Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 Sounds like his ammonia levels are up , it is the only thing I can think of that would cause that kinda dementia . Call his doctot immediately and let them know what is going on so they can do the lab work to find out if it is the ammonia . If it is lactulose is the treatment and it does work well . Need guidance please My husband has Hep C and is not on treatment because of his platelet count. In the past few weeks, he has become increasing more difficult, including accusing me of having an affair, etc. He is on again, off again rational. I sense he is deteriorating rather quickly and I do not know what to do. Can anyone give me their thoughts? Has this happened to you or a loved one?Thank you in advance!Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 Sounds like his ammonia levels are up , it is the only thing I can think of that would cause that kinda dementia . Call his doctot immediately and let them know what is going on so they can do the lab work to find out if it is the ammonia . If it is lactulose is the treatment and it does work well . Need guidance please My husband has Hep C and is not on treatment because of his platelet count. In the past few weeks, he has become increasing more difficult, including accusing me of having an affair, etc. He is on again, off again rational. I sense he is deteriorating rather quickly and I do not know what to do. Can anyone give me their thoughts? Has this happened to you or a loved one?Thank you in advance!Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 I have to tell you that I had my former GI give me iron pills, which did cause me some harm, and even more recently, the doctor that first diagnosed my Hep C, give me antibiotics that were clearly identified as hepatoxic or sure not liver friendly. It is a wonder many of us are still walking around.. Everyone really needs to do their own research with meds.. Sheena Jackie on <redjaxjm@...> wrote: Oh NO Kathy,, it clearly has a warning for those WITH LIVER DISEASE,, I wonder why she gave it to begin with.... especially with hep c... Its designed for depression and the body pain depression can cause,, but sheesh... well he has to wean off of it slowly and then start with the correct ssri that does not have the same damaging effects to the liver... please know that I will be keeping you and your husband in my prayers and hope that this cymbalta has not damaged his liver in a way that is irreversible..but remember the liver CAN and DOES regenerate itself so hopefully she will take him off before he has fulminant liver failure... whatever you do tho, do not stop any drug immediately and rapidly,, it has to be done slowly or else he will have a rebound problem,, please let me know jaxkathy przybyla kloth <kathypfmp > wrote: Jax,That is exactly what he has been taking for the past 2months!!!! I will be calling the doctor first thingin the morning! I am just sick about this! She gaveit to him to help with his neuropathy too...--- Jackie on <redjaxjm > wrote:> Are you meaning Cymbalta???? THAT is NOT for those> with liver disease honey,,, that could be why he is> going downhill so quickly,,, its got a black box> warning on it for those with liver disease....> Please double check if that is what he is taking,, > there are other ssri's that do not carry that same> risk as cymbalta,, > > kathy przybyla kloth <kathypfmp > wrote:> Jax,> > Thank you for your email! He is already on an> antidepressant called cyambsil (spelling wrong). He> is deteriorating rather quickly. I did call the dr's> office yesterday and had ammonia added to his> labwork.> As far as diet, I have to sneak vegetables in> wherever possible since he is a meat and potatoes> type> of guy. Fortunately, I have been able to modify his> diet and he eats alot more salads and we have pretty> much eliminated potatoes. I push as much fish and> chicken as I can.> > In the past two weeks, he is noticably different.> His> ankles have swollen up like balloons and his 2 big> toenails have turned black. The pain in his right> shoulder is unbearable for him. He has said things> completely out of turn. We both sense his bloodwork> will not be good. I just pray that God is merciful> and takes him quickly if that is what is meant to> be. > In the meantime, we will have by far the best> Halloween, Thanksgiving and Christmas ever!> > Thank you so incredibly much for caring!> Love,> Kathy> --- Jackie on <redjaxjm > wrote:> > > Good Kathy,, I hope its not his ammonia because> that> > would mean his virus is moving along quickly and> > seriously harming his liver,, but IF it is, they> > will give him a nasty medication to fix that tho,,> > so it is controllable by medications along with> > watching the amount of protein he consumes... its> > really a difficult mix because most tx requires> one> > to be on a protein based diet to help it work> > better,, and then if you have ammonia problems ,> > then you have to reduce and watch the amount of> > protein you eat,, so treatment is less effective..> I> > know several ppl who advocate a vegetarian or> vegan> > diet which is really not a good thing when you are> > on tx,, you need the protein for many things,, to> > help control nausea, to help you keep from burning> > up your muscle tissue , there are many reasons for> > the protein based diet while on tx.. so lets hope> > its not that,, but if it is, they can help with> > lactulose.. The other thing is that the Interferon> > depletes the brain stores of> > seretonin and can cause serious depression and> > psych problems,, is he on an antidepressant? If he> > is on one like wellbutrin, that is more for> dopamine> > and not seretonin which is the one that gets> > depleted on tx.. maybe he needs his antidepressant> > if he is on one to have the dose increased... some> > ppl can get very suicidal and homicidal on tx..> > thats why I asked.. > > let us know,, we are concerned> > hugs> > jax> > > > kathy przybyla kloth <kathypfmp > wrote:> > Jackie,> > > > I will have his ammonia checked with this round of> > bloodwork. I am concerned the Fibrosure is not> quite> > so accurate-so I will be checking into that too!> > > > Thank you so much for your support! It means more> > than you know!> > Kathy> > --- Jackie on <redjaxjm > wrote:> > > > > Kathy, I forgot to add this to the other post to> > > you, but has his ammonia levels been checked?> > > The Fibrosure is not accurate in total,, its> only> > > good at the extreme ends of the test,, meaning> its> > > accurate in the 0-1 stage and in stage 4, but> > > inbetween stage 1 and 4 , its not accurate. I> > speak> > > from experience because my fibrosure said I was> > > stage 0-1 when in all reality, I was stage 2-3..> > > thats a big difference.. > > > I'd have his ammonia levels checked because if> > > that rises high enough, it can cause confusion,> > and> > > all sorts of emotional issues... > > > > > > kathypfmp <kathypfmp > wrote:> > > My husband has Hep C and is not on> > > treatment because of his platelet > > > count. In the past few weeks, he has become> > > increasing more difficult, > > > including accusing me of having an affair, etc.> He> > > is on again, off > > > again rational. I sense he is deteriorating> rather> > > quickly and I do > > > not know what to do. Can anyone give me their> > > thoughts? Has this > > > happened to you or a loved one?> > > > > > Thank you in advance!> > > Kathy> > > > > > > > > > > > > > > > > > > > > Jackie> > > >>__________________________________________________________> > Shape in your own image. Join our Network> > Research Panel today!> >>http://surveylink./gmrs/_panel_invite.asp?a=7> > > > > > > > > > > > > > > > Jackie> >__________________________________________________________> Building a website is a piece of cake. Small> Business gives you all the tools to get online.> http://smallbusiness./webhosting > > > > > > Jackie__________________________________________________________Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.http://get.games./proddesc?gamekey=monopolyherenow Jackie Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2007 Report Share Posted October 6, 2007 Tricia, Thank you for your questions. First of all, let me preface everything by saying that I am not a doctor, not do I play one on TV, and do not really want to be one. I am thankful for all of those people who decided to devote their lives to helping cure others of the aches, pains, the occassional organ transplant, etc. What should you husband expect? Generally speaking, since every one is different, your husband should expect a call out of the blue and a panicked and hurried trip to the hospital. Hopefully, he will only have to go through this once with no false alarms. He should be prepared to be checked into a room and lots of tubes going in and out of him and lots of people asking the same boring questions, over and over again. But of course, you already know this part. He should expect to wake up after the long transplant surgery in the recovery room, but not remember much of it. I didn't, not even the cute nurses. I basically remember waking up in ICU with lots of people around, my wife and a bunch of doctors and nurses, all asking me how I was feeling. This was strange for me, because the last memory previous to this was putting on a hospital gown the night before and trying to relax until the pain meds started working. After I awoke the main liver doc spoke first and told me that I had better get a Mercedes to go with my scar. For those that do not know, the scar after a liver transplant resembles the Mercedes Benz trademarked figure, without the circle around the three (3) converging lines. The scar, btw, covers your entire abdomen. For the first two weeks after the surgery, you are kept under close watch in ICU, encouraged to use your breathing aperatus, once the breathing tube is removed. You are also encouraged, after a few days, to get you butt out of bed and start walking and moving around. You start on anti-virals and anti-rejection meds, among others, right away and you have to take all of your meds. The nurses will not let you get away with waiting awhile to take them. Most of the meds must be taken twice a day and 12 hours apart. That was not fun because I did not have an appetite for the first month and a half after the liver transplant. If the drugs came after breakfast or supper, I had a devil of a time getting them down and was also given a tight time frame to take my meds, usually under the eagle eyes of a not so nice nurse. You know when they tell you that there is always room for Jello? Well, I can personally state that that is not always true. There are times that Jello will just not fit. The result of all this was that I rarely ate for the first month, other than a bowl of cereal for breakfast, water, sprite, and a carton or two of milk for lunch. That is all that I would eat in a day. The docs did not like it, but did not want me to throw up either. One thing that they watch for in ICU is for the patient to have seizures. Some, maybe all but I do not know for sure, anti-rejection meds can cause seizures and mine did. I had a couple of really bad ones and quite a few mild ones before they changed the anti-rejection meds and anti-seizure meds to where I would not have any seizures. The hospital even brought in the best neurologist who had hours at the hospital to diagnose me and he put me on Keppra, something that no else even thought of. No seizures, but two horse pills of Keppra to take for the foreseeable future. After you are stabilized, they move you to a " regular " room in the hospital. The nice part is that, as a liver transplant patient, you are supposed to have your own room as your immune system is being compromised to help the body except the liver. Basically, you live without an immune system for awhile and are subject illnesses that your immune system would normally ward off. Hence, the room by yourself. I assume that this is the way it is everywhere, but do not know for sure. I In your regular room, they start to wean you off of some of the lesser meds and start taking tubes out. They continue to watch you and you have daily blood draws, always at about 4:AM for me. Plus, you get to look forward to a change of your IV location about every five (5) days. They suck your blood dry in the hospital. I am not usually a cold person, but in the hospital I was freezing almost all of the time. I think the volume of blood in my body dropped considerably, which is part of the process, I think? Anyway, the moving of the IV was not fun, especially when you are cold and possible a few quarts low so to speak. One thing that was problematic for me was that I was in the hospital for three (3) weeks prior to my transplant, then in the hospital for about four (4) weeks post-transplant. I averaged 3-4 needle pokes for every successful IV. My personal record was 11 needle pokes from six (6) different nurses before they had an emergency room nurse come up and stick me, painlessly I might add, on her very first try. Always ask for an emergency room nurse to come up after a few bad sticks with no success, demand it if you cannot take the pain any longer. It took me, my wife, my mother, and my personal nurse to demand it, but the ER nurse was called. The ER nurses, of course, must not be busy in the ER, or they cannot come up and help. But, always ask if the nurses are having too much trouble with the IV. Do not let the nurses blow you off!!! Once my meds, mind and body were stablized, and I was breathing okay and exercising in the hospital, I was allowed to be discharged, but had to stay in a hotel in Phoenix, where the transplant was done, before going back home to Tucson. Just another precaution to make sure that there were no problems with the meds or rejection and a last chance for a liver biopsy. I had three (3) liver biopsies before I left the hospital and one every two (2) months since then. When you are home, you need to build up the strength you lost while in the hospital. I am still having trouble with that, over nine (9) months after the transplant. At times, I seem to be weakening, not strengthening. But, I keep trying to walk, and lift weights for muscle. Building up the muscles in the lower back is especially important to me. Well, that is all that I can think of right now. If you have any other questions, please feel free to email me with them and I will post the questions and answers to the group. Take Care! Tony > > Tony , I would love to hear more about your transplant , what to expect after & ect.. My husband is on the list here in the pacific northwest. He is at the top of the list but that is a no brainer since he is the only one on the list with his blood type.. > I would love to know what we aare getting ourselves into ... > the surgen told my husband that he had one patient who was sent hom on the 3rd day and he was out snowblowing that afternoon.... I am afraid that my husband is not prepared for what is going to happen....He seems to have the idea the it is going to be a walk in the park ..the worse he has been trhough is the testing that he went though to get on the list ..it took us 6 months from start to being on the list .. He has never had any surgeries or anything like that .. I am afraid that he will not do as well as he thinks and will not have what it will take to pull him through ... > So anything that you can tell me about some of the things to expect or that can happen would be greatly apreciated ....either through the group or private emails ... > trishdish13 > > p.a. oh YEA i have hep c also > > > SAVE A LIFE > https://www.donatelifenw.org/register/ > > TODAY IS GOD'S GIFT TO YOU, > WHAT YOU DO WITH IT IS YOUR GIFT TO HIM ! > " I am responsible for my own well-being,my own happiness. > The choices and decicions I make regarding my life > directly influences the quality of my days. " > Kathleen Andrus > Check out our site: > http://www.shepswoodncrafts.com/home.htmlhtt > http://rslaserkits.com/ > > > > > --------------------------------- > Pinpoint customers who are looking for what you sell. