- Book to help with anxiety

[Guest guest]

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I'm so sorry you had such a horrible IVIG - we've been there, done that. Here

is somethng that may, or may not help - when Charlie started his infusions, he

had a lot of anxiety - so I wrote him a book about it - recently, Baxter

published that book, a long with a " scrapbook " style template/book for kids to

do a book with their parents (with their pictures, and words) along with

stickers that are medical related (even an IVIG bottle) it's free of charge

(YEA!) and can be ordered at www.immunedisease.com

The other thing is - We've all made the hydration mistake - even after a few

years, I'v'e made the mistake - just a thought - the day before our infusion -

we give the kids tons of salty foods (bacon, sausage, hot dogs, chips, salty

crackers) and it makes them thirsty - so they are super hydrated going into

infusion day. You should check with your doc and see if diet wise it's okay for

you to do - but - it may work for your kiddos too. BTW - I've also explained to

Charlie and the importance of hydration and they ask for water and

gatoraide on the days before infusions - maybe explaining that was why it took

so many sticks would help?

Hang in there -

Dayna