Guest guest Posted October 31, 2008 Report Share Posted October 31, 2008 Well that is the info I have had for that last few years. But I wondered if there was anything new happening. It does not make sense to me with how the vaccine is acquired and manufactured that it could have properties to help with the protection of the flu virus. I know the gamma globulin has a shelf life of 18 months so it has to have been made at least 2 years ago if it would expire today. And if it happens as they say and they take the virus from the Southern Hemisphere in there winter and make it for our winter then it helps us and then it goes back to the southern hemisphere to make it for them So based on that it is impossible for the gamma globulin to have it in it. I would love to NOT give him the vaccine especially because of the mercury in it but I think that his risk is too high to get the flu to not get it. YUCK!!!! BARBIE ________________________________ From: Schulman <dietdoc@...> Post < > Sent: Friday, October 31, 2008 4:00:36 PM Subject: Flu Shot Revisited Welcome new families! Sorry I have not had a chance to introduce myself or say hello. I'll write more later. : ) Just following up with our discussion from yesterday... . I spoke with my pharmacist who works for a major immune globulin company. She confirmed that, although the product will help the general state of the immune system, it will not protect against the flu. She explained that the strain is different each year and that, theoretically, adequate IgG against it would not be in the vials. She did reinforce that Gamunex will help with prevention of secondary infections -- and possibly other potential complications. But she suggests that CVIDers get the flu shot -- as directed by their physicians. (Again, it depends on each case and what your Dr. thinks is right for your child.) Obviously, not everyone can tolerate the shot and many will not produce antibodies to it. My daughter does not tolerate the shot. But her immuno and family doc both want her to have it -- in case she is exposed to the flu and, in the off chance, that she produces some transient antibodies to it. Of course, she has an unacceptable reaction to it last year (likely, autoimmune). So, this year we are trying something new... We are splitting the dose (.25 + .25 units rather than .5 units) across a few weeks. So far, she is ok. Splitting the dose is not protocol. But, for her, it's either trying it this way or she gets nothing at all. Tamiflu made her vomit the last time we gave it to her. Sigh... Barbie (sorry I keep writing your name wrong) : ) -- I know you're busy so don't worry about contacting the IDF. Unless you want to. : ) Happy and Safe Halloween to all. mom to CVIDer, 7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2008 Report Share Posted October 31, 2008 Hey, This is just our experience, but our immuno told us not to vaccinate. Last year, everyone in the house had the flu for a good week...except that is! LOL Maybe we were just lucky. @...: mother5590@...: Fri, 31 Oct 2008 15:19:03 -0700Subject: Re: Flu Shot Revisited Well that is the info I have had for that last few years. But I wondered if there was anything new happening. It does not make sense to me with how the vaccine is acquired and manufactured that it could have properties to help with the protection of the flu virus. I know the gamma globulin has a shelf life of 18 months so it has to have been made at least 2 years ago if it would expire today. And if it happens as they say and they take the virus from the Southern Hemisphere in there winter and make it for our winter then it helps us and then it goes back to the southern hemisphere to make it for them So based on that it is impossible for the gamma globulin to have it in it. I would love to NOT give him the vaccine especially because of the mercury in it but I think that his risk is too high to get the flu to not get it. YUCK!!!!BARBIE ________________________________From: Schulman <dietdoc@...