Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Hi Everyone, I was wanting to share that we have decided to move forward with the bone marrow transplant at this time. We are tentatively planning Conner's transplant for late spring/early summer. We are still looking for possible donors, but we were able to come up with some pretty close matches. Our hope is that Conner will be cured of his immune deficiency, but we know there aren't any guarantees. It was a tough decision, but something that our immuno, the docs at the NIH, and the transplant doc feels to be in Conner's best interest. They feel that his life expectancy will be significantly reduced without it (thanks to the NEMO deficiency). I also wanted to let you all know that I'm going " no email " for awhile, I just can't seem to keep up with it at the moment (I'm in too many groups these days!). If anyone would like to email me privately, feel free to do so - or drop by our website for updates: www.cure4conner.org Take care, Mom to Conner (12, NEMO and MBL Deficiency, Hayden (12, MBL Deficiency) Evan (12, MBL Deficiency) and Kelsey - (10, NEMO - expressive carrier and MBL Deficiency) Please visit us at www.cure4conner.org Quote Link to comment Share on other sites More sharing options...
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