Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 Hi, Cassidy is scheduled for her first IGG transfusion next Thursday, Jan. 15th. We'll be going to her pulmonologists office and doing it there. They said the first time it will go very slow because they want to make sure she doesn't have a reaction and to lessen the side-effects as much as possible. Cassidy is only 4 and she just had a port placed a week ago. I know despite the port and using EMLA cream she's going to freak out pretty badly about the needle and having the IV line hooked up. She's had several ports and hand IV lines in the past and always gets hysterical. What advice do you guys have for us? I'm really interested to hear any tips or cautions, any experiences you want to share or ideas for making this easier on her. I'd really appreciate the help and feedback! Thank you, Jenn Mom to Cassidy, 4yrs w/CF, G-tube & CVID Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 How frustrating, I had replied to your message already but silly appears to have swallowed it. So, I'll just reply again Thank you so much for the article links I read both and they were really helpful. We'll definitely try some of the tips and techniques suggested. Can you tell me where you found the window markers? I know Cassidy would love to do that and I imagine the nurses will get a giggle out of it too, lol. Thank you again for the links, and writing the articles in the first place, Jenn Mom to Cassidy, 4yrs w/CF, G-tube & CVID > > One of my boys was about the same age. I brought plenty of things from home > that they liked to play with and books to read. > > > > I hope it goes well for you all. I have an article.well two actually-one is > about using social stories to help kids cope with medical procedures and the > other is about using humor and fun to help kids cope with medical > procedures - it is easier for me to send the links to those than to re-type > the info. > > > > Using Fun and Humor to Help Children Cope with Hospital Stays and Medical > Procedures: > http://www.associatedcontent.com/article/680741/using_fun_humor_to_help_chil > dren_through.html?cat=5 (you may have to cut and paste the link into your > browser if gets it cut apart-the entire links goes from the > http to the 5 at the end) > > > > And Helping Children cope with Medical Procedures: Using Social Stories: > http://www.associatedcontent.com/article/678395/helping_children_cope_with_m > edical.html?cat=5 (entire link goes from the http to the 5 at the end) > > > > Peace be with you, > > Pattie > > Mom to age 14, healthy, age 12, Shwachman-Diamond Syndrome and > ph age 11, Shwachman-Diamond Syndrome > > Our family website: <http://www.shwachman.50megs.com> > www.shwachman.50megs.com > > Cleopatra's Blog: http://www.somewhereinegypt.blogspot.com > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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