Re: Doctors scared their patient

[Guest guest]

To be honest I would encourage treatment . I am at the end and would do anything to treat again because death is certainly coming . To not treat is to give up on life ! The treatment effects each person differently , some have no side effects while others have them . I had bad side effects but I still treated , not just once but I have tried 4 times . Anyone who has hep c should treat and the earlier the easier it is to get rid of . By not treating his hep he is opening his self up to the domino effect of this disease . The domino effect is basicly all other organs will start to fail little by little because of toxins not rid of by the liver accumulating . Iron overload is one effect and excess iron can deposit itself into the kidneys , heart , and liver causing failure . Also he is at risk for developing diabetes , heart problems , and hepatic neuropathy . What is his biopsy results ? And latest viral load ? Anyway can ya tell I am for treatment lol

Doctors scared their patient

Hey, I was wondering how to help my husband. His GI doc and his internist have absolutely scared him to death about treatment. My husband was overly anxious about how long this is all taking (they still have not decided to treat him.) I think in the process of explaining what all they were contemplating and telling him he stands a good chance of having complications that he has done an about face.He is thinking of not treating his Hep C now. I don't know - I'm afraid to encourage him to treat it and I am afraid to tell him he shouldn't. I told him he has to decide. Plus a well-meaning friend told him a horror story of his neighbor who treated and now her blood cells are so low that she has been told there is no hope for her. That doesn't make sense to me, unless this friend doesn't have the whole story. But all of this has really made him rethink treatment. What do you all think? My husband's internist actually said that he would not take the treatment if it was him - that the treatment is worse than the disease. That really discouraged him.

[Guest guest]

Thank you for your response. He is 1a, viral load 3 million, biopsy

was stage 2 inflammation and stage 2 fibrosis. But he already has

heart problems - ventricular tachycardia with implanted

pacemaker/debribrillator and has had 2 heart attacks. He has a

history of depression, too. Both of those things are making the

doctors hesitate on the treatment, and clarifying that to him has

scared him. I've been reading him a bunch of positive comments on

this site and others and I think that's helping, too. He is disabled

due to these and to chronic severe pain with his spine and is quite

frankly sick of being sick and in pain. All of the sides of

treatment seem overwhelming on top of what all he already suffers

with, but the thought of getting worse and dying of this disease is

also bad. Thanks again!

>

> To be honest I would encourage treatment . I am at the end and

would do anything to treat again because death is certainly coming .

To not treat is to give up on life ! The treatment effects each

person differently , some have no side effects while others have

them . I had bad side effects but I still treated , not just once but

I have tried 4 times . Anyone who has hep c should treat and the

earlier the easier it is to get rid of . By not treating his hep he

is opening his self up to the domino effect of this disease . The

domino effect is basicly all other organs will start to fail little

by little because of toxins not rid of by the liver accumulating .

Iron overload is one effect and excess iron can deposit itself into

the kidneys , heart , and liver causing failure . Also he is at risk

for developing diabetes , heart problems , and hepatic neuropathy .

What is his biopsy results ? And latest viral load ? Anyway can ya

tell I am for treatment lol

> Doctors scared their patient

>

>

> Hey, I was wondering how to help my husband. His GI doc and his

> internist have absolutely scared him to death about treatment. My

> husband was overly anxious about how long this is all taking

(they

> still have not decided to treat him.) I think in the process of

> explaining what all they were contemplating and telling him he

stands a

> good chance of having complications that he has done an about

face.

> He is thinking of not treating his Hep C now. I don't know - I'm

> afraid to encourage him to treat it and I am afraid to tell him

he

> shouldn't. I told him he has to decide. Plus a well-meaning

friend

> told him a horror story of his neighbor who treated and now her

blood

> cells are so low that she has been told there is no hope for her.

That

> doesn't make sense to me, unless this friend doesn't have the

whole

> story. But all of this has really made him rethink treatment.

What do

> you all think? My husband's internist actually said that he would

not

> take the treatment if it was him - that the treatment is worse

than the

> disease. That really discouraged him.