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2007 Report Share Posted October 6, 2007 Yes it does. Thank you Jackie! I should have consulted with my wife before asking Rick the question. She is the one who knows what all of the drugs do. It is all that I can do to take all of the right meds and the right times throughout the day. So many at breakfast, so many in the afternoon, so many in the evening, and a couple before I go to bed. Tony > > > > > > Kathy, > > > It sounds like to me that his amonia level is up. My huaband > > didn't do things like that but he did get disorintated. He would > get > > out of the car and head for the road owhen I asked him where he was > > going he would say in the house.. He started dong the old man > > shuffle ....we got ahold of his dr and they put him on some meds > > untill they found something that worked ..He is now back to being > my > > husband again.....Just a thought !!!!! > > > > > > tricia in oregon > > > > > > > > > Jackie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2007 Report Share Posted October 6, 2007 well I had a hard time remembering to take my meds too, so what I did was go and get one of those med holders that have a space for AM and PM,, once a week I put all my meds in the appropriate holders so I could alwyas tell if I had taken my meds and it really really helped... you might try that too,, hang in there,, jaxTony <books64@...> wrote: Yes it does. Thank you Jackie! I should have consulted with my wifebefore asking Rick the question. She is the one who knows what all ofthe drugs do. It is all that I can do to take all of the right medsand the right times throughout the day. So many at breakfast, so manyin the afternoon, so many in the evening, and a couple before I go to bed.Tony> > >> > > Kathy,> > > It sounds like to me that his amonia level is up. My huaband > > didn't do things like that but he did get disorintated. He would > get > > out of the car and head for the road owhen I asked him where he was > > going he would say in the house.. He started dong the old man > > shuffle ....we got ahold of his dr and they put him on some meds > > untill they found something that worked ..He is now back to being > my > > husband again.....Just a thought !!!!!> > > > > > tricia in oregon> >> > > > > > > Jackie>Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2007 Report Share Posted October 6, 2007 Sheena, I remember those iron pills and how worried I was about you... you are right ,, sometimes the docs really DONT know what the heck they are doing,, or they are not looking at everything pertaining to your own medical background.. you know what I mean? lolSheena <mom4possums2002@...> wrote: I have to tell you that I had my former GI give me iron pills, which did cause me some harm, and even more recently, the doctor that first diagnosed my Hep C, give me antibiotics that were clearly identified as hepatoxic or sure not liver friendly. It is a wonder many of us are still walking around.. Everyone really needs to do their own research with meds.. Sheena Jackie on <redjaxjm > wrote: Oh NO Kathy,, it clearly has a warning for those WITH LIVER DISEASE,, I wonder why she gave it to begin with.... especially with hep c... Its designed for depression and the body pain depression can cause,, but sheesh... well he has to wean off of it slowly and then start with the correct ssri that does not have the same damaging effects to the liver... please know that I will be keeping you and your husband in my prayers and hope that this cymbalta has not damaged his liver in a way that is irreversible..but remember the liver CAN and DOES regenerate itself so hopefully she will take him off before he has fulminant liver failure... whatever you do tho, do not stop any drug immediately and rapidly,, it has to be done slowly or else he will have a rebound problem,, please let me know jaxkathy przybyla kloth <kathypfmp > wrote: Jax,That is exactly what he has been taking for the past 2months!!!! I will be calling the doctor first thingin the morning! I am just sick about this! She gaveit to him to help with his neuropathy too...--- Jackie on <redjaxjm > wrote:> Are you meaning Cymbalta???? THAT is NOT for those> with liver disease honey,,, that could be why he is> going downhill so quickly,,, its got a black box> warning on it for those with liver disease....> Please double check if that is what he is taking,, > there are other ssri's that do not carry that same> risk as cymbalta,, > > kathy przybyla kloth <kathypfmp > wrote:> Jax,> > Thank you for your email! He is already on an> antidepressant called cyambsil (spelling wrong). He> is deteriorating rather quickly. I did call the dr's> office yesterday and had ammonia added to his> labwork.> As far as diet, I have to sneak vegetables in> wherever possible since he is a meat and potatoes> type> of guy. Fortunately, I have been able to modify his> diet and he eats alot more salads and we have pretty> much eliminated potatoes. I push as much fish and> chicken as I can.> > In the past two weeks, he is noticably different.> His> ankles have swollen up like balloons and his 2 big> toenails have turned black. The pain in his right> shoulder is unbearable for him. He has said things> completely out of turn. We both sense his bloodwork> will not be good. I just pray that God is merciful> and takes him quickly if that is what is meant to> be. > In the meantime, we will have by far the best> Halloween, Thanksgiving and Christmas ever!> > Thank you so incredibly much for caring!> Love,> Kathy> --- Jackie on <redjaxjm > wrote:> > > Good Kathy,, I hope its not his ammonia because> that> > would mean his virus is moving along quickly and> > seriously harming his liver,, but IF it is, they> > will give him a nasty medication to fix that tho,,> > so it is controllable by medications along with> > watching the amount of protein he consumes... its> > really a difficult mix because most tx requires> one> > to be on a protein based diet to help it work> > better,, and then if you have ammonia problems ,> > then you have to reduce and watch the amount of> > protein you eat,, so treatment is less effective..> I> > know several ppl who advocate a vegetarian or> vegan> > diet which is really not a good thing when you are> > on tx,, you need the protein for many things,, to> > help control nausea, to help you keep from burning> > up your muscle tissue , there are many reasons for> > the protein based diet while on tx.. so lets hope> > its not that,, but if it is, they can help with> > lactulose.. The other thing is that the Interferon> > depletes the brain stores of> > seretonin and can cause serious depression and> > psych problems,, is he on an antidepressant? If he> > is on one like wellbutrin, that is more for> dopamine> > and not seretonin which is the one that gets> > depleted on tx.. maybe he needs his antidepressant> > if he is on one to have the dose increased... some> > ppl can get very suicidal and homicidal on tx..> > thats why I asked.. > > let us know,, we are concerned> > hugs> > jax> > > > kathy przybyla kloth <kathypfmp > wrote:> > Jackie,> > > > I will have his ammonia checked with this round of> > bloodwork. I am concerned the Fibrosure is not> quite> > so accurate-so I will be checking into that too!> > > > Thank you so much for your support! It means more> > than you know!> > Kathy> > --- Jackie on <redjaxjm > wrote:> > > > > Kathy, I forgot to add this to the other post to> > > you, but has his ammonia levels been checked?> > > The Fibrosure is not accurate in total,, its> only> > > good at the extreme ends of the test,, meaning> its> > > accurate in the 0-1 stage and in stage 4, but> > > inbetween stage 1 and 4 , its not accurate. I> > speak> > > from experience because my fibrosure said I was> > > stage 0-1 when in all reality, I was stage 2-3..> > > thats a big difference.. > > > I'd have his ammonia levels checked because if> > > that rises high enough, it can cause confusion,> > and> > > all sorts of emotional issues... > > > > > > kathypfmp <kathypfmp > wrote:> > > My husband has Hep C and is not on> > > treatment because of his platelet > > > count. In the past few weeks, he has become> > > increasing more difficult, > > > including accusing me of having an affair, etc.> He> > > is on again, off > > > again rational. I sense he is deteriorating> rather> > > quickly and I do > > > not know what to do. Can anyone give me their> > > thoughts? Has this > > > happened to you or a loved one?> > > > > > Thank you in advance!> > > Kathy> > > > > > > > > > > > > > > > > > > > > Jackie> > > >>__________________________________________________________> > Shape in your own image. Join our Network> > Research Panel today!> >>http://surveylink./gmrs/_panel_invite.asp?a=7> > > > > > > > > > > > > > > > Jackie> >__________________________________________________________> Building a website is a piece of cake. Small> Business gives you all the tools to get online.> http://smallbusiness./webhosting > > > > > > Jackie__________________________________________________________Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.http://get.games./proddesc?gamekey=monopolyherenow Jackie Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2007 Report Share Posted October 7, 2007 I have one of the med holders, too. The problem is that after a liver transplant the AM/PM ones do not work any longer. You need a holder that has morning, afternoon, and evening. Thankfully, I do know which pills I need to take and how many, on a daily basis. I just do not remember, exactly, what they all do any more. I have a folder from the transplant docs with all of the reasons for taking each med are written down, but don't consult it every day. Only when I need to. Tony > > > > > > > > Kathy, > > > > It sounds like to me that his amonia level is up. My huaband > > > didn't do things like that but he did get disorintated. He would > > get > > > out of the car and head for the road owhen I asked him where he was > > > going he would say in the house.. He started dong the old man > > > shuffle ....we got ahold of his dr and they put him on some meds > > > untill they found something that worked ..He is now back to being > > my > > > husband again.....Just a thought !!!!! > > > > > > > > tricia in oregon > > > > > > > > > > > > > > > > > Jackie > > > > > > > > > Jackie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2007 Report Share Posted October 7, 2007 well perhaps you could use the am/pm one just for the hep tx meds,,, that might help you to remember every med and AT the correct time,, they must be taken 12 hours apart,, the Riba that is..Tony <books64@...> wrote: I have one of the med holders, too. The problem is that after a livertransplant the AM/PM ones do not work any longer. You need a holderthat has morning, afternoon, and evening. Thankfully, I do know whichpills I need to take and how many, on a daily basis. I just do notremember, exactly, what they all do any more. I have a folder fromthe transplant docs with all of the reasons for taking each med arewritten down, but don't consult it every day. Only when I need to.Tony> > > >> > > > Kathy,> > > > It sounds like to me that his amonia level is up. My huaband > > > didn't do things like that but he did get disorintated. He would > > get > > > out of the car and head for the road owhen I asked him where he was > > > going he would say in the house.. He started dong the old man > > > shuffle ....we got ahold of his dr and they put him on some meds > > > untill they found something that worked ..He is now back to being > > my > > > husband again.....Just a thought !!!!!> > > > > > > > tricia in oregon> > >> > > > > > > > > > > > > > Jackie> >> > > > > > > Jackie>Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2007 Report Share Posted October 7, 2007 I wish that had been the only problem I had.. That's why I am ever telling everyone to do their own research, they may have a "really nice" doc, but if he/she misses something critical, it could cause them many problems, or worse.. Jackie on <redjaxjm@...> wrote: Sheena, I remember those iron pills and how worried I was about you... you are right ,, sometimes the docs really DONT know what the heck they are doing,, or they are not looking at everything pertaining to your own medical background.. you know what I mean? lolSheena <mom4possums2002 > wrote: I have to tell you that I had my former GI give me iron pills, which did cause me some harm, and even more recently, the doctor that first diagnosed my Hep C, give me antibiotics that were clearly identified as hepatoxic or sure not liver friendly. It is a wonder many of us are still walking around.. Everyone really needs to do their own research with meds.. Sheena Jackie on <redjaxjm > wrote: Oh NO Kathy,, it clearly has a warning for those WITH LIVER DISEASE,, I wonder why she gave it to begin with.... especially with hep c... Its designed for depression and the body pain depression can cause,, but sheesh... well he has to wean off of it slowly and then start with the correct ssri that does not have the same damaging effects to the liver... please know that I will be keeping you and your husband in my prayers and hope that this cymbalta has not damaged his liver in a way that is irreversible..but remember the liver CAN and DOES regenerate itself so hopefully she will take him off before he has fulminant liver failure... whatever you do tho, do not stop any drug immediately and rapidly,, it has to be done slowly or else he will have a rebound problem,, please let me know jaxkathy przybyla kloth <kathypfmp > wrote: Jax,That is exactly what he has been taking for the past 2months!!!! I will be calling the doctor first thingin the morning! I am just sick about this! She gaveit to him to help with his neuropathy too...