Guest guest Posted March 17, 2000 Report Share Posted March 17, 2000 How much was the helmet? At 05:27 PM 3/17/00 -0500, you wrote: >From: bgles2@... > >Kara, My 6mos son also has plagio. They took x-rays to make sure back was >OK. It was. After that we saw a neurosurgeon who suggested a helmet but did >not feel it was severe enough to be med necessary. It was up to us. We went >for it. I felt my son had nothing to lose. He has been in helmet for 9wks >yesterday. We have seen quite a bit of rounding out. He had adjustment done >yesterday and ortho saw a lot of improvement also. Said ears were also >moving. Also thought we will be seeing more changes because my son is going >thru growth spurt. We are happy with decision. Good luck and I hope it works >for you also. Belinda(Indiana) > >------------------------------------------------------------------------ >DON'T HATE YOUR RATE! >Get a NextCard Visa, in 30 seconds! Get rates as low as >0.0% Intro or 9.9% Fixed APR and no hidden fees. >Apply NOW! >1/2120/3/_/689409/_/953332078/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 Hi, I just got the bill today for a helmet my son has. It was $745.??. Thank God my insurance paid in full! Heidi --- Paquin <lpaquin@...> wrote: > How much was the helmet? > > > > At 05:27 PM 3/17/00 -0500, you wrote: > >From: bgles2@... > > > >Kara, My 6mos son also has plagio. They took > x-rays to make sure back was > >OK. It was. After that we saw a neurosurgeon who > suggested a helmet but did > >not feel it was severe enough to be med necessary. > It was up to us. We went > >for it. I felt my son had nothing to lose. He has > been in helmet for 9wks > >yesterday. We have seen quite a bit of rounding > out. He had adjustment done > >yesterday and ortho saw a lot of improvement also. > Said ears were also > >moving. Also thought we will be seeing more > changes because my son is going > >thru growth spurt. We are happy with decision. > Good luck and I hope it works > >for you also. Belinda(Indiana) > > > >------------------------------------------------------------------------ > >DON'T HATE YOUR RATE! > >Get a NextCard Visa, in 30 seconds! Get rates as > low as > >0.0% Intro or 9.9% Fixed APR and no hidden fees. > >Apply NOW! > >1/2120/3/_/689409/_/953332078/ > >------------------------------------------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 Hi, I just got the bill today for a helmet my son has. It was $745.??. Thank God my insurance paid in full! Heidi --- Paquin <lpaquin@...> wrote: > How much was the helmet? > > > > At 05:27 PM 3/17/00 -0500, you wrote: > >From: bgles2@... > > > >Kara, My 6mos son also has plagio. They took > x-rays to make sure back was > >OK. It was. After that we saw a neurosurgeon who > suggested a helmet but did > >not feel it was severe enough to be med necessary. > It was up to us. We went > >for it. I felt my son had nothing to lose. He has > been in helmet for 9wks > >yesterday. We have seen quite a bit of rounding > out. He had adjustment done > >yesterday and ortho saw a lot of improvement also. > Said ears were also > >moving. Also thought we will be seeing more > changes because my son is going > >thru growth spurt. We are happy with decision. > Good luck and I hope it works > >for you also. Belinda(Indiana) > > > >------------------------------------------------------------------------ > >DON'T HATE YOUR RATE! > >Get a NextCard Visa, in 30 seconds! Get rates as > low as > >0.0% Intro or 9.9% Fixed APR and no hidden fees. > >Apply NOW! > >1/2120/3/_/689409/_/953332078/ > >------------------------------------------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 Does that include the visits for adjustments, etc? Just curious. C./subscribe/Plagiocephaly ----- Original Message ----- From: heidi bosinger-waldron Plagiocephalyonelist Sent: Friday, March 17, 2000 8:34 PM Subject: Re: new member From: heidi bosinger-waldron <bosingerwaldronh@...> Hi,I just got the bill today for a helmet my son has. Itwas $745.??. Thank God my insurance paid in full!Heidi--- Paquin <lpaquin@...> wrote:> How much was the helmet?> > > > At 05:27 PM 3/17/00 -0500, you wrote:> >From: bgles2@...> >> >Kara, My 6mos son also has plagio. They took> x-rays to make sure back was > >OK. It was. After that we saw a neurosurgeon who> suggested a helmet but did > >not feel it was severe enough to be med necessary.> It was up to us. We went > >for it. I felt my son had nothing to lose. He has> been in helmet for 9wks > >yesterday. We have seen quite a bit of rounding> out. He had adjustment done > >yesterday and ortho saw a lot of improvement also.> Said ears were also > >moving. Also thought we will be seeing more> changes because my son is going > >thru growth spurt. We are happy with decision.