>

[Guest guest]

Well Debbie, Treatment IS scary and 'can' be dangerous.. I agree with you that only he can make the decision whether to treat or not,, I know many who have chosen not to treat but take really good care of themselves, dont eat ANY sugar, take milk thistle, and basically take very good care of themselves and have not sufferred any further damage and have have this disease for 30 plus years.. and are still stage 0-1 after all that time.. but most ppl are just not willing to give up their sugar and stop drinking alcohol and other food additives and live purely on whole foods, or get enough quality protein etc.. IF I was your husband and were in my 60's or 70's, I would NOT treat,, but that is me.. I treated at age 48 and am totally disabled from treatment.. Yes, the hep is still in remission but all the other problems that the treatment caused me have taken my QUALITY of life away and while I cannot answer for anyone else but me,,, I believe quality of life is more

important than quantity of life.. I know many others who like me are worse off after treating this disease... but I also know several who have gone back to work and seem to be back into the swing of things,, I guess it really IS different for everyone... BUT.. its entirely possible for your husband to be able to treat even with all his other health issues and reach SVR and not end up with any lasting side effects.. but there are no guarantee's of anything.. thats why HE has to make the decision and it should be an informed decision about what the real consequences are not only of treating but of not treating... I wish I had a crystal ball and could tell you what will happen,, but unfortunately I dont,, good luck and let us know what he decides.. jaxDebbie <momof3militarykids@...> wrote: Hey, I was wondering how to help my husband. His GI doc and his internist have absolutely scared him to death about treatment. My husband was overly anxious about how long this is all taking (they still have not decided to treat him.) I think in the process of explaining what all they were contemplating and telling him he stands a good chance of having complications that he has done an about face.He is thinking of not treating his Hep C now. I don't know - I'm afraid to encourage him to treat it and I am afraid to tell him he shouldn't. I told him he has to decide. Plus a well-meaning friend told him a horror story of his neighbor

who treated and now her blood cells are so low that she has been told there is no hope for her. That doesn't make sense to me, unless this friend doesn't have the whole story. But all of this has really made him rethink treatment. What do you all think? My husband's internist actually said that he would not take the treatment if it was him - that the treatment is worse than the disease. That really discouraged him.Jackie

[Guest guest]

Good post, Liz.. Debbie, any possibility that he can change doctors? elizabethnv1 <elizabethnv1@...> wrote: To be honest I would encourage treatment . I am at the end and would do anything to treat again because death is certainly coming . To not treat is to give up on life ! The treatment effects each person differently , some have no side effects while others have them . I had bad side effects

but I still treated , not just once but I have tried 4 times . Anyone who has hep c should treat and the earlier the easier it is to get rid of . By not treating his hep he is opening his self up to the domino effect of this disease . The domino effect is basicly all other organs will start to fail little by little because of toxins not rid of by the liver accumulating . Iron overload is one effect and excess iron can deposit itself into the kidneys , heart , and liver causing failure . Also he is at risk for developing diabetes , heart problems , and hepatic neuropathy . What is his biopsy results ? And latest viral load ? Anyway can ya tell I am for treatment lol Doctors scared their patient Hey, I was wondering how to help my husband. His GI doc and his internist have absolutely scared him to death about treatment. My husband was overly anxious about how long this is all taking (they still have not decided to treat him.) I think in the process of explaining what all they were contemplating and telling him he stands a good chance of having complications that he has done an about face.He is thinking of not treating his Hep C now. I don't know - I'm afraid to encourage him to treat it and I am afraid to tell him he

shouldn't. I told him he has to decide. Plus a well-meaning friend told him a horror story of his neighbor who treated and now her blood cells are so low that she has been told there is no hope for her. That doesn't make sense to me, unless this friend doesn't have the whole story. But all of this has really made him rethink treatment. What do you all think? My husband's internist actually said that he would not take the treatment if it was him - that the treatment is worse than the disease. That really discouraged him.

Building a website is a piece of cake. Small Business gives you all the tools to get online.

[Guest guest]

Yes, it is possible he could change docs. Of all people, his

internist who said HE wouldn't do treatment, offered to refer him to

an infectious disease specialist who solely works with hep c. But

the GI doc has gone right by the book with his treatment, so I don't

know. Guess we'll just take it a step at a time and see. Oh, and my

husband is only 49 if that helps any.

