Re: Re: Questions --- Suzie

[Guest guest]

Hi Suzie.. Cmon...let's do a TP together...haha just kiddin'.. I almost said no, through rationalizations that a person without use of full mental capacity could make sense of. Namely ME!!! I now am fully committed to having this done, if it is the Big Guy's plan for me, and quite frankly, my dear.... I don't give a damn about my feelings that I'm not worthy, or some one else deserves it more. That is a wrong and sorry way to think! This is ALL about me!!! I used to feel someone else should go before me. A young man or woman with a future.... well...know what? I have a future too!! and a purpose! There are alotta' people that I feel I can help and hell...I may live another 40 yrs!!! That's another lifetime to bug the sh*t outa' people!!! which comfortably leads me to,..........my NEW and IMPROVED way of lQQking at Lactulose. As I understood it from my medical peep's, I was to take enough to ensure a BM

(acronym for pooping, droppin' the bomb, going boom boom, the BIG job)...... 3 to 5 times daily. The first dose rate caused me to go about 20 times !! No SH*T!! Alotta Sh*T! I ( on doctors orders), cut back til I was going 3 to 5 times a day, as prescribed. Well... after awhile, I was doin' 3 to 5 in the Big House without any prompting from Lactulose, so it only made sense to me to stop taking the stuff, cause I didn't need it! I was maintaining on my own!! YIPPPPEEE!!! WRONG. Now... I don't look at Lactulose as the medicine to make me BM, as most of us do do... but as the medicine that gets the poison outa' my brain. As you know, the Liver can't do it alone anymore. Lactulose, kind of like pond scum remover, breaks up and processes the poison past the liver, and into your open and

waiting bowels. AT this time, your are now ready to proceed to a bathroom, or convenient location, to complete the process of expelling the poison from your brain. I don't know how true or correct this may be... but I know I don't like to feel bad, and mixed up and confused and......... well you know. Thinking of the Lactulose this way causes a complete different 'attitude' with in me, and I actually happily drink it now. Deliman Deb <posttransplant@...> wrote: Yes it can get to the point of past exhaustion sleeping to soundly for very long periods of time for days like in a semiconscious state than longer and longer periods of time and with more confusion and being in a fog. Honey this isn't an overnight process and the reason for you taking Lactulose as prescribed all this time eating right enough and trying to keep as healthy as possible. With you sleeping for long periods of time are you missing your meds and meals - have you made a final decision about

a transplant ???? I'm still confused about the Canadian health care system. Who is taking care of you now a Primary Care Physician a Hep Dr or a Dr and someone to call from your TP assessment and Team - who do you call now with complications and problems ????? For some of us it has taken years decades to reach cirrhosis stages. We have adjusted and adapted to all the symptoms not feeling well and we have forgotten what it was like to really feel good. We than realize and feel how sick we really are when the symptoms become worse and it doesn't help matters being confused with encephalopathy. It took about a year ptp for me to realize wow this is what it was like to feel good. Love and Hugs. Deb

Everyone is raving about the all-new beta.

[Guest guest]

Good Day Del, You just crack me up, with a way of words you have.And how you succeed in putting them all together. As, I said before Lactulose has worked for me, and kept my ammonia level around 55 last time it was checked. But, I do have a question, with us esld or maybe not. Last year was the first time I smelled ammonia, taking in consideration, I have no cats, dogs, or kids that go boom boom in my house. It may last an hour, it takes my breath away. It was a one time only deal, or so I thought. Today, it is back, like I have my head over a cat's do do parlor. What is this. Should I get my ammonia rechecked? Thank God it doesn't last long, but even for the brief time it does come it is overwhelming. Respectfully Star1956 Still going boom boom 4 to 5 times a day, thanks for asking.Del Compton <go_deliman@...> wrote: Hi Suzie.. Cmon...let's do a TP together...haha just kiddin'.. I almost said no, through rationalizations that a person without use of full mental capacity could make sense of. Namely ME!!! I now am fully committed to having this done, if it is the Big Guy's plan for me, and quite frankly, my dear.... I don't give a damn about my feelings that I'm not worthy, or some

