Re: call for a liver

[Guest guest]

Glenda, are you worried because it is from a homosexual? I dont understand what you are saying.

They called me for a liver from a homsexaual person, and wanted to know if I wanted it. I want a new liver but I am on 51 and don't know if this the best for me. They said it will not hurt my chances, I am pretty close to the top and go to doctor tomorrow. Does anyone have an opinion.

Hugs and hoping for some responses. glenda ston

[Guest guest]

Glenda - I didn't realize your MELD had jumped out or you were next in line for a TP from your Center and Region. Right now as of this date and time 17,099 people are on the waiting list just for a new liver in the U.S. with the average per day at 17,000 people listed. Daily there is a dire shortage of usable donated HCV free livers for everyone listed for a liver transplant mainly from HCV ESLD with approximately only 6000 to 7000 liver transplants done per year. Transplant Centers will ask and usually have you sign a transplant medical contract asking if you will accept a HCV- clean or free donated liver only or if you will also accept a HCV+ donated liver in earlier stages than you to save your life if no other HCV clean liver is available but all medical information about your donor and condition of the donated liver be it free of HCV or not should be disclosed and told to you for you to make your final decision. I know you are confused and probably more confused with high ammonia levels and many other medical problems at this time. You may be only 51 but you are listed for a liver transplant in

ESLD and fighting for your life and so are the other 17,099 other people listed at this time. ESLD means exactly what it says - end stage liver disease - end of liver and end of life without a life saving liver transplant. The donor being a homosexual person is not the issue. Why was it told to you and what is the medical condition of the donor and donated liver ???? If you are free of HIV than a HIV free donated liver is usually only used for your transplant and to save your life. Do you also have HIV and with a co-infection of HIV/HCV ???? It's your decision to make if your donor be free of HCV or not and you need to know all the details - what to expect in the future - will you need a 2nd transplant - when and medically what will be done for you next. There is not enough clean HCV free donated livers or donated livers period for everyone listed for a liver transplant and for the majority it is medically know HCV will

return for the majority post transplant. A HCV free liver transplant is Not a cure for HCV. All The Best to You. Love - Hugs and Prayers. Deb

[Guest guest]

Glenda, They actually told you who the liver was from.. Isn't that a bit unethical??? I didn't know who my liver came from for a year.. And then it was cause (The Daughter) contacted me..But you know I wouldn't have cared who the liver came from ok..I needed one, and I got one..Also they check all with any liver for donation.. Kathy Brunow Transplanted March 30th 2004 in Milwaukee Wi.

-- Re: call for a liver

A healthy liver is a healthy liver,who it is from is unimportant.

Gail

RE: call for a liver

Glenda, are you worried because it is from a homosexual? I dont understand what you are saying.

They called me for a liver from a homsexaual person, and wanted to know if I wanted it. I want a new liver but I am on 51 and don't know if this the best for me. They said it will not hurt my chances, I am pretty close to the top and go to doctor tomorrow. Does anyone have an opinion.

Hugs and hoping for some responses. glenda ston

[Guest guest]

Yes, my liver is very bad, and I have appointment, the person called me ask me about it because they have too. I did call back and it went to another donor some where else. She would not give a lot of info on donor, but said she felt I made a good decision, she said another hospital got it and someone had accepted it. I am very sick and just each day with some new happening I know each of you know what I am talking about. I just hope to make it until the next liver is better. Thanks G

In a message dated 11/12/06 15:15:37 Eastern Standard Time, posttransplant@... writes:

Glenda - I didn't realize your MELD had jumped out or you were next in line for a TP from your Center and Region.

Right now as of this date and time 17,099 people are on the waiting list just for a new liver in the U.S. with the average per day at 17,000 people listed.

Daily there is a dire shortage of usable donated HCV free livers for everyone listed for a liver transplant mainly from HCV ESLD with approximately only 6000 to 7000 liver transplants done per year.

Transplant Centers will ask and usually have you sign a transplant medical contract asking if you will accept a HCV- clean or free donated liver only or if you will also accept a HCV+ donated liver in earlier stages than you to save your life if no other HCV clean liver is available but all medical information about your donor and condition of the donated liver be it free of HCV or not should be disclosed and told to you for you to make your final decision.

