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Donovan

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Valarie:

Sorry he's not doing well. My question was, is Bactrim the ideal drug for

sinus/lung issues?? Isn't that more UTI?? Maybe I'm wrong...

(mom to , age 7, dairy intolerant-related GERD -- currently has

polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other

defs... and also to Kate, age 4!, more dairy intolerant but very healthy!)

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Valarie:

Sorry he's not doing well. My question was, is Bactrim the ideal drug for

sinus/lung issues?? Isn't that more UTI?? Maybe I'm wrong...

(mom to , age 7, dairy intolerant-related GERD -- currently has

polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other

defs... and also to Kate, age 4!, more dairy intolerant but very healthy!)

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  • 4 months later...

well. We saw ID today and made the decision to start Donovan on IVIG

on Valentines day. I guess it still feels a little surreal. I know

this is the right thing.......we have to at least try......but I know

it will be hard on him....at 6.5......he just doesnt understand a lot

about this. Brennan, at 4.5, just accepts this is the way life is.

Savannah, 9, is old enough to understand her body and remember how

sick she was and know she is better now. But Donovan has never been

better, and I think just accepts the way he feels as normal. So its

kind of hard for him to understand. We are going to try for 4 months

and see how he does, and re-evaluate in June. we say that...but

honestly, that is how we started with Savannah and Brennan, and here

they are, almost a yr later and no plans to ever stop. so we'll see, I

guess.

I decided to do his infusion, for the first one, the week before the

other two kids. I did this bc I want to be able to sit with him and

not be torn in two other directions, especially if he has a reaction

or even just wants to sit in my lap, I want to be able to pay

attention just to him. We can do all 3 kids together the next month,

but the first time, I want to spend just with him.

valarie

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