Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 , My name is Michele. My daughter Lindsey has been a patient for well over a year now. Like you, in the beginning we did not notice much. Unfortunately, the older the children are the longer it will take to heal. My daughter turned 8 March 2001. Also I have noticed that since these children are all different, some seem to respond faster than others. Hang in there, though. You will begin to see some progress. But remember it will or it may be slow, very slow and not as noticable to us the parents who see our children everyday. My daughter, for the 1st time tonite, pushed the caplet to the back of her tongue before drinking the water to swallow. I found that to be humorous and intelligent!! Take Care. Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2001 Report Share Posted August 4, 2001 Dear , I am writing to share my experience with you! I hope it helps! My son has been on the protocol for 9 months now and in June we foolishly decided to take him off the meds to see if it " was really making a difference " . I can't tell you how many small, sublte things returned that we had somehow " forgotten " ! He has been back on the meds for 3 weeks now and feel he is improved but only to 50% of where he was before......we were so concerned that it was not really helping his OCD issues but when we stopped the meds we realized just what it was helping and that he was on the right path to recovery. These are the things that came back: lots more spaciness, repetitive speech, mouthing of objects, teeth grinding (both of which completely disappeared on the meds), terrible sleeping patterns, horrible constipation, the OCD stuff has worsened, and he is not eating well. He also does not have as good eye contact and generally seems to be less happy. I hope this helps and doesn't confuse. And, I hope to be reporting continued progress on the protocol in the coming months! We pray we haven't messed up by taking him off the meds in June! Good luck, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Dear a, Thank you for writing your note. It really gives a lot of hope and insight to those of us just starting out. We've only been doing this since June and the changes are so subtle, you almost don't notice them. But some of our family and friends, who don't see everyday like we do, have told us they see some difference. It keeps you going everyday to hear that. I hope your son regains all of his prior progress. Take care. Kathy P. Re: Dr G's Protocol Dear , I am writing to share my experience with you! I hope it helps! My son has been on the protocol for 9 months now and in June we foolishly decided to take him off the meds to see if it " was really making a difference " . I can't tell you how many small, sublte things returned that we had somehow " forgotten " ! He has been back on the meds for 3 weeks now and feel he is improved but only to 50% of where he was before......we were so concerned that it was not really helping his OCD issues but when we stopped the meds we realized just what it was helping and that he was on the right path to recovery. These are the things that came back: lots more spaciness, repetitive speech, mouthing of objects, teeth grinding (both of which completely disappeared on the meds), terrible sleeping patterns, horrible constipation, the OCD stuff has worsened, and he is not eating well. He also does not have as good eye contact and generally seems to be less happy. I hope this helps and doesn't confuse. And, I hope to be reporting continued progress on the protocol in the coming months! We pray we haven't messed up by taking him off the meds in June! Good luck, a Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 Dear Kathy, I hope you stick with it! How nice that other people are noticing the difference-even though it is small! My son is slowly coming back to where he was. We have switched anti-fungals tonight (Diflucan) so I am very encouraged and hope that this will control his constipation and then in turn help him feel much better. I believe once this is under control we will be headed in the right direction again! Best of luck to you! a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 Hi a; We have had success with Nick's bowel problems using both the Diflucan and a children's acidophilus. The acidophilus was suggested by Dr G. We give it to Nick 2 times /day. It can be purchased at the health food store. If you try it make certain it contains no casein. Hope this helps. Suzanne From: KrisKerz@... Reply- Subject: Re: Dr G's Protocol Date: Wed, 8 Aug 2001 00:52:53 EDT Dear Kathy, I hope you stick with it! How nice that other people are noticing the difference-even though it is small! My son is slowly coming back to where he was. We have switched anti-fungals tonight (Diflucan) so I am very encouraged and hope that this will control his constipation and then in turn help him feel much better. I believe once this is under control we will be headed in the right direction again! Best of luck to you! a _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 Suzanne, What brand is it that you are using?? I have a brand that I stopped giving him because I didn't know if it was casein free or not?? It is primadophilus for children by Nature's Way.....Is that the one you use?? I will call the manufactured tomorrow to see if it is CF! Glad to know Dr. G suggested it! Thanks, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 We have used two differenct brands. Kris; -GNC Natural Brand Children's Chewable Acidophilus (grape flavor). -Kydo-dophilus (this one is from memory but I remember the " Kydo " part). Dr G even talked about the " Kydo " name for a children's acidophilus. He said it was okay to use but should be discontinued if it creates hyperactivity. Good luck Suzanne If you cannot locate it let me know and I will look for the Kydo at our Natural Food store and get you the exact name. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 In a message dated 8/8/01 9:58:00 PM Pacific Daylight Time, KrisKerz@... writes: > Suzanne, > What brand is it that you are using?? I have a brand that I stopped giving > him because I didn't know if it was casein free or not?? It is > primadophilus > for children by Nature's Way.....Is that the one you use?? I will call the > manufactured tomorrow to see if it is CF! Glad to know Dr. G suggested it! > Thanks, > Kyo-dophilus Tina Tina M. Hendrix Cure2000@... Vice-President, California Coalition Neuro-Immune Dysfunction Syndromes Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, etc. Quote Link to comment Share on other sites More sharing options...
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