Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Jerri I can't give you all the latest numbers or stats, But I can tell you my husband finished his treatment on Jan 17, 2004. He has been undectable since july 2003's viral check on treatment. Please keep up your courage. This is a mental battle as well as a physical one. Yes you see these others that didn't complete tx. But we are all different. Tx is rough, but so is life. Drink lots and lots of water. Cut down your stress and fight the dragon for control of your life. love and hugs d aka dannegrlJerri Neely <all4jerri@...> wrote: Hi everyone,It's Jerri from So Cal. As I read all of the emails I am starting to get discouraged. Has many of the treatments been successful. I am genotype 1. In my 7th week and can barely work two days a week right now. I keep hopeing that it will get better but I don't know. I had to pick a new Internest and unfortunately I think that he is 89 years old. He has not equipment in his office not even an oxygen level reader. I guess I will have to do the 50 mile drive to my liver doctor for the test. Maybe oxygen will be the key to my low energy level.Anyone have any stats on the percentage of people that start treatment and actually finish it? Also any stats on of the people who finish there 48 weeks how many relapse and have to go back into treatment?Cause it is sounding to me like the odds aren't very good. Wondering if I should wait and see if some new treatment comes out that is better. Maybe I am just tired. I did work today so that is something. I am really fighting to stay off of disability.Keep in touch as me alone with my thoughts is a dangerous place to be in. I don't know how many of you may be in a 12 step program but I turned 13 years clean and sober on January 2nd. Was looking forward to being a bratty teanager but have turned into a whiney one instead. 47 days down and 289 to go YOO HOO.Hugs to all,Jerri Neely __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Hey Jerri, don't get too discouraged! TX worked for me and I tested clear at post one year, as have many others here. Low energy is normal while on treatment. You can try taking B12 to help combat it... it helps some. Most people who start TX finish it and the stats for success is around 60%... but it's been awhile since I read that. I did have some trouble on TX, partially due to a nurse practitioner that couldn't read the warning signs. I didn't see a Help doc, used my GP and the NP. I ended in the hospital a couple of times for pneumonia and low blood counts. I had to take meds for the blood for about 6 months. It was hell at the time, but all well worth it. I take great pleasure in knowing that any live hcv demons are under lock and key within me. I'm not letting them out... they can rot in there, lol. Hang in there... you can do it! Hi everyone,It's Jerri from So Cal. As I read all of the emails I am starting to get discouraged. Has many of the treatments been successful. I am genotype 1. In my 7th week and can barely work two days a week right now. I keep hopeing that it will get better but I don't know. I had to pick a new Internest and unfortunately I think that he is 89 years old. He has not equipment in his office not even an oxygen level reader. I guess I will have to do the 50 mile drive to my liver doctor for the test. Maybe oxygen will be the key to my low energy level.Anyone have any stats on the percentage of people that start treatment and actually finish it? Also any stats on of the people who finish there 48 weeks how many relapse and have to go back into treatment?Cause it is sounding to me like the odds aren't very good. Wondering if I should wait and see if some new treatment comes out that is better. Maybe I am just tired. I did work today so that is something. I am really fighting to stay off of disability.Keep in touch as me alone with my thoughts is a dangerous place to be in. I don't know how many of you may be in a 12 step program but I turned 13 years clean and sober on January 2nd. Was looking forward to being a bratty teanager but have turned into a whiney one instead. 47 days down and 289 to go YOO HOO.Hugs to all,Jerri Neely Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Jerri before you or anyone makes any personal decisions about tx meds please be well informed about it and all the different factors that come into play HCV - treatment and medical care is all very complex and the reason for seeing a trained specialists in that field of medicine. This is also why discussing it all in group benefits us all. Each person has their own set of medical problems besides HCV - medical risk factors - stage and grade at the time of tx - geno types - it can continue to replicate and mutate differently for each person - infected with initial HCV strain and secondary different species - how long they have had it - a very mild or aggressive chronic case - amount of HCV at the time of infection or infections - large amounts of HCV for example transfusions from tainted blood - and on and on and on. You can pull up all different