one else deserves it more. That is a wrong and sorry way to think! This is ALL about me!!! I used to feel someone else should go before me. A young man or woman with a future.... well...know what? I have a future too!! and a purpose! There are alotta' people that I feel I can help and hell...I may live another 40 yrs!!! That's another lifetime to bug the sh*t outa' people!!! which comfortably leads me to,..........my NEW and IMPROVED way of lQQking at Lactulose. As I understood it from my medical peep's, I was to take enough to ensure a BM (acronym for pooping, droppin' the bomb, going boom boom, the BIG job)...... 3 to 5 times daily. The first dose rate caused me to go about 20 times !! No SH*T!! Alotta Sh*T! I ( on doctors orders), cut back til I was going 3 to 5 times a day, as prescribed. Well... after awhile, I was doin' 3 to 5 in the Big House without any prompting from Lactulose,

so it only made sense to me to stop taking the stuff, cause I didn't need it! I was maintaining on my own!! YIPPPPEEE!!! WRONG. Now... I don't look at Lactulose as the medicine to make me BM, as most of us do do... but as the medicine that gets the poison outa' my brain. As you know, the Liver can't do it alone anymore. Lactulose, kind of like pond scum remover, breaks up and processes the poison past the liver, and into your open and waiting bowels. AT this time, your are now ready to proceed to a bathroom, or convenient location, to complete the process of expelling the poison from your brain. I don't know how true or correct this may be... but I know I don't like to feel bad, and mixed up and confused and......... well you know. Thinking of the Lactulose this way causes a complete different

'attitude' with in me, and I actually happily drink it now. Deliman Deb <posttransplant > wrote: Yes it can get to the point of past exhaustion sleeping to soundly for very long periods of time for days like in a semiconscious state than longer and longer periods of time and with more confusion and being in a fog. Honey this isn't an overnight process and the reason for you taking Lactulose as prescribed all this time eating right enough and trying to keep as healthy as

possible. With you sleeping for long periods of time are you missing your meds and meals - have you made a final decision about a transplant ???? I'm still confused about the Canadian health care system. Who is taking care of you now a Primary Care Physician a Hep Dr or a Dr and someone to call from your TP assessment and Team - who do you call now with complications and problems ????? For some of us it has taken years decades to reach cirrhosis stages. We have adjusted and adapted to all the

symptoms not feeling well and we have forgotten what it was like to really feel good. We than realize and feel how sick we really are when the symptoms become worse and it doesn't help matters being confused with encephalopathy. It took about a year ptp for me to realize wow this is what it was like to feel good. Love and Hugs. Deb Everyone is raving about the all-new beta.

Have a burning question? Go to Answers and get answers from real people who know.

[Guest guest]

It’s

my understanding that Suzie is in that limbo place where she’s really

sick, but not sick enough for a transplant – like and Allan. Am I right SuZie Q? So even if

she decides she wants to, they aren’t ready for her. Missing meds

& meals is a big concern though. Who knows the answer to that one?

De

Re:

Questions --- Suzie

Yes it can get to the point of past exhaustion sleeping

to soundly for very long periods of time for days like in a semiconscious state

than longer and longer periods of time and with more confusion and being in a

fog.

Honey this isn't an overnight process and the reason for you taking

Lactulose as prescribed all this time eating right enough and trying

to keep as healthy as possible.

With you sleeping for long periods of time are you missing your meds and

meals - have you made a final decision about a transplant ????

I'm still confused about the Canadian health care system. Who is

taking care of you now a Primary Care Physician a Hep Dr or a Dr and

someone to call from your TP assessment and Team - who do you call now with

complications and problems ?????

For some of us it has taken years decades to reach cirrhosis

stages. We have adjusted and adapted to all the symptoms not

feeling well and we have forgotten what it was like to really feel

good. We than realize and feel how sick we really are when the

symptoms become worse and it doesn't help matters being confused

with encephalopathy.

It took about a year ptp for me to realize wow this is what it was like

to feel good.

Love and Hugs.

Deb

[Guest guest]

Right on De, that's exactly where I am now - Limbo. The T P assessment basically said not yet. I've had this foggy time before but never the sleepies this bad, also the itchies are back. I'm taking my meds & my Lactulose like I'm supposed to, more or less on schedule & been visiting "ny" 3 to 5 times a day, again as ordered.As far as eating goes - well that's in the wind. I eat when I can. My sugars are approaching normal so that's one good thing.

As for doctors, I have a bunch. I guess my primary care doctor is my family doc. I also see the infectious diseases guy ( you remember, Dr. Idiot) he seems to believe he has transferred my care to the G I who I've seen once, when he referred me for the T P assessment. I can't get an appointment with him unless things get worse.