--- Jackie on <redjaxjm > wrote:> Are you meaning Cymbalta???? THAT is NOT for those> with liver disease honey,,, that could be why he is> going downhill so quickly,,, its got a black box> warning on it for those with liver disease....> Please double check if that is what he is taking,, > there are other ssri's that do not carry that same> risk as cymbalta,, > > kathy przybyla kloth <kathypfmp > wrote:> Jax,> > Thank you for your email! He is already on an> antidepressant called cyambsil (spelling wrong). He> is deteriorating rather quickly. I did call the dr's> office yesterday and had ammonia added to his> labwork.> As far as diet, I have to sneak vegetables in> wherever possible since he is a meat and potatoes> type> of guy. Fortunately, I have been able to modify his> diet and he eats alot more salads and we have pretty> much eliminated potatoes. I push as much fish and> chicken as I can.> > In the past two weeks, he is noticably different.> His> ankles have swollen up like balloons and his 2 big> toenails have turned black. The pain in his right> shoulder is unbearable for him. He has said things> completely out of turn. We both sense his bloodwork> will not be good. I just pray that God is merciful> and takes him quickly if that is what is meant to> be. > In the meantime, we will have by far the best> Halloween, Thanksgiving and Christmas ever!> > Thank you so incredibly much for caring!> Love,> Kathy> --- Jackie on <redjaxjm > wrote:> > > Good Kathy,, I hope its not his ammonia because> that> > would mean his virus is moving along quickly and> > seriously harming his liver,, but IF it is, they> > will give him a nasty medication to fix that tho,,> > so it is controllable by medications along with> > watching the amount of protein he consumes... its> > really a difficult mix because most tx requires> one> > to be on a protein based diet to help it work> > better,, and then if you have ammonia problems ,> > then you have to reduce and watch the amount of> > protein you eat,, so treatment is less effective..> I> > know several ppl who advocate a vegetarian or> vegan> > diet which is really not a good thing when you are> > on tx,, you need the protein for many things,, to> > help control nausea, to help you keep from burning> > up your muscle tissue , there are many reasons for> > the protein based diet while on tx.. so lets hope> > its not that,, but if it is, they can help with> > lactulose.. The other thing is that the Interferon> > depletes the brain stores of> > seretonin and can cause serious depression and> > psych problems,, is he on an antidepressant? If he> > is on one like wellbutrin, that is more for> dopamine> > and not seretonin which is the one that gets> > depleted on tx.. maybe he needs his antidepressant> > if he is on one to have the dose increased... some> > ppl can get very suicidal and homicidal on tx..> > thats why I asked.. > > let us know,, we are concerned> > hugs> > jax> > > > kathy przybyla kloth <kathypfmp > wrote:> > Jackie,> > > > I will have his ammonia checked with this round of> > bloodwork. I am concerned the Fibrosure is not> quite> > so accurate-so I will be checking into that too!> > > > Thank you so much for your support! It means more> > than you know!> > Kathy> > --- Jackie on <redjaxjm > wrote:> > > > > Kathy, I forgot to add this to the other post to> > > you, but has his ammonia levels been checked?> > > The Fibrosure is not accurate in total,, its> only> > > good at the extreme ends of the test,, meaning> its> > > accurate in the 0-1 stage and in stage 4, but> > > inbetween stage 1 and 4 , its not accurate. I> > speak> > > from experience because my fibrosure said I was> > > stage 0-1 when in all reality, I was stage 2-3..> > > thats a big difference.. > > > I'd have his ammonia levels checked because if> > > that rises high enough, it can cause confusion,> > and> > > all sorts of emotional issues... > > > > > > kathypfmp <kathypfmp > wrote:> > > My husband has Hep C and is not on> > > treatment because of his platelet > > > count. In the past few weeks, he has become> > > increasing more difficult, > > > including accusing me of having an affair, etc.> He> > > is on again, off > > > again rational. I sense he is deteriorating> rather> > > quickly and I do > > > not know what to do. Can anyone give me their> > > thoughts? Has this > > > happened to you or a loved one?> > > > > > Thank you in advance!> > > Kathy> > > > > > > > > > > > > > > > > > > > > Jackie> > > >>__________________________________________________________> > Shape in your own image. Join our Network> > Research Panel today!> >>http://surveylink./gmrs/_panel_invite.asp?a=7> > > > > > > > > > > > > > > > Jackie> >__________________________________________________________> Building a website is a piece of cake. Small> Business gives you all the tools to get online.> http://smallbusiness./webhosting > > > > > > Jackie__________________________________________________________Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.http://get.games./proddesc?gamekey=monopolyherenow Jackie Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more. Jackie Check out the hottest 2008 models today at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2007 Report Share Posted October 7, 2007 Hi guys, I've had my transplant for 9 years now. I'm type 1A HepC and my HepC reactivated a little over a year ago and I went on treatment in Dec of 06. I reached SVR in June of 07 and I'm still non-detectable. I've been through the ringer on the transplant thing. Numbers bouncing up and down, the worry of rejection, and more "whatifs" than you can imagine. My only problems right now are the ones caused by the ribo and pegasis. If you guys have any questions about what to expect, everyone is different. My transplant was a cake walk, a very close friend of mine went through hell but he's fine and virus free now. You really can't predict what is coming your way with a transplant. Holler at me if I can help We can take this dragon down... Steve B. a/k/a Ribs oneSearch: Finally, mobile search that gives answers, not web links. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 I spoke with the specialists office this morning. They are making a note of the situation and my husband will get his labs done in the morning. Thank you so much for your support! More to follow... Make it a good day! Kathy --- Jackie on <redjaxjm@...> wrote: > well good, at least you are moving in the right > direction.. I just dont understand WHY they gave > that to him in the first place unless they didnt > know he had hcv... keep us posted honey,, I hope by > getting him on a different ssri he will get better. > hugs, > jax > > kathy przybyla kloth <kathypfmp@...> wrote: > Jax, > > The doctor's office dropped him from 60mg Cymbalta > to > 30mg a day. His dr was out but the nurse gave me the > samples for 4 weeks. My husband has an appt with his > doctor in 2 weeks so perhaps she can take him off > then. > --- Jackie on <redjaxjm@...> wrote: > > > Oh NO Kathy,, it clearly has a warning for those > > WITH LIVER DISEASE,, I wonder why she gave it to > > begin with.... especially with hep c... Its > designed > > for depression and the body pain depression can > > cause,, but sheesh... well he has to wean off of > it > > slowly and then start with the correct ssri that > > does not have the same damaging effects to the > > liver... please know that I will be keeping you > and > > your husband in my prayers and hope that this > > cymbalta has not damaged his liver in a way that > is > > irreversible..but remember the liver CAN and DOES > > regenerate itself so hopefully she will take him > off > > before he has fulminant liver failure... whatever > > you do tho, do not stop any drug immediately and > > rapidly,, it has to be done slowly or else he will > > have a rebound problem,, > > please let me know > > jax > > > > kathy przybyla kloth <kathypfmp@...> wrote: > > Jax, > > > > That is exactly what he has been taking for the > past > > 2 > > months!!!! I will be calling the doctor first > thing > > in the morning! I am just sick about this! She > gave > > it to him to help with his neuropathy too... > > --- Jackie on <redjaxjm@...> wrote: > > > > > Are you meaning Cymbalta???? THAT is NOT for > those > > > with liver disease honey,,, that could be why he > > is > > > going downhill so quickly,,, its got a black box > > > warning on it for those with liver disease.... > > > Please double check if that is what he is > taking,, > > > > > there are other ssri's that do not carry that > same > > > risk as cymbalta,, > > > > > > kathy przybyla kloth <kathypfmp@...> > wrote: > > > Jax, > > > > > > Thank you for your email! He is already on an > > > antidepressant called cyambsil (spelling wrong). > > He > > > is deteriorating rather quickly. I did call the > > dr's > > > office yesterday and had ammonia added to his > > > labwork. > > > As far as diet, I have to sneak vegetables in > > > wherever possible since he is a meat and > potatoes > > > type > > > of guy. Fortunately, I have been able to modify > > his > > > diet and he eats alot more salads and we have > > pretty > > > much eliminated potatoes. I push as much fish > and > > > chicken as I can. > > > > > > In the past two weeks, he is noticably > different. > > > His > > > ankles have swollen up like balloons and his 2 > big > > > toenails have turned black. The pain in his > right > > > shoulder is unbearable for him. He has said > things > > > completely out of turn. We both sense his > > bloodwork > > > will not be good. I just pray that God is > merciful > > > and takes him quickly if that is what is meant > to > > > be. > > > In the meantime, we will have by far the best > > > Halloween, Thanksgiving and Christmas ever! > > > > > > Thank you so incredibly much for caring! > > > Love, > > > Kathy > > > --- Jackie on <redjaxjm@...> wrote: > > > > > > > Good Kathy,, I hope its not his ammonia > because > > > that > > > > would mean his virus is moving along quickly > and > > > > seriously harming his liver,, but IF it is, > they > > > > will give him a nasty medication to fix that > > tho,, > > > > so it is controllable by medications along > with > > > > watching the amount of protein he consumes... > > its > > > > really a difficult mix because most tx > requires > > > one > > > > to be on a protein based diet to help it work > > > > better,, and then if you have ammonia problems > , > > > > then you have to reduce and watch the amount > of > > > > protein you eat,, so treatment is less > > effective.. > > > I > > > > know several ppl who advocate a vegetarian or > > > vegan > > > > diet which is really not a good thing when you > > are > > > > on tx,, you need the protein for many things,, > > to > > > > help control nausea, to help you keep from > > burning > > > > up your muscle tissue , there are many reasons > > for > > > > the protein based diet while on tx.. so lets > > hope > > > > its not that,, but if it is, they can help > with > > > > lactulose.. The other thing is that the > > Interferon > > > > depletes the brain stores of > > > > seretonin and can cause serious depression and > > > > psych problems,, is he on an antidepressant? > If > > he > > > > is on one like wellbutrin, that is more for > > > dopamine > > > > and not seretonin which is the one that gets > > > > depleted on tx.. maybe he needs his > > antidepressant > > > > if he is on one to have the dose increased... > > some > > > > ppl can get very suicidal and homicidal on > tx.. > > > > thats why I asked.. > > > > let us know,, we are concerned > > > > hugs > > > > jax > > > > > > > > kathy przybyla kloth <kathypfmp@...> > > wrote: > > > > Jackie, > > > > > > > > I will have his ammonia checked with this > round > > of > > > > bloodwork. I am concerned the Fibrosure is not > > > quite > > > > so accurate-so I will be checking into that > too! > > > > > > > > Thank you so much for your support! It means > > more > > > > than you know! > > > > Kathy > > > > --- Jackie on <redjaxjm@...> > wrote: > > > > > > > > > Kathy, I forgot to add this to the other > post > > to > > > > > you, but has his ammonia levels been > checked? > > > > > The Fibrosure is not accurate in total,, its > > > only > === message truncated === ________________________________________________________________________________\ ____ Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out. http://answers./dir/?link=list & sid=396545433 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 No one knows us better than we do, or cares more, either, lol, and why it is best not to put all of one's trust in any doctor, best to do that research and ask for what you feel you need.. Jackie on <redjaxjm@...> wrote: You are right,, docs can miss lots of things,, even my own doc whom I love to death didnt check me for hcv until I asked him too, even tho my alt/ast were askew for years,, we both just thought that they were off depending upon where my weight was,, when I was fat, my labs were high,, when I was skinny, they were normal,, and he always felt very very bad for not finding it sooner,,, Sheena <mom4possums2002 > wrote: I wish that had been the only problem I had.. That's why I am ever telling everyone to do their own research, they may have a "really nice" doc, but if he/she misses something critical, it could cause them many problems, or worse.. Jackie on <redjaxjm > wrote: Sheena, I remember those iron pills and how worried I was about you... you are right ,, sometimes the docs really DONT know what the heck they are doing,, or they are not looking at everything pertaining to your own medical background.. you know what I mean? lolSheena <mom4possums2002 > wrote: I have to tell you that I had my former GI give me iron pills, which did cause me some harm, and even more recently, the doctor that first diagnosed my Hep C, give me antibiotics that were clearly identified as hepatoxic or sure not liver friendly. It is a wonder many of us are still walking around.. Everyone really needs to do their own research with meds.. Sheena Jackie on <redjaxjm > wrote: Oh NO Kathy,, it clearly has a warning for those WITH LIVER DISEASE,, I wonder why she gave it to begin with.... especially with hep c... Its designed for depression and the body pain depression can cause,, but sheesh... well he has to wean off of it slowly and then start with the correct ssri that does not have the same damaging effects to the liver... please know that I will be keeping you and your husband in my prayers and hope that this cymbalta has not damaged his liver in a way that is irreversible..but remember the liver CAN and DOES regenerate itself so hopefully she will take him off before he has fulminant liver failure... whatever you do tho, do not stop any drug immediately and rapidly,, it has to be done slowly or else he will have a rebound problem,, please let me know jaxkathy przybyla kloth <kathypfmp > wrote: Jax,That is exactly what he has been taking for the past 2months!!!! I will be calling the doctor first thingin the morning! I am just sick about this! She gaveit to him to help with his neuropathy too...