Guest guest Posted September 25, 2006 Report Share Posted September 25, 2006 If you have 3 minutes, you might be interested in taking the STRIDE survey online -- to target recognition of immune deficiency and evaluation. They want responses now. They will not know what is going on with our families unless we tell them. http://www.igliving.com/ " Your responses will help immunologist Charlotte Cunningham-Rundles, MD, PhD, and her colleagues learn more about immune defects and the medical problems that occur in children and adults with immune defects. Their ultimate goal is to improve proper diagnosis of immune deficiency diseases. Your information is valuable, so please answer for yourself, if you have an immune defect, or for your child, if he or she has an immune defect. Don’t wait – please complete the survey today if possible! You can access the web-based survey at www.igliving.com. Your responses are indeed confidential. " Btw, there is a place for open comments. So if you feel that there is more to say about your situation, you can let your voice be heard. This is an opportunity to let them know what is going on with each family. mom to CVIDer Quote Link to comment Share on other sites More sharing options...
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