stats and statics and it is every changing in the HCV field. It boils down to - It is to hard for Dr's and medical science to predict at this time a persons chances and successful response from the treatment meds with all the different factors that all come into play and it's the only approved treatment that is now on the market. I believe the average SVR sustained viral response for a length of time to gain positive results and benefits is about 40 to 50 %. It is known that on average the earlier it is treated and in earlier stages the better the response to tx meds and the lessor the sides and any complications. Another words in general it's a 50 50 shot at it but if it works hot damn a SVR benefits and you gave it your best shot !!!!!!!!!!!! HCV is now more well known by the public - medical field - Dr's and hopefully a newer generation of pt's dx'ed in earlier stages to try tx meds. You need to consider what stage they were dx'ed with HCV at what stage they tried tx meds and their results along with possible other medical conditions and diagnosis. I was not dx'ed correctly with HCV until into stage 3 much liver damage and other damage already done other medical risk factors and had it over 20 years. I tried interferon and ribavirin than know it was a long shot but gave it my best shot anyway. I have a very aggressive chronic form of HCV from large amounts of tainted blood from mutliple transfusions 30 years ago and as expected my HCV returned very active shortly after my transplant 6 years ago this March. Pegasys came on the market. I tried it post transplant which has it's own set of additional risk factors my medical condition at that time and again it didn't work for me. The tx meds are very power meds which do come with side affects and some risk factors. It is a very personal decision on every pt's part to try it or not or keep trying it until they do receive a SVR from it. Most Dr's start their pt's on successful antidepressants a month or so before starting tx meds because it can and usually does cause a forced depressive state in anyone will make already dx'ed conditions worse and may cause a flare up in abusive behavior and traits drugs - alcohol etc....... Hopefully I pray a better form on tx meds a vaccine and a cure will be out shortly for everyone and I see in my lifetime no need for on average 17,000. people daily listed for a liver transplant primarily from HCV. If it was me I would do all I could to stay off that list. Sorry I write books but it's spaced and size 3 so I can see the darn things and for others with vision problems. We take HCV our Members and our 1 on 1 hands on personal support very seriously. Love Hugs and Prayers for All. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Hi Group, I am Geno type 1A and did 18 straight months of just Interferon back in the year of 1999. I am a non-responder. And, left unable to treat with anything else. As, Interferon left my counts so low, that only kept dropping with each year. I am now ESLD, with a meld of 11, it was a 14. So, I'm grateful, and counting my blessings. I am hopeful, and positive, that no mater what my outcome may be. I gave it everything I had. Respectfully Star1956 gail <gaila@...> wrote: The success rate for genotype 1 is about 55% and I completed 52wks of treatment in 98-99.I am also genotype 1.A lot of people here have completed more then one type of treatment,up to four times before it was finally successful.Fortunately I am undetectable since 99. Gail Re: Tx Stats Jerri I can't give you all the latest numbers or stats, But I can tell you my husband finished his treatment on Jan 17, 2004. He has been undectable since july 2003's viral check on treatment. Please keep up your courage. This is a mental battle as well as a physical one. Yes you see these others that didn't complete tx. But we are all different. Tx is rough, but so is life. Drink lots and lots of water. Cut down your stress and fight the dragon for control of your life. love and hugs d aka dannegrlJerri Neely <all4jerri > wrote: Hi everyone,It's Jerri from So Cal. As I read all of the emails I am starting to get discouraged. Has many of the treatments been successful. I am genotype 1. In my 7th week and can barely work two days a week right now. I keep hopeing that it will get better but I don't know. I had to pick a new Internest and unfortunately I think that he is 89 years old. He has not equipment in his office not even an oxygen level reader. I guess I will have to do the 50 mile drive to my liver doctor for the test. Maybe oxygen will be the key to my low energy level.Anyone have any stats on the percentage of people that start treatment and actually finish it? Also any stats on of the people who finish there 48 weeks how many relapse and have to go back into treatment?Cause it is sounding to me like the odds aren't very good. Wondering if I should wait and see if some new treatment comes out that is better. Maybe I am just tired. I did work today so that is something. I am really fighting to stay off of disability.Keep in touch as me alone with my thoughts is a dangerous place to be in. I don't know how many of you may be in a 12 step program but I turned 13 years clean and sober on January 2nd. Was looking forward to being a bratty teanager but have turned into a whiney one instead. 