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Subject: Re: hi new here

Author: Plagiocephalyonelist

Date: 3/8/00 10:36 AM

From: Paquin <lpaquin@...>

I am also new. My pediatrician said don't worry about it. He said he sees

this 2 to 3 times a day. He said it may take until he is 2 or 3 but the

head will correct itself. I am not taking him at his word and have an

appointment with a neurosurgeon in 2 weeks.

Do any of you have any supporting data that shows these problems do not

always correct themselves? This will help us make a decision about what

to do.

Any help would be greatly appreciated.

Thanks,

At 08:30 AM 3/8/00 -0500, PatMacD@... wrote:

>From: PatMacD@...

>

>Hi Christi - Don't you just hate - Oh, they'll grow hair!! It drives me up

>the wall! Welcome, I just found this group myself last week and they have

>been very supportive. My daughter will be 7 months old on March 13 and we are

>struggling with the same issues - My husband and I knew something wasn't

>right with 's head and were persistent with her pediatrician who

>promptly gave us the she'll grow hair, it will round out around 6 months -

>BULLS**T! I happened to catch a segment on our evening news about positional

>plagiocephaly and fortunately for me I am in NC - I brought my daughter in

>for a screening and they feel she will benefit by the band. Her pediatrician

>on the other hand is giving me a HARD time getting a referral to see a

>cranial facial specialist. From my understanding, you should definetely have

>the xrays taken and ask her pediatrician for a referral to a cranial facial

>specialist or a neurologist for a second opinion. 's appointment is on

>March 16th and I still don't have a referral. I am willing to go 'out of

>pocket' if this is what will help her. Cranial Technologies has a payment

>plan - 1 Band/ including mold/adjustments/ is $3000.00 - $600.00 per month

>starting at casting! I know this is steep but in this case I think the

>benefits are worth it! It is difficult enough to be a child today - I don't

>want her to have issues that I could have helped fix when she is too little

>to even remember. Again, WELCOME - if you need anything please feel free to

>let us know!! Patty & 8/13/99

>

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