Re:Developmental Issues and PID

March 30, 2008

Ashton, 14, had some " strange " developmental issues. She was always

sick with " minor " infections: ear, sinus, tonsil, etc. She talked

extremely early, but walked late. She didn't even crawl until almost 12

mos. She had issues with motor skills. I was constantly playing ball

with her and doing outside things so she could work on her movement.

She had a terrible time. Her sister is 2.5 years younger and could run

circles around her at less than 1 yr. I kept working and so did she.

She was extremely intelligent and articulate. She slept frequently.

Her sister wouldn't sleep. I kept seeing more differences all the

time. I enrolled her in soccer, and she wasn't very good. I worked

with her. She is not a natural athlete, but she made progress. The

coaches worked with her to the point they moved her feet to show her

moves. Once she got it, she got it. It was embarrassing for her. I

just kept encouraging her, and so did the coaches. She has struggled in

so much. She struggled to learn to read. She had a great teacher who

taught me how to teach her in the first grade. I worked academic and

athletic skills with her. We also work with her social skills. She is

very shy and anxious. It is amazing to see the difference at 14.5 yrs.

We had her tested for processing disorders, autism etc. With her it

seems to be anxiety. I think she just always felt so bad, that the

energy to just get through things was all she had. She can memorize

thing very easily, and I think that got her through. She is playing

travel soccer now, can converse with people, will be taking AP classes

next year, and has really grown. IVIG has been a miracle for her. It

is amazing how much she has changed with that and hard work.

L

mom to Ashton14 CVID, asthma, dyslexia & Marina 12 asthma

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