poorly the last 3-4 years (lethargic, pains in joints, lowerback, etc.) He just thought he was feeling the pangs of getting older(he's 48). He first tested positive for Rheumatoid arthritis, but thedoctor did some further testing & we got the pos Hep C. I've been testedas well & we're waiting for the outcome.We both have so many questions. We're reading all the books we can find,but they seem rather conflicting. Some praise treatment (interfuron),some say holistic is the only way to go.I'm sure I'll have lots more questions as time goes on. Thanks for beinghere.PS-We have 2 cats (Jimmy & Sassy) who are brother & sister ,17-years-old & going strong. As well as 4 dogs (Cocker Spaniels)Lydia>> Welcome to the family,> We have a loving little family here. I'm SuZie, resident of the GWN(Great White North) a k a Thunder Bay, Ontario, Canada. We have someother Canadians here, also some Americans & I believe one Italian. ThisGroup covers the spectrum. There are four or five of us Post transplant,quite a few on tx(treatment) right now, some waitingto start tx, some inSVR - Sustained Viral Response & some like me & Del who don't respond totx & are now ESLD -End Stage Liver Disease & waiting for the go aheadfor t p.> I was dx'd in the early '90s but my docs & I believe I got it in thelate '60s when I was heavily self-medicated. I was told I had "serumHepatitis" which is now split into HBV & HCV. It was fun & I believeworth it.> Now I live up here with my roommate SpYke - the Galactic Overlord inTraining (aka a cat) He's almost got me trained now. You'll hear more ofhim later.> Anyways, welcome to the family. If you have any questions, ask away.There is no such thing as a stupid question. If we don't have theanswer, we'll find it somewhere. Check out the web site, there are somemini-bios there so you'll know who's who when they talk to you or you tothem.> Welcome,> SuZie & Sir SpYke the Fuzzy>>> Next time I'm coming back as a cat> Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2007 Report Share Posted August 13, 2007 Hi Suzie...I am new to this site and only joined to help convince a friend of mine that is in his 7th week of tx...I completed tx about 4yrs ago and am free of the bug or it is in remission or whatever...anyways you mentioned that success is better than 50% and I was to believe it was only 5% that did not clear...is you 50% a correct number ??? I hope you are doing well today....boy from Michigan.. Re: Re: Welcome Hi Lydia, If you're looking for answers - we got 'em. Check out the files section at the bottom of this page for some of them. Personally, I don't have much faith in holistic medicine vs HCV but some of us have had some good results. The thing is, some herbs etc aren't liver friendly. I'd say check with your doctor first before trying anything OTC. The current tx has a much better track record than the ones I tried back in the day & the chances of SVR are over 50% with the latest combo - peg-interferon & ribivirin, depending on what virus genotype you have. I just can't do tx anymore because I'm in ESLD or I'd try again in a New York minute. Your husband has to get himself a good doctor, a G I or Hepatologist. Has he had a biopsy or ultrasound yet? There should be a file on questions to ask your doctor & one on what to do for the newly diagnosed, if they're not there just ask & we'll repost them. Welcome again, SuZie P.S. We all seem to be animal lovers here, so wlecome to the cats & dogs tooilovebutterboy <Lydia58optonline (DOT) net> wrote: Hi,I'm new to all this. My husband was just dx'd (picked up that lingoquick) w/ Hep C. He's a nurse & probably picked it up from a patient butwho knows? He's probably had it for 15-20 years and has just startedfeeling poorly the last 3-4 years (lethargic, pains in joints, lowerback, etc.) He just thought he was feeling the pangs of getting older(he's 48). He first tested positive for Rheumatoid arthritis, but thedoctor did some further testing & we got the pos Hep C. I've been testedas well & we're waiting for the outcome.We both have so many questions. We're reading all the books we can find,but they seem rather conflicting. Some praise treatment (interfuron) ,some say holistic is the only way to go.I'm sure I'll have lots more questions as time goes on. Thanks for beinghere.PS-We have 2 cats (Jimmy & Sassy) who are brother & sister ,17-years-old & going strong. As well as 4 dogs (Cocker Spaniels)Lydia Next time I'm coming back as a cat Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.