Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 I just read the posts about Lactulose and Lasix...while Lactulose helps the ammonia that builds up in your intestines and you have bowel movements, this is what keeps the brain fog clear. Lasix are for the the swelling of the stomach and ankles. You have to be very careful with the lasix as they can take away from your kidneys at a rate that can put you in renal failure. So make sure they are not to powerful. Lactulose is usually taken while you're on the list for transplant and works wonders as long as you can keep up your CORRECT eating habits, that's low salt and no proteins. They have a ensure out now for Liver patients. Watch your nutrition at this stage, it is critical. You'll get that transplant!!!!!! Really pay attention to those 2 medications, they are the last two before your transplant, and if you find your losing any weight really check out that ensure for Hepatic patients, it is great!! Oh, one more thing, if you get tapped for your ascities, make sure they lighten up your lasix, because that's the harder fluid to control. Keep your feet up as much as possible and keep your head held high. You'll be a new man after transplant!!!!!!!!! P.S. Your doctor can tell you exactly where you are on the transplant list, they list you at a statis and your statis goes up each time they say, tap you, or your billirubin go up etc.I know it sounds creepy, but it's the way it works. Hugs, Rick Kipp <rickkipp@...> wrote: Hey, Tony: As far as I know, the lactulose is really for the brain. I also take Lasix 3 times a day for the swelling of the extremities and stomach. I had to go once a week to have my stomach drained for a few months before it stabilized. Yes, I not only follow my Doc's orders, but I also have put into place a lot of info from this board. I also see a "holistic" type guy for herbs and vitamins. He's really helped me a lot in the past 4 months. At least you got your transplant quickly. My Doc keeps thinking I'm getting close, and it just terrifies me. Good luck.>> Rick,> > I know this is a side topic, but isn't the lactulose solution also > something that they give liver transplant patients to help reduce the > liquid build-up in the abdomen and legs after the transplant? Just > curious! > > Oh, btw, I am also new to the group, male, 43, have Hep C and had a > liver transplant on Thanksgiving of 2006. Not a good way to spend > the holidays. The body is not rejecting the new liver as much, so > the docs are starting on the Interferon/Ribviron treatment to try to > get rid of the Hep C. Unfortunately, even though I am a 3e genotype, > I have been through the same treatment on four (4) previous occasions > with no luck. For those curious, I had fibrosis for about five (5) > years previous to the transplant and the cirrhosis only popped up > within a few months of the transplant. My bilirubin levels were > normal until approximately 25 days prior to the transplant when they > started going up. I sold after 30, so I am not sure how high the > bilirubin got. Got on the transplant list on a Monday, went home and > then back to the hospital on Wednesday, and had the liver transplant > on Thursday. One month before the transplant, I felt fine, except > for the Hep C effects. It took 30 days for me to have a relatively > normal blood test to complete liver shutdown and a meld score that > put at the top of the transplant list in the Southwest US. My point > is, if there is anyone out there who is not doing what there doctor > is telling them to do regarding diet, exercise, meds, etc., get with > the program fast. Hep C is not something that you want to mess > around with.> > Thanks for letting me rant!> > Tony Graber Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 I just read the posts about Lactulose and Lasix...while Lactulose helps the ammonia that builds up in your intestines and you have bowel movements, this is what keeps the brain fog clear. Lasix are for the the swelling of the stomach and ankles. You have to be very careful with the lasix as they can take away from your kidneys at a rate that can put you in renal failure. So make sure they are not to powerful. Lactulose is usually taken while you're on the list for transplant and works wonders as long as you can keep up your CORRECT eating habits, that's low salt and no proteins. They have a ensure out now for Liver patients. Watch your nutrition at this stage, it is critical. You'll get that transplant!!!!!! Really pay attention to those 2 medications, they are the last two before your transplant, and if you find your losing any weight really check out that ensure for Hepatic patients, it is great!! Oh, one more thing, if you get tapped for your ascities, make sure they lighten up your lasix, because that's the harder fluid to control. Keep your feet up as much as possible and keep your head held high. You'll be a new man after transplant!!!!!!!!! P.S. Your doctor can tell you exactly where you are on the transplant list, they list you at a statis and your statis goes up each time they say, tap you, or your billirubin go up etc.I know it sounds creepy, but it's the way it works. Hugs, Rick Kipp <rickkipp@...