Sub Q Needle Type Question

[Guest guest]

I asked last week if anyone knew about a needle set that was set up like

the soft set/sert but was used for 3 locations instead of 1. My son was

increased from 13 ml to 16 ml vivagloben last week and they recommended

we use 2 sites. The pharmacy couldn't find the soft set for 2 or 3

sites they only have the one where the needle remains in. I know people

posted that they are using these and I would be grateful if you could

let me know what you packaging says. My pharmacy Critical Care said

they would get what ever I need but they couldn't find these and if I

could get a part number from someone already using it that would be

great.

In the meantime, viva said we could do the 16 mls in one site, which we

did on Friday night. It extended the skin pretty tight, but he had no

other site reaction. My husband is switching over to SUBQ viva this

week so he and can do infusions together and he would also prefer

the set up where the needle backs out. is doing so much better

with the routine of getting stuck, he never really did IVIG but for the

first time, so this is all new to him. He can't wait till he gets to

stick Daddy on Friday night, and Daddy gets 3 needles. What a great

moment for the scrapbook.

Thanks in advance,

Michele

[Guest guest]

Ps-- we scrapbooked our experiences, too!

Peace be with you,

Pattie

Shwachman-Diamond Syndrome Information Blog:

<http://www.shwachman.blogspot.com> www.shwachman.blogspot.com

Homeschooling Blog: <http://www.catholicmomof3.blogspot.com>

www.catholicmomof3.blogspot.com

_____

From: [mailto: ] On Behalf Of

Michele

Sent: Wednesday, February 13, 2008 11:09 AM

Subject: Sub Q Needle Type Question

I asked last week if anyone knew about a needle set that was set up like

the soft set/sert but was used for 3 locations instead of 1. My son was

increased from 13 ml to 16 ml vivagloben last week and they recommended

we use 2 sites. The pharmacy couldn't find the soft set for 2 or 3

sites they only have the one where the needle remains in. I know people

posted that they are using these and I would be grateful if you could

let me know what you packaging says. My pharmacy Critical Care said

they would get what ever I need but they couldn't find these and if I

could get a part number from someone already using it that would be

great.

In the meantime, viva said we could do the 16 mls in one site, which we

did on Friday night. It extended the skin pretty tight, but he had no

other site reaction. My husband is switching over to SUBQ viva this

week so he and can do infusions together and he would also prefer

the set up where the needle backs out. is doing so much better

with the routine of getting stuck, he never really did IVIG but for the

first time, so this is all new to him. He can't wait till he gets to

stick Daddy on Friday night, and Daddy gets 3 needles. What a great

moment for the scrapbook.

Thanks in advance,

Michele

[Guest guest]

Medtronic MiniMed infusion set

Sof-Set MicroQR

6mm

42 in (107cm)

Made for Medtronic MiniMed

Northridge, CA 91325

USA

800-646-4633 (800-MiniMed)

818-576-5555

Peace be with you,

Pattie

Shwachman-Diamond Syndrome Information Blog:

<http://www.shwachman.blogspot.com> www.shwachman.blogspot.com

Homeschooling Blog: <http://www.catholicmomof3.blogspot.com>

www.catholicmomof3.blogspot.com

_____

From: [mailto: ] On Behalf Of

Michele

Sent: Wednesday, February 13, 2008 11:09 AM

Subject: Sub Q Needle Type Question

I asked last week if anyone knew about a needle set that was set up like

the soft set/sert but was used for 3 locations instead of 1. My son was

increased from 13 ml to 16 ml vivagloben last week and they recommended

we use 2 sites. The pharmacy couldn't find the soft set for 2 or 3

sites they only have the one where the needle remains in. I know people

posted that they are using these and I would be grateful if you could

let me know what you packaging says. My pharmacy Critical Care said

they would get what ever I need but they couldn't find these and if I

could get a part number from someone already using it that would be

great.