--- Jackie on <redjaxjm > wrote:> Are you meaning Cymbalta???? THAT is NOT for those> with liver disease honey,,, that could be why he is> going downhill so quickly,,, its got a black box> warning on it for those with liver disease....> Please double check if that is what he is taking,, > there are other ssri's that do not carry that same> risk as cymbalta,, > > kathy przybyla kloth <kathypfmp > wrote:> Jax,> > Thank you for your email! He is already on an> antidepressant called cyambsil (spelling wrong). He> is deteriorating rather quickly. I did call the dr's> office yesterday and had ammonia added to his> labwork.> As far as diet, I have to sneak vegetables in> wherever possible since he is a meat and potatoes> type> of guy. Fortunately, I have been able to modify his> diet and he eats alot more salads and we have pretty> much eliminated potatoes. I push as much fish and> chicken as I can.> > In the past two weeks, he is noticably different.> His> ankles have swollen up like balloons and his 2 big> toenails have turned black. The pain in his right> shoulder is unbearable for him. He has said things> completely out of turn. We both sense his bloodwork> will not be good. I just pray that God is merciful> and takes him quickly if that is what is meant to> be. > In the meantime, we will have by far the best> Halloween, Thanksgiving and Christmas ever!> > Thank you so incredibly much for caring!> Love,> Kathy> --- Jackie on <redjaxjm > wrote:> > > Good Kathy,, I hope its not his ammonia because> that> > would mean his virus is moving along quickly and> > seriously harming his liver,, but IF it is, they> > will give him a nasty medication to fix that tho,,> > so it is controllable by medications along with> > watching the amount of protein he consumes... its> > really a difficult mix because most tx requires> one> > to be on a protein based diet to help it work> > better,, and then if you have ammonia problems ,> > then you have to reduce and watch the amount of> > protein you eat,, so treatment is less effective..> I> > know several ppl who advocate a vegetarian or> vegan> > diet which is really not a good thing when you are> > on tx,, you need the protein for many things,, to> > help control nausea, to help you keep from burning> > up your muscle tissue , there are many reasons for> > the protein based diet while on tx.. so lets hope> > its not that,, but if it is, they can help with> > lactulose.. The other thing is that the Interferon> > depletes the brain stores of> > seretonin and can cause serious depression and> > psych problems,, is he on an antidepressant? If he> > is on one like wellbutrin, that is more for> dopamine> > and not seretonin which is the one that gets> > depleted on tx.. maybe he needs his antidepressant> > if he is on one to have the dose increased... some> > ppl can get very suicidal and homicidal on tx..> > thats why I asked.. > > let us know,, we are concerned> > hugs> > jax> > > > kathy przybyla kloth <kathypfmp > wrote:> > Jackie,> > > > I will have his ammonia checked with this round of> > bloodwork. I am concerned the Fibrosure is not> quite> > so accurate-so I will be checking into that too!> > > > Thank you so much for your support! It means more> > than you know!> > Kathy> > --- Jackie on <redjaxjm > wrote:> > > > > Kathy, I forgot to add this to the other post to> > > you, but has his ammonia levels been checked?> > > The Fibrosure is not accurate in total,, its> only> > > good at the extreme ends of the test,, meaning> its> > > accurate in the 0-1 stage and in stage 4, but> > > inbetween stage 1 and 4 , its not accurate. I> > speak> > > from experience because my fibrosure said I was> > > stage 0-1 when in all reality, I was stage 2-3..> > > thats a big difference.. > > > I'd have his ammonia levels checked because if> > > that rises high enough, it can cause confusion,> > and> > > all sorts of emotional issues... > > > > > > kathypfmp <kathypfmp > wrote:> > > My husband has Hep C and is not on> > > treatment because of his platelet > > > count. In the past few weeks, he has become> > > increasing more difficult, > > > including accusing me of having an affair, etc.> He> > > is on again, off > > > again rational. I sense he is deteriorating> rather> > > quickly and I do > > > not know what to do. Can anyone give me their> > > thoughts? Has this > > > happened to you or a loved one?> > > > > > Thank you in advance!> > > Kathy> > > > > > > > > > > > > > > > > > > > > Jackie> > > >>__________________________________________________________> > Shape in your own image. Join our Network> > Research Panel today!> >>http://surveylink./gmrs/_panel_invite.asp?a=7> > > > > > > > > > > > > > > > Jackie> >__________________________________________________________> Building a website is a piece of cake. Small> Business gives you all the tools to get online.> http://smallbusiness./webhosting > > > > > > Jackie__________________________________________________________Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.http://get.games./proddesc?gamekey=monopolyherenow Jackie Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more. Jackie Check out the hottest 2008 models today at Autos. Jackie Check out the hottest 2008 models today at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 That can only help, good news! Best to you, ]Sheena kathy przybyla kloth <kathypfmp@...> wrote: I spoke with the specialists office this morning. They are making a note of the situation and my husbandwill get his labs done in the morning. Thank you somuch for your support! More to follow...Make it a good day!Kathy--- Jackie on <redjaxjm > wrote:> well good, at least you are moving in the right> direction.. I just dont understand WHY they gave> that to him in the first place unless they didnt> know he had hcv... keep us posted honey,, I hope by> getting him on a different ssri he will get better. > hugs,> jax> > kathy przybyla kloth <kathypfmp > wrote:> Jax,> > The doctor's office dropped him from 60mg Cymbalta> to> 30mg a day. His dr was out but the nurse gave me the> samples for 4 weeks. My husband has an appt with his> doctor in 2 weeks so perhaps she can take him off> then.> --- Jackie on <redjaxjm > wrote:> > > Oh NO Kathy,, it clearly has a warning for those> > WITH LIVER DISEASE,, I wonder why she gave it to> > begin with.... especially with hep c... Its> designed> > for depression and the body pain depression can> > cause,, but sheesh... well he has to wean off of> it> > slowly and then start with the correct ssri that> > does not have the same damaging effects to the> > liver... please know that I will be keeping you> and> > your husband in my prayers and hope that this> > cymbalta has not damaged his liver in a way that> is> > irreversible..but remember the liver CAN and DOES> > regenerate itself so hopefully she will take him> off> > before he has fulminant liver failure... whatever> > you do tho, do not stop any drug immediately and> > rapidly,, it has to be done slowly or else he will> > have a rebound problem,, > > please let me know> > jax> > > > kathy przybyla kloth <kathypfmp > wrote:> > Jax,> > > > That is exactly what he has been taking for the> past> > 2> > months!!!! I will be calling the doctor first> thing> > in the morning! I am just sick about this! She> gave> > it to him to help with his neuropathy too...> > --- Jackie on <redjaxjm > wrote:> > > > > Are you meaning Cymbalta???? THAT is NOT for> those> > > with liver disease honey,,, that could be why he> > is> > > going downhill so quickly,,, its got a black box> > > warning on it for those with liver disease....> > > Please double check if that is what he is> taking,,> > > > > there are other ssri's that do not carry that> same> > > risk as cymbalta,, > > > > > > kathy przybyla kloth <kathypfmp >> wrote:> > > Jax,> > > > > > Thank you for your email! He is already on an> > > antidepressant called cyambsil (spelling wrong).> > He> > > is deteriorating rather quickly. I did call the> > dr's> > > office yesterday and had ammonia added to his> > > labwork.> > > As far as diet, I have to sneak vegetables in> > > wherever possible since he is a meat and> potatoes> > > type> > > of guy. Fortunately, I have been able to modify> > his> > > diet and he eats alot more salads and we have> > pretty> > > much eliminated potatoes. I push as much fish> and> > > chicken as I can.> > > > > > In the past two weeks, he is noticably> different.> > > His> > > ankles have swollen up like balloons and his 2> big> > > toenails have turned black. The pain in his> right> > > shoulder is unbearable for him. He has said> things> > > completely out of turn. We both sense his> > bloodwork> > > will not be good. I just pray that God is> merciful> > > and takes him quickly if that is what is meant> to> > > be. > > > In the meantime, we will have by far the best> > > Halloween, Thanksgiving and Christmas ever!> > > > > > Thank you so incredibly much for caring!> > > Love,> > > Kathy> > > --- Jackie on <redjaxjm > wrote:> > > > > > > Good Kathy,, I hope its not his ammonia> because> > > that> > > > would mean his virus is moving along quickly> and> > > > seriously harming his liver,, but IF it is,> they> > > > will give him a nasty medication to fix that> > tho,,> > > > so it is controllable by medications along> with> > > > watching the amount of protein he consumes...> > its> > > > really a difficult mix because most tx> requires> > > one> > > > to be on a protein based diet to help it work> > > > better,, and then if you have ammonia problems> ,> > > > then you have to reduce and watch the amount> of> > > > protein you eat,, so treatment is less> > effective..> > > I> > > > know several ppl who advocate a vegetarian or> > > vegan> > > > diet which is really not a good thing when you> > are> > > > on tx,, you need the protein for many things,,> > to> > > > help control nausea, to help you keep from> > burning> > > > up your muscle tissue , there are many reasons> > for> > > > the protein based diet while on tx.. so lets> > hope> > > > its not that,, but if it is, they can help> with> > > > lactulose.. The other thing is that the> > Interferon> > > > depletes the brain stores of> > > > seretonin and can cause serious depression and> > > > psych problems,, is he on an antidepressant?> If> > he> > > > is on one like wellbutrin, that is more for> > > dopamine> > > > and not seretonin which is the one that gets> > > > depleted on tx.. maybe he needs his> > antidepressant> > > > if he is on one to have the dose increased...> > some> > > > ppl can get very suicidal and homicidal on> tx..> > > > thats why I asked.. > > > > let us know,, we are concerned> > > > hugs> > > > jax> > > > > > > > kathy przybyla kloth <kathypfmp >> > wrote:> > > > Jackie,> > > > > > > > I will have his ammonia checked with this> round> > of> > > > bloodwork. I am concerned the Fibrosure is not> > > quite> > > > so accurate-so I will be checking into that> too!> > > > > > > > Thank you so much for your support! It means> > more> > > > than you know!> > > > Kathy> > > > --- Jackie on <redjaxjm >> wrote:> > > > > > > > > Kathy, I forgot to add this to the other> post> > to> > > > > you, but has his ammonia levels been> checked?> > > > > The Fibrosure is not accurate in total,, its> > > only> === message truncated ===__________________________________________________________Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out. http://answers./dir/?link=list & sid=396545433 Don't let your dream ride pass you by. Make it a reality with Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 Sheena, I have to admit how stunned I am that the heathcare workers are not as in tune with meds as they should be! I am so thankful I sent out my SOS to the group or who knows what would have happened to my husband! He is not out of the woods yet and we will wait on the results of his CT. Make it a good day! Kathy --- Sheena <mom4possums2002@...> wrote: > I have to tell you that I had my former GI give me > iron pills, > which did cause me some harm, and even more > recently, > the doctor that first diagnosed my Hep C, give me > antibiotics > that were clearly identified as hepatoxic or sure > not liver friendly. > It is a wonder many of us are still walking > around.. > Everyone really needs to do their own research > with meds.. > > Sheena > > > Jackie on <redjaxjm@...> wrote: > Oh NO Kathy,, it clearly has a warning > for those WITH LIVER DISEASE,, I wonder why she gave > it to begin with.... especially with hep c... Its > designed for depression and the body pain depression > can cause,, but sheesh... well he has to wean off of > it slowly and then start with the correct ssri that > does not have the same damaging effects to the > liver... please know that I will be keeping you and > your husband in my prayers and hope that this > cymbalta has not damaged his liver in a way that is > irreversible..but remember the liver CAN and DOES > regenerate itself so hopefully she will take him off > before he has fulminant liver failure... whatever > you do tho, do not stop any drug immediately and > rapidly,, it has to be done slowly or else he will > have a rebound problem,, > please let me know > jax > > kathy przybyla kloth <kathypfmp@...> wrote: > Jax, > > That is exactly what he has been taking for the past > 2 > months!!!! I will be calling the doctor first thing > in the morning! I am just sick about this! She gave > it to him to help with his neuropathy too... > --- Jackie on <redjaxjm@...