I know you are confused and probably more confused with high ammonia levels and many other medical problems at this time.

You may be only 51 but you are listed for a liver transplant in ESLD and fighting for your life and so are the other 17,099 other people listed at this time.

ESLD means exactly what it says - end stage liver disease - end of liver and end of life without a life saving liver transplant.

The donor being a homosexual person is not the issue.

Why was it told to you and what is the medical condition of the donor and donated liver ????

If you are free of HIV than a HIV free donated liver is usually only used for your transplant and to save your life.

Do you also have HIV and with a co-infection of HIV/HCV ????

It's your decision to make if your donor be free of HCV or not and you need to know all the details - what to expect in the future - will you need a 2nd transplant - when and medically what will be done for you next.

There is not enough clean HCV free donated livers or donated livers period for everyone listed for a liver transplant and for the majority it is medically know HCV will return for the majority post transplant.

A HCV free liver transplant is Not a cure for HCV.

All The Best to You.

Love - Hugs and Prayers.

Deb

[Guest guest]

In a message dated 11/12/06 16:38:40 Eastern Standard Time, kathy-boo@... writes:

Subject: Re: call for a liver

They did not tell me just about the homosexual and I had a option. I now I know I am a good person, and wish they just told me to come, but at this time, they said they had to.

[Guest guest]

WOW... Big news!! I will pray for ya'll tonight, Glenda... Does this mean you would be coinfected? I don't envy your position.... I can't remember can you take tx? I guess that won't matter.. I'm going to just keep quite on this one cause I don't want to say anything to upset you, or anything.. WHEW!! you have been reeling.. Deliman God Bless you!!glendajohn25 <glendajohn25@...> wrote: They called me for a liver from

a homsexaual person, and wanted to know if I wanted it. I want a new liver but I am on 51 and don't know if this the best for me. They said it will not hurt my chances, I am pretty close to the top and go to doctor tomorrow. Does anyone have an opinion. Hugs and hoping for some responses. glenda ston

Everyone is raving about the all-new beta.

[Guest guest]

If I did not know I would not care, but she made a special remark about that and I do not have to take because of their stauts. If I did not know there would be no question. Don't get mad, I have nothing against homosexual just when she told me they were 63 yrs old and homosexual, she made me think. I told her I wanted it more than an thing. Please do not be upset with me. I know better the next time. I will go no matter what if I get the chance the next time. Hugs, Glenda

In a message dated 11/12/06 14:42:21 Eastern Standard Time, gaila@... writes:

A healthy liver is a healthy liver,who it is from is unimportant.

Gail

RE: call for a liver

Glenda, are you worried because it is from a homosexual? I dont understand what you are saying.

They called me for a liver from a homsexaual person, and wanted to know if I wanted it. I want a new liver but I am on 51 and don't know if this the best for me. They said it will not hurt my chances, I am pretty close to the top and go to doctor tomorrow. Does anyone have an opinion.

Hugs and hoping for some responses. glenda ston

[Guest guest]

no not all, I just had a option I had to make really quick. they did not say man or woman just 63 yrs homosexual. If I could take it all back i would. I feel like everyone is mad at me and think I am too good for it. That is not the case. I promise. It went to do someone else who most likely was more sick than me, and I pray that it will be ok. Please don't be mad, do you want me to get off the list.

Glenda

In a message dated 11/12/06 14:11:44 Eastern Standard Time, 2llama@... writes:

Glenda, are you worried because it is from a homosexual? I dont understand what you are saying.

They called me for a liver from a homsexaual person, and wanted to know if I wanted it. I want a new liver but I am on 51 and don't know if this the best for me. They said it will not hurt my chances, I am pretty close to the top and go to doctor tomorrow. Does anyone have an opinion.

Hugs and hoping for some responses. glenda ston

[Guest guest]

Hi again Glenda,

I dont think anyone is mad at you, at least I am not. I just wasn't sure of what you were saying and wondering why you were even told, and why that would make a difference, and if you were thinking clearly. Now I am hoping another liver will become available in time for you. Hang in there, we are all doing the best we can. I certainly wish the best for you.

no not all, I just had a option I had to make really quick. they did not say man or woman just 63 yrs homosexual. If I could take it all back i would. I feel like everyone is mad at me and think I am too good for it. That is not the case. I promise. It went to do someone else who most likely was more sick than me, and I pray that it will be ok. Please don't be mad, do you want me to get off the list.

