Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 HI , Congratulations on such a wonderful job working on bossing back perfectionism by working with your son's teachers. I share your frustration about havng a child who won't work on OCD anymore. Fortunately, my daughter Kelsey (8) is 90% recovered. I still see mild waxing and waning periods though (like when she becomes very bossy and badgers people). You would think that after all the work we've done she'd be willing to recognize OCD and work on it, but just like you describe..she's very annoyed if I bring up something as OCD. She tells me it's not... " just how she is..and why do I have to think everything's OCD? " Just goes to show you...whether they're in recovery or not, OCDers are not always wiling to work on symptoms unless THEY feel it's a problem. Take care, in San Diego Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 In a message dated 12/11/00 6:09:17 AM Central Standard Time, egroups writes: << ] Simplifying Life... >> Hi Carolyn and others. Glad you have found some respite from worry. I've been trying to decide if I wanted to bring this up on here. I broke my leg in June and it still hasn't healed. The Dr. said last week it may even be worse. So, he wants to put in a pin or something like that but he also has to replace the knee at that time because the knee is shot from arthritis. I am really worried about it. I don't know an alternative though. This is starting all over on the hospital (yuck) and the therapy etc. I wonder if there are special considerations because of the CMT. These Drs are experts not on CMT. They do know of it but not as a specialty. I can't get to the MDA clinic at this time. I know Carolyn is having knee surgery and maybe others have had this surgery or know of others. The pin in the bone is worrying me too. To add to my concern is the fact the cellulitis in my leg (which was the original reason I went to hospital where I broke my leg) keeps coming back. I have too much time to obsess about this and, most of time, no one is here to listen so thanks folks. Carolyn Mc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 Hi, Carolyn. Carolyn here! Sorry you're having so much trouble with your leg! Bummer. I hope you're getting a second opinion before more surgery. Re the pins: I've had that with an ankle break several years ago, and they were eventually removed. The pins were necessary to bone healing in my case. The only thing I can offer to you is to get a second opinion. I will certainly keep you in my thoughts and prayers. Keep writing to the forum. It really helps, and I certainly have received some great ideas here. Regards, Carolyn > I broke my leg in June and it still hasn't healed. The Dr. said last week it > may even be worse. So, he wants to put in a pin or something like that but he > also has to replace the knee at that time because the knee is shot from > arthritis. I am really worried about it. I don't know an alternative though. > This is starting all over on the hospital (yuck) and the therapy etc. I > wonder if there are special considerations because of the CMT. These Drs are > experts not on CMT. They do know of it but not as a specialty. I can't get > to the MDA clinic at this time. > I know Carolyn is having knee surgery and maybe others have had this surgery > or know of others. The pin in the bone is worrying me too. To add to my > concern is the fact the cellulitis in my leg (which was the original reason I > went to hospital where I broke my leg) keeps coming back. > I have too much time to obsess about this and, most of time, no one is here > to listen so thanks folks. > Carolyn Mc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2001 Report Share Posted August 12, 2001 they have something called a chewy its usually in the section with all the baby teethers i believe gerber sells it its awesome my daughter uses it it has different textures on it it kinda looks like a tooth brush. if you can't find one if you'd like e-mail me ,and i'll buy another,and send it to you dannilynn700231@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2001 Report Share Posted August 12, 2001 Hi, my daughter is also a runner,but we had family resources from her mr/dd school pay for a fence,and a trampoline for therapy is that an opition for you? we live in ohio also. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2001 Report Share Posted August 27, 2001 In a message dated 8/27/01 10:22:48 AM, writes: << Diabetes etc........ let's say a parents Insurance company will not cover their child, does this waiver help them? Kathy mom to Sara 9 >> I know for sure that the cap waiver does not include children with diabetes. M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2001 Report Share Posted August 27, 2001 In a message dated 8/27/01 10:22:48 AM, writes: << Diabetes etc........ let's say a parents Insurance company will not cover their child, does this waiver help them? Kathy mom to Sara 9 >> I know for sure that the cap waiver does not include children with diabetes. M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2002 Report Share Posted March 15, 2002 In a message dated 03/15/2002 9:45:39 AM Pacific Standard Time, lynnk528@... writes: Hi all. I am new to this group. But I was wondering if anyone livig in the LA area or southern CA area knew of any doctor who believes in and treats 's syndrome. Hi Lynne, I'm in the west San Valley. I started treatment for WTS about six months ago. It was recommended to me by my doc, DeOrio, in Santa when he saw how low my daily body temps were. His number is 310-828-3096. Office at 1821 Wilshire Bl. #100. Don't let the Wilshire Bl. address scare you away. The office staff is very supportive and friendly and DeOrio has a very open mind and really listens and zeros in on you when you come in for treatment. In addition to being an MD, he is has a D.Hom (homeopathy) and is an LACC (acupunturist). The WTS treatment has helped me immensely. Dr. DeOrio's fees can run expensive if you try all the alternative treaments and supplements he has to offer. I tried a bunch of them--the ones I felt I could afford--and have found a few, like the aromatherapy cream, to be of help to me personally. The ones I didn't get much hit on, energetically, or that didn't feel "right" to me, I've declined. He seems fine with that. What has helped me the most is the T3 dosing protocol, so I stick with that and I'm very disciplined at taking my medicine on time. I would recommend you buy the WTS Doctor's Manual from the WTS website and read it through and through so you can understand the procedure in case you can't get an answer back from the doctor right away when you have a question. The Manual is very helpful, easy to read, has lots of information and examples and clearly explains the intent of the dosing schedule, how to use the medicine, when to take it, how to measure your temperature, how to tell if you're a one-day compensator, what to do if you feel you're getting too much T3, etc. If you have other questions, feel free to email me privately. Good luck! in LA "We are each responsible for our own life--no other person is or even *can* be." Oprah Winfrey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2002 Report Share Posted March 15, 2002 Hi all. I am new to this group. But I was wondering if anyone livig in the LA area or southern CA area knew of any doctor who believes in and treats 's syndrome. I have normal Thyroid tests however I have all the symptoms of hypothyroidism as well as a body temp usually around 96.3 with the highest being 97.3. I would appreciate any feedback or advice anyone out there may have. And thank you all for being so honest with your sharings. Lynn hypothyroidism wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2002 Report Share Posted March 15, 2002 Thank you so very much. I will call him and I have found another Dr. in the valley - Dr, jace who I am going to try as well. I appreciate you responding so quickly. And I am happy to hear you are feeling well. Lynn > In a message dated 03/15/2002 9:45:39 AM Pacific Standard Time, > lynnk528@y... writes: > > > > Hi all. I am new to this group. But I was wondering if anyone livig in the > > LA area or southern CA area knew of any doctor who believes in and treats > > 's syndrome. > > Hi Lynne, > > I'm in the west San Valley. I started treatment for WTS about six > months ago. It was recommended to me by my doc, DeOrio, in Santa > when he saw how low my daily body temps were. His number is > 310-828-3096. Office at 1821 Wilshire Bl. #100. Don't let the Wilshire Bl. > address scare you away. The office staff is very supportive and friendly and > DeOrio has a very open mind and really listens and zeros in on you when you > come in for treatment. > > In addition to being an MD, he is has a D.Hom (homeopathy) and is an LACC > (acupunturist). The WTS treatment has helped me immensely. Dr. DeOrio's > fees can run expensive if you try all the alternative treaments and > supplements he has to offer. I tried a bunch of them--the ones I felt I > could afford--and have found a few, like the aromatherapy cream, to be of > help to me personally. The ones I didn't get much hit on, energetically, or > that didn't feel " right " to me, I've declined. He seems fine with that. > What has helped me the most is the T3 dosing protocol, so I stick with that > and I'm very disciplined at taking my medicine on time. > > I would recommend you buy the WTS Doctor's Manual from the WTS website and > read it through and through so you can understand the procedure in case you > can't get an answer back from the doctor right away when you have a question. > The Manual is very helpful, easy to read, has lots of information and > examples and clearly explains the intent of the dosing schedule, how to use > the medicine, when to take it, how to measure your temperature, how to tell > if you're a one-day compensator, what to do if you feel you're getting too > much T3, etc. > > If you have other questions, feel free to email me privately. > Good luck! > in LA > " We are each responsible for our own life--no other person is or even *can* > be. " Oprah Winfrey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2002 Report Share Posted March 16, 2002 Hello everyone, Can anyone recommend a good doctor or endo. I live in St. Louis, Missouri and have checked out the ones recommended on the websites but haven't had much luck. Just thought I'd give it a shot. Thanks a bunch! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Hi All, I've been following with interest the thread about hair-washing after surgery. Strangely, after my surgeries I was given no advice at all about washing my hair. When the bandage came off (the day after surgery) my hair was all over the place - I looked a real scarecrow, even my cats were frightened. So one of the first things I did after getting home was to take a bath and give my hair a thorough wash. Of course I took care to dry the incision area thoroughtly afterwards, and I never had any problems. Is this, I wonder, another example of US doctors being so frightened of being sued that they give ultra-conservative advice as a matter of course ? Milton Keynes, UK __________________________________________________________________________ Join Freeserve http://www.freeserve.com/time/ Winner of the 2003 Internet Service Providers' Association awards for Best Unmetered ISP and Best Consumer Application. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 I tried Sulfazine but it did absolutely nothing for me, but then again most others did not either, until I went to Enbrel...but everyone is different. Peggy > Message: 1 > Date: Sun, 21 Mar 2004 12:47:00 -0800 > From: " Harold Van Tuyl " <hvantuyl@...> > Subject: Re: New Med - Sulfazine or Azulfidine > > I've not been on it but my understanding is that it is a fairly old and weak RA drug with fewer side effects for most people than some of the other RA drugs. I have heard that it is sometimes prescribed for relatively mild RA but not for more severe cases unless other medicines fail. I'm sorry I don't have any better information but this link might help you. http://www.arthritisinsight.com/medical/meds/ God bless. > ----- Original Message ----- > From: Faye > Rheumatoid Arthritis > Sent: Saturday, March 20, 2004 2:02 AM > Subject: New Med - Sulfazine or Azulfidine > > > Has anyone had any experience with Azulfidine (generic: Sulfazine). > My doc just rx'd it for me and I haven't seen much about it. > > Thanks! > > Faye > > > > -------------------------------------------------------------------------- ---- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 I'm new here... I've been on Azulfidine a long, long time... maybe 10 years or more... and most of the time it worked very well... i went on it when penicillamine stopped working. it works much better for me than other i've tried and is not toxic (i had rare side effects from gold) but lately i admit it seems not to work so well. i am also on methotrexate and will begin enbrel soon. Gwen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Our Dearest , Our prayers and thoughts are with you,,, Ray >From: shelly smiegal <shelsmieg2000@...> >Reply-Rheumatoid Arthritis >Rheumatoid Arthritis >Subject: Re: Re: Digest Number 646 >Date: Wed, 31 Mar 2004 17:15:20 -0800 (PST) > > >My Embrel arrived by mail today. I have to go for a TB test ( to see if I >was ever exposed) before I can begin this new treatment. Everyone who >reads this, please pray for me that this will be a success. Thanks- _________________________________________________________________ Find a broadband plan that fits. Great local deals on high-speed Internet access. https://broadband.msn.com/?pgmarket=en-us/go/onm00200360ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 & all- I'm due for recertification in July and I guess I've been chosen for an audit this time. When I try and look up my online recertification there is no number, and it says that I might be an audit candidate. I just called PTCB and was told that audit paperwork was mailed out beginning 5/23/04, and that I should receive this paperwork no later than 6/7/04. Did you get audit paperwork already? Donna E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Hi Tom From my reading I gather that: Autistic rages are not necessarily connected with being bi-polar although there is not much research on this aspect as yet. (This does not seem to be controversial.) Usually rages by autistics/those with Asperger's Syndrome do not lead to aggressive physical attacks on others although this can sometimes occur. Generally speaking, those with Autism/Asperger's Syndrome are seldom guilty of