> wrote: > > > Are you meaning Cymbalta???? THAT is NOT for those > > with liver disease honey,,, that could be why he > is > > going downhill so quickly,,, its got a black box > > warning on it for those with liver disease.... > > Please double check if that is what he is taking,, > > > there are other ssri's that do not carry that same > > risk as cymbalta,, > > > > kathy przybyla kloth <kathypfmp@...> wrote: > > Jax, > > > > Thank you for your email! He is already on an > > antidepressant called cyambsil (spelling wrong). > He > > is deteriorating rather quickly. I did call the > dr's > > office yesterday and had ammonia added to his > > labwork. > > As far as diet, I have to sneak vegetables in > > wherever possible since he is a meat and potatoes > > type > > of guy. Fortunately, I have been able to modify > his > > diet and he eats alot more salads and we have > pretty > > much eliminated potatoes. I push as much fish and > > chicken as I can. > > > > In the past two weeks, he is noticably different. > > His > > ankles have swollen up like balloons and his 2 big > > toenails have turned black. The pain in his right > > shoulder is unbearable for him. He has said things > > completely out of turn. We both sense his > bloodwork > > will not be good. I just pray that God is merciful > > and takes him quickly if that is what is meant to > > be. > > In the meantime, we will have by far the best > > Halloween, Thanksgiving and Christmas ever! > > > > Thank you so incredibly much for caring! > > Love, > > Kathy > > --- Jackie on <redjaxjm@...> wrote: > > > > > Good Kathy,, I hope its not his ammonia because > > that > > > would mean his virus is moving along quickly and > > > seriously harming his liver,, but IF it is, they > > > will give him a nasty medication to fix that > tho,, > > > so it is controllable by medications along with > > > watching the amount of protein he consumes... > its > > > really a difficult mix because most tx requires > > one > > > to be on a protein based diet to help it work > > > better,, and then if you have ammonia problems , > > > then you have to reduce and watch the amount of > > > protein you eat,, so treatment is less > effective.. > > I > > > know several ppl who advocate a vegetarian or > > vegan > > > diet which is really not a good thing when you > are > > > on tx,, you need the protein for many things,, > to > > > help control nausea, to help you keep from > burning > > > up your muscle tissue , there are many reasons > for > > > the protein based diet while on tx.. so lets > hope > > > its not that,, but if it is, they can help with > > > lactulose.. The other thing is that the > Interferon > > > depletes the brain stores of > > > seretonin and can cause serious depression and > > > psych problems,, is he on an antidepressant? If > he > > > is on one like wellbutrin, that is more for > > dopamine > > > and not seretonin which is the one that gets > > > depleted on tx.. maybe he needs his > antidepressant > > > if he is on one to have the dose increased... > some > > > ppl can get very suicidal and homicidal on tx.. > > > thats why I asked.. > > > let us know,, we are concerned > > > hugs > > > jax > > > > > > kathy przybyla kloth <kathypfmp@...> > wrote: > > > Jackie, > > > > > > I will have his ammonia checked with this round > of > > > bloodwork. I am concerned the Fibrosure is not > > quite > > > so accurate-so I will be checking into that too! > > > > > > Thank you so much for your support! It means > more > > > than you know! > > > Kathy > > > --- Jackie on <redjaxjm@...> wrote: > > > > > > > Kathy, I forgot to add this to the other post > to > > > > you, but has his ammonia levels been checked? > > > > The Fibrosure is not accurate in total,, its > > only > > > > good at the extreme ends of the test,, meaning > > its > > > > accurate in the 0-1 stage and in stage 4, but > > > > inbetween stage 1 and 4 , its not accurate. I > > > speak > > > > from experience because my fibrosure said I > was > > > > stage 0-1 when in all reality, I was stage > 2-3.. > > > > thats a big difference.. > > > > I'd have his ammonia levels checked because if > > > > that rises high enough, it can cause > confusion, > > > and > > > > all sorts of emotional issues... > > > > > > > > kathypfmp <kathypfmp@...> wrote: > > > > My husband has Hep C and is not on > > > > treatment because of his platelet > > > > count. In the past few weeks, he has become > > > > increasing more difficult, > > > > including accusing me of having an affair, > etc. > > He > > > > is on again, off > > > > again rational. I sense he is deteriorating > > rather > > > > quickly and I do > > > > not know what to do. Can anyone give me their > > > > thoughts? Has this > > > > happened to you or a loved one? > > > > > > > > Thank you in advance! > > > > Kathy > > > > > > > > > > > > > === message truncated === ________________________________________________________________________________\ ____ Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. http://sims./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 Kathy, I could have well already been deceased had I not found this Group, it has sure taught me to be constantly vigilant.. Take care, Sheena kathy przybyla kloth <kathypfmp@...> wrote: Sheena,I have to admit how stunned I am that the heathcareworkers are not as in tune with meds as they shouldbe! I am so thankful I sent out my SOS to the groupor who knows what would have happened to my husband! He is not out of the woods yet and we will wait on theresults of his CT.Make it a good day!Kathy--- Sheena <mom4possums2002 > wrote:> I have to tell you that I had my former GI give me> iron pills,> which did cause me some harm, and even more> recently, > the doctor that first diagnosed my Hep C, give me> antibiotics> that were clearly identified as hepatoxic or sure> not liver friendly.> It is a wonder many of us are still walking> around..> Everyone really needs to do their own research> with meds..> > Sheena> > > Jackie on <redjaxjm > wrote:> Oh NO Kathy,, it clearly has a warning> for those WITH LIVER DISEASE,, I wonder why she gave> it to begin with.... especially with hep c... Its> designed for depression and the body pain depression> can cause,, but sheesh... well he has to wean off of> it slowly and then start with the correct ssri that> does not have the same damaging effects to the> liver... please know that I will be keeping you and> your husband in my prayers and hope that this> cymbalta has not damaged his liver in a way that is> irreversible..but remember the liver CAN and DOES> regenerate itself so hopefully she will take him off> before he has fulminant liver failure... whatever> you do tho, do not stop any drug immediately and> rapidly,, it has to be done slowly or else he will> have a rebound problem,, > please let me know> jax> > kathy przybyla kloth <kathypfmp > wrote:> Jax,> > That is exactly what he has been taking for the past> 2> months!!!! I will be calling the doctor first thing> in the morning! I am just sick about this! She gave> it to him to help with his neuropathy too...> --- Jackie on <redjaxjm > wrote:> > > Are you meaning Cymbalta???? THAT is NOT for those> > with liver disease honey,,, that could be why he> is> > going downhill so quickly,,, its got a black box> > warning on it for those with liver disease....> > Please double check if that is what he is taking,,> > > there are other ssri's that do not carry that same> > risk as cymbalta,, > > > > kathy przybyla kloth <kathypfmp > wrote:> > Jax,> > > > Thank you for your email! He is already on an> > antidepressant called cyambsil (spelling wrong).> He> > is deteriorating rather quickly. I did call the> dr's> > office yesterday and had ammonia added to his> > labwork.> > As far as diet, I have to sneak vegetables in> > wherever possible since he is a meat and potatoes> > type> > of guy. Fortunately, I have been able to modify> his> > diet and he eats alot more salads and we have> pretty> > much eliminated potatoes. I push as much fish and> > chicken as I can.> > > > In the past two weeks, he is noticably different.> > His> > ankles have swollen up like balloons and his 2 big> > toenails have turned black. The pain in his right> > shoulder is unbearable for him. He has said things> > completely out of turn. We both sense his> bloodwork> > will not be good. I just pray that God is merciful> > and takes him quickly if that is what is meant to> > be. > > In the meantime, we will have by far the best> > Halloween, Thanksgiving and Christmas ever!> > > > Thank you so incredibly much for caring!> > Love,> > Kathy> > --- Jackie on <redjaxjm > wrote:> > > > > Good Kathy,, I hope its not his ammonia because> > that> > > would mean his virus is moving along quickly and> > > seriously harming his liver,, but IF it is, they> > > will give him a nasty medication to fix that> tho,,> > > so it is controllable by medications along with> > > watching the amount of protein he consumes...> its> > > really a difficult mix because most tx requires> > one> > > to be on a protein based diet to help it work> > > better,, and then if you have ammonia problems ,> > > then you have to reduce and watch the amount of> > > protein you eat,, so treatment is less> effective..> > I> > > know several ppl who advocate a vegetarian or> > vegan> > > diet which is really not a good thing when you> are> > > on tx,, you need the protein for many things,,> to> > > help control nausea, to help you keep from> burning> > > up your muscle tissue , there are many reasons> for> > > the protein based diet while on tx.. so lets> hope> > > its not that,, but if it is, they can help with> > > lactulose.. The other thing is that the> Interferon> > > depletes the brain stores of> > > seretonin and can cause serious depression and> > > psych problems,, is he on an antidepressant? If> he> > > is on one like wellbutrin, that is more for> > dopamine> > > and not seretonin which is the one that gets> > > depleted on tx.. maybe he needs his> antidepressant> > > if he is on one to have the dose increased...> some> > > ppl can get very suicidal and homicidal on tx..> > > thats why I asked.. > > > let us know,, we are concerned> > > hugs> > > jax> > > > > > kathy przybyla kloth <kathypfmp >> wrote:> > > Jackie,> > > > > > I will have his ammonia checked with this round> of> > > bloodwork. I am concerned the Fibrosure is not> > quite> > > so accurate-so I will be checking into that too!> > > > > > Thank you so much for your support! It means> more> > > than you know!> > > Kathy> > > --- Jackie on <redjaxjm > wrote:> > > > > > > Kathy, I forgot to add this to the other post> to> > > > you, but has his ammonia levels been checked?> > > > The Fibrosure is not accurate in total,, its> > only> > > > good at the extreme ends of the test,, meaning> > its> > > > accurate in the 0-1 stage and in stage 4, but> > > > inbetween stage 1 and 4 , its not accurate. I> > > speak> > > > from experience because my fibrosure said I> was> > > > stage 0-1 when in all reality, I was stage> 2-3..> > > > thats a big difference.. > > > > I'd have his ammonia levels checked because if> > > > that rises high enough, it can cause> confusion,> > > and> > > > all sorts of emotional issues... > > > > > > > > kathypfmp <kathypfmp > wrote:> > > > My husband has Hep C and is not on> > > > treatment because of his platelet > > > > count. In the past few weeks, he has become> > > > increasing more difficult, > > > > including accusing me of having an affair,> etc.> > He> > > > is on again, off > > > > again rational. I sense he is deteriorating> > rather> > > > quickly and I do > > > > not know what to do. Can anyone give me their> > > > thoughts? Has this > > > > happened to you or a loved one?> > > > > > > > Thank you in advance!> > > > Kathy> > > > > > > > > > > > > === message truncated ===__________________________________________________________Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games.http://sims./ Building a website is a piece of cake. Small Business gives you all the tools to get online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 GREAT Kathy! Well they need to get him off cymbalta and onto something that is more liver friendly.. asap... keep us posted honey..kathy przybyla kloth <kathypfmp@...> wrote: I spoke with the specialists office this morning. They are making a note of the situation and my husbandwill get his labs done in the morning. Thank you somuch for your support! More to follow...Make it a good day!Kathy--- Jackie on <redjaxjm > wrote:> well good, at least you are moving in the right> direction.. I just dont understand WHY they gave> that to him in the first place unless they didnt> know he had hcv... keep us posted honey,, I hope by> getting him on a different ssri he will get better. > hugs,> jax> > kathy przybyla kloth <kathypfmp > wrote:> Jax,> > The doctor's office dropped him from 60mg Cymbalta> to> 30mg a day. His dr was out but the nurse gave me the> samples for 4 weeks. My husband has an appt with his> doctor in 2 weeks so perhaps she can take him off> then.> --- Jackie on <redjaxjm > wrote:> > > Oh NO Kathy,, it clearly has a warning for those> > WITH LIVER DISEASE,, I wonder why she gave it to> > begin with.... especially with hep c... Its> designed> > for depression and the body pain depression can> > cause,, but sheesh... well he has to wean off of> it> > slowly and then start with the correct ssri that> > does not have the same damaging effects to the> > liver... please know that I will be keeping you> and> > your husband in my prayers and hope that this> > cymbalta has not damaged his liver in a way that> is> > irreversible..but remember the liver CAN and DOES> > regenerate itself so hopefully she will take him> off> > before he has fulminant liver failure... whatever> > you do tho, do not stop any drug immediately and> > rapidly,, it has to be done slowly or else he will> > have a rebound problem,, > > please let me know> > jax> > > > kathy przybyla kloth <kathypfmp > wrote:> > Jax,> > > > That is exactly what he has been taking for the> past> > 2> > months!!!! I will be calling the doctor first> thing> > in the morning! I am just sick about this! She> gave> > it to him to help with his neuropathy too...> > --- Jackie on <redjaxjm > wrote:> > > > > Are you meaning Cymbalta???? THAT is NOT for> those> > > with liver disease honey,,, that could be why he> > is> > > going downhill so quickly,,, its got a black box> > > warning on it for those with liver disease....