Glenda

In a message dated 11/12/06 14:11:44 Eastern Standard Time, 2llama@... writes:

Glenda, are you worried because it is from a homosexual? I dont understand what you are saying.

They called me for a liver from a homsexaual person, and wanted to know if I wanted it. I want a new liver but I am on 51 and don't know if this the best for me. They said it will not hurt my chances, I am pretty close to the top and go to doctor tomorrow. Does anyone have an opinion.

Hugs and hoping for some responses. glenda ston

[Guest guest]

A healthy liver is a healthy liver,who it is from is unimportant.

Gail

RE: call for a liver

Glenda, are you worried because it is from a homosexual? I dont understand what you are saying.

They called me for a liver from a homsexaual person, and wanted to know if I wanted it. I want a new liver but I am on 51 and don't know if this the best for me. They said it will not hurt my chances, I am pretty close to the top and go to doctor tomorrow. Does anyone have an opinion.

Hugs and hoping for some responses. glenda ston

[Guest guest]

Glenda - Honey no one is mad at you it is your choices and your decisions alone to make we just want to make sure you have all the HCV and transplant facts for you to make these life or death choices and decisions for you. I am shocked they told you the donor was homosexual in the 1st place and is a very prejudice and judgmental statement to make of another human being that thought enough of his fellowman to become an organ donor and save many lives. They were wrong to do so and which may have given you 2nd thoughts. The donors sexual preference is not and should never be an issue but only the compatibility - health and condition of the donated organ. Personal info on the donor not health related to the recipient or transplant donor criteria should never be given out for you to decide to pick and choose a donor or persuade you in a anyway. It is a Blessing and a Miracle to be called for a liver transplant and being a donor is the greatest last gift you can give to your fellowman and will save many lives from 1 donor. Take Care and God Bless. Deb

[Guest guest]

No one is mad at you Glenda.. I'm just in shock they even gave you any information about the donor.. It really is unethical.Did you turn them down? I hope it wasn't cause the donor was homosexual.It really doesn't matter, their sexual preference you know..As long as the liver is good.At the hospital where I had mine, they have a support group, one guy there had a heart transplant and the donor had hepatitis C..Since this guy also had Hepatitis C, he said sure no problems.. The only person it actually bothered was his wife ok..But then again it wasn't her heart huh..He also had a liver transplant early this year.. WOW!!Boo

-- Re: call for a liver

no not all, I just had a option I had to make really quick. they did not say man or woman just 63 yrs homosexual. If I could take it all back i would. I feel like everyone is mad at me and think I am too good for it. That is not the case. I promise. It went to do someone else who most likely was more sick than me, and I pray that it will be ok. Please don't be mad, do you want me to get off the list.

Glenda

In a message dated 11/12/06 14:11:44 Eastern Standard Time, 2llamacamasnet writes:

Glenda, are you worried because it is from a homosexual? I dont understand what you are saying.

They called me for a liver from a homsexaual person, and wanted to know if I wanted it. I want a new liver but I am on 51 and don't know if this the best for me. They said it will not hurt my chances, I am pretty close to the top and go to doctor tomorrow. Does anyone have an opinion.

Hugs and hoping for some responses. glenda ston

[Guest guest]

!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.01//EN" "http://www.w3.org/TR/html4/strict.dtd">

I

agree.

De

Re:

call for a liver

A healthy liver is a healthy liver,who it is from is

unimportant.

Gail

[Guest guest]

Glenda, I’m not mad at you either and I don’t

want you to get off the group. I know you’re confused and scared

right now. The only reason I can think that homosexuality would come into

it would be if the liver was HIV+, otherwise, I can’t imagine why they

would even bring it up. So I was confused, too. I know you will

make the right decisions for you.