criminal acts. The issue of control is a neurological one from a psychiatric/medical point of view. The issue of responsibility in forensic psychiatry is highly controversial as far as I can see and also of course the problem of degrees of guilt/punishment/responsibility are all interconnected - very difficult issues here which I don't even begin to fully come to grips with. One does need to ask: Is Asperger's Syndrome a mental illness?? Rory Re: Hammer attack suspect found mentally ill > > Here are the lines I find the most telling: > > " Because of his mental illness, Lubeck was not able to conform his > behavior to the law when he attacked his grandmother, Mattingly > said. " > > Yet... > > " Davies said she hasn't seen her grandson since the attack because > one of his bond conditions was that he have no contact with her. > > " 'He didn't want to get in trouble with the court,' she said. " > > Strange dichotomy of control and lack of control there on his part. > > Anyway... > > Here is the way I see it. He wanted $500.00 and only being offered > $200.00 instead, the AS side of him rationalized why he SHOULD get > it, the bi-polar side of him flew into a rage over the > percieved " injustice " that was done to him, and the side of him that > prevents him from suppressing his base urges failed, causing him to > commit a criminal act. > > My reasoning is as follows: > > 1) AS people DO have what seems to others like irrational lines of > thought sometimes, though it makes perfect sense to them. (And yes, > it may in fact be irrational lines of thought anyway). > > 2) It's been my experience that bi-polar people can have > unpredictable and over the top reactions to certain events. > > My ex-wife was bi-polar and refused to take her meds to keep her on > an even keel. If I or anyone else refused to respond to her > irrational OR rational request, you'd be on the receiving end of an > explosive outburst, but if you accommodated her request, she'd be > your best friend until the next request was made. > > 3) Criminal acts can occur mostly when people allow their base urges > to get out of control. (Revenge, greed, jealousy). > > AS was a contributing factor here, but I don't see why the media -or > the judge- was weighing so heavily on it. I believe it was more of a > bi-polar and criminal reaction myself. But then, I am not in > possession of all the facts either. > > Tom > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > > FAM Secret Society is a community based on respect, friendship, support and acceptance. Everyone is valued. > > Don't forget, there are links to other FAM sites on the Links page in the folder marked " Other FAM Sites. " > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Obviously at this point there have not been enough studies to say definitvely what AS is. I like to believe that it's a neurological difference. It only becomes an impairment when I interact with non- Aspies. Tom One does need to ask: Is Asperger's Syndrome a mental illness?? Rory Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 Thanks Kirk For your reply about sprouting spelt.....I then remembered about 4 years ago...I did actually grow some wheat berries......in small shallow plastic boxes....but they were grown in coir coconut and did very well.... I guess that is the direction I shall now go in...as I use volcanic rock dust to ensure a good supply of nutrition for the grass....it should be hot stuff!! ANNE ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2005 Report Share Posted October 29, 2005 > Do you know of any practicing nutritionists who work with > the gut, poor digestion and enzymes like yourself? I would be very > grateful for any referrals. Thanks, L. There is a Nutritionist that teaches (classes) at the Wedge Coop in Mpls. Incindently she is the person who first told me about NT which got me started on the path to traditional foods. Her name is Jeanette . I'm sure you could get her contact info via the Wedge. Therese Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2005 Report Share Posted October 29, 2005 I must second the recommendation for Jeannette . I have taken all of her classes and found her very warm and caring and knowledgable. She offers cooking and nutrition coaching from her home. Lots of fun. Anne Re: Digest Number 646 > > Do you know of any practicing nutritionists who work with > > the gut, poor digestion and enzymes like yourself? I would be very > > grateful for any referrals. Thanks, L. > > There is a Nutritionist that teaches (classes) at the Wedge Coop in Mpls. > Incindently she is the person who first told me about NT which got me > started on the path to traditional foods. Her name is Jeanette . I'm > sure you could get her contact info via the Wedge. > > Therese > > > > > > Quote Link to comment Share on other sites More sharing options...
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