> > > Please double check if that is what he is> taking,,> > > > > there are other ssri's that do not carry that> same> > > risk as cymbalta,, > > > > > > kathy przybyla kloth <kathypfmp >> wrote:> > > Jax,> > > > > > Thank you for your email! He is already on an> > > antidepressant called cyambsil (spelling wrong).> > He> > > is deteriorating rather quickly. I did call the> > dr's> > > office yesterday and had ammonia added to his> > > labwork.> > > As far as diet, I have to sneak vegetables in> > > wherever possible since he is a meat and> potatoes> > > type> > > of guy. Fortunately, I have been able to modify> > his> > > diet and he eats alot more salads and we have> > pretty> > > much eliminated potatoes. I push as much fish> and> > > chicken as I can.> > > > > > In the past two weeks, he is noticably> different.> > > His> > > ankles have swollen up like balloons and his 2> big> > > toenails have turned black. The pain in his> right> > > shoulder is unbearable for him. He has said> things> > > completely out of turn. We both sense his> > bloodwork> > > will not be good. I just pray that God is> merciful> > > and takes him quickly if that is what is meant> to> > > be. > > > In the meantime, we will have by far the best> > > Halloween, Thanksgiving and Christmas ever!> > > > > > Thank you so incredibly much for caring!> > > Love,> > > Kathy> > > --- Jackie on <redjaxjm > wrote:> > > > > > > Good Kathy,, I hope its not his ammonia> because> > > that> > > > would mean his virus is moving along quickly> and> > > > seriously harming his liver,, but IF it is,> they> > > > will give him a nasty medication to fix that> > tho,,> > > > so it is controllable by medications along> with> > > > watching the amount of protein he consumes...> > its> > > > really a difficult mix because most tx> requires> > > one> > > > to be on a protein based diet to help it work> > > > better,, and then if you have ammonia problems> ,> > > > then you have to reduce and watch the amount> of> > > > protein you eat,, so treatment is less> > effective..> > > I> > > > know several ppl who advocate a vegetarian or> > > vegan> > > > diet which is really not a good thing when you> > are> > > > on tx,, you need the protein for many things,,> > to> > > > help control nausea, to help you keep from> > burning> > > > up your muscle tissue , there are many reasons> > for> > > > the protein based diet while on tx.. so lets> > hope> > > > its not that,, but if it is, they can help> with> > > > lactulose.. The other thing is that the> > Interferon> > > > depletes the brain stores of> > > > seretonin and can cause serious depression and> > > > psych problems,, is he on an antidepressant?> If> > he> > > > is on one like wellbutrin, that is more for> > > dopamine> > > > and not seretonin which is the one that gets> > > > depleted on tx.. maybe he needs his> > antidepressant> > > > if he is on one to have the dose increased...> > some> > > > ppl can get very suicidal and homicidal on> tx..> > > > thats why I asked.. > > > > let us know,, we are concerned> > > > hugs> > > > jax> > > > > > > > kathy przybyla kloth <kathypfmp >> > wrote:> > > > Jackie,> > > > > > > > I will have his ammonia checked with this> round> > of> > > > bloodwork. I am concerned the Fibrosure is not> > > quite> > > > so accurate-so I will be checking into that> too!> > > > > > > > Thank you so much for your support! It means> > more> > > > than you know!> > > > Kathy> > > > --- Jackie on <redjaxjm >> wrote:> > > > > > > > > Kathy, I forgot to add this to the other> post> > to> > > > > you, but has his ammonia levels been> checked?> > > > > The Fibrosure is not accurate in total,, its> > > only> === message truncated ===__________________________________________________________Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out. http://answers./dir/?link=list & sid=396545433Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 Yep,,, I have learned that I MUST be responsible for MY OWN health,, I learned that a long time ago,, but its so nice to have this group to fall back upon,, because no one person can remember everything..Sheena <mom4possums2002@...> wrote: No one knows us better than we do, or cares more, either, lol, and why it is best not to put all of one's trust in any doctor, best to do that research and ask for what you feel you need.. Jackie on <redjaxjm > wrote: You are right,, docs can miss lots of things,, even my own doc whom I love to death didnt check me for hcv until I asked him too, even tho my alt/ast were askew for years,, we both just thought that they were off depending upon where my weight was,, when I was fat, my labs were high,, when I was skinny, they were normal,, and he always felt very very bad for not finding it sooner,,, Sheena <mom4possums2002 > wrote: I wish that had been the only problem I had.. That's why I am ever telling everyone to do their own research, they may have a "really nice" doc, but if he/she misses something critical, it could cause them many problems, or worse.. Jackie on <redjaxjm > wrote: Sheena, I remember those iron pills and how worried I was about you... you are right ,, sometimes the docs really DONT know what the heck they are doing,, or they are not looking at everything pertaining to your own medical background.. you know what I mean? lolSheena <mom4possums2002 > wrote: I have to tell you that I had my former GI give me iron pills, which did cause me some harm, and even more recently, the doctor that first diagnosed my Hep C, give me antibiotics that were clearly identified as hepatoxic or sure not liver friendly. It is a wonder many of us are still walking around.. Everyone really needs to do their own research with meds.. Sheena Jackie on <redjaxjm > wrote: Oh NO Kathy,, it clearly has a warning for those WITH LIVER DISEASE,, I wonder why she gave it to begin with.... especially with hep c... Its designed for depression and the body pain depression can cause,, but sheesh... well he has to wean off of it slowly and then start with the correct ssri that does not have the same damaging effects to the liver... please know that I will be keeping you and your husband in my prayers and hope that this cymbalta has not damaged his liver in a way that is irreversible..but remember the liver CAN and DOES regenerate itself so hopefully she will take him off before he has fulminant liver failure... whatever you do tho, do not stop any drug immediately and rapidly,, it has to be done slowly or else he will have a rebound problem,, please let me know jaxkathy przybyla kloth <kathypfmp > wrote: Jax,That is exactly what he has been taking for the past 2months!!!! I will be calling the doctor first thingin the morning! I am just sick about this! She gaveit to him to help with his neuropathy too...--- Jackie on <redjaxjm > wrote:> Are you meaning Cymbalta???? THAT is NOT for those> with liver disease honey,,, that could be why he is> going downhill so quickly,,, its got a black box> warning on it for those with liver disease....> Please double check if that is what he is taking,, > there are other ssri's that do not carry that same> risk as cymbalta,, > > kathy przybyla kloth <kathypfmp > wrote:> Jax,> > Thank you for your email! He is already on an> antidepressant called cyambsil (spelling wrong). He> is deteriorating rather quickly. I did call the dr's> office yesterday and had ammonia added to his> labwork.> As far as diet, I have to sneak vegetables in> wherever possible since he is a meat and potatoes> type> of guy. Fortunately, I have been able to modify his> diet and he eats alot more salads and we have pretty> much eliminated potatoes. I push as much fish and> chicken as I can.> > In the past two weeks, he is noticably different.> His> ankles have swollen up like balloons and his 2 big> toenails have turned black. The pain in his right> shoulder is unbearable for him. He has said things> completely out of turn. We both sense his bloodwork> will not be good. I just pray that God is merciful> and takes him quickly if that is what is meant to> be. > In the meantime, we will have by far the best> Halloween, Thanksgiving and Christmas ever!> > Thank you so incredibly much for caring!> Love,> Kathy> --- Jackie on <redjaxjm > wrote:> > > Good Kathy,, I hope its not his ammonia because> that> > would mean his virus is moving along quickly and> > seriously harming his liver,, but IF it is, they> > will give him a nasty medication to fix that tho,,> > so it is controllable by medications along with> > watching the amount of protein he consumes... its> > really a difficult mix because most tx requires> one> > to be on a protein based diet to help it work> > better,, and then if you have ammonia problems ,> > then you have to reduce and watch the amount of> > protein you eat,, so treatment is less effective..> I> > know several ppl who advocate a vegetarian or> vegan> > diet which is really not a good thing when you are> > on tx,, you need the protein for many things,, to> > help control nausea, to help you keep from burning> > up your muscle tissue , there are many reasons for> > the protein based diet while on tx.. so lets hope> > its not that,, but if it is, they can help with> > lactulose.. The other thing is that the Interferon> > depletes the brain stores of> > seretonin and can cause serious depression and> > psych problems,, is he on an antidepressant? If he> > is on one like wellbutrin, that is more for> dopamine> > and not seretonin which is the one that gets> > depleted on tx.. maybe he needs his antidepressant> > if he is on one to have the dose increased... some> > ppl can get very suicidal and homicidal on tx..> > thats why I asked.. > > let us know,, we are concerned> > hugs> > jax> > > > kathy przybyla kloth <kathypfmp > wrote:> > Jackie,> > > > I will have his ammonia checked with this round of> > bloodwork. I am concerned the Fibrosure is not> quite> > so accurate-so I will be checking into that too!> > > > Thank you so much for your support! It means more> > than you know!> > Kathy> > --- Jackie on <redjaxjm > wrote:> > > > > Kathy, I forgot to add this to the other post to> > > you, but has his ammonia levels been checked?> > > The Fibrosure is not accurate in total,, its> only> > > good at the extreme ends of the test,, meaning> its> > > accurate in the 0-1 stage and in stage 4, but> > > inbetween stage 1 and 4 , its not accurate. I> > speak> > > from experience because my fibrosure said I was> > > stage 0-1 when in all reality, I was stage 2-3..> > > thats a big difference.. > > > I'd have his ammonia levels checked because if> > > that rises high enough, it can cause confusion,> > and> > > all sorts of emotional issues... > > > > > > kathypfmp <kathypfmp > wrote:> > > My husband has Hep C and is not on> > > treatment because of his platelet > > > count. In the past few weeks, he has become> > > increasing more difficult, > > > including accusing me of having an affair, etc.> He> > > is on again, off > > > again rational. I sense he is deteriorating> rather> > > quickly and I do > > > not know what to do. Can anyone give me their> > > thoughts? Has this > > > happened to you or a loved one?> > > > > > Thank you in advance!> > > Kathy> > > > > > > > > > > > > > > > > > > > > Jackie> > > >>__________________________________________________________> > Shape in your own image. Join our Network> > Research Panel today!> >>http://surveylink./gmrs/_panel_invite.asp?a=7> > > > > > > > > > > > > > > > Jackie> >__________________________________________________________> Building a website is a piece of cake. Small> Business gives you all the tools to get online.> http://smallbusiness./webhosting > > > > > > Jackie__________________________________________________________Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.http://get.games./proddesc?gamekey=monopolyherenow Jackie Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more. Jackie Check out the hottest 2008 models today at Autos. Jackie Check out the hottest 2008 models today at Autos. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 I can second that 100+%, and I would have been in deep doo had you not kept pushing me.. Jackie on <redjaxjm@...> wrote: Yep,,, I have learned that I MUST be responsible for MY OWN health,, I learned that a long time ago,, but its so nice to have this group to fall back upon,, because no one person can remember everything..Sheena <mom4possums2002 > wrote: No one knows us better than we do, or cares more, either, lol, and why it is best not to put all of one's trust in any doctor, best to do that research and ask for what you feel you need.. Jackie on <redjaxjm > wrote: You are right,, docs can miss lots of things,, even my own doc whom I love to death didnt check me for hcv until I asked him too, even tho my alt/ast were askew for years,, we both just thought that they were off depending upon where my weight was,, when I was fat, my labs were high,, when I was skinny, they were normal,, and he always felt very very bad for not finding it sooner,,, Sheena <mom4possums2002 > wrote: I wish that had been the only problem I had.. That's why I am ever telling everyone to do their own research, they may have a "really nice" doc, but if he/she misses something critical, it could cause them many problems, or worse.. Jackie on <redjaxjm > wrote: Sheena, I remember those iron pills and how worried I was about you... you are right ,, sometimes the docs really DONT know what the heck they are doing,, or they are not looking at everything pertaining to your own medical background.. you know what I mean? lolSheena <mom4possums2002 > wrote: I have to tell you that I had my former GI give me iron pills, which did cause me some harm, and even more recently, the doctor that first diagnosed my Hep C, give me antibiotics that were clearly identified as hepatoxic or sure not liver friendly. It is a wonder many of us are still walking around.. Everyone really needs to do their own research with meds.. Sheena Jackie on <redjaxjm > wrote: Oh NO Kathy,, it clearly has a warning for those WITH LIVER DISEASE,, I wonder why she gave it to begin with.... especially with hep c... Its designed for depression and the body pain depression can cause,, but sheesh... well he has to wean off of it slowly and then start with the correct ssri that does not have the same damaging effects to the liver... please know that I will be keeping you and your husband in my prayers and hope that this cymbalta has not damaged his liver in a way that is irreversible..but remember the liver CAN and DOES regenerate itself so hopefully she will take him off before he has fulminant liver failure... whatever you do tho, do not stop any drug immediately and rapidly,, it has to be done slowly or else he will have a rebound problem,, please let me know jaxkathy przybyla kloth <kathypfmp > wrote: Jax,That is exactly what he has been taking for the past 2months!!!! I will be calling the doctor first thingin the morning! I am just sick about this! She gaveit to him to help with his neuropathy too...