> To be honest I would encourage treatment . I am at the

end and would do anything to treat again because death is certainly

coming . To not treat is to give up on life ! The treatment effects

each person differently , some have no side effects while others

have them . I had bad side effects but I still treated , not just

once but I have tried 4 times . Anyone who has hep c should treat and

the earlier the easier it is to get rid of . By not treating his hep

he is opening his self up to the domino effect of this disease . The

domino effect is basicly all other organs will start to fail little

by little because of toxins not rid of by the liver accumulating .

Iron overload is one effect and excess iron can deposit itself into

the kidneys , heart , and liver causing failure . Also he is at risk

for developing diabetes , heart problems , and hepatic neuropathy .

What is his biopsy results ? And latest viral load ? Anyway can ya

tell I am for treatment lol

> Doctors scared their patient

>

>

> Hey, I was wondering how to help my husband. His GI doc and his

> internist have absolutely scared him to death about treatment. My

> husband was overly anxious about how long this is all taking (they

> still have not decided to treat him.) I think in the process of

> explaining what all they were contemplating and telling him he

stands a

> good chance of having complications that he has done an about face.

> He is thinking of not treating his Hep C now. I don't know - I'm

> afraid to encourage him to treat it and I am afraid to tell him he

> shouldn't. I told him he has to decide. Plus a well-meaning friend

> told him a horror story of his neighbor who treated and now her

blood

> cells are so low that she has been told there is no hope for her.

That

> doesn't make sense to me, unless this friend doesn't have the whole

> story. But all of this has really made him rethink treatment. What

do

> you all think? My husband's internist actually said that he would

not

> take the treatment if it was him - that the treatment is worse than

the

> disease. That really discouraged him.

>

>

>

>

>

>

>

>

> ---------------------------------

> Building a website is a piece of cake.

> Small Business gives you all the tools to get online.

>

[Guest guest]

I think it is entirely possible he would feel better after treatment,

because I can think back to where I believe his symptoms of the liver

damage started and feel that with those symptoms gone, he'd be more

able to have a real life (better quality, that is.)

> >

> > To be honest I would encourage treatment . I am at the end and

> would do anything to treat again because death is certainly

coming .

> To not treat is to give up on life ! The treatment effects each

> person differently , some have no side effects while others have

> them . I had bad side effects but I still treated , not just once

but

> I have tried 4 times . Anyone who has hep c should treat and the

> earlier the easier it is to get rid of . By not treating his hep

he

> is opening his self up to the domino effect of this disease . The

> domino effect is basicly all other organs will start to fail

little

> by little because of toxins not rid of by the liver

accumulating .

> Iron overload is one effect and excess iron can deposit itself

into

> the kidneys , heart , and liver causing failure . Also he is at

risk

> for developing diabetes , heart problems , and hepatic

neuropathy .

> What is his biopsy results ? And latest viral load ? Anyway can

ya

> tell I am for treatment lol

> > Doctors scared their patient

> >

> >

> > Hey, I was wondering how to help my husband. His GI doc and his

> > internist have absolutely scared him to death about treatment.

My

> > husband was overly anxious about how long this is all taking

> (they

> > still have not decided to treat him.) I think in the process of

> > explaining what all they were contemplating and telling him he

> stands a

> > good chance of having complications that he has done an about

> face.

> > He is thinking of not treating his Hep C now. I don't know -

I'm

> > afraid to encourage him to treat it and I am afraid to tell him

> he

> > shouldn't. I told him he has to decide. Plus a well-meaning

> friend

> > told him a horror story of his neighbor who treated and now her

> blood

> > cells are so low that she has been told there is no hope for

her.

> That

> > doesn't make sense to me, unless this friend doesn't have the

> whole

> > story. But all of this has really made him rethink treatment.

> What do

> > you all think? My husband's internist actually said that he

would

> not

> > take the treatment if it was him - that the treatment is worse

> than the

> > disease. That really discouraged him.

