Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 http://shwachmandiamondamerica.org/cgi/wp/wp-content/uploads/2009/01/sdajanf eb09-newsletter.pdf ph's article is here with mine-Mine is simply titled looking on the Bright Side, hence the reason ph wanted his to be titled the BRIGHTER side.. I send this not for my articles.but there are several very good articles in this newsletter-one is 's story. She developed sepsis as an infant and almost died. She survived and had to have her toes amputated and the sepsis caused damage.her one leg turned, etc. She had a bone marrow transplant several years ago and this past summer had her leg amputated. She is doing amazingly well and I think you will find her story inspiring. I have been blessed to meet so many amazing people on the journey we call SDS Highway 101. God has blessed us with an amazing SDS family and I wanted to share them with you this morning! Perhaps you are dealing with a life-threatening illness or know someone who is..these children are an inspiration to us all. If you would like to read past issues, we have the back issues of the newsletters posted on our website (link to follow). We have many children who have written articles-the SDS children themselves and their siblings. http://shwachmandiamondamerica.org/newsletter.html Peace be with you, Pattie Mom to age 14, healthy, age 12, Shwachman-Diamond Syndrome and ph age 11, Shwachman-Diamond Syndrome Our family website: <http://www.shwachman.50megs.com> www.shwachman.50megs.com Cleopatra's Blog: http://www.somewhereinegypt.blogspot.com Quote Link to comment Share on other sites More sharing options...
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