> Post < >Sent: Friday, October 31, 2008 4:00:36 PMSubject: Flu Shot RevisitedWelcome new families! Sorry I have not had a chance to introduce myself or say hello. I'll write more later. : )Just following up with our discussion from yesterday... .I spoke with my pharmacist who works for a major immune globulin company. She confirmed that, although the product will help the general state of the immune system, it will not protect against the flu. She explained that the strain is different each year and that, theoretically, adequate IgG against it would not be in the vials. She did reinforce that Gamunex will help with prevention of secondary infections -- and possibly other potential complications. But she suggests that CVIDers get the flu shot -- as directed by their physicians. (Again, it depends on each case and what your Dr. thinks is right for your child.) Obviously, not everyone can tolerate the shot and many will not produce antibodies to it. My daughter does not tolerate the shot. But her immuno and family doc both want her to have it -- in case she is exposed to the flu and, in the off chance, that she produces some transient antibodies to it. Of course, she has an unacceptable reaction to it last year (likely, autoimmune). So, this year we are trying something new... We are splitting the dose (.25 + .25 units rather than .5 units) across a few weeks. So far, she is ok. Splitting the dose is not protocol. But, for her, it's either trying it this way or she gets nothing at all. Tamiflu made her vomit the last time we gave it to her. Sigh...Barbie (sorry I keep writing your name wrong) : ) -- I know you're busy so don't worry about contacting the IDF. Unless you want to. : )Happy and Safe Halloween to all. mom to CVIDer, 7[Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2008 Report Share Posted October 31, 2008 WHO KNOWS???????? BARBIE ________________________________ From: laura smith <iamlaurasmith@...> Sent: Friday, October 31, 2008 7:58:47 PM Subject: RE: Flu Shot Revisited Hey, This is just our experience, but our immuno told us not to vaccinate. Last year, everyone in the house had the flu for a good week...except that is! LOL Maybe we were just lucky. groups (DOT) comFrom: mother5590 (DOT) comDate: Fri, 31 Oct 2008 15:19:03 -0700Subject: Re: Flu Shot Revisited Well that is the info I have had for that last few years. But I wondered if there was anything new happening. It does not make sense to me with how the vaccine is acquired and manufactured that it could have properties to help with the protection of the flu virus. I know the gamma globulin has a shelf life of 18 months so it has to have been made at least 2 years ago if it would expire today. And if it happens as they say and they take the virus from the Southern Hemisphere in there winter and make it for our winter then it helps us and then it goes back to the southern hemisphere to make it for them So based on that it is impossible for the gamma globulin to have it in it. I would love to NOT give him the vaccine especially because of the mercury in it but I think that his risk is too high to get the flu to not get it. YUCK!!!!BARBIE ____________ _________ _________ __From: Schulman <dietdocsbcglobal (DOT) net> Post <groups (DOT) com>Sent: Friday, October 31, 2008 4:00:36 PMSubject: Flu Shot RevisitedWelcome new families! Sorry I have not had a chance to introduce myself or say hello. I'll write more later. : )Just following up with our discussion from yesterday... .I spoke with my pharmacist who works for a major immune globulin company. She confirmed that, although the product will help the general state of the immune system, it will not protect against the flu. She explained that the strain is different each year and that, theoretically, adequate IgG against it would not be in the vials. She did reinforce that Gamunex will help with prevention of secondary infections -- and possibly other potential complications. But she suggests that CVIDers get the flu shot -- as directed by their physicians. (Again, it depends on each case and what your Dr. thinks is right for your child.) Obviously, not everyone can tolerate the shot and many will not produce antibodies to it. My daughter does not tolerate the shot. But her immuno and family doc both want her to have it -- in case she is exposed to the flu and, in the off chance, that she produces some transient antibodies to it. Of course, she has an unacceptable reaction to it last year (likely, autoimmune). So, this year we are trying something new... We are splitting the dose (.25 + .25 units rather than .5 units) across a few weeks. So far, she is ok. Splitting the dose is not protocol. But, for her, it's either trying it this way or she gets nothing at all. Tamiflu made her vomit the last time we gave it to her. Sigh...Barbie (sorry I keep writing your name wrong) : ) -- I know you're busy so don't worry about contacting the IDF. Unless you want to. : )Happy and Safe Halloween to all. mom to CVIDer, 7[Non-text portions of this message have been removed][Non- text portions of this message have been removed] ____________ _________ _________ _________ _________ _________ _ Store, manage and share up to 5GB with Windows Live SkyDrive. http://skydrive. live.com/ welcome.aspx? provision= 1?ocid=TXT_ TAGLM_WL_ skydrive_ 102008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 Hi, We were also told not to vaccinate. My son has an IgG deficiency. We would never vaccinate him, or any of our children again, as we've done our homework, and we personally consider vaccines ,at this time, to be dangerous for all humans. When the government cleans up the vaccines, changes the schedule, and omits the unnecessary ones, we may reconsider, but not until then. IMHO. Take good care... @...: iamlaurasmith@...: Sat, 1 Nov 2008 00:58:47 +0000Subject: RE: Flu Shot Revisited Hey,This is just our experience, but our immuno told us not to vaccinate. Last year, everyone in the house had the flu for a good week...except that is! LOL Maybe we were just lucky.@...: mother5590@...: Fri, 31 Oct 2008 15:19:03 -0700Subject: Re: Flu Shot RevisitedWell that is the info I have had for that last few years. But I wondered if there was anything new happening. It does not make sense to me with how the vaccine is acquired and manufactured that it could have properties to help with the protection of the flu virus. I know the gamma globulin has a shelf life of 18 months so it has to have been made at least 2 years ago if it would expire today. And if it happens as they say and they take the virus from the Southern Hemisphere in there winter and make it for our winter then it helps us and then it goes back to the southern hemisphere to make it for them So based on that it is impossible for the gamma globulin to have it in it. I would love to NOT give him the vaccine especially because of the mercury in it but I think that his risk is too high to get the flu to not get it. YUCK!!!!BARBIE ________________________________From: Schulman <dietdoc@...> Post < >Sent: Friday, October 31, 2008 4:00:36 PMSubject: Flu Shot RevisitedWelcome new families! Sorry I have not had a chance to introduce myself or say hello. I'll write more later. : )Just following up with our discussion from yesterday... .I spoke with my pharmacist who works for a major immune globulin company. She confirmed that, although the product will help the general state of the immune system, it will not protect against the flu. She explained that the strain is different each year and that, theoretically, adequate IgG against it would not be in the vials. She did reinforce that Gamunex will help with prevention of secondary infections -- and possibly other potential complications. But she suggests that CVIDers get the flu shot -- as directed by their physicians. (Again, it depends on each case and what your Dr. thinks is right for your child.) Obviously, not everyone can tolerate the shot and many will not produce antibodies to it. My daughter does not tolerate the shot. But her immuno and family doc both want her to have it -- in case she is exposed to the flu and, in the off chance, that she produces some transient antibodies to it. Of course, she has an unacceptable reaction to it last year (likely, autoimmune). So, this year we are trying something new... We are splitting the dose (.25 + .25 units rather than .5 units) across a few weeks. So far, she is ok. Splitting the dose is not protocol. But, for her, it's either trying it this way or she gets nothing at all. Tamiflu made her vomit the last time we gave it to her. Sigh...Barbie (sorry I keep writing your name wrong) : ) -- I know you're busy so don't worry about contacting the IDF. Unless you want to. : )Happy and Safe Halloween to all. mom to CVIDer, 7[Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 We were also told not to vaccinate our oldest son with CVID and have decided to do just one vaccine at a time with our youngest son, which amounts to more trips to the doctor, but we feel is safer if our son has a weak immune system, which is not able to be determined yet (newborn). However, we are not to do any live vaccines for at least a year according to our immunologist.   From: LINDA A <lsa5885@...> Subject: RE: Flu Shot Revisited Date: Saturday, November 1, 2008, 8:33 PM Hi, We were also told not to vaccinate. My son has an IgG deficiency. We would never vaccinate him, or any of our children again, as we've done our homework, and we personally consider vaccines ,at this time, to be dangerous for all humans. When the government cleans up the vaccines, changes the schedule, and omits the unnecessary ones, we may reconsider, but not until then. IMHO. Take good care... groups (DOT) comFrom: iamlaurasmith@ hotmail.comDate: Sat, 1 Nov 2008 00:58:47 +0000Subject: RE: Flu Shot Revisited Hey,This is just our experience, but our immuno told us not to vaccinate. Last year, everyone in the house had the flu for