> Good luck and I hope it works > >for you also. Belinda(Indiana)> >>>------------------------------------------------------------------------> >DON'T HATE YOUR RATE!> >Get a NextCard Visa, in 30 seconds! Get rates as> low as > >0.0% Intro or 9.9% Fixed APR and no hidden fees.> >Apply NOW!>>1/2120/3/_/689409/_/953332078/>>------------------------------------------------------------------------> >> > > > > > >> > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 , Yes, It includes everything. Fortunately we live only 3 miles from where we need to have the adjustments so we can drop in easily any time. The alternative clinic would be in Boston which isn't far but nightmarish to drive in. We have appts every two weeks but they said if we see any redness or any problems just call and come by. Heidi --- " C. " <crain@...> wrote: > Does that include the visits for adjustments, etc? > Just curious. > > C. > /subscribe/Plagiocephaly > ----- Original Message ----- > From: heidi bosinger-waldron > Plagiocephalyonelist > Sent: Friday, March 17, 2000 8:34 PM > Subject: Re: new member > > > From: heidi bosinger-waldron > <bosingerwaldronh@...> > > Hi, > I just got the bill today for a helmet my son has. > It > was $745.??. Thank God my insurance paid in full! > > Heidi > > --- Paquin <lpaquin@...> wrote: > > How much was the helmet? > > > > > > > > At 05:27 PM 3/17/00 -0500, you wrote: > > >From: bgles2@... > > > > > >Kara, My 6mos son also has plagio. They took > > x-rays to make sure back was > > >OK. It was. After that we saw a neurosurgeon > who > > suggested a helmet but did > > >not feel it was severe enough to be med > necessary. > > It was up to us. We went > > >for it. I felt my son had nothing to lose. He > has > > been in helmet for 9wks > > >yesterday. We have seen quite a bit of rounding > > out. He had adjustment done > > >yesterday and ortho saw a lot of improvement > also. > > Said ears were also > > >moving. Also thought we will be seeing more > > changes because my son is going > > >thru growth spurt. We are happy with decision. > > Good luck and I hope it works > > >for you also. Belinda(Indiana) > > > > > > > >------------------------------------------------------------------------ > > >DON'T HATE YOUR RATE! > > >Get a NextCard Visa, in 30 seconds! Get rates > as > > low as > > >0.0% Intro or 9.9% Fixed APR and no hidden > fees. > > >Apply NOW! > > > > >1/2120/3/_/689409/_/953332078/ > > > > >------------------------------------------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 Hi Kara ! I would definetly go ahead with a craniofacial doctor and get all the facts first. whatever you decide to do ,make sure you feel fully comfortable with your decision. Good luck! ~Jill ----- Original Message ----- From: <ksnyder@...> <Plagiocephalyonelist> Sent: Friday, March 17, 2000 2:37 PM Subject: new member > From: ksnyder@... > > Hello -- > > I am a new member to the plagiocephaly list. My son, , is 4 > months old and was just diagnosed with plagiocephaly. We're just > starting this whole process, and are unsure how to proceed. > > Our pediatrician mentioned that our son should probably wear a helmet > to reshape his skull. I had an x-ray done on Monday and was told > that it " is within normal limits " . What does this mean? Should I go > forward with going to see a specialist and get him fitted for a > helmet/headband? > > Any advice and insights would be much appreciated. > > Thanks, > > Kara > > > ------------------------------------------------------------------------ > MAXIMIZE YOUR CARD, MINIMIZE YOUR RATE! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > 1/2122/3/_/689409/_/953321874/ > ------------------------------------------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 , My sons helmet is adjusted the same as a band. That is if I understood everyone elses description. As it gets a tight fit, it is trimmed on the inside. We had it adjusted on Thurs. Ortho said he was going to " feather " the areas around the edges so the head would not develop ledges. The helmet also has air holes. It looks like swiss cheese!!! When he grows out of it he will need another one. Belinda(Indiana) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 Eileen, Your sons helmet sounds just like ours. Does he also have air holes all around it also??? Belinda(Indiana) P.S. Where did you go for helmet? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2000 Report Share Posted March 20, 2000 Hi Belinda -- Actually -- his helmet did not have air holes, which is the only difference that I have been able to discern from these messages. We went to a place called J.E. Hanger in New York, which primarily does other orthotics and prosthetics. Talk about helping you keep your perspective. Everytime we went for an appointment (which we had every three weeks or so), we would see some poor soul getting fitted with an arm or leg or something. It certainly made the helmet seem minor by comparison. I guess that is why I never worried about people looking or commenting on the helmet. I was just so glad that is all we went to J.E. Hanger for. They seem to be the primary helmet source in NY City that I can tell. Every person I have ever seen with a kid with a helmet has the identical helmet that we did and went to the same place. Eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 Pat, No, he got his helmet from " NOPCO " National Orthotics & Prosthetics Company. They told me they have a special airing on PBS on April 3rd on successes with their patients. I am going to try to tape it. Heidi --- PatMacD@... wrote: > Heidi - Did your son get his 'helmet' from Cranial > Tech? Patty > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2000 Report Share Posted March 24, 2000 you are at a great age to get started on this process. Our experience is with the doc band, so I can't speak for the results of the helmet. But let me tell you this...if you are worried about the misshapen look, do what your gut tells you, rather than a dr that doesnt live with you 24/7 and doesnt have to deal with your concerns on a daily basis. Kimry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 Hi everyone..I just signed up..I am a member of the cranio support group, but my son Christian wears a DOC band so I just thought I would read thru your archives...Christian was diagnosed with sagittal synostosis at 2 days old..we had surgery at 2 months on Dec,14, 1999..he has been in his DOC band for 10 weeks now and we love it..he has had wonderful results from the helmet therapy..His first helmet gave him rashes and blisters so that is how we ended up in the DOC band..we have really been through alot with this thing... but that is a little bit of our story..we live in San Diego and Christian is now 6 months old and doing great..I am not on my computer, but tomorrow I will send a picture of him and his band into the files..I will let you all know when it is there.... I looked at all the pictures and they are soooooo cute!!!!I was wondering if pollyjanos would mind if I used your information about winning the insurance approval to help a member on the cranio site??? Their insurance denied them a helmet..and they really can't afford it..I will look forward to your reply..thankyou and I look forward to being a member...Varissa (Boogiesmom2@...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 Varissa!!! Be my guest...that is why I posted the appeal letter in the 1st place! Welcome aboard! Polly Janos I was wondering if pollyjanos would mind if > I used your information about winning the insurance approval to help > a member on the cranio site??? Their insurance denied them a > helmet..and they really can't afford it.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 Varissa- So you decided to cross over to the dark side. I'm glad you're here! It's a great bunch of people and we all like to help. When you get a chance, please fill out the database on member information. You will probably have to be creative when you're entering your info, since Christian is dealing with CS instead of positional plagio. But, it would still be handy information! You can be as vague or precise as you want to be with the personal information. If there's anything you need or if you have any questions, don't be afraid to pipe up, OK? C./subscribe/Plagiocephaly ----- Original Message ----- From: Varissa--Christian-sagittal endoscopic 12/99 Pimentel Plagiocephalyegroups Sent: Monday, April 17, 2000 11:52 PM Subject: new member Hi everyone..I just signed up..I am a member of the cranio support group, but my son Christian wears a DOC band so I just thought I would read thru your archives...Christian was diagnosed with sagittal synostosis at 2 days old..we had surgery at 2 months on Dec,14, 1999..he has been in his DOC band for 10 weeks now and we love it..he has had wonderful results from the helmet therapy..His first helmet gave him rashes and blisters so that is how we ended up in the DOC band..we have really been through alot with this thing... but that is a little bit of our story..we live in San Diego and Christian is now 6 months old and doing great..I am not on my computer, but tomorrow I will send a picture of him and his band into the files..I will let you all know when it is there.... I looked at all the pictures and they are soooooo cute!!!!I was wondering if pollyjanos would mind if I used your information about winning the insurance approval to help a member on the cranio site??? Their insurance denied them a helmet..and they really can't afford it..I will look forward to your reply..thankyou and I look forward to being a member...Varissa (Boogiesmom2@...