--- Jackie on <redjaxjm > wrote:> Are you meaning Cymbalta???? THAT is NOT for those> with liver disease honey,,, that could be why he is> going downhill so quickly,,, its got a black box> warning on it for those with liver disease....> Please double check if that is what he is taking,, > there are other ssri's that do not carry that same> risk as cymbalta,, > > kathy przybyla kloth <kathypfmp > wrote:> Jax,> > Thank you for your email! He is already on an> antidepressant called cyambsil (spelling wrong). He> is deteriorating rather quickly. I did call the dr's> office yesterday and had ammonia added to his> labwork.> As far as diet, I have to sneak vegetables in> wherever possible since he is a meat and potatoes> type> of guy. Fortunately, I have been able to modify his> diet and he eats alot more salads and we have pretty> much eliminated potatoes. I push as much fish and> chicken as I can.> > In the past two weeks, he is noticably different.> His> ankles have swollen up like balloons and his 2 big> toenails have turned black. The pain in his right> shoulder is unbearable for him. He has said things> completely out of turn. We both sense his bloodwork> will not be good. I just pray that God is merciful> and takes him quickly if that is what is meant to> be. > In the meantime, we will have by far the best> Halloween, Thanksgiving and Christmas ever!> > Thank you so incredibly much for caring!> Love,> Kathy> --- Jackie on <redjaxjm > wrote:> > > Good Kathy,, I hope its not his ammonia because> that> > would mean his virus is moving along quickly and> > seriously harming his liver,, but IF it is, they> > will give him a nasty medication to fix that tho,,> > so it is controllable by medications along with> > watching the amount of protein he consumes... its> > really a difficult mix because most tx requires> one> > to be on a protein based diet to help it work> > better,, and then if you have ammonia problems ,> > then you have to reduce and watch the amount of> > protein you eat,, so treatment is less effective..> I> > know several ppl who advocate a vegetarian or> vegan> > diet which is really not a good thing when you are> > on tx,, you need the protein for many things,, to> > help control nausea, to help you keep from burning> > up your muscle tissue , there are many reasons for> > the protein based diet while on tx.. so lets hope> > its not that,, but if it is, they can help with> > lactulose.. The other thing is that the Interferon> > depletes the brain stores of> > seretonin and can cause serious depression and> > psych problems,, is he on an antidepressant? If he> > is on one like wellbutrin, that is more for> dopamine> > and not seretonin which is the one that gets> > depleted on tx.. maybe he needs his antidepressant> > if he is on one to have the dose increased... some> > ppl can get very suicidal and homicidal on tx..> > thats why I asked.. > > let us know,, we are concerned> > hugs> > jax> > > > kathy przybyla kloth <kathypfmp > wrote:> > Jackie,> > > > I will have his ammonia checked with this round of> > bloodwork. I am concerned the Fibrosure is not> quite> > so accurate-so I will be checking into that too!> > > > Thank you so much for your support! It means more> > than you know!> > Kathy> > --- Jackie on <redjaxjm > wrote:> > > > > Kathy, I forgot to add this to the other post to> > > you, but has his ammonia levels been checked?> > > The Fibrosure is not accurate in total,, its> only> > > good at the extreme ends of the test,, meaning> its> > > accurate in the 0-1 stage and in stage 4, but> > > inbetween stage 1 and 4 , its not accurate. I> > speak> > > from experience because my fibrosure said I was> > > stage 0-1 when in all reality, I was stage 2-3..> > > thats a big difference.. > > > I'd have his ammonia levels checked because if> > > that rises high enough, it can cause confusion,> > and> > > all sorts of emotional issues... > > > > > > kathypfmp <kathypfmp > wrote:> > > My husband has Hep C and is not on> > > treatment because of his platelet > > > count. In the past few weeks, he has become> > > increasing more difficult, > > > including accusing me of having an affair, etc.> He> > > is on again, off > > > again rational. I sense he is deteriorating> rather> > > quickly and I do > > > not know what to do. Can anyone give me their> > > thoughts? Has this > > > happened to you or a loved one?> > > > > > Thank you in advance!> > > Kathy> > > > > > > > > > > > > > > > > > > > > Jackie> > > >>__________________________________________________________> > Shape in your own image. Join our Network> > Research Panel today!> >>http://surveylink./gmrs/_panel_invite.asp?a=7> > > > > > > > > > > > > > > > Jackie> >__________________________________________________________> Building a website is a piece of cake. Small> Business gives you all the tools to get online.> http://smallbusiness./webhosting > > > > > > Jackie__________________________________________________________Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.http://get.games./proddesc?gamekey=monopolyherenow Jackie Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more. Jackie Check out the hottest 2008 models today at Autos. Jackie Check out the hottest 2008 models today at Autos. Jackie oneSearch: Finally, mobile search that gives answers, not web links. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 well IM GLAD that you are not in deep doo doo,, haha,, love you Sheena!Sheena <mom4possums2002@...> wrote: I can second that 100+%, and I would have been in deep doo had you not kept pushing me.. Jackie on <redjaxjm > wrote: Yep,,, I have learned that I MUST be responsible for MY OWN health,, I learned that a long time ago,, but its so nice to have this group to fall back upon,, because no one person can remember everything..Sheena <mom4possums2002 > wrote: No one knows us better than we do, or cares more, either, lol, and why it is best not to put all of one's trust in any doctor, best to do that research and ask for what you feel you need.. Jackie on <redjaxjm > wrote: You are right,, docs can miss lots of things,, even my own doc whom I love to death didnt check me for hcv until I asked him too, even tho my alt/ast were askew for years,, we both just thought that they were off depending upon where my weight was,, when I was fat, my labs were high,, when I was skinny, they were normal,, and he always felt very very bad for not finding it sooner,,, Sheena <mom4possums2002 > wrote: I wish that had been the only problem I had.. That's why I am ever telling everyone to do their own research, they may have a "really nice" doc, but if he/she misses something critical, it could cause them many problems, or worse.. Jackie on <redjaxjm > wrote: Sheena, I remember those iron pills and how worried I was about you... you are right ,, sometimes the docs really DONT know what the heck they are doing,, or they are not looking at everything pertaining to your own medical background.. you know what I mean? lolSheena <mom4possums2002 > wrote: I have to tell you that I had my former GI give me iron pills, which did cause me some harm, and even more recently, the doctor that first diagnosed my Hep C, give me antibiotics that were clearly identified as hepatoxic or sure not liver friendly. It is a wonder many of us are still walking around.. Everyone really needs to do their own research with meds.. Sheena Jackie on <redjaxjm > wrote: Oh NO Kathy,, it clearly has a warning for those WITH LIVER DISEASE,, I wonder why she gave it to begin with.... especially with hep c... Its designed for depression and the body pain depression can cause,, but sheesh... well he has to wean off of it slowly and then start with the correct ssri that does not have the same damaging effects to the liver... please know that I will be keeping you and your husband in my prayers and hope that this cymbalta has not damaged his liver in a way that is irreversible..but remember the liver CAN and DOES regenerate itself so hopefully she will take him off before he has fulminant liver failure... whatever you do tho, do not stop any drug immediately and rapidly,, it has to be done slowly or else he will have a rebound problem,, please let me know jaxkathy przybyla kloth <kathypfmp > wrote: Jax,That is exactly what he has been taking for the past 2months!!!! I will be calling the doctor first thingin the morning! I am just sick about this! She gaveit to him to help with his neuropathy too...--- Jackie on <redjaxjm > wrote:> Are you meaning Cymbalta???? THAT is NOT for those> with liver disease honey,,, that could be why he is> going downhill so quickly,,, its got a black box> warning on it for those with liver disease....> Please double check if that is what he is taking,, > there are other ssri's that do not carry that same> risk as cymbalta,, > > kathy przybyla kloth <kathypfmp > wrote:> Jax,> > Thank you for your email! He is already on an> antidepressant called cyambsil (spelling wrong). He> is deteriorating rather quickly. I did call the dr's> office yesterday and had ammonia added to his> labwork.> As far as diet, I have to sneak vegetables in> wherever possible since he is a meat and potatoes> type> of guy. Fortunately, I have been able to modify his> diet and he eats alot more salads and we have pretty> much eliminated potatoes. I push as much fish and> chicken as I can.> > In the past two weeks, he is noticably different.> His> ankles have swollen up like balloons and his 2 big> toenails have turned black. The pain in his right> shoulder is unbearable for him. He has said things> completely out of turn. We both sense his bloodwork> will not be good. I just pray that God is merciful> and takes him quickly if that is what is meant to> be. > In the meantime, we will have by far the best> Halloween, Thanksgiving and Christmas ever!> > Thank you so incredibly much for caring!> Love,> Kathy> --- Jackie on <redjaxjm > wrote:> > > Good Kathy,, I hope its not his ammonia because> that> > would mean his virus is moving along quickly and> > seriously harming his liver,, but IF it is, they> > will give him a nasty medication to fix that tho,,> > so it is controllable by medications along with> > watching the amount of protein he consumes... its> > really a difficult mix because most tx requires> one> > to be on a protein based diet to help it work> > better,, and then if you have ammonia problems ,> > then you have to reduce and watch the amount of> > protein you eat,, so treatment is less effective..> I> > know several ppl who advocate a vegetarian or> vegan> > diet which is really not a good thing when you are> > on tx,, you need the protein for many things,, to> > help control nausea, to help you keep from burning> > up your muscle tissue , there are many reasons for> > the protein based diet while on tx.. so lets hope> > its not that,, but if it is, they can help with> > lactulose.. The other thing is that the Interferon> > depletes the brain stores of> > seretonin and can cause serious depression and> > psych problems,, is he on an antidepressant? If he> > is on one like wellbutrin, that is more for> dopamine> > and not seretonin which is the one that gets> > depleted on tx.. maybe he needs his antidepressant> > if he is on one to have the dose increased... some> > ppl can get very suicidal and homicidal on tx..> > thats why I asked.. > > let us know,, we are concerned> > hugs> > jax> > > > kathy przybyla kloth <kathypfmp > wrote:> > Jackie,> > > > I will have his ammonia checked with this round of> > bloodwork. I am concerned the Fibrosure is not> quite> > so accurate-so I will be checking into that too!> > > > Thank you so much for your support! It means more> > than you know!> > Kathy> > --- Jackie on <redjaxjm > wrote:> > > > > Kathy, I forgot to add this to the other post to> > > you, but has his ammonia levels been checked?> > > The Fibrosure is not accurate in total,, its> only> > > good at the extreme ends of the test,, meaning> its> > > accurate in the 0-1 stage and in stage 4, but> > > inbetween stage 1 and 4 , its not accurate. I> > speak> > > from experience because my fibrosure said I was> > > stage 0-1 when in all reality, I was stage 2-3..> > > thats a big difference.. > > > I'd have his ammonia levels checked because if> > > that rises high enough, it can cause confusion,> > and> > > all sorts of emotional issues... > > > > > > kathypfmp <kathypfmp > wrote:> > > My husband has Hep C and is not on> > > treatment because of his platelet > > > count. In the past few weeks, he has become> > > increasing more difficult, > > > including accusing me of having an affair, etc.> He> > > is on again, off > > > again rational. I sense he is deteriorating> rather> > > quickly and I do > > > not know what to do. Can anyone give me their> > > thoughts? Has this > > > happened to you or a loved one?> > > > > > Thank you in advance!> > > Kathy> > > > > > > > > > > > > > > > > > > > > Jackie> > > >>__________________________________________________________> > Shape in your own image. Join our Network> > Research Panel today!> >>http://surveylink./gmrs/_panel_invite.asp?a=7> > > > > > > > > > > > > > > > Jackie> >__________________________________________________________> Building a website is a piece of cake. Small> Business gives you all the tools to get online.> http://smallbusiness./webhosting > > > > > > Jackie__________________________________________________________Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.http://get.games./proddesc?gamekey=monopolyherenow Jackie Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more. Jackie Check out the hottest 2008 models today at Autos. Jackie Check out the hottest 2008 models today at Autos. Jackie oneSearch: Finally, mobile search that gives answers, not web links. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 Still here, thanks to your non-stop hollering, and back at ya! Jackie on <redjaxjm@...