De

RE:

call for a liver

Hi

again Glenda,

I

dont think anyone is mad at you, at least I am not. I just wasn't sure of what

you were saying and wondering why you were even told, and why

that would make a difference, and if you were thinking clearly. Now I am

hoping another liver will become available in time for you. Hang in there,

we are all doing the best we can. I certainly wish the best for you.

[Guest guest]

Glenda no one is mad at you and they will only offer you the organ that is compadible with your blood type.I would want them to make sure that the donor was healthy.I would except a hep c doner if my liver was real bad and my hep c was still active.I plan on donating my liver cause I have only stage and grade fibrois so if someone needed a liver to get them by,they can have it but the recipient has to know about the hep c first.Take care hon and don't worry,no one is upset with you.If you are on the list you need a new liver.Just make sure it is a healthy one.

Gail

Re: call for a liver

no not all, I just had a option I had to make really quick. they did not say man or woman just 63 yrs homosexual. If I could take it all back i would. I feel like everyone is mad at me and think I am too good for it. That is not the case. I promise. It went to do someone else who most likely was more sick than me, and I pray that it will be ok. Please don't be mad, do you want me to get off the list.

Glenda

In a message dated 11/12/06 14:11:44 Eastern Standard Time, 2llama@... writes:

Glenda, are you worried because it is from a homosexual? I dont understand what you are saying.

They called me for a liver from a homsexaual person, and wanted to know if I wanted it. I want a new liver but I am on 51 and don't know if this the best for me. They said it will not hurt my chances, I am pretty close to the top and go to doctor tomorrow. Does anyone have an opinion.

Hugs and hoping for some responses. glenda ston

[Guest guest]

I agree,but it she made it quite clear she did not know because of the window and how long it would be good. So like I said before, please don't judge me. You were not faced with all the information. I f you want me off then kick me off. I love this place and get good info, but I do not like to be put down when you do not know all the facts. Hetrosexual had nothting to do with it. Hugs, I hope received Glenda

In a message dated 11/12/06 18:20:02 Eastern Standard Time, glendajohn25 writes:

If I did not know I would not care, but she made a special remark about that and I do not have to take because of their stauts. If I did not know there would be no question. Don't get mad, I have nothing against homosexual just when she told me they were 63 yrs old and homosexual, she made me think. I told her I wanted it more than an thing. Please do not be upset with me. I know better the next time. I will go no matter what if I get the chance the next time. Hugs, Glenda

In a message dated 11/12/06 14:42:21 Eastern Standard Time, gaila@....ca writes:

A healthy liver is a healthy liver,who it is from is unimportant.

Gail

RE: call for a liver

Glenda, are you worried because it is from a homosexual? I dont understand what you are saying.

They called me for a liver from a homsexaual person, and wanted to know if I wanted it. I want a new liver but I am on 51 and don't know if this the best for me. They said it will not hurt my chances, I am pretty close to the top and go to doctor tomorrow. Does anyone have an opinion.

Hugs and hoping for some responses. glenda ston

[Guest guest]

They told me it was a risk, I live with a risk everyday. glenda

In a message dated 11/12/06 18:31:24 Eastern Standard Time, 2llama@... writes:

Hi again Glenda,

I dont think anyone is mad at you, at least I am not. I just wasn't sure of what you were saying and wondering why you were even told, and why that would make a difference, and if you were thinking clearly. Now I am hoping another liver will become available in time for you. Hang in there, we are all doing the best we can. I certainly wish the best for you.

no not all, I just had a option I had to make really quick. they did not say man or woman just 63 yrs homosexual. If I could take it all back i would. I feel like everyone is mad at me and think I am too good for it. That is not the case. I promise. It went to do someone else who most likely was more sick than me, and I pray that it will be ok. Please don't be mad, do you want me to get off the list.

Glenda

In a message dated 11/12/06 14:11:44 Eastern Standard Time, 2llamacamasnet writes:

Glenda, are you worried because it is from a homosexual? I dont understand what you are saying.

They called me for a liver from a homsexaual person, and wanted to know if I wanted it. I want a new liver but I am on 51 and don't know if this the best for me. They said it will not hurt my chances, I am pretty close to the top and go to doctor tomorrow. Does anyone have an opinion.