In the meantime, viva said we could do the 16 mls in one site, which we

did on Friday night. It extended the skin pretty tight, but he had no

other site reaction. My husband is switching over to SUBQ viva this

week so he and can do infusions together and he would also prefer

the set up where the needle backs out. is doing so much better

with the routine of getting stuck, he never really did IVIG but for the

first time, so this is all new to him. He can't wait till he gets to

stick Daddy on Friday night, and Daddy gets 3 needles. What a great

moment for the scrapbook.

Thanks in advance,

Michele

[Guest guest]

They are made by Medtronic

I will go get a package and give you numbers and info... we started with

9mm and moved to 6mm sets

Peace be with you,

Pattie

Shwachman-Diamond Syndrome Information Blog:

<http://www.shwachman.blogspot.com> www.shwachman.blogspot.com

Homeschooling Blog: <http://www.catholicmomof3.blogspot.com>

www.catholicmomof3.blogspot.com

_____

From: [mailto: ] On Behalf Of

Michele

Sent: Wednesday, February 13, 2008 11:09 AM

Subject: Sub Q Needle Type Question

I asked last week if anyone knew about a needle set that was set up like

the soft set/sert but was used for 3 locations instead of 1. My son was

increased from 13 ml to 16 ml vivagloben last week and they recommended

we use 2 sites. The pharmacy couldn't find the soft set for 2 or 3

sites they only have the one where the needle remains in. I know people

posted that they are using these and I would be grateful if you could

let me know what you packaging says. My pharmacy Critical Care said

they would get what ever I need but they couldn't find these and if I

could get a part number from someone already using it that would be

great.

In the meantime, viva said we could do the 16 mls in one site, which we

did on Friday night. It extended the skin pretty tight, but he had no

other site reaction. My husband is switching over to SUBQ viva this

week so he and can do infusions together and he would also prefer

the set up where the needle backs out. is doing so much better

with the routine of getting stuck, he never really did IVIG but for the

first time, so this is all new to him. He can't wait till he gets to

stick Daddy on Friday night, and Daddy gets 3 needles. What a great

moment for the scrapbook.

Thanks in advance,

Michele

[Guest guest]

Michele,

I don't use sof-set but, I think, there are " extension " sets that will allow you

to assemble something (add " legs " ) yourself. You may want to call:

http://www.norfolkmedical.com/

I use their sets (love them) and their extension sets. Don't know if they are

compatible with the other sets but you could ask...and ask for free samples of

their 2 and 3 legged 6mm sets...if you're interested.

Best,

Dani's mom 6, CVID (sq x 3 years)

[Guest guest]

Michele,

I was instructed that with kids you could infuse 15 ml per site. I use a

double site for as he gets 20 mls of Gammagard. We did Viva for a while,

but got more site reactions from that...IE redness and swelling that was

firm. I ended up slowing the infusions down and doing them over 3-4 hours

instead of 2 and the sites did better.

Do you want my pics of 's infusions? I use the same set up as Pattie C.

Just email me or give me a call. I know that there is a three way connector out

there, as I have used one in the hospital, but can't remember the name or the

company....You would need the male to male adaptors on the infusion sets then

add a female to female on the three way and then connect to they syringe.

Hope that helps.

,

MOM to , PID, nos...hypogam, selective antibody deficiency, NK cell defect,

? NEMO.......

Also a RN working NICU/PEDS going to Hospice and days in two weeks...

Sub Q Needle Type Question

I asked last week if anyone knew about a needle set that was set up like

the soft set/sert but was used for 3 locations instead of 1. My son was

increased from 13 ml to 16 ml vivagloben last week and they recommended

we use 2 sites. The pharmacy couldn't find the soft set for 2 or 3

sites they only have the one where the needle remains in. I know people

posted that they are using these and I would be grateful if you could

let me know what you packaging says. My pharmacy Critical Care said

they would get what ever I need but they couldn't find these and if I

could get a part number from someone already using it that would be

great.