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 VARISSA!!!!!!!! I was so confused when I saw you introducing yourself I was like you already joined us--DUH!! Hey everyone this is the lovely lady who fixed her sons band like a fish aquarium!!! Varissa as for Polly, her and I have talked and I think that it is real important that we send that insurance information over to CAPS and post it for the many of us that are going to have that fight on their hands. I know soon I will be fighting my insurance on that and all the other surgery issues. I am glad you are here and I will talk to you soon-- And thanks Polly for the help!!! -----Original Message-----From: Varissa--Christian-sagittal endoscopic 12/99 Pimentel [mailto:BoogiesMOM2@...]Sent: Tuesday, April 18, 2000 12:53 AMPlagiocephalyegroupsSubject: new member Hi everyone..I just signed up..I am a member of the cranio support group, but my son Christian wears a DOC band so I just thought I would read thru your archives...Christian was diagnosed with sagittal synostosis at 2 days old..we had surgery at 2 months on Dec,14, 1999..he has been in his DOC band for 10 weeks now and we love it..he has had wonderful results from the helmet therapy..His first helmet gave him rashes and blisters so that is how we ended up in the DOC band..we have really been through alot with this thing... but that is a little bit of our story..we live in San Diego and Christian is now 6 months old and doing great..I am not on my computer, but tomorrow I will send a picture of him and his band into the files..I will let you all know when it is there.... I looked at all the pictures and they are soooooo cute!!!!I was wondering if pollyjanos would mind if I used your information about winning the insurance approval to help a member on the cranio site??? Their insurance denied them a helmet..and they really can't afford it..I will look forward to your reply..thankyou and I look forward to being a member...Varissa (Boogiesmom2@...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2000 Report Share Posted April 25, 2000 Hi Vicky! I fully agree with . You'll want to make sure doesn't have fused sutures before you really worry yourself over a helmet or band. How is his head shaped? Was any oddity in shape evident at birth? Or shortly thereafter? Granted, there have been cases where the anterior fontanel closed early without involving craniosynostosis. But, it sure is suspicious. I just reread your e-mail and if my math is right (and that's a big IF 's ped. was worried about his soft spot being closed when was only 6 months??? Has already had the CT scan? Has ANYONE looked at the films? I might be a little pushier about the time frame the neurologist is expecting you to work with. If he's had the CT scan and you're just waiting on the plastic surgeon to look at them, you can always take them to the neurologist first (those films are YOURS, they do not belong to the doctor that ordered them). Well, that's my 2 cents. I can't think of one good reason why you've had to wait 4 MONTHS for an answer on whether or not you son has CS. That's really appalling. By the way, I'm really glad you found us! C. ____________________Reply Separator____________________ Subject: New member Author: Plagiocephalyegroups Date: 4/25/00 3:58 PM Hello everyone! My name is Vicky and I am new to this e-mail group. My son is . At 6 months, our pediatrician told us that his soft spot on top of his head closed. He got an x-ray and we were sent to a neurologist. The neurologist ordered a head CT scan to rule out a possible birth defect called craniosysnostosis. We then went to see a plastic surgeon who told us that it was just positional plagiocephaly and not the more serious birth defect. However he has yet to see the CT scan. will be 10 months May 1st. It took four months to get to this point, and the plastic surgeon said that helmets usually work best within the first year. We have another appointment at the end of May which will put at 11 months. I'm worried this is going on too long with nobody really helping us. Has anybody else been in a position like this? Will his head round out like they say it will, or not? Also has anybody used the DOC headband when their child was over a year old and did it work? I'd love to hear from anybody with any comments! ------------------------------------------------------------------------ Good friends, school spirit, hair-dos you'd like to forget. Classmates.com has them all. And with 4.4 million alumni already registered, there's a good chance you'll find your friends here: 1/2885/3/_/689409/_/956696320/ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
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