Hugs and hoping for some responses. glenda ston

[Guest guest]

No one wants you off this group Silly.. I was stunned that they even mentioned any thing about the donor.. It is highly unethical and just not done. Homosexual and HIV is not an issue.. Any one can get HIV Glenda.. And the only way they would even mention HIV and Donor Liver is if YOU were co-infected dear..Organs, especially Livers are so hard to get..Some people will opt for a Liver that has say Hepatitis C or HIv or ??? Just to get one. One guy in my support group here in Milwaukee's ST. Luke's hospital.. Had a heart Trans-plant oh I say 4 years ago , was a hepatitis C patient but the heart was good..No problem.. Since then this gentleman has a new liver too.. He also still has hepatitis C..You do know this is just beating a dead horse to keep bringing this up .Part of bring in a support group is getting feed back from every one, weather you like it or not..Kathy Boo

-- Re: call for a liver

I agree,but it she made it quite clear she did not know because of the window and how long it would be good. So like I said before, please don't judge me. You were not faced with all the information. I f you want me off then kick me off. I love this place and get good info, but I do not like to be put down when you do not know all the facts. Hetrosexual had nothting to do with it. Hugs, I hope received Glenda

In a message dated 11/12/06 18:20:02 Eastern Standard Time, glendajohn25 writes:

If I did not know I would not care, but she made a special remark about that and I do not have to take because of their stauts. If I did not know there would be no question. Don't get mad, I have nothing against homosexual just when she told me they were 63 yrs old and homosexual, she made me think. I told her I wanted it more than an thing. Please do not be upset with me. I know better the next time. I will go no matter what if I get the chance the next time. Hugs, Glenda

In a message dated 11/12/06 14:42:21 Eastern Standard Time, gaila@....ca writes:

A healthy liver is a healthy liver,who it is from is unimportant.

Gail

RE: call for a liver

Glenda, are you worried because it is from a homosexual? I dont understand what you are saying.

They called me for a liver from a homsexaual person, and wanted to know if I wanted it. I want a new liver but I am on 51 and don't know if this the best for me. They said it will not hurt my chances, I am pretty close to the top and go to doctor tomorrow. Does anyone have an opinion.

Hugs and hoping for some responses. glenda ston

[Guest guest]

Glenda no one is judging you,you are the only one that can determine if you should take a transplant or not.Like you said you have a the information,not us.Take care girl and I hope another chance comes soon.

Gail

RE: call for a liver

Glenda, are you worried because it is from a homosexual? I dont understand what you are saying.

They called me for a liver from a homsexaual person, and wanted to know if I wanted it. I want a new liver but I am on 51 and don't know if this the best for me. They said it will not hurt my chances, I am pretty close to the top and go to doctor tomorrow. Does anyone have an opinion.

Hugs and hoping for some responses. glenda ston

[Guest guest]

I understand, they just offered to me, it was not in FL, i don't know where it was. I am not afraid of homosexual, just never given the option. Hinde site is

/

20,20. When people fuss when they did not hear the other end of the conversation. I am ok now. hugs, glenda

In a message dated 11/14/06 11:25:23 Eastern Standard Time, kathy-boo@... writes:

No one wants you off this group Silly.. I was stunned that they even mentioned any thing about the donor.. It is highly unethical and just not done. Homosexual and HIV is not an issue.. Any one can get HIV Glenda.. And the only way they would even mention HIV and Donor Liver is if YOU were co-infected dear..Organs, especially Livers are so hard to get..Some people will opt for a Liver that has say Hepatitis C or HIv or ??? Just to get one. One guy in my support group here in Milwaukee's ST. Luke's hospital.. Had a heart Trans-plant oh I say 4 years ago , was a hepatitis C patient but the heart was good..No problem.. Since then this gentleman has a new liver too.. He also still has hepatitis C..You do know this is just beating a dead horse to keep bringing this up .Part of bring in a support group is getting feed back from every one, weather you like it or not..Kathy Boo

-- Re: call for a liver

I agree,but it she made it quite clear she did not know because of the window and how long it would be good. So like I said before, please don't judge me. You were not faced with all the information. I f you want me off then kick me off. I love this place and get good info, but I do not like to be put down when you do not know all the facts. Hetrosexual had nothting to do with it. Hugs, I hope received Glenda

