Re: new member and name is kelly

[Guest guest]

Isn't it awful what we have to go through to get ordinary care???? I am continually shocked at the callous treatment clinics and doce pass out. Good for you to carry it forward farther and to get the help you need.

Sharon

new member and name is kelly

hi my name is kelly i havent started treatment yet my first appointment is in june 15 i am so nervous i got referral to ucd in sacrmento the hep c clinic. i had to have stanford doctors refer me because when i came back from stanford and seen my doctor he told me that they would monitor me for a year to see what happens and i look at him and said you dont understand i cant get any sicker i have a son who just underwent a liver transplant and i am his caregiver. he tells me well we arent stanford andwe will monitor you to see what happens. well i called my sons social worker and sh calls the doctors there and they sent in all the referrals for me.

[Guest guest]

,

Good for you, Girl! You stood up for yourself and told the doctors their

plan didn’t work. We HAVE to be our own advocates in this

game. Many docs don’t even know as much about this disease as we

do. If you do tx, it will be hard. Do you have some back up to help

with your son?

Hugs,

new member and name is kelly

hi my name is kelly i

havent started treatment yet my first appointment

is in june 15 i am so nervous i got referral to ucd in sacrmento the

hep c clinic. i had to have stanford doctors refer me because when i

came back from stanford and seen my doctor he told me that they would

monitor me for a year to see what happens and i look at him and said

you dont understand i cant get any sicker i have a son who just

underwent a liver transplant and i am his caregiver. he tells me well

we arent stanford andwe will monitor you to see what happens. well i

called my sons social worker and sh calls the doctors there and they

sent in all the referrals for me.

[Guest guest]

Hello kelly my first appointment is on monday so i understand where your comeing from hope things go well good luck welcome to the group my name is janie this is a very careing group and someone nice people janieteddysbutterflybluepit <teddysbutterflybluepit@...> wrote: hi my name is kelly i havent started treatment yet my first appointment is in june 15 i am so nervous i got referral to ucd in sacrmento the hep c clinic. i had to have stanford doctors refer me because when i came back from stanford and seen my doctor he told me that they would monitor me for a year to see what happens and i look at him and said you dont understand i cant get any sicker i have a son who just underwent a liver transplant and i am his caregiver. he tells me well we arent stanford andwe will monitor you to see what happens. well i called my sons social worker and sh calls the doctors there and they sent in all the referrals for me.

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[Guest guest]

>

> , Good for you, Girl! You stood up for yourself and told the

doctors

> their plan didn't work. We HAVE to be our own advocates in this

game. Many

> docs don't even know as much about this disease as we do. If you

do tx, it

> will be hard. Do you have some back up to help with your son?

>

>

>

> Hugs,

>

>

>

> new member and name is

kelly

>

>

>

> hi my name is kelly i havent started treatment yet my first

appointment

> is in june 15 i am so nervous i got referral to ucd in sacrmento

the

> hep c clinic. i had to have stanford doctors refer me because when

i

> came back from stanford and seen my doctor he told me that they

would

> monitor me for a year to see what happens and i look at him and

said

> you dont understand i cant get any sicker i have a son who just

> underwent a liver transplant and i am his caregiver. he tells me

well

> we arent stanford andwe will monitor you to see what happens. well

i

> called my sons social worker and sh calls the doctors there and

they

> sent in all the referrals for me.

>

I have some family that live in the area but they all work.My 14yo

daughter stays home and does independent study so she helps out when

i need help il just scared on what the treatment is going to make me

feel i have heard horrible stuff.

[Guest guest]

i have no plan my sons 3 in oct.i have a juvinile order to stop visatation on my sons mom none of this is good,but i feel im mentally strong enough to beat this.doc saiys he wont give disabilty , if i get that sick he will take me off 1st.i really have not met a hep c doc that was kind considerate etc,in fact 1st 2 g.i's i never met the doc.im glad to see that not all are likje this.my uroligist and family doc are great.im close to getting black balled with g.i docs so now im stuck,but i fell i have the greatest doc over all and at night when i come to him with thanksgiveng in my heart,my needs will be met.so lets rumble dragon, i dont know many here that well but if you could pray for me and my son. teddysbutterflybluepit <teddysbutterflybluepit@...> wrote: >> , Good for you, Girl! You stood up for yourself and told the doctors> their plan didn't work. We HAVE to be our own advocates in this game. Many> docs don't even know as much about this disease as we do. If you do tx, it> will be hard. Do you have some back up to help with your son?> > > > Hugs,> > > > new member and name is kelly> > > > hi my name is kelly i havent started treatment yet my first appointment > is in june 15 i am so nervous i got referral to ucd in sacrmento the > hep c clinic. i had to have stanford doctors refer me because when i > came back from stanford and seen my doctor he told me that they

would > monitor me for a year to see what happens and i look at him and said > you dont understand i cant get any sicker i have a son who just > underwent a liver transplant and i am his caregiver. he tells me well > we arent stanford andwe will monitor you to see what happens. well i > called my sons social worker and sh calls the doctors there and they > sent in all the referrals for me.>I have some family that live in the area but they all work.My 14yo daughter stays home and does independent study so she helps out when i need help il just scared on what the treatment is going to make me feel i have heard horrible stuff.Tim Parsons knoxville,tn 37931 865-588-2465 x107 work

www.knoxville1.com

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new cars at Autos.