> wrote: Hey, Tony: As far as I know, the lactulose is really for the brain. I also take Lasix 3 times a day for the swelling of the extremities and stomach. I had to go once a week to have my stomach drained for a few months before it stabilized. Yes, I not only follow my Doc's orders, but I also have put into place a lot of info from this board. I also see a "holistic" type guy for herbs and vitamins. He's really helped me a lot in the past 4 months. At least you got your transplant quickly. My Doc keeps thinking I'm getting close, and it just terrifies me. Good luck.>> Rick,> > I know this is a side topic, but isn't the lactulose solution also > something that they give liver transplant patients to help reduce the > liquid build-up in the abdomen and legs after the transplant? Just > curious! > > Oh, btw, I am also new to the group, male, 43, have Hep C and had a > liver transplant on Thanksgiving of 2006. Not a good way to spend > the holidays. The body is not rejecting the new liver as much, so > the docs are starting on the Interferon/Ribviron treatment to try to > get rid of the Hep C. Unfortunately, even though I am a 3e genotype, > I have been through the same treatment on four (4) previous occasions > with no luck. For those curious, I had fibrosis for about five (5) > years previous to the transplant and the cirrhosis only popped up > within a few months of the transplant. My bilirubin levels were > normal until approximately 25 days prior to the transplant when they > started going up. I sold after 30, so I am not sure how high the > bilirubin got. Got on the transplant list on a Monday, went home and > then back to the hospital on Wednesday, and had the liver transplant > on Thursday. One month before the transplant, I felt fine, except > for the Hep C effects. It took 30 days for me to have a relatively > normal blood test to complete liver shutdown and a meld score that > put at the top of the transplant list in the Southwest US. My point > is, if there is anyone out there who is not doing what there doctor > is telling them to do regarding diet, exercise, meds, etc., get with > the program fast. Hep C is not something that you want to mess > around with.> > Thanks for letting me rant!> > Tony Graber Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2007 Report Share Posted October 19, 2007 Happy Friday Everyone! Just to touch base... My husband's labs came back. You were all correct...his ammonia was 135. We see the Dr next week! His CT scan was not that unusual but his labs are still out of this world. His tumor markers are 619-slightly lower than last time. I will keep everyone posted! Make it a good day! Kathy --- Jackie on <redjaxjm@...> wrote: > thanks hon,, I try not to be a cranky nag but > sometimes, I just can't help myself, haha! > > kathy przybyla kloth <kathypfmp@...> wrote: > A delightful nag > --- Jackie on <redjaxjm@...> wrote: > > > yep,, I CAN be a nag,, thats for sure! lol > > > > Sheena <mom4possums2002@...> wrote: > > Still here, thanks to your non-stop hollering, and > > back at ya! > > > > > > > > > > Jackie on <redjaxjm@...> wrote: > > well IM GLAD that you are not in deep doo > > doo,, haha,, love you Sheena! > > > > Sheena <mom4possums2002@...> wrote: I > > can second that 100+%, and I would have been in > deep > > doo > > had you not kept pushing me.. > > > > > > > > > > Jackie on <redjaxjm@...> wrote: > > Yep,,, I have learned that I MUST be > > responsible for MY OWN health,, I learned that a > > long time ago,, but its so nice to have this group > > to fall back upon,, because no one person can > > remember everything.. > > > > Sheena <mom4possums2002@...> wrote: No > > one knows us better than we do, or cares more, > > either, lol, > > and why it is best not to put all of one's trust > > in any doctor, best to > > do that research and ask for what you feel you > > need.. > > > > > > > > > > > > Jackie on <redjaxjm@...> wrote: > > You are right,, docs can miss lots of things,, > > even my own doc whom I love to death didnt check > me > > for hcv until I asked him too, even tho my alt/ast > > were askew for years,, we both just thought that > > they were off depending upon where my weight was,, > > when I was fat, my labs were high,, when I was > > skinny, they were normal,, and he always felt very > > very bad for not finding it sooner,,, > > > > Sheena <mom4possums2002@...