> >

>

[Guest guest]

well Debbie, his age makes it more important that he addresses his virus, he is still very young and has a lot of life left in him,, maybe he should get another opinion as far as treating, but he most likely will need to get and keep his heart issue under control so he can treat if that is his decision.. the best of luck to you both,, I know its hard to make this decision,,, I didnt have a choice I HAD to treat because of where I was and how fast it was moving.. hugs jaxDebbie <momof3militarykids@...> wrote: Yes, it is possible he could change docs. Of all people, his internist who said HE wouldn't do treatment, offered to refer him to an infectious disease specialist who solely works with hep c. But the GI doc has gone right by the book with his treatment, so I don't know. Guess we'll just take it a step at a time and see. Oh, and my husband is only 49 if that helps any.> To be honest I would encourage treatment . I am at the end and would do anything to treat again because death is certainly coming . To not treat is to give up on life ! The treatment effects each person differently

, some have no side effects while others have them . I had bad side effects but I still treated , not just once but I have tried 4 times . Anyone who has hep c should treat and the earlier the easier it is to get rid of . By not treating his hep he is opening his self up to the domino effect of this disease . The domino effect is basicly all other organs will start to fail little by little because of toxins not rid of by the liver accumulating . Iron overload is one effect and excess iron can deposit itself into the kidneys , heart , and liver causing failure . Also he is at risk for developing diabetes , heart problems , and hepatic neuropathy . What is his biopsy results ? And latest viral load ? Anyway can ya tell I am for treatment lol> Doctors scared their patient> > > Hey, I was wondering how to help my husband. His GI doc and his > internist have absolutely scared him to death about treatment. My > husband was overly anxious about how long this is all taking (they > still have not decided to treat him.) I think in the process of > explaining what all they were contemplating and telling him he stands a > good chance of having complications that he has done an about face.> He is thinking of not treating his Hep C now. I don't know - I'm > afraid to encourage him to treat it and I am afraid to tell him he > shouldn't. I told him he has to decide. Plus a well-meaning friend > told him a horror story of his neighbor who treated and now her blood > cells are so low that she has been told there is no hope for her. That >

doesn't make sense to me, unless this friend doesn't have the whole > story. But all of this has really made him rethink treatment. What do > you all think? My husband's internist actually said that he would not > take the treatment if it was him - that the treatment is worse than the > disease. That really discouraged him.> > > > > > > > > ---------------------------------> Building a website is a piece of cake. > Small Business gives you all the tools to get online.>Jackie

[Guest guest]

Ahhh hon, You made me cry. But I am like you, I will treat, and treat again to beat this disease. You know that. And I encourage everybody to fight it. Yeah sometimes the side effects: excuse my language Kicks ass!! But what is the alternative?? I am not going to let a stupid virus take away my quality of life or my life. So I will treat again if at all possible. Love Janetelizabethnv1 <elizabethnv1@...> wrote: To be honest I would encourage treatment . I am at the end and would do anything to treat again because death is certainly coming . To not treat is to give up on life ! The treatment effects each person differently , some have no side effects while others have them . I had bad side effects but I still treated , not just once but I have tried 4 times . Anyone who has hep c should treat and the earlier the easier it is to get rid of . By not treating his hep he is opening his self up to the domino effect of this disease . The domino effect is basicly all other organs will start to fail little by little because of toxins not rid of by the liver accumulating . Iron overload is one effect and excess iron can deposit itself into the kidneys , heart , and liver causing failure . Also he is at risk for developing diabetes , heart

problems , and hepatic neuropathy . What is his biopsy results ? And latest viral load ? Anyway can ya tell I am for treatment lol Doctors scared their patient Hey, I was wondering how to help my husband. His GI doc and his internist have absolutely scared him to death about

treatment. My husband was overly anxious about how long this is all taking (they still have not decided to treat him.) I think in the process of explaining what all they were contemplating and telling him he stands a good chance of having complications that he has done an about face.He is thinking of not treating his Hep C now. I don't know - I'm afraid to encourage him to treat it and I am afraid to tell him he shouldn't. I told him he has to decide. Plus a well-meaning friend told him a horror story of his neighbor who treated and now her blood cells are so low that she has been told there is no hope for her. That doesn't make sense to me, unless this friend doesn't have the whole story. But all of this has really made him rethink treatment. What do you all think? My husband's internist actually said that he would not take the treatment if it was him - that the treatment is worse than the disease. That really

discouraged him. It is a beautiful day, go out and enjoy it.