a good week...except that is! LOL Maybe we were just lucky.groups (DOT) comFrom: mother5590 (DOT) comDate: Fri, 31 Oct 2008 15:19:03 -0700Subject: Re: Flu Shot RevisitedWell that is the info I have had for that last few years. But I wondered if there was anything new happening. It does not make sense to me with how the vaccine is acquired and manufactured that it could have properties to help with the protection of the flu virus. I know the gamma globulin has a shelf life of 18 months so it has to have been made at least 2 years ago if it would expire today. And if it happens as they say and they take the virus from the Southern Hemisphere in there winter and make it for our winter then it helps us and then it goes back to the southern hemisphere to make it for them So based on that it is impossible for the gamma globulin to have it in it. I would love to NOT give him the vaccine especially because of the mercury in it but I think that his risk is too high to get the flu to not get it. YUCK!!!!BARBIE ____________ _________ _________ __From: Schulman <dietdocsbcglobal (DOT) net> Post <groups (DOT) com>Sent: Friday, October 31, 2008 4:00:36 PMSubject: Flu Shot RevisitedWelcome new families! Sorry I have not had a chance to introduce myself or say hello. I'll write more later. : )Just following up with our discussion from yesterday... .I spoke with my pharmacist who works for a major immune globulin company. She confirmed that, although the product will help the general state of the immune system, it will not protect against the flu. She explained that the strain is different each year and that, theoretically, adequate IgG against it would not be in the vials. She did reinforce that Gamunex will help with prevention of secondary infections -- and possibly other potential complications. But she suggests that CVIDers get the flu shot -- as directed by their physicians. (Again, it depends on each case and what your Dr. thinks is right for your child.) Obviously, not everyone can tolerate the shot and many will not produce antibodies to it. My daughter does not tolerate the shot. But her immuno and family doc both want her to have it -- in case she is exposed to the flu and, in the off chance, that she produces some transient antibodies to it. Of course, she has an unacceptable reaction to it last year (likely, autoimmune). So, this year we are trying something new... We are splitting the dose (.25 + .25 units rather than .5 units) across a few weeks. So far, she is ok. Splitting the dose is not protocol. But, for her, it's either trying it this way or she gets nothing at all. Tamiflu made her vomit the last time we gave it to her. Sigh...Barbie (sorry I keep writing your name wrong) : ) -- I know you're busy so don't worry about contacting the IDF. Unless you want to. : )Happy and Safe Halloween to all. mom to CVIDer, 7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 Generally kids with gamma globulin do not need to vaccinate EXCEPT they have had us get a flu vaccine because supposedly it is not covered in the infusion for the reasons I previously posted. We have been doing it for the past 8 years. We did do some other vaccines with my son with PID initially at a very slow rate but my son had rotten reactions to them. I did not do any live vaccines even at that and it is recommended that most kids with immune not get live vaccines even if they are not on gamma globulin. The discussion we are having now is in reference to the flu vaccine and not being necessary to get it because it is in the gamma globulin. 28,000 people in the US die each year with influenza with the majority of them being children and elderly so it is one of those vaccines that will not irradicate the disease but will hopefully reduce the # that die each year. Other diseases like measles and pertussis have very few cases in comparison although the numbers seem to be rising. I personally agree with the risk vs benefit and right now they need to clean up the act but.... I have concerns with the flu because of the # of influenza that turn in to MRSA pnuemonia and there is very little that can be done even with a normal immune system. These are such hard choices to make and particularly with our kids. I wish I had the answers but I just keep trying to look at risk vs benefits as I try to make choices for my family. BARBIE son to Lucas PID 12 ________________________________ From: gillespie <julieg52@...