In a message dated 11/12/06 18:20:02 Eastern Standard Time, glendajohn25 writes:

If I did not know I would not care, but she made a special remark about that and I do not have to take because of their stauts. If I did not know there would be no question. Don't get mad, I have nothing against homosexual just when she told me they were 63 yrs old and homosexual, she made me think. I told her I wanted it more than an thing. Please do not be upset with me. I know better the next time. I will go no matter what if I get the chance the next time. Hugs, Glenda

In a message dated 11/12/06 14:42:21 Eastern Standard Time, gaila@....ca writes:

A healthy liver is a healthy liver,who it is from is unimportant.

Gail

RE: call for a liver

Glenda, are you worried because it is from a homosexual? I dont understand what you are saying.

They called me for a liver from a homsexaual person, and wanted to know if I wanted it. I want a new liver but I am on 51 and don't know if this the best for me. They said it will not hurt my chances, I am pretty close to the top and go to doctor tomorrow. Does anyone have an opinion.

Hugs and hoping for some responses. glenda ston

[Guest guest]

That is what gave me the doubuts but then they said did not have liver yet, family had not given up and was not dead yet.

In a message dated 11/12/06 18:35:39 Eastern Standard Time, posttransplant@... writes:

Glenda - Honey no one is mad at you it is your choices and your decisions alone to make we just want to make sure you have all the HCV and transplant facts for you to make these life or death choices and decisions for you.

I am shocked they told you the donor was homosexual in the 1st place and is a very prejudice and judgmental statement to make of another human being that thought enough of his fellowman to become an organ donor and save many lives.

They were wrong to do so and which may have given you 2nd thoughts.

The donors sexual preference is not and should never be an issue but only the compatibility - health and condition of the donated organ.

Personal info on the donor not health related to the recipient or transplant donor criteria should never be given out for you to decide to pick and choose a donor or persuade you in a anyway.

It is a Blessing and a Miracle to be called for a liver transplant and being a donor is the greatest last gift you can give to your fellowman and will save many lives from 1 donor.

Take Care and God Bless.

Deb

[Guest guest]

Glenda honey no one is mad. This decsion was for you to make. love and hugs d aka DanneGrlglendajohn25 <glendajohn25@...> wrote: no not all, I just had a option I had to make really quick. they did not say man or woman just 63 yrs homosexual. If I could take it all back i would. I feel like everyone is mad at me and think I am too good for it. That is not the case. I promise. It went to do someone else who most likely was more

sick than me, and I pray that it will be ok. Please don't be mad, do you want me to get off the list. Glenda . The art of living lies not in eliminating but in growing with troubles. -Bernard M. Baruch

Check out the all-new - Fire up a more powerful email and get things done faster.

[Guest guest]

They will contact you and Tell you they have a candidate waiting to die.. They keep the donor on life support as long as they can..I talked to my Doctor yesterday, had interesting conversation... They do Ex-rays, blood work etc.. All this before they even off the liver..And no one tell you any thing about the donor.Doctor Van Thiel is very blunt and I will not repeat what he said about the people who told you the donor was a homosexual..Kathy

-- Re: Re: call for a liver

That is what gave me the doubuts but then they said did not have liver yet, family had not given up and was not dead yet.

In a message dated 11/12/06 18:35:39 Eastern Standard Time, posttransplant writes:

Glenda - Honey no one is mad at you it is your choices and your decisions alone to make we just want to make sure you have all the HCV and transplant facts for you to make these life or death choices and decisions for you.

I am shocked they told you the donor was homosexual in the 1st place and is a very prejudice and judgmental statement to make of another human being that thought enough of his fellowman to become an organ donor and save many lives.

They were wrong to do so and which may have given you 2nd thoughts.

The donors sexual preference is not and should never be an issue but only the compatibility - health and condition of the donated organ.

Personal info on the donor not health related to the recipient or transplant donor criteria should never be given out for you to decide to pick and choose a donor or persuade you in a anyway.

It is a Blessing and a Miracle to be called for a liver transplant and being a donor is the greatest last gift you can give to your fellowman and will save many lives from 1 donor.

Take Care and God Bless.

Deb