[Guest guest]

I am with you Janet,, as far as Liz goes,, it breaks my heart that she has tried and tried and tried and not been able to reach SVR... SHE is one who deserves to be clear,, and she is at a state where she must treat to give her liver a break..I keep praying that God will find a way to let her clear and stop this damage that is going on in her liver,, and YOURS too for that matter Janet... but I know that as far as IM concerned, I'd probably still treat if I had to do it again or start over,, but had I been a stage 0-1 with a low grade infection,, I may have waited for a few more years in hopes of something easier and not connected to Interferon and Riba comes out,, but we know that is gonna be a long time... I DO know several ppl that treatment caused the virus to mutate AND to ESCALATE and they are much worse off histologically than they were before they treated,, but they are more rare than not.. if you know what I mean... Janet

<doc_jade@...> wrote: Ahhh hon, You made me cry. But I am like you, I will treat, and treat again to beat this disease. You know that. And I encourage everybody to fight it. Yeah sometimes the side effects: excuse my language Kicks ass!! But what is the alternative?? I am not going to let a stupid virus take away my quality of life or my life. So I will treat again if at all

possible. Love Janetelizabethnv1 <elizabethnv1earthlink (DOT) net> wrote: To be honest I would encourage treatment . I am at the end and would do anything to treat again because death is certainly coming . To not treat is to give up on life ! The treatment effects each person differently , some have no side effects while others have them . I had bad side effects but I still treated , not just once but I have tried 4 times . Anyone who has hep c should treat and the earlier the easier it is to get rid of . By not treating his hep he is opening his self up to the domino effect of this disease . The domino effect is basicly all other organs will start to fail little by little because of toxins not rid of by the liver accumulating . Iron

overload is one effect and excess iron can deposit itself into the kidneys , heart , and liver causing failure . Also he is at risk for developing diabetes , heart problems , and hepatic neuropathy . What is his biopsy results ? And latest viral load ? Anyway can ya tell I am for treatment lol Doctors scared their patient Hey, I was wondering how to help my husband. His GI doc and his internist have absolutely scared him to death about treatment. My husband was overly anxious about how long this is all taking (they still have not decided to treat him.) I think in the process of explaining what all they were contemplating and telling him he stands a good chance of having complications that he has done an about face.He is thinking of not treating his Hep C now. I don't know - I'm afraid to encourage him to treat it and I am afraid to tell him he shouldn't. I told him he has to decide. Plus a well-meaning friend told him a horror story of his neighbor who treated and now her blood cells are so low that she has been told there is no hope for her. That doesn't make sense to me, unless this friend doesn't have the whole story. But all of this has really made him rethink treatment. What do you all think?

My husband's internist actually said that he would not take the treatment if it was him - that the treatment is worse than the disease. That really discouraged him. It is a beautiful day, go out and enjoy it. Jackie

[Guest guest]

The best thing yo can do is offer complete support on what his decision is. If he wants you oppinion of if you have a strong oppiniion then express it and then let it be up to him... My husband and I both have Hep C but his condition is much worse than mine .. I don''t always agree with the decisissions that he makes but know that I can't make his decisions for him so just offer my support on what he decides... We just finished getting him on the liver transplant list !! Good luck !! Hang in there ! If you ever need someone to talk to about being a support system I am here and would love to chat with you .... trishdish13@... and IM screen name is same GOD BLESS .....tricia SAVE A LIFE https://www.donatelifenw.org/register/ TODAY IS GOD'S GIFT TO YOU, WHAT YOU DO WITH IT IS YOUR GIFT TO HIM ! "I am responsible for my own well-being,my own happiness.The choices and decicions I make regarding my lifedirectly influences the quality of my days." Kathleen Andrus Check out our site: http://www.shepswoodncrafts.com/home.htmlhtt http://rslaserkits.com/

Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.