Deb, it's taken years to get this bad. My first bx, back in 1990 said cirrhosis & I was pretty fogged in but didn't know it could be a symptom of the HCV. Nobody told me 'til I started researching on my own.

Hugs,

SuZie

Next time I'm coming back as a cat

] Re: Questions --- Suzie

It’s my understanding that Suzie is in that limbo place where she’s really sick, but not sick enough for a transplant – like and Allan. Am I right SuZie Q? So even if she decides she wants to, they aren’t ready for her. Missing meds & meals is a big concern though. Who knows the answer to that one?

De

[Hepatitis CSupportG roupForDummies] Re: Questions --- Suzie

Yes it can get to the point of past exhaustion sleeping to soundly for very long periods of time for days like in a semiconscious state than longer and longer periods of time and with more confusion and being in a fog.

Honey this isn't an overnight process and the reason for you taking Lactulose as prescribed all this time eating right enough and trying to keep as healthy as possible.

With you sleeping for long periods of time are you missing your meds and meals - have you made a final decision about a transplant ????

I'm still confused about the Canadian health care system. Who is taking care of you now a Primary Care Physician a Hep Dr or a Dr and someone to call from your TP assessment and Team - who do you call now with complications and problems ?????

For some of us it has taken years decades to reach cirrhosis stages. We have adjusted and adapted to all the symptoms not feeling well and we have forgotten what it was like to really feel good. We than realize and feel how sick we really are when the symptoms become worse and it doesn't help matters being confused with encephalopathy.

It took about a year ptp for me to realize wow this is what it was like to feel good.

Love and Hugs.

Deb

[Guest guest]

So who decides when your bad enough to see this other doctor?? The cat!!! KathyBoo

-- [Hepatitis CSupportG roupForDummies] Re: Questions --- Suzie

Yes it can get to the point of past exhaustion sleeping to soundly for very long periods of time for days like in a semiconscious state than longer and longer periods of time and with more confusion and being in a fog.

Honey this isn't an overnight process and the reason for you taking Lactulose as prescribed all this time eating right enough and trying to keep as healthy as possible.

With you sleeping for long periods of time are you missing your meds and meals - have you made a final decision about a transplant ????

I'm still confused about the Canadian health care system. Who is taking care of you now a Primary Care Physician a Hep Dr or a Dr and someone to call from your TP assessment and Team - who do you call now with complications and problems ?????

For some of us it has taken years decades to reach cirrhosis stages. We have adjusted and adapted to all the symptoms not feeling well and we have forgotten what it was like to really feel good. We than realize and feel how sick we really are when the symptoms become worse and it doesn't help matters being confused with encephalopathy.

It took about a year ptp for me to realize wow this is what it was like to feel good.

Love and Hugs.

Deb

[Guest guest]

I don't know, SpYke'd be better than most of the docs I see. I guess I'm the one who makes that decision. I still see Dr. Idiot two or three times a year so he can tell me or my family doc will let me know when my LFTs are sufficiently high

I've got a daytime sleep study on Monday. Stay up all day & night Sunday then go in & sleep there(if I can)Monday, guess I must have apnea he said that's when he'd do a study. I'll fill you all in Monday night, k?

Hugs & little fuzzy cat kisses,

SuZie & Sir SpYke the Shedding Machine (I could knit another cat from his weekly deposits of used hair.)

Next time I'm coming back as a cat

[Hepatitis CSupportG roupForDummies] Re: Questions --- Suzie

Yes it can get to the point of past exhaustion sleeping to soundly for very long periods of time for days like in a semiconscious state than longer and longer periods of time and with more confusion and being in a fog.

Honey this isn't an overnight process and the reason for you taking Lactulose as prescribed all this time eating right enough and trying to keep as healthy as possible.

With you sleeping for long periods of time are you missing your meds and meals - have you made a final decision about a transplant ????

I'm still confused about the Canadian health care system. Who is taking care of you now a Primary Care Physician a Hep Dr or a Dr and someone to call from your TP assessment and Team - who do you call now with complications and problems ?????

For some of us it has taken years decades to reach cirrhosis stages. We have adjusted and adapted to all the symptoms not feeling well and we have forgotten what it was like to really feel good. We than realize and feel how sick we really are when the symptoms become worse and it doesn't help matters being confused with encephalopathy.

It took about a year ptp for me to realize wow this is what it was like to feel good.

Love and Hugs.

Deb