Re: Quitting treatment before the year is up?

[Guest guest]

Caryl IF he quits now, he stands the chance of relapse and then having to start all over again,, He really needs to impress upon the doc that he needs to have the side effects addressed and treated. It would be truely a shame to quit now since he is in the clear.. I hope he wont stop as all treatment for the forseeable future will probably have INF and Riba in them... Let us know how it goes, jaxCaryl Fortner-Howitt-Dougherty <caryldougherty@...> wrote: My husband has

been having such terrible side effects. He actually said to me this evening that he is considering stoppingthe treatment.He cleared at 3 months, is in month 7.Anyone have any thoughts or experience in this area?He is seeing the dr tomorrow due to his recent extreme sides and Iwant to talk to the dr about statistics and probabilities. CarylJackie

[Guest guest]

There are allot of things that come into play when someone is thinking of giving up on treatment . Like genotyping or the types of side effects your having . If your husband cleared by week 12 he may be able to stop and remain clear of the virus . But then again would he want to take the chance of stopping to early and then having a relapse and have to repeat the treatments ? It's a big decision and one that he and his doctor should discuss fully . I do hope he can stick with it a little longer to increase his chances of acheiving a sustained viralogical response (SVR) but if he can't then he can't . To many times I have had to treat and then stop which allowed my hep c to mutate to a more treatment resistant form . I don't want to see anyone else going through what I am going through . I have treated 4 times and only completed treatment the first time back in 95 the other times I had to stop because of life threatening side effects .

Quitting treatment before the year is up?

My husband has been having such terrible side effects. He actually said to me this evening that he is considering stoppingthe treatment.He cleared at 3 months, is in month 7.Anyone have any thoughts or experience in this area?He is seeing the dr tomorrow due to his recent extreme sides and Iwant to talk to the dr about statistics and probabilities. Caryl

[Guest guest]

I have to agree, if he can at all possibly get his doctor to treat his sides, he's come too far to crash and burn now over a few more months. He is fortunate to have you. I had neither physical/emotional support at home, nor a doctor that would treat even the most dangerous of my sides. This Group or those from it, kept me together. I did have to stop treatment, a no choice, and now I have to live with the consequences of that choice..You both need to think hard before making a decision, ulitmately that final decision should be his.. Best and Blessings, Sheena. Jackie on <redjaxjm@...> wrote: Caryl IF he quits now, he stands the chance of relapse and then having to start all over again,, He really needs to impress upon the doc that he needs to have the side effects addressed and treated. It would be truely a shame to quit now since he is in the clear.. I hope he wont stop as all treatment for the forseeable future will probably have INF and

Riba in them... Let us know how it goes, jaxCaryl Fortner-Howitt-Dougherty <caryldougherty > wrote: My husband has been having such terrible side effects. He actually said to me this evening that he is considering stoppingthe treatment.He cleared at 3 months, is in month 7.Anyone have any thoughts or experience in this area?He is seeing the dr tomorrow due to his recent extreme sides and Iwant to talk to the dr about statistics and probabilities. CarylJackie

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[Guest guest]

THANK YOU FOR YOUR RESPONSES!!!!

While we were driving to the dr appt this a.m., I told my husband,

Willie, what you all shared with me and he said, 'well, that answered

that. I am not stopping now.'

Yayyyy!

The dr visit went well. Our Dr is so great! Really spends time with

us, asks lots of questions, explains answers, etc.

He added to the antidepressant dose, because it is his belief that the

reason Willie has been sleeping so much is due to heavy depression.

Makes sense to me. Plus all of this thin skin & itching, I think

Willie was irritating his inside ear with Qtips and they are all

inflamed. So now he has ear drops for that.

Oh, and, I can't believe I did this, but I thought 'what the heck'...I

asked the dr about his thoughts on taking medical marijuana.