[Guest guest]

Some

people have very mild side effects and others have a hard time. Keep a

positive attitude and drink lots of water and that will go a long way. Be

sure to let your son’s tp team know what’s going on with you.

Maybe the person that helped you get your doctor referrals can help you get

some after care help for him, too, while you’re going thru it. Maybe

a visiting nurse or something once a week in case of brain fog. You &

your daughter might need to make a chart of what meds he needs, etc. and write

down what’s been done & when so no one gets confused.

/De

Re: new member and name is kelly

I have some family that

live in the area but they all work.My 14yo

daughter stays home and does independent study so she helps out when

i need help il just scared on what the treatment is going to make me

feel i have heard horrible stuff.

[Guest guest]

All our members are in our prayers with their families,especially when they need those extra ones.You and your son are covered.

Gail

new member and name is kelly> > > > hi my name is kelly i havent started treatment yet my first appointment > is in june 15 i am so nervous i got referral to ucd in sacrmento the > hep c clinic. i had to have stanford doctors refer me because when i > came back from stanford and seen my doctor he told me that they would > monitor me for a year to see what happens and i look at him and said > you dont understand i cant get any sicker i have a son who just > underwent a liver transplant and i am his caregiver. he tells me well > we arent stanford andwe will monitor you to see what happens. well i > called my sons social worker and sh calls the doctors there and they > sent in all the referrals for me.>I have some family that live in the area but they all work.My 14yo daughter stays home and does independent study so she helps out when i need help il just scared on what the treatment is going to make me feel i have heard horrible stuff.

Tim Parsons knoxville,tn 37931

865-588-2465 x107 work

www.knoxville1.com

Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos.

[Guest guest]

Hi , I am starting week four and so far it hasn't been all that bad. Everyone reacts different I usually have 1 or 2 days that are kinda bad but nothing I haven't been able to handle yet thanks to the wonderful people here. My problem is eating and drinking sometimes but force myself. right now except for my left leg hurting I am actually hungry again and feel pretty darn good today. Also had good appetite yesterday so each day seems to be different, do 4th shot tonight. I am worried about my leg as I am prone to blood clots but staying positive and keeping it elevated don't want to have to stop tx for any reason. WW/pat Motley <dmotley@...> wrote: Some people have very mild side effects and others have a hard time. Keep a positive attitude and drink lots of water and that will go a long way. Be sure to let your son’s tp team know what’s going on with you. Maybe the person that helped you get your doctor referrals can help you get some after care help for him, too, while you’re going thru it. Maybe a visiting nurse or something once a week in case of brain fog. You & your daughter might need to make a chart of what meds he needs, etc. and write down what’s been done & when so no one gets

confused. /De -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of teddysbutterflybluepitSent: Tuesday, April 24, 2007 2:16 PMHepatitis CSupportGroupForDummies Subject: Re: new member and name is kelly I have some family that live in the area but they all work.My 14yo daughter stays home and does independent study so she helps out when i need help il

just scared on what the treatment is going to make me feel i have heard horrible stuff.

[Guest guest]

my prayers are with you,and pray your leggs okpatricia <pandas2@...> wrote: Hi , I am starting week four and so far it hasn't been all that bad. Everyone reacts different I usually have 1 or 2 days that are kinda bad but nothing I haven't been able to handle yet thanks to the wonderful people here. My problem is eating and drinking sometimes but force myself. right now except for my left leg hurting I am actually hungry again and feel pretty darn good today. Also had good appetite

yesterday so each day seems to be different, do 4th shot tonight. I am worried about my leg as I am prone to blood clots but staying positive and keeping it elevated don't want to have to stop tx for any reason. WW/pat Motley <dmotleybellsouth (DOT) net> wrote: Some people have very mild side effects and others have a hard time. Keep a positive attitude and drink lots of water and that will go a long way. Be sure to let your son’s tp team know what’s going on with you. Maybe the person that helped you get your doctor referrals can help you get some after care help for him, too, while

you’re going thru it. Maybe a visiting nurse or something once a week in case of brain fog. You & your daughter might need to make a chart of what meds he needs, etc. and write down what’s been done & when so no one gets confused. /De -----Original Message-----From: Hepatitis CSupportGroupForDummies

[mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of teddysbutterflybluepitSent: Tuesday, April 24, 2007 2:16 PMHepatitis CSupportGroupForDummies Subject: Re: new member and name is kelly I have some family that live in the area but they all work.My 14yo daughter stays home and does independent study so she helps out when i need help il just scared on what the treatment is going to make me feel i have heard horrible stuff. Tim Parsons knoxville,tn 37931 865-588-2465 x107 work

www.knoxville1.com

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new cars at Autos.