In the meantime, viva said we could do the 16 mls in one site, which we

did on Friday night. It extended the skin pretty tight, but he had no

other site reaction. My husband is switching over to SUBQ viva this

week so he and can do infusions together and he would also prefer

the set up where the needle backs out. is doing so much better

with the routine of getting stuck, he never really did IVIG but for the

first time, so this is all new to him. He can't wait till he gets to

stick Daddy on Friday night, and Daddy gets 3 needles. What a great

moment for the scrapbook.

Thanks in advance,

Michele

[Guest guest]

My 9 yr old son takes 30 mls of viva weekly after a year of gamma. We

used the 3 site set but have increased it to the four due to swelling

on his very skinny body. The brand we use is from Norfolk Medical.

The number on the package is # SCIG 33136A.

Hope this helps.

>

> I asked last week if anyone knew about a needle set that was set up

like

> the soft set/sert but was used for 3 locations instead of 1. My

son was

> increased from 13 ml to 16 ml vivagloben last week and they

recommended

> we use 2 sites. The pharmacy couldn't find the soft set for 2 or 3

> sites they only have the one where the needle remains in. I know

people

> posted that they are using these and I would be grateful if you

could

> let me know what you packaging says. My pharmacy Critical Care said

> they would get what ever I need but they couldn't find these and if

I

> could get a part number from someone already using it that would be

> great.

>

> In the meantime, viva said we could do the 16 mls in one site,

which we

> did on Friday night. It extended the skin pretty tight, but he had

no

> other site reaction. My husband is switching over to SUBQ viva this

> week so he and can do infusions together and he would also

prefer

> the set up where the needle backs out. is doing so much

better

> with the routine of getting stuck, he never really did IVIG but for

the

> first time, so this is all new to him. He can't wait till he gets

to

> stick Daddy on Friday night, and Daddy gets 3 needles. What a great

> moment for the scrapbook.

>

> Thanks in advance,

> Michele

>

>

>

[Guest guest]

What I seem to be hearing from people at least anecdotally is that the Viva ( as

I would expect) is more caustic to the skin. My son is not having any redness or

discomfort and he gets 30mls per site of Gammagard. I use to think that volume

would cause irritation but it seems that the greater volume atleast in our case

is not the issue but the concentration causes more irritation. Just thinking

about what I was reading. Has this been others experience???

BARBIE

Re: Sub Q Needle Type Question

My 9 yr old son takes 30 mls of viva weekly after a year of gamma.

We

used the 3 site set but have increased it to the four due to swelling

on his very skinny body. The brand we use is from Norfolk Medical.

The number on the package is # SCIG 33136A.

Hope this helps.

>

> I asked last week if anyone knew about a needle set that was set up

like

> the soft set/sert but was used for 3 locations instead of 1. My

son was

> increased from 13 ml to 16 ml vivagloben last week and they

recommended

> we use 2 sites. The pharmacy couldn't find the soft set for 2 or 3

> sites they only have the one where the needle remains in. I know

people

> posted that they are using these and I would be grateful if you

could

> let me know what you packaging says. My pharmacy Critical Care said

> they would get what ever I need but they couldn't find these and if

I

> could get a part number from someone already using it that would be

> great.

>

> In the meantime, viva said we could do the 16 mls in one site,

which we

> did on Friday night. It extended the skin pretty tight, but he had

no

> other site reaction. My husband is switching over to SUBQ viva this

> week so he and can do infusions together and he would also

prefer

> the set up where the needle backs out. is doing so much

better

> with the routine of getting stuck, he never really did IVIG but for

the

> first time, so this is all new to him. He can't wait till he gets

to

> stick Daddy on Friday night, and Daddy gets 3 needles. What a great

> moment for the scrapbook.

>

> Thanks in advance,

> Michele

>

>

>

[Guest guest]

Macey receives Vivaglobin and has no skin irritation. She does have the pockets

but where else is the fluid supposed to go but stretch the skin until it can

seep in.

She receives 25 ml's of 16% solution to each site.

Ursula - mom to (14) and Macey (12, CVID)

http://www.primaryimmune.org

http://www.jmfworld.org

http://caringbridge.org/ga/macey/