> Sent: Saturday, November 1, 2008 7:56:05 PM Subject: RE: Flu Shot Revisited We were also told not to vaccinate our oldest son with CVID and have decided to do just one vaccine at a time with our youngest son, which amounts to more trips to the doctor, but we feel is safer if our son has a weak immune system, which is not able to be determined yet (newborn). However, we are not to do any live vaccines for at least a year according to our immunologist. From: LINDA A <lsa5885msn (DOT) com> Subject: RE: Flu Shot Revisited groups (DOT) com Date: Saturday, November 1, 2008, 8:33 PM Hi, We were also told not to vaccinate. My son has an IgG deficiency. We would never vaccinate him, or any of our children again, as we've done our homework, and we personally consider vaccines ,at this time, to be dangerous for all humans. When the government cleans up the vaccines, changes the schedule, and omits the unnecessary ones, we may reconsider, but not until then. IMHO. Take good care... groups (DOT) comFrom: iamlaurasmith@ hotmail.comDate: Sat, 1 Nov 2008 00:58:47 +0000Subject: RE: Flu Shot Revisited Hey,This is just our experience, but our immuno told us not to vaccinate. Last year, everyone in the house had the flu for a good week...except that is! LOL Maybe we were just lucky.groups (DOT) comFrom: mother5590 (DOT) comDate: Fri, 31 Oct 2008 15:19:03 -0700Subject: Re: Flu Shot RevisitedWell that is the info I have had for that last few years. But I wondered if there was anything new happening. It does not make sense to me with how the vaccine is acquired and manufactured that it could have properties to help with the protection of the flu virus. I know the gamma globulin has a shelf life of 18 months so it has to have been made at least 2 years ago if it would expire today. And if it happens as they say and they take the virus from the Southern Hemisphere in there winter and make it for our winter then it helps us and then it goes back to the southern hemisphere to make it for them So based on that it is impossible for the gamma globulin to have it in it. I would love to NOT give him the vaccine especially because of the mercury in it but I think that his risk is too high to get the flu to not get it. YUCK!!!!BARBIE ____________ _________ _________ __From: Schulman <dietdocsbcglobal (DOT) net> Post <@groups . com>Sent: Friday, October 31, 2008 4:00:36 PMSubject: Flu Shot RevisitedWelcome new families! Sorry I have not had a chance to introduce myself or say hello. I'll write more later. : )Just following up with our discussion from yesterday... .I spoke with my pharmacist who works for a major immune globulin company. She confirmed that, although the product will help the general state of the immune system, it will not protect against the flu. She explained that the strain is different each year and that, theoretically, adequate IgG against it would not be in the vials. She did reinforce that Gamunex will help with prevention of secondary infections -- and possibly other potential complications. But she suggests that CVIDers get the flu shot -- as directed by their physicians. (Again, it depends on each case and what your Dr. thinks is right for your child.) Obviously, not everyone can tolerate the shot and many will not produce antibodies to it. My daughter does not tolerate the shot. But her immuno and family doc both want her to have it -- in case she is exposed to the flu and, in the off chance, that she produces some transient antibodies to it. Of course, she has an unacceptable reaction to it last year (likely, autoimmune). So, this year we are trying something new... We are splitting the dose (.25 + .25 units rather than .5 units) across a few weeks. So far, she is ok. Splitting the dose is not protocol. But, for her, it's either trying it this way or she gets nothing at all. Tamiflu made her vomit the last time we gave it to her. Sigh...Barbie (sorry I keep writing your name wrong) : ) -- I know you're busy so don't worry about contacting the IDF. Unless you want to. : )Happy and Safe Halloween to all. mom to CVIDer, 7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 Hi, I have one more thing to share regarding the flu vaccine, and I'll put this to rest. Our government, the CDC, " GUESSED " , incorrectly for the past four years when they decided which strains of influenza to vaccinate our country against. This means that no one was protected from the strains of influenza viruses that were actually circulating throughout our country. And further more, each and every human that received a flu vaccine was then exposed to other strains of influenza, not to mention horrible inert ingredients, that they would never have been exposed to in the first place. This is true, and this is why I personally have no intention of ever receiving or letting my family, ever receive a flu vaccine. You know, it's a personal