[Guest guest]

After treatment he will feel so much better and have more energy

Doctors scared their patient> > > > > > Hey, I was wondering how to help my husband. His GI doc and his > > internist have absolutely scared him to death about treatment. My > > husband was overly anxious about how long this is all taking > (they > > still have not decided to treat him.) I think in the process of > > explaining what all they were contemplating and telling him he > stands a > > good chance of having complications that he has done an about > face.> > He is thinking of not treating his Hep C now. I don't know - I'm > > afraid to encourage him to treat it and I am afraid to tell him > he > > shouldn't. I told him he has to decide. Plus a well-meaning > friend > > told him a horror story of his neighbor who treated and now her > blood > > cells are so low that she has been told there is no hope for her. > That > > doesn't make sense to me, unless this friend doesn't have the > whole > > story. But all of this has really made him rethink treatment. > What do > > you all think? My husband's internist actually said that he would > not > > take the treatment if it was him - that the treatment is worse > than the > > disease. That really discouraged him.> >>

[Guest guest]

Would sure go with the Hepatologist, if at all possible. That book needs to "bend" some with each individual.. Debbie <momof3militarykids@...> wrote: Yes, it is possible he could change docs. Of all people, his internist who said HE wouldn't do treatment, offered to refer him to an infectious disease specialist who solely works with hep c. But the GI doc has gone right by the book with his treatment, so I don't know. Guess we'll just

take it a step at a time and see. Oh, and my husband is only 49 if that helps any.> To be honest I would encourage treatment . I am at the end and would do anything to treat again because death is certainly coming . To not treat is to give up on life ! The treatment effects each person differently , some have no side effects while others have them . I had bad side effects but I still treated , not just once but I have tried 4 times . Anyone who has hep c should treat and the earlier the easier it is to get rid of . By not treating his hep he is opening his self up to the domino effect of this disease .

The domino effect is basicly all other organs will start to fail little by little because of toxins not rid of by the liver accumulating . Iron overload is one effect and excess iron can deposit itself into the kidneys , heart , and liver causing failure . Also he is at risk for developing diabetes , heart problems , and hepatic neuropathy . What is his biopsy results ? And latest viral load ? Anyway can ya tell I am for treatment lol> Doctors scared their patient> > > Hey, I was wondering how to help my husband. His GI doc and his > internist have absolutely scared him to death about treatment. My > husband was overly anxious about how long this

is all taking (they > still have not decided to treat him.) I think in the process of > explaining what all they were contemplating and telling him he stands a > good chance of having complications that he has done an about face.> He is thinking of not treating his Hep C now. I don't know - I'm > afraid to encourage him to treat it and I am afraid to tell him he > shouldn't. I told him he has to decide. Plus a well-meaning friend > told him a horror story of his neighbor who treated and now her blood > cells are so low that she has been told there is no hope for her. That > doesn't make sense to me, unless this friend doesn't have the whole > story. But all of this has really made him rethink treatment. What do > you all think? My husband's internist actually said that he would not > take the treatment if it was him - that the treatment is worse than the >

disease. That really discouraged him.> > > > > > > > > ---------------------------------> Building a website is a piece of cake. > Small Business gives you all the tools to get online.>

Got a little couch potato?

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[Guest guest]

Tricia, I couldnt agree with you more,,, its HIS decision and whatever he decides,, we all need to support that decision.. and thanks for offering your help, thats what we all are here for hugs jaxTricia <trishdish13@...> wrote: The best thing yo can do is offer complete support on what his decision is. If he wants you oppinion of if you have a strong oppiniion then express it and then let it be up to him... My husband and I both have Hep C but his condition is much worse

than mine .. I don''t always agree with the decisissions that he makes but know that I can't make his decisions for him so just offer my support on what he decides... We just finished getting him on the liver transplant list !! Good luck !! Hang in there ! If you ever need someone to talk to about being a support system I am here and would love to chat with you .... trishdish13 and IM screen name is same GOD BLESS .....tricia SAVE A LIFE https://www.donatelifenw.org/register/ TODAY IS GOD'S GIFT TO YOU, WHAT YOU DO WITH IT IS YOUR GIFT TO HIM ! "I am responsible for my own well-being,my own happiness.The choices and decicions I make regarding my lifedirectly influences the quality of my days." Kathleen Andrus Check out our site: http://www.shepswoodncrafts.com/home.htmlhtt http://rslaserkits.com/ Boardwalk for $500? In

2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games. Jackie