HI ASHLEY

[Guest guest]

Hi , my name is Patti and I am 20 years old. I was diagnosed back in

October and oddly enough my initial start to this thing happened at my

restaurant that I was working in. However, it was just a rash for me. I just

wanted to let you know that this group is awesome, sometimes I look up to them

like I have a ton of moms and dads and letting you know you aren't alone. I'm

just a little older and I agree it does suck, but things are going awesome for

me now. If you have MSN you can add me and we can chat. I love to chat! Anyways

I live in Canada and yea. My rash is extremely bad today, spent most of the day

outside, but I did have fun. I walked for 5 hours straight, then conned a friend

of mine to rub my feet.

Anyways...I'm out!

Patti

qt_4_him@... is my MSN email

Hello everyone

Hello everyone. My name is . I am 16 years old. I was diagnosed

with Stills Disease in April. For the past year I had been really sick.

It seemed that every other month I would get sick with flu like symptoms. I

would have extremely high temperatures, vomiting, sore throats, my whole

body would just hurt and ache. One night towards the end of March I was at

work ( I HAD a waitressing job ) and my right side started hurting. It hurt

so bad I couldn't even stand up, or drive home. I had to call my Mom and

make her come get me. Whenever we got home, I went straight to bed. I can

remember laying in bed with five quilts on top of me, crying, thinking to

myself, what was going on. My Mom came in my room at one in the morning,

and said come on, I'm taking you out to the emergency room. She said I had

that gray look to my face and my temperature was now up to 106. Whenever we

got out to the emergency room, they ran some test and took some blood. My

white blood count was extremely high, and since my right side was hurting,

they said it was my appendix and it needed to be removed ASAP. So I had

emergency surgery and my appendix was removed at 8 o'clock that morning.

After the surgery was over, the doctor came in my room and said that the

appendix was fine. But I no longer had the pain in my right side. I still

had a high temperature, and then that next day a faint rash appeared on my

face and arms. My doctor continued to run test, but couldn't figure out

anything. After being in the hospital for 2 days, having an unnecessary

surgery, and still not knowing what was wrong with me, my parents we're a

little bit frusterated. My doctor then decided it was time for me to go to

a bigger hospital 2 1/2 hours away. I was rushed by ambulance to a hospital

in Wichita, Kansas to see an infectious disease specialist. When I got

there he did more test. Another 5 days passed, and we still knew nothing.

I still had 104-106 temperatures, chills, vomiting, and the rash. The

infectious disease specialist came in and said he had done everything he

could, and what I had was not in his field. He said he was going to send a

rheumatologist in. My family and I were like a rheuma.... what?! We had

never even heard of a rheumatologist before. This was all very new to us.

She came in and did more testing. She finally gave me 800mg of prednizone

through my IV. It was like a miracle drug! My temperature was gone, and I

was ready to get the heck out of the hospital. I did a little bit of

whinning around to my rheumatologist and told her that my temperature was

gone, I was 2 1/2 hours away from my friends, I was still in school, and I

just wanted to go home. She said that I could go home, but she explained to

me I was still sick, and the prednizone was just like a band-aid. She also

said she was waiting on a test to come back, and she was pretty sure she

knew what I had. She said that she thought I had something called " Stills

disease " She sent me home on 80mg of prednizone and I had to come back in

one week. Whenever my family and I got home, we did some research on

Stills... and I was shocked. Everything that had been going on the past

year, all pointed back to Stills. It was so crazy! I knew once I did the

research, Stills was what I had. When I went back to see my rheumatologist

one week later, sure enough, she had got the tests back and Still's was what

I had. I am now on 40mg of prednizone, 400mg of plaquinel, 100mg of

trazodone(to help sleep), and tylenol3 for the pain. I am really glad I

found this, reading everyone elses post, It's nice to know there's other

people out there going through some of the same stuff and are willling to

help you with any questions.

Myers

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