choice that we must make for our children, as well as ourselves. Obviously, I feel strongly about this, but want you all to know that whatever everyone else chooses is up to them. Take good care... @...: mother5590@...: Sat, 1 Nov 2008 18:48:50 -0700Subject: Re: Flu Shot Revisited Generally kids with gamma globulin do not need to vaccinate EXCEPT they have had us get a flu vaccine because supposedly it is not covered in the infusion for the reasons I previously posted. We have been doing it for the past 8 years. We did do some other vaccines with my son with PID initially at a very slow rate but my son had rotten reactions to them. I did not do any live vaccines even at that and it is recommended that most kids with immune not get live vaccines even if they are not on gamma globulin. The discussion we are having now is in reference to the flu vaccine and not being necessary to get it because it is in the gamma globulin. 28,000 people in the US die each year with influenza with the majority of them being children and elderly so it is one of those vaccines that will not irradicate the disease but will hopefully reduce the # that die each year. Other diseases like measles and pertussis have very few cases in comparison although the numbers seem to be rising. I personally agree with the risk vs benefit and right now they need to clean up the act but.... I have concerns with the flu because of the # of influenza that turn in to MRSA pnuemonia and there is very little that can be done even with a normal immune system. These are such hard choices to make and particularly with our kids. I wish I had the answers but I just keep trying to look at risk vs benefits as I try to make choices for my family. BARBIE son to Lucas PID 12________________________________From: gillespie <julieg52@...>To: @...: Saturday, November 1, 2008 7:56:05 PMSubject: RE: Flu Shot RevisitedWe were also told not to vaccinate our oldest son with CVID and have decided to do just one vaccine at a time with our youngest son, which amounts to more trips to the doctor, but we feel is safer if our son has a weak immune system, which is not able to be determined yet (newborn). However, we are not to do any live vaccines for at least a year according to our immunologist. From: LINDA A <lsa5885msn (DOT) com>Subject: RE: Flu Shot RevisitedTo: groups (DOT) comDate: Saturday, November 1, 2008, 8:33 PMHi,We were also told not to vaccinate. My son has an IgG deficiency. We would never vaccinate him, or any of our children again, as we've done our homework, and we personally consider vaccines ,at this time, to be dangerous for all humans. When the government cleans up the vaccines, changes the schedule, and omits the unnecessary ones, we may reconsider, but not until then. IMHO.Take good care...groups (DOT) comFrom: iamlaurasmith@ hotmail.comDate: Sat, 1 Nov 2008 00:58:47 +0000Subject: RE: Flu Shot RevisitedHey,This is just our experience, but our immuno told us not to vaccinate. Last year, everyone in the house had the flu for a good week...except that is! LOL Maybe we were just lucky.groups (DOT) comFrom: mother5590 (DOT) comDate: Fri, 31 Oct 2008 15:19:03 -0700Subject: Re: Flu Shot RevisitedWell that is the info I have had for that last few years. But I wondered if there was anything new happening. It does not make sense to me with how the vaccine is acquired and manufactured that it could have properties to help with the protection of the flu virus. I know the gamma globulin has a shelf life of 18 months so it has to have been made at least 2 years ago if it would expire today. And if it happens as they say and they take the virus from the Southern Hemisphere in there winter and make it for our winter then it helps us and then it goes back to the southern hemisphere to make it for them So based on that it is impossible forthe gamma globulin to have it in it. I would love to NOT give him the vaccine especially because of the mercury in it but I think that his risk is too high to get the flu to not get it. YUCK!!!!BARBIE ____________ _________ _________ __From: Schulman <dietdocsbcglobal (DOT) net> Post <@groups . com>Sent: Friday, October 31, 2008 4:00:36 PMSubject: Flu Shot RevisitedWelcome new families! Sorry I have not had a chance to introduce myself or say hello. I'll write more later. : )Just following up with our discussion from yesterday... .I spoke with my pharmacist who works for a major immune globulin company. She confirmed that, although the product will help the general state of the immune system, it will not protect against the flu. She explained that the strain is different each year and that, theoretically, adequate