Beckett and Education Issues

[Guest guest]

, thanks for your post. I spoke to a mom yesterday who has a

young child with a heart condition. She told me about family voice

and also the other program that is 300%....we may qualify for

that....we were just over the 250% for one program....but the program

excluded immune disorders....now that my husbands pay has been cut

nearly $10,000, it may drop us low enough for both and I am being

told that there are ways to get around that program that sets the

250%...in terms of the exclusion of immune disorders. In the

meantime, I am traveling to Carson City in February to speak on the

legislative floor with several other parents about all of this....I

also want to address the serious problems with the education system

here in the state. We may be making some headway there as I spoke to

the GATE program here yesterday. They are with the school district

and they said that, because Molly tested exceptionally gifted and

talented when they administered a stanford binet #4 test over a year

ago, the school district MUST write and IEP for her to accomodate her

cognitive level just like they would write an IEP to accmodate a

child that is delayed. They said she is being discriminated against

for being G & T and I now have a district representative on my side

that is going to go after the school district to make sure she gets

what she needs. They said this has never happened before and it has

left many people not knowing how to handle it....they said they have

never had a student file for and IEP that was not delayed....never

one that was ahead of the game....so it is a first for them. Perhaps

it will be easier the next time it happens to someone else.

Terri (mom and both daughters PIDers)

>

> Terri,

>

> ND does not have any waivers! we qualified for services under IDEA

part

> C until Jake turned three....then he is rescreened under the DD/MR

> classification and doesn't qualify....

>

> But, my assumption was that the katie Beckett Waivers...were

medical,

> not DD>....I will check with Family Voices of ND and get some

> clarification on that...

>

> Now on a side note the Family opportunity act that was passed should

> help people qualifiy for Medical assistance. I believe the income

> requirements are 300% of poverty.....and it is my understanding

that the

> kids need to be determined medically eligible for SSI....and then

the

> FOA can kick in. Right now, we can't get past the financial

> stuff.....our income is too high for us to even be considered....

>

> I'll try to find out more...

>

>

> mom to ...PID nos....hypogam, NK cell defect, selective

antibody

> deficiency ?????resolving. On scig...trialling off this spring if

> things go well this winter....

>

>

>

> Beckett

>

>

>

> Good Morning All!

>

> We got a call from one of the nurses who works with the Dept of

> Welfare, Beckett Waiver. She was very nice and seemed to

> understand our predicament. BUT....she told me that we were going

> to have a very difficult time qualifying for the waiver because my

> children are not developmentally delayed. She said " the fact that

> your 6 year old daughter has tested above 3rd grade is going to

> stand in your way " . I thought....what the heck does a Beckett

> waiver have to do with cognitive ability....my children have a very

> expensive medical condition....I was soooooooo angry. She was very

> nice and said she was going to try to personally handle our case.

> She ended by saying there is some other part under the waiver

> called 'Pediatric Medical " something or rather....that we may be

> able to qualify under and went through a list of questions that

> would certainly indicate that we would....but she thinks we have a

> fight on our hands. Has anyone else had the experience of being

> denied public assistance for this because their child was too

> smart? UNBELIEVABLE!!!!!!

>

> Terri

>

>

>

>

>

>

>

>