Publications, Questions, Updates, Action Items

[Guest guest]

There have been many requests/questions regarding scientific publication in

addition to what Dr. G has already published. Contact has already been made

with a well respected firm to do an independent 'Chart Review'. The firm

completed a preliminary sample of Dr. G's caseload which revealed that the

case charts do in fact contain a tremendous volume of data that once

reviewed, organized, and tabulated will present some exceptionally

compelling and publishable data. The company is well know in the medical

community and can handle the process from initial analysis, to database

development through document preparation. This will include assistance in

submission and publication. The nature of this review will also represent an

independent , third-party analysis which will give this whole process more

credibility.

Several of our parents have the knowledge to do some of the work in this

area but the logistics of accomplishing that are not practical. Another

option would be for this to be handled in-house within Dr. Goldberg's

practice but that would require a reduction of case load and I don't think

that anyone wants to lengthen the lead time for Dr.G. Another critical issue

is that neither of those options will create an INDEPENDENT REVIEW. As this

information will be anecdotal, a third-party, independent review will help

provide even that much more credibility.

So it really comes down to hiring a consulting firm to do this for us. The

cost for the entire chart review, beginning to end, is about $150,000 with

$17,500 needed to get started. We need to raise this money IMMEDIATELY!!!!

Who is willing to do local fundraisers in your area? One of the easiest fund

raisers is to contact your local Mcs, Burger King, etc. There is

usually a coordinator for the Mac Charities with whom you have

to speak.

You can be put on the schedule for a fundraiser which consists of showing up

with 4-5 other adults at your assigned time and stand at the entrances

telling everyone who comes in to mention /autism when they pay their

bill. You will get a percentage of the total receipts for the time that you

are there. I would pick a pay day Saturday.

Another simple fundraiser is the Chevy's Restaurant chain fundraiser as

posted by another member of the BOD, Marcia Hinds. Here is the texts of that

post:

****************************************************************************

At Chevy's restaurants you can designate a certain night as night. It

has to be a Monday or a Tuesday. They will give 15% of profits to our

organization for each person who brings in a flyer. I asked the manager if

there is anyway we could put the flyer on line for people across the country

to download and go to Chevy's near them. She said she would love to help us

do that.

****************************************************************************

***

I am sure there are many chains in each and every one's area that will

participate in this. Perhaps we can organize a Nation-Wide chain restaurant

' Day' The news media would flock at the novelty. Any volunteers to get

this one going????

Also, in the immediate future, the Coalition will be holding an

On-line Art auction to liquidate many pieces of art donated to our

organization.

It is critical that everybody start participating in the effort to move this

organization forward. Standing on the sidelines criticizing accomplishes

nothing toward spreading the word and helping make more treatment available.

Any other ideas? Please forward them to me.

Not deciding is a choice just as taking NO action is a choice to NOT DO

ANYTHING. Let's make 2002 the year we 'CHANGE THE WORLD' and help save our

children.

*

Marc Share

President & Executive Director

Research Institute and Parents Coalition

'Working To Give Our Children A Future'

[Guest guest]

Oops - I was a bit off with the numbers....

--------- Forwarded message ----------

From: " marc@... " <marc@...>

< >

Date: Fri, 28 Dec 2001 01:49:01 -0800

Subject: Publications, Questions, Updates, Action Items

Message-ID: <BDEGIHFBKNHABJIFKEKHOECMDCAA.marc@...>

There have been many requests/questions regarding scientific publication

in

addition to what Dr. G has already published. Contact has already been

made

with a well respected firm to do an independent 'Chart Review'. The firm

completed a preliminary sample of Dr. G's caseload which revealed that

the

case charts do in fact contain a tremendous volume of data that once

reviewed, organized, and tabulated will present some exceptionally

compelling and publishable data. The company is well know in the medical

community and can handle the process from initial analysis, to database

development through document preparation. This will include assistance in

submission and publication. The nature of this review will also represent

an

independent , third-party analysis which will give this whole process

more

credibility.

Several of our parents have the knowledge to do some of the work in this

area but the logistics of accomplishing that are not practical. Another

option would be for this to be handled in-house within Dr. Goldberg's

practice but that would require a reduction of case load and I don't

think

that anyone wants to lengthen the lead time for Dr.G. Another critical

issue

is that neither of those options will create an INDEPENDENT REVIEW. As

this

information will be anecdotal, a third-party, independent review will

help

provide even that much more credibility.

So it really comes down to hiring a consulting firm to do this for us.

The

cost for the entire chart review, beginning to end, is about $150,000

with

$17,500 needed to get started. We need to raise this money

IMMEDIATELY!!!!

Who is willing to do local fundraisers in your area? One of the easiest

fund

raisers is to contact your local Mcs, Burger King, etc. There is

usually a coordinator for the Mac Charities with whom you

have

to speak.

You can be put on the schedule for a fundraiser which consists of showing

up

with 4-5 other adults at your assigned time and stand at the entrances

telling everyone who comes in to mention /autism when they pay their

bill. You will get a percentage of the total receipts for the time that

you

are there. I would pick a pay day Saturday.

Another simple fundraiser is the Chevy's Restaurant chain fundraiser as

posted by another member of the BOD, Marcia Hinds. Here is the texts of

that

post:

*************************************************************************

***

At Chevy's restaurants you can designate a certain night as night.

It

has to be a Monday or a Tuesday. They will give 15% of profits to our

organization for each person who brings in a flyer. I asked the manager

if

there is anyway we could put the flyer on line for people across the

country

to download and go to Chevy's near them. She said she would love to help

us

do that.

*************************************************************************

***

***

I am sure there are many chains in each and every one's area that will

participate in this. Perhaps we can organize a Nation-Wide chain

restaurant

' Day' The news media would flock at the novelty. Any volunteers to

get

this one going????

Also, in the immediate future, the Coalition will be holding an

On-line Art auction to liquidate many pieces of art donated to our

organization.

It is critical that everybody start participating in the effort to move

this

organization forward. Standing on the sidelines criticizing accomplishes

nothing toward spreading the word and helping make more treatment

available.

Any other ideas? Please forward them to me.

Not deciding is a choice just as taking NO action is a choice to NOT DO

ANYTHING. Let's make 2002 the year we 'CHANGE THE WORLD' and help save

our

children.

*

Marc Share

President & Executive Director

Research Institute and Parents Coalition

'Working To Give Our Children A Future'

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the original author, and is not necessarily endorsed by or the

opinion of the Research Institute.