I could tell that he was caught off guard by my question. He skirted

around a direct answer, but basically said he has & will prescribe it

for AIDS, cancer & M.S. patients. Then he added that if Willie were to

inform him that he was using mj for his sides, he wouldn't tell him to

stop...........how about that?

xoxo

Caryl

>

> There are allot of things that come into play when someone is

thinking of giving up on treatment . Like genotyping or the types of

side effects your having . If your husband cleared by week 12 he may

be able to stop and remain clear of the virus . But then again would

he want to take the chance of stopping to early and then having a

relapse and have to repeat the treatments ? It's a big decision and

one that he and his doctor should discuss fully . I do hope he can

stick with it a little longer to increase his chances of acheiving a

sustained viralogical response (SVR) but if he can't then he can't .

To many times I have had to treat and then stop which allowed my hep

c to mutate to a more treatment resistant form . I don't want to see

anyone else going through what I am going through . I have treated 4

times and only completed treatment the first time back in 95 the other

times I had to stop because of life threatening side effects .

> Quitting treatment before the year

is up?

>

>

> My husband has been having such terrible side effects.

> He actually said to me this evening that he is considering stopping

> the treatment.

> He cleared at 3 months, is in month 7.

> Anyone have any thoughts or experience in this area?

> He is seeing the dr tomorrow due to his recent extreme sides and I

> want to talk to the dr about statistics and probabilities.

>

> Caryl

>

[Guest guest]

Oh Caryl, way to go,, Im so relieved that he is going to continue,, he stands a much better chance of reaching SVR if he finishes up the treatment.. I'll bet the antidepressant helps too,, and if he has other side effects, please talk with the doc about them, there is NO reason to have to suffer, there ARE meds to control the sides!!! Way to go honey,, you did a good job!!! jaxCaryl Fortner-Howitt-Dougherty <caryldougherty@...> wrote: THANK YOU FOR YOUR RESPONSES!!!!While we were driving to the dr appt

this a.m., I told my husband,Willie, what you all shared with me and he said, 'well, that answeredthat. I am not stopping now.'Yayyyy!The dr visit went well. Our Dr is so great! Really spends time withus, asks lots of questions, explains answers, etc. He added to the antidepressant dose, because it is his belief that thereason Willie has been sleeping so much is due to heavy depression.Makes sense to me. Plus all of this thin skin & itching, I thinkWillie was irritating his inside ear with Qtips and they are allinflamed. So now he has ear drops for that. Oh, and, I can't believe I did this, but I thought 'what the heck'...Iasked the dr about his thoughts on taking medical marijuana. I could tell that he was caught off guard by my question. He skirtedaround a direct answer, but basically said he has & will prescribe itfor AIDS, cancer & M.S. patients. Then he added that if Willie were toinform him

that he was using mj for his sides, he wouldn't tell him tostop...........how about that?xoxoCaryl>> There are allot of things that come into play when someone isthinking of giving up on treatment . Like genotyping or the types ofside effects your having . If your husband cleared by week 12 he maybe able to stop and remain clear of the virus . But then again wouldhe want to take the chance of stopping to early and then having arelapse and have to repeat the treatments ? It's a big decision andone that he and his doctor should discuss fully . I do hope he canstick with it a little longer to increase his chances of acheiving asustained viralogical response (SVR) but if he can't then he can't .To many times I have had to treat and then

stop which allowed my hepc to mutate to a more treatment resistant form . I don't want to seeanyone else going through what I am going through . I have treated 4times and only completed treatment the first time back in 95 the othertimes I had to stop because of life threatening side effects . > Quitting treatment before the yearis up?> > > My husband has been having such terrible side effects. > He actually said to me this evening that he is considering stopping> the treatment.> He cleared at 3 months, is in month 7.> Anyone have any thoughts or experience in this area?> He is seeing the dr tomorrow due

to his recent extreme sides and I> want to talk to the dr about statistics and probabilities. > > Caryl>Jackie

[Guest guest]

Hi Caryl,

I suffered the same side effects while in tx and afterward, still to

this day 1.5 years after finishing tx. Itchy skin the bleeds easily

and problems staying awake for more than a few hours at a time. It's

a good start to increase the anti-depressants, but more treatment may

be needed. Your co-host of this forum would know much more than I.

Also, Willie may have to get somewhat used to various sides, as this

rotten disease may affect him for a long time. A good,

loving " significant other " is really the best medicine one could

want. If it weren't for my wife, I may have given up. She has made me

one hell of a fighter! Good luck to you and Willie.