> wrote: I > > wish that had been the only problem I had.. > > That's why I am ever telling everyone to do their > > own > > research, they may have a " really nice " doc, but > > if > > he/she misses something critical, it could cause > > them > > many problems, or worse.. > > > > > > > > Jackie on <redjaxjm@...> wrote: > > Sheena, I remember those iron pills and how > > worried I was about you... you are right ,, > > sometimes the docs really DONT know what the heck > > they are doing,, or they are not looking at > > everything pertaining to your own medical > > background.. you know what I mean? lol > > > > Sheena <mom4possums2002@...> wrote: I > > have to tell you that I had my former GI give me > > iron pills, > > which did cause me some harm, and even more > > recently, > > the doctor that first diagnosed my Hep C, give me > > antibiotics > > that were clearly identified as hepatoxic or sure > > not liver friendly. > > It is a wonder many of us are still walking > > around.. > > Everyone really needs to do their own research > > with meds.. > > > > Sheena > > > > > > Jackie on <redjaxjm@...> wrote: > > Oh NO Kathy,, it clearly has a warning for > > those WITH LIVER DISEASE,, I wonder why she gave > it > > to begin with.... especially with hep c... Its > > designed for depression and the body pain > depression > > can cause,, but sheesh... well he has to wean off > of > > it slowly and then start with the correct ssri > that > > does not have the same damaging effects to the > > liver... please know that I will be keeping you > and > > your husband in my prayers and hope that this > > cymbalta has not damaged his liver in a way that > is > > irreversible..but remember the liver CAN and DOES > > regenerate itself so hopefully she will take him > off > > before he has fulminant liver failure... whatever > > you do tho, do not stop any drug immediately and > > rapidly,, it has to be done slowly or else he will > > have a rebound problem,, > > please let me know > > jax > > > > kathy przybyla kloth <kathypfmp@...> wrote: > > Jax, > > > > That is exactly what he has been taking for the > past > > 2 > > months!!!! I will be calling the doctor first > thing > > in the morning! I am just sick about this! She > gave > > it to him to help with his neuropathy too... > > --- Jackie on <redjaxjm@...> wrote: > > > > > Are you meaning Cymbalta???? THAT is NOT for > those > > > with liver disease honey,,, that could be why he > > is > > > going downhill so quickly,,, its got a black box > > > warning on it for those with liver disease.... > > > Please double check if that is what he is > taking,, > > > > > there are other ssri's that do not carry that > same > > > risk as cymbalta,, > > > > > > kathy przybyla kloth <kathypfmp@...> > wrote: > > > Jax, > > > > > > Thank you for your email! He is already on an > > > antidepressant called cyambsil (spelling wrong). > > He > > > is deteriorating rather quickly. I did call the > > dr's > > > office yesterday and had ammonia added to his > > > labwork. > > > As far as diet, I have to sneak vegetables in > > > wherever possible since he is a meat and > potatoes > > > type > > > of guy. Fortunately, I have been able to modify > > his > > > diet and he eats alot more salads and we have > > pretty > > > much eliminated potatoes. I push as much fish > and > > > chicken as I can. > > > > > > In the past two weeks, he is noticably > different. > > > His > > > ankles have swollen up like balloons and his 2 > big > > > toenails have turned black. The pain in his > right > > > shoulder is unbearable for him. He has said > things > > > completely out of turn. We both sense his > > bloodwork > > > will not be good. I just pray that God is > merciful > > > and takes him quickly if that is what is meant > to > > > be. > > > In the meantime, we will have by far the best > > > Halloween, Thanksgiving and Christmas ever! > > > > > > Thank you so incredibly much for caring! > > > Love, > > > Kathy > > > --- Jackie on <redjaxjm@...> wrote: > > > > > > > Good Kathy,, I hope its not his ammonia > because > > > that > > > > would mean his virus is moving along quickly > and > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2007 Report Share Posted October 19, 2007 I am glad that they found out about his ammonia , I hope they are giving him some lactulose to reduce it . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2007 Report Share Posted October 19, 2007 Our appointment is next week...so I will certainly make sure of it! I am concerned his platelets and red blood cells have dropped so much. Thank you for your thoughts! Kathy --- elizabethnv1 <elizabethnv1@...> wrote: > I am glad that they found out about his ammonia , I > hope they are giving him some lactulose to reduce it > . __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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