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Hi Beth

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I was diagnosed in 1972/... I was so glad someone gave this thing a name !!

I remember the rheumy asking me " do you have jaw pain " and at the time I

did... some flares I do and some I don't...just like some flares my rash is

itchy

and some they are not...sneaky little beast....I took Nsaids( high dose

motrin..) but I would not do that again.. I ended up with 5 stomach ulcers even

with

food and stuff. ...I do hope you feel better soon Liz NJ

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