>

> THANK YOU FOR YOUR RESPONSES!!!!

> While we were driving to the dr appt this a.m., I told my husband,

> Willie, what you all shared with me and he said, 'well, that

answered

> that. I am not stopping now.'

> Yayyyy!

> The dr visit went well. Our Dr is so great! Really spends time with

> us, asks lots of questions, explains answers, etc.

> He added to the antidepressant dose, because it is his belief that

the

> reason Willie has been sleeping so much is due to heavy depression.

> Makes sense to me. Plus all of this thin skin & itching, I think

> Willie was irritating his inside ear with Qtips and they are all

> inflamed. So now he has ear drops for that.

> Oh, and, I can't believe I did this, but I thought 'what the

heck'...I

> asked the dr about his thoughts on taking medical marijuana.

> I could tell that he was caught off guard by my question. He skirted

> around a direct answer, but basically said he has & will prescribe

it

> for AIDS, cancer & M.S. patients. Then he added that if Willie were

to

> inform him that he was using mj for his sides, he wouldn't tell him

to

> stop...........how about that?

> xoxo

> Caryl

[Guest guest]

That is most excellent news ! I am glad your husband has decided to stick it out , it will be worth it in the long run . His doctor sounds awesome ! Now about the mj , my opinion is against it but I do know that it does help patients complete treatment .

Quitting treatment before the yearis up?> > > My husband has been having such terrible side effects. > He actually said to me this evening that he is considering stopping> the treatment.> He cleared at 3 months, is in month 7.> Anyone have any thoughts or experience in this area?> He is seeing the dr tomorrow due to his recent extreme sides and I> want to talk to the dr about statistics and probabilities. > > Caryl>

[Guest guest]

You give that man of yours a big hug from me. Tell him that Janet thinks he is a warrior of the Dragon. I am glad that he has a good doctor. And that is a plus in treating this disease. Love JanetCaryl Fortner-Howitt-Dougherty <caryldougherty@...> wrote: THANK YOU FOR YOUR RESPONSES!!!!While we were driving to the dr appt this a.m., I told my husband,Willie, what you all

shared with me and he said, 'well, that answeredthat. I am not stopping now.'Yayyyy!The dr visit went well. Our Dr is so great! Really spends time withus, asks lots of questions, explains answers, etc. He added to the antidepressant dose, because it is his belief that thereason Willie has been sleeping so much is due to heavy depression.Makes sense to me. Plus all of this thin skin & itching, I thinkWillie was irritating his inside ear with Qtips and they are allinflamed. So now he has ear drops for that. Oh, and, I can't believe I did this, but I thought 'what the heck'...Iasked the dr about his thoughts on taking medical marijuana. I could tell that he was caught off guard by my question. He skirtedaround a direct answer, but basically said he has & will prescribe itfor AIDS, cancer & M.S. patients. Then he added that if Willie were toinform him that he was using mj for his sides, he wouldn't tell

him tostop...........how about that?xoxoCaryl>> There are allot of things that come into play when someone isthinking of giving up on treatment . Like genotyping or the types ofside effects your having . If your husband cleared by week 12 he maybe able to stop and remain clear of the virus . But then again wouldhe want to take the chance of stopping to early and then having arelapse and have to repeat the treatments ? It's a big decision andone that he and his doctor should discuss fully . I do hope he canstick with it a little longer to increase his chances of acheiving asustained viralogical response (SVR) but if he can't then he can't .To many times I have had to treat and then stop which allowed my hepc to mutate to a more

treatment resistant form . I don't want to seeanyone else going through what I am going through . I have treated 4times and only completed treatment the first time back in 95 the othertimes I had to stop because of life threatening side effects . > Quitting treatment before the yearis up?> > > My husband has been having such terrible side effects. > He actually said to me this evening that he is considering stopping> the treatment.> He cleared at 3 months, is in month 7.> Anyone have any thoughts or experience in this area?> He is seeing the dr tomorrow due to his recent extreme sides and I> want to

talk to the dr about statistics and probabilities. > > Caryl> It is a beautiful day, go out and enjoy it.