RE: Re: Questions --- Suzie/De

[Guest guest]

Hi De and SuZiE. I think that is the position, or level of MELD Suzie's in..... that is, sick enough to get into the fights, but not in the ring... I call it Liver TP Purgatory. That is exactly where I am now. My MELD jumped ( I guess somebody goosed my liver!! LOL) from 10 to 17, and I should hear any new results this week. The exchange was shut down for the weekend! AT 20/25 MELD, at ST' LUKES/BAYLOR Houston, is when you are ready. JUUUUUSSSST RIGHT!! When I didn't want a TP, I felt content that I had some control over my then uncontrollable (personally) life. It quite frankly made me feel better knowing where I stood. I chose to ride it out and let the chips fall...... Since I have had a re-awakening, (akin to Mick Jaeger still singing R & R at 50 yrs.old...when asked at 40 he said he would kill himself if he was... haha) I now feel

GREAT that I know my decision ahead of time... to choose a TP and not be in Limbo and float around going which ever way the currents take me...out of my control. I know now that I have to be healthy, ready, prepared, phone #s for my caretaker(s) to call to advise friends, basically preparing for the biggest trip of my life!! Instead of floundering, I feel more like I have somewhere to go. Like a Salmon fighting it's way upstream, .with direction, purpose, and tenacity. Even though the TP people aren't ready for me, I am ready for them, and I won't have to make that very personal, most important decision in my life, in the 11th hour..... with the pressure of having to do it immediately, or lose my chance to feel good again. To answer your question, I offer that if I have no where to go, except where I am, and don't have a plan, or goal in mind to achieve, my motivation to maintain the best level of

health possible, is diminished. I started eating pizza, soft drinks, have always had tons of sugar, missed my meds, especially Lactulose, because I subconciously allowed my thinking to go to a "what's the point" mode. I wasn't going anywhere, and had no game plan. Now I do. I want to live, alot....there is more for me to do. I have alot to share.... so I am taking MUCH better care of myself...for when I get the call...... I apologize for being a motormouth, again. SuZiE, God Bless You, and inbetween our loving our 'roomies', (or our best friends that are real hairy and on four feet), let's love ourselves.... Sincerely, Del Motley <dmotley@...> wrote: It’s my understanding that Suzie is in that limbo place where she’s really sick, but not sick enough for a transplant – like and Allan. Am I right SuZie Q? So even if she decides she wants to, they aren’t ready for her. Missing meds & meals is a big concern though. Who knows the answer to that one? De -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of DebSent: Sunday, December 10, 2006 11:53 AMHepatitis CSupportGroupForDummies Subject: Re: Questions --- Suzie Yes it can get to the point of past exhaustion sleeping to soundly for very long periods of time for days like in a semiconscious state than longer and longer periods of time and with more confusion and being in a fog. Honey this isn't an overnight process and the reason for you taking Lactulose as prescribed all this time eating right enough and trying to keep as healthy as

possible. With you sleeping for long periods of time are you missing your meds and meals - have you made a final decision about a transplant ???? I'm still confused about the Canadian health care system. Who is taking care of you now a Primary Care Physician a Hep Dr or a Dr and someone to call from your TP assessment and Team - who do you

call now with complications and problems ????? For some of us it has taken years decades to reach cirrhosis stages. We have adjusted and adapted to all the symptoms not feeling well and we have forgotten what it was like to really feel good. We than realize and feel how sick we really are when the symptoms become worse and it doesn't help matters being confused with encephalopathy. It took about a year ptp for me to realize wow this is what it was like to feel good. Love and Hugs. Deb

Everyone is raving about the all-new beta.