47 days down and 289 to go YOO HOO.Hugs to all,Jerri Neely __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Hi Jerri, Don't get discouraged, we have several people here who have obtained an SVR after completing treatment. Rememeber you have to respond and complete treatment and then get tested undetectable at six months after treatment to have an SVR (Sustained Viral Response) That group is only about 46-50% but the treatment is all we have now. Even though I responded and remained undetectable all through treatment, then relapsed, my liver biopsy showed significant improvement in the health of my liver after treatment. Waiting for something else to come along could be a very bad choice. I see a Hepatologist at teaching Hospital in Saint Louis and they very recently told me Protease Inhibitors are at least five years away at best. They also told me that after treatment even though I relapsed, they don't feel a need to treat me right now, because of the improvement after treatment. Hang in there, it is tough but give it your best try. Tx Stats Hi everyone,It's Jerri from So Cal. As I read all of the emails I am starting to get discouraged. Has many of the treatments been successful. I am genotype 1. In my 7th week and can barely work two days a week right now. I keep hopeing that it will get better but I don't know. I had to pick a new Internest and unfortunately I think that he is 89 years old. He has not equipment in his office not even an oxygen level reader. I guess I will have to do the 50 mile drive to my liver doctor for the test. Maybe oxygen will be the key to my low energy level.Anyone have any stats on the percentage of people that start treatment and actually finish it? Also any stats on of the people who finish there 48 weeks how many relapse and have to go back into treatment?Cause it is sounding to me like the odds aren't very good. Wondering if I should wait and see if some new treatment comes out that is better. Maybe I am just tired. I did work today so that is something. I am really fighting to stay off of disability.Keep in touch as me alone with my thoughts is a dangerous place to be in. I don't know how many of you may be in a 12 step program but I turned 13 years clean and sober on January 2nd. Was looking forward to being a bratty teanager but have turned into a whiney one instead. 47 days down and 289 to go YOO HOO.Hugs to all,Jerri Neely No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.16.8/621 - Release Date: 1/9/2007 1:37 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 The success rate for genotype 1 is about 55% and I completed 52wks of treatment in 98-99.I am also genotype 1.A lot of people here have completed more then one type of treatment,up to four times before it was finally successful.Fortunately I am undetectable since 99. Gail Re: Tx Stats Jerri I can't give you all the latest numbers or stats, But I can tell you my husband finished his treatment on Jan 17, 2004. He has been undectable since july 2003's viral check on treatment. Please keep up your courage. This is a mental battle as well as a physical one. Yes you see these others that didn't complete tx. But we are all different. Tx is rough, but so is life. Drink lots and lots of water. Cut down your stress and fight the dragon for control of your life. love and hugs d aka dannegrlJerri Neely <all4jerri@...> wrote: Hi everyone,It's Jerri from So Cal. As I read all of the emails I am starting to get discouraged. Has many of the treatments been successful. I am genotype 1. In my 7th week and can barely work two days a week right now. I keep hopeing that it will get better but I don't know. I had to pick a new Internest and unfortunately I think that he is 89 years old. He has not equipment in his office not even an oxygen level reader. I guess I will have to do the 50 mile drive to my liver doctor for the test. Maybe oxygen will be the key to my low energy level.Anyone have any stats on the percentage of people that start treatment and actually finish it? Also any stats on of the people who finish there 48 weeks how many relapse and have to go back into treatment?Cause it is sounding to me like the odds aren't very good. Wondering if I should wait and see if some new treatment comes out that is better. Maybe I am just tired. I did work today so that is something. I am really fighting to stay off of disability.Keep in touch as me alone with my thoughts is a dangerous place to be in. I don't know how many of you may be in a 12 step program but I turned 13 years clean and sober on January 2nd. Was looking forward to being a bratty teanager but have turned into a whiney one instead. 47 days down and 289 to go YOO HOO.Hugs to all,Jerri Neely __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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