IgG against it would not be in the vials. She did reinforce that Gamunex will help with prevention ofsecondary infections -- and possibly other potential complications. But she suggests that CVIDers get the flu shot -- as directed by their physicians. (Again, it depends on each case and what your Dr. thinks is right for your child.) Obviously, not everyone can tolerate the shot and many will not produce antibodies to it. My daughter does not tolerate the shot. But her immuno and family doc both want her to have it -- in case she is exposed to the flu and, in the off chance, that she produces some transient antibodies to it. Of course, she has an unacceptable reaction to it last year (likely, autoimmune). So, this year we are trying something new... We are splitting the dose (.25 + .25 units rather than .5 units) across a few weeks. So far, she is ok. Splitting the dose is not protocol. But, for her, it's either trying it this way or she gets nothing at all. Tamiflu made her vomit the last time we gave it to her. Sigh...Barbie (sorry I keep writing yourname wrong) : ) -- I know you're busy so don't worry about contacting the IDF. Unless you want to. : )Happy and Safe Halloween to all. mom to CVIDer, 7[Non-text portions of this message have been removed][Non- text portions of this message have been removed] ____________ _________ _________ _________ _________ _________ _Store, manage and share up to 5GB with Windows Live SkyDrive.http: //skydrive. live.com/ welcome.aspx? provision= 1?ocid=TXT_ TAGLM_WL_ skydrive_ 102008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 --- Its a hard choice for many of us. Lesser of two evils, in most cases, I think. I have four kids, three with CVID. My daughter has had an egg allergy, and reacted to the flu shot when she was younger....about 7-8 yrs old, with a horribly swollen arm, it was hard, red, and extremely painful for over a week, even just air blowing by that arm would cause her to scream in pain. She couldnt sleep. It was awful. We've not given it to her since. My other three kids always get the flu shot. Rarely, if ever, have they gotten actual influenza. The one child we never vaccinate has gotten it EVERY.SINGLE.YEAR. Every yr, weeks, if not over a month of her winter is sucked up with the flu.......pain, fever, horrible asthma flares, lost lung function.....and it takes her forever to get recovered after its over. We trialed giving her foods she is allergic to starting last spring, there were no reactions, so we had her allergies tested again.....egg no longer shows up. She's been eating it fine, with no problems. Ive talked to both her pulmo and family dr.....we're going to try giving her the flu shot this yr. Im worried:), of course, but we're going to try it. valarie mom to three w/cvid In , Schulman <dietdoc@...> wrote: > > Welcome new families! Sorry I have not had a chance to introduce myself or say hello. I'll write more later. : ) > > Just following up with our discussion from yesterday.... > > I spoke with my pharmacist who works for a major immune globulin company. She confirmed that, although the product will help the general state of the immune system, it will not protect against the flu. She explained that the strain is different each year and that, theoretically, adequate IgG against it would not be in the vials. She did reinforce that Gamunex will help with prevention of secondary infections -- and possibly other potential complications. But she suggests that CVIDers get the flu shot -- as directed by their physicians. (Again, it depends on each case and what your Dr. thinks is right for your child.) Obviously, not everyone can tolerate the shot and many will not produce antibodies to it. > > My daughter does not tolerate the shot. But her immuno and family doc both want her to have it -- in case she is exposed to the flu and, in the off chance, that she produces some transient antibodies to it. Of course, she has an unacceptable reaction to it last year (likely, autoimmune). So, this year we are trying something new... We are splitting the dose (.25 + .25 units rather than .5 units) across a few weeks. So far, she is ok. Splitting the dose is not protocol. But, for her, it's either trying it this way or she gets nothing at all. Tamiflu made her vomit the last time we gave it to her. Sigh... > > Barbie (sorry I keep writing your name wrong) : ) -- I know you're busy so don't worry about contacting the IDF. Unless you want to. : ) > > Happy and Safe Halloween to all. > > > mom to CVIDer, 7 > > > Quote Link to comment Share on other sites More sharing options...
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