Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 That's odd, we have to rotate sites because we blow a site every time. We place 2 sites but for some reason dd only infuses into 1 site and then has a hard lump for several weeks after. Nufactor says its drug residue build up from infusing it all into one site. We can't infuse any where near one of those things because it will not infuse no matter what and can't even place a needle into it. Sub Q sites > My son has been on SCIG (Vivaglobin) for about 6 months. I am very > confused about whether we are supposed to rotate sites or not. Our > immunologist and the nurse have told me repeatedly not to rotate > sites. They said that pockets will form at those sites which will > allow the IgG to flow in easier and the clinical trials showed that > not rotating sites minimized site reactions. However, the Vivaglobin > website has a link to the NIH instructions on how to give a SubQ > infusion and it specifically states to rotate sites. Additionally, I > have contacted others whose children are on SubQ and they have said > they were instructed to rotate sites to minimize scar tissue. > > My husband administered the SubQ for my son the other day and he said > that pushing the needles in was more difficult this time than any > other time. So now I am wondering if that is because scar tissue is > forming in those locations. > > We have also experienced infusions where one site will puff up and > the other will remain rather flat, so the IgG is probably flowing > into only one site. I mentioned this to the Dr. and he said that > some areas are more difficult to infuse than others and that is one > more reason to not rotate sites. > > Would love to get everyone's experience with this. > Thanks! > > Amy M. > > > ------------------------------------ > > This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the > sole responsibility of the poster and should not be taken as professional > advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: > /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 We are not rotating sites. Using the outer hips or love handles with great results. We are not using Vivoglobin. I personally believe that although there is more volume with 10% solution it is less caustic so the tissue is less irritated. But.... I do not know if it is different with using Vivoglobin since it is 16%. BARBIE Sub Q sites My son has been on SCIG (Vivaglobin) for about 6 months. I am very confused about whether we are supposed to rotate sites or not. Our immunologist and the nurse have told me repeatedly not to rotate sites. They said that pockets will form at those sites which will allow the IgG to flow in easier and the clinical trials showed that not rotating sites minimized site reactions. However, the Vivaglobin website has a link to the NIH instructions on how to give a SubQ infusion and it specifically states to rotate sites. Additionally, I have contacted others whose children are on SubQ and they have said they were instructed to rotate sites to minimize scar tissue. My husband administered the SubQ for my son the other day and he said that pushing the needles in was more difficult this time than any other time. So now I am wondering if that is because scar tissue is forming in those locations. We have also experienced infusions where one site will puff up and the other will remain rather flat, so the IgG is probably flowing into only one site. I mentioned this to the Dr. and he said that some areas are more difficult to infuse than others and that is one more reason to not rotate sites. Would love to get everyone's experience with this. Thanks! Amy M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2008 Report Share Posted August 5, 2008 Hi Amy, my daughter has been on Vivaglobin for two years now, and she rotate sites as she begins to build up scar tissue under the skin if she doesn't and it becomes difficult/impossible to insert the needles. For her, it is a necessity to rotate sites. The advice of your immuno & nurse are news to me. If your husband is having difficulty inserting the needles, and NIH instructions said to rotate, I would certainly go ahead and opt to rotate. Hope it all works out for the best. (, 18, cvid, jra) Quote Link to comment Share on other sites More sharing options...
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