> wrote: well IM GLAD that you are not in deep doo doo,, haha,, love you Sheena!Sheena <mom4possums2002 > wrote: I can second that 100+%, and I would have been in deep doo had you not kept pushing me.. Jackie on <redjaxjm > wrote: Yep,,, I have learned that I MUST be responsible for MY OWN health,, I learned that a long time ago,, but its so nice to have this group to fall back upon,, because no one person can remember everything..Sheena <mom4possums2002 > wrote: No one knows us better than we do, or cares more, either, lol, and why it is best not to put all of one's trust in any doctor, best to do that research and ask for what you feel you need.. Jackie on <redjaxjm > wrote: You are right,, docs can miss lots of things,, even my own doc whom I love to death didnt check me for hcv until I asked him too, even tho my alt/ast were askew for years,, we both just thought that they were off depending upon where my weight was,, when I was fat, my labs were high,, when I was skinny, they were normal,, and he always felt very very bad for not finding it sooner,,, Sheena <mom4possums2002 > wrote: I wish that had been the only problem I had.. That's why I am ever telling everyone to do their own research, they may have a "really nice" doc, but if he/she misses something critical, it could cause them many problems, or worse.. Jackie on <redjaxjm > wrote: Sheena, I remember those iron pills and how worried I was about you... you are right ,, sometimes the docs really DONT know what the heck they are doing,, or they are not looking at everything pertaining to your own medical background.. you know what I mean? lolSheena <mom4possums2002 > wrote: I have to tell you that I had my former GI give me iron pills, which did cause me some harm, and even more recently, the doctor that first diagnosed my Hep C, give me antibiotics that were clearly identified as hepatoxic or sure not liver friendly. It is a wonder many of us are still walking around.. Everyone really needs to do their own research with meds.. Sheena Jackie on <redjaxjm > wrote: Oh NO Kathy,, it clearly has a warning for those WITH LIVER DISEASE,, I wonder why she gave it to begin with.... especially with hep c... Its designed for depression and the body pain depression can cause,, but sheesh... well he has to wean off of it slowly and then start with the correct ssri that does not have the same damaging effects to the liver... please know that I will be keeping you and your husband in my prayers and hope that this cymbalta has not damaged his liver in a way that is irreversible..but remember the liver CAN and DOES regenerate itself so hopefully she will take him off before he has fulminant liver failure... whatever you do tho, do not stop any drug immediately and rapidly,, it has to be done slowly or else he will have a rebound problem,, please let me know jaxkathy przybyla kloth <kathypfmp > wrote: Jax,That is exactly what he has been taking for the past 2months!!!! I will be calling the doctor first thingin the morning! I am just sick about this! She gaveit to him to help with his neuropathy too...--- Jackie on <redjaxjm > wrote:> Are you meaning Cymbalta???? THAT is NOT for those> with liver disease honey,,, that could be why he is> going downhill so quickly,,, its got a black box> warning on it for those with liver disease....> Please double check if that is what he is taking,, > there are other ssri's that do not carry that same> risk as cymbalta,, > > kathy przybyla kloth <kathypfmp > wrote:> Jax,> > Thank you for your email! He is already on an> antidepressant called cyambsil (spelling wrong). He> is deteriorating rather quickly. I did call the dr's> office yesterday and had ammonia added to his> labwork.> As far as diet, I have to sneak vegetables in> wherever possible since he is a meat and potatoes> type> of guy. Fortunately, I have been able to modify his> diet and he eats alot more salads and we have pretty> much eliminated potatoes. I push as much fish and> chicken as I can.> > In the past two weeks, he is noticably different.> His> ankles have swollen up like balloons and his 2 big> toenails have turned black. The pain in his right> shoulder is unbearable for him. He has said things> completely out of turn. We both sense his bloodwork> will not be good. I just pray that God is merciful> and takes him quickly if that is what is meant to> be. > In the meantime, we will have by far the best> Halloween, Thanksgiving and Christmas ever!> > Thank you so incredibly much for caring!> Love,> Kathy> --- Jackie on <redjaxjm > wrote:> > > Good Kathy,, I hope its not his ammonia because> that> > would mean his virus is moving along quickly and> > seriously harming his liver,, but IF it is, they> > will give him a nasty medication to fix that tho,,> > so it is controllable by medications along with> > watching the amount of protein he consumes... its> > really a difficult mix because most tx requires> one> > to be on a protein based diet to help it work> > better,, and then if you have ammonia problems ,> > then you have to reduce and watch the amount of> > protein you eat,, so treatment is less effective..> I> > know several ppl who advocate a vegetarian or> vegan> > diet which is really not a good thing when you are> > on tx,, you need the protein for many things,, to> > help control nausea, to help you keep from burning> > up your muscle tissue , there are many reasons for> > the protein based diet while on tx.. so lets hope> > its not that,, but if it is, they can help with> > lactulose.. The other thing is that the Interferon> > depletes the brain stores of> > seretonin and can cause serious depression and> > psych problems,, is he on an antidepressant? If he> > is on one like wellbutrin, that is more for> dopamine> > and not seretonin which is the one that gets> > depleted on tx.. maybe he needs his antidepressant> > if he is on one to have the dose increased... some> > ppl can get very suicidal and homicidal on tx..> > thats why I asked.. > > let us know,, we are concerned> > hugs> > jax> > > > kathy przybyla kloth <kathypfmp > wrote:> > Jackie,> > > > I will have his ammonia checked with this round of> > bloodwork. I am concerned the Fibrosure is not> quite> > so accurate-so I will be checking into that too!> > > > Thank you so much for your support! It means more> > than you know!> > Kathy> > --- Jackie on <redjaxjm > wrote:> > > > > Kathy, I forgot to add this to the other post to> > > you, but has his ammonia levels been checked?> > > The Fibrosure is not accurate in total,, its> only> > > good at the extreme ends of the test,, meaning> its> > > accurate in the 0-1 stage and in stage 4, but> > > inbetween stage 1 and 4 , its not accurate. I> > speak> > > from experience because my fibrosure said I was> > > stage 0-1 when in all reality, I was stage 2-3..> > > thats a big difference.. > > > I'd have his ammonia levels checked because if> > > that rises high enough, it can cause confusion,> > and> > > all sorts of emotional issues... > > > > > > kathypfmp <kathypfmp > wrote:> > > My husband has Hep C and is not on> > > treatment because of his platelet > > > count. In the past few weeks, he has become> > > increasing more difficult, > > > including accusing me of having an affair, etc.> He> > > is on again, off > > > again rational. I sense he is deteriorating> rather> > > quickly and I do > > > not know what to do. Can anyone give me their> > > thoughts? Has this > > > happened to you or a loved one?> > > > > > Thank you in advance!> > > Kathy> > > > > > > > > > > > > > > > > > > > > Jackie> > > >>__________________________________________________________> > Shape in your own image. Join our Network> > Research Panel today!> >>http://surveylink./gmrs/_panel_invite.asp?a=7> > > > > > > > > > > > > > > > Jackie> >__________________________________________________________> Building a website is a piece of cake. Small> Business gives you all the tools to get online.> http://smallbusiness./webhosting > > > > > > Jackie__________________________________________________________Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.http://get.games./proddesc?gamekey=monopolyherenow Jackie Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more. Jackie Check out the hottest 2008 models today at Autos. Jackie Check out the hottest 2008 models today at Autos. Jackie oneSearch: Finally, mobile search that gives answers, not web links. Jackie Shape in your own image. Join our Network Research Panel today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 yep,, I CAN be a nag,, thats for sure! lolSheena <mom4possums2002@...> wrote: Still here, thanks to your non-stop hollering, and back at ya! Jackie on <redjaxjm > wrote: well IM GLAD that you are not in deep doo doo,, haha,, love you Sheena!Sheena <mom4possums2002 > wrote: I can second that 100+%, and I would have been in deep doo had you not kept pushing me.. Jackie on <redjaxjm > wrote: Yep,,, I have learned that I MUST be responsible for MY OWN health,, I learned that a long time ago,, but its so nice to have this group to fall back upon,, because no one person can remember everything..Sheena <mom4possums2002 > wrote: No one knows us better than we do, or cares more, either, lol, and why it is best not to put all of one's trust in any doctor, best to do that research and ask for what you feel you need.. Jackie on <redjaxjm > wrote: You are right,, docs can miss lots of things,, even my own doc whom I love to death didnt check me for hcv until I asked him too, even tho my alt/ast were askew for years,, we both just thought that they were off depending upon where my weight was,, when I was fat, my labs were high,, when I was skinny, they were normal,, and he always felt very very bad for not finding it sooner,,, Sheena <mom4possums2002 > wrote: I wish that had been the only problem I had.. That's why I am ever telling everyone to do their own research, they may have a "really nice" doc, but if he/she misses something critical, it could cause them many problems, or worse.. Jackie on <redjaxjm > wrote: Sheena, I remember those iron pills and how worried I was about you... you are right ,, sometimes the docs really DONT know what the heck they are doing,, or they are not looking at everything pertaining to your own medical background.. you know what I mean? lolSheena <mom4possums2002 > wrote: I have to tell you that I had my former GI give me iron pills, which did cause me some harm, and even more recently, the doctor that first diagnosed my Hep C, give me antibiotics that were clearly identified as hepatoxic or sure not liver friendly. It is a wonder many of us are still walking around.. Everyone really needs to do their own research with meds.. Sheena Jackie on <redjaxjm > wrote: Oh NO Kathy,, it clearly has a warning for those WITH LIVER DISEASE,, I wonder why she gave it to begin with.... especially with hep c... Its designed for depression and the body pain depression can cause,, but sheesh... well he has to wean off of it slowly and then start with the correct ssri that does not have the same damaging effects to the liver... please know that I will be keeping you and your husband in my prayers and hope that this cymbalta has not damaged his liver in a way that is irreversible..but remember the liver CAN and DOES regenerate itself so hopefully she will take him off before he has fulminant liver failure... whatever you do tho, do not stop any drug immediately and rapidly,, it has to be done slowly or else he will have a rebound problem,, please let me know jaxkathy przybyla kloth <kathypfmp > wrote: Jax,That is exactly what he has been taking for the past 2months!!!! I will be calling the doctor first thingin the morning! I am just sick about this! She gaveit to him to help with his neuropathy too...--- Jackie on <redjaxjm > wrote:> Are you meaning Cymbalta???? THAT is NOT for those> with liver disease honey,,, that could be why he is> going downhill so quickly,,, its got a black box> warning on it for those with liver disease....> Please double check if that is what he is taking,, > there are other ssri's that do not carry that same> risk as cymbalta,, > > kathy przybyla kloth <kathypfmp > wrote:> Jax,> > Thank you for your email! He is already on an> antidepressant called cyambsil (spelling wrong). He> is deteriorating rather quickly. I did call the dr's> office yesterday and had ammonia added to his> labwork.> As far as diet, I have to sneak vegetables in> wherever possible since he is a meat and potatoes> type> of guy. Fortunately, I have been able to modify his> diet and he eats alot more salads and we have pretty> much eliminated potatoes. I push as much fish and> chicken as I can.> > In the past two weeks, he is noticably different.> His> ankles have swollen up like balloons and his 2 big> toenails have turned black. The pain in his right> shoulder is unbearable for him. He has said things> completely out of turn. We both sense his bloodwork> will not be good. I just pray that God is merciful> and takes him quickly if that is what is meant to> be. > In the meantime, we will have by far the best> Halloween, Thanksgiving and Christmas ever!> > Thank you so incredibly much for caring!> Love,> Kathy> --- Jackie on <redjaxjm > wrote:> > > Good Kathy,, I hope its not his ammonia because> that> > would mean his virus is moving along quickly and> > seriously harming his liver,, but IF it is, they> > will give him a nasty medication to fix that tho,,> > so it is controllable by medications along with> > watching the amount of protein he consumes... its> > really a difficult mix because most tx requires> one> > to be on a protein based diet to help it work> > better,, and then if you have ammonia problems ,> > then you have to reduce and watch the amount of> > protein you eat,, so treatment is less effective..> I> > know several ppl who advocate a vegetarian or> vegan> > diet which is really not a good thing when you are> > on tx,, you need the protein for many things,, to> > help control nausea, to help you keep from burning> > up your muscle tissue , there are many reasons for> > the protein based diet while on tx.. so lets hope> > its not that,, but if it is, they can help with> > lactulose.. The other thing is that the Interferon> > depletes the brain stores of> > seretonin and can cause serious depression and> > psych problems,, is he on an antidepressant? If he> > is on one like wellbutrin, that is more for> dopamine> > and not seretonin which is the one that gets> > depleted on tx.. maybe he needs his antidepressant> > if he is on one to have the dose increased... some> > ppl can get very suicidal and homicidal on tx..> > thats why I asked.. > > let us know,, we are concerned> > hugs> > jax> > > > kathy przybyla kloth <kathypfmp > wrote:> > Jackie,> > > > I will have his ammonia checked with this round of> > bloodwork. I am concerned the Fibrosure is not> quite> > so accurate-so I will be checking into that too!> > > > Thank you so much for your support! It means more> > than you know!> > Kathy> > --- Jackie on <redjaxjm > wrote:> > > > > Kathy, I forgot to add this to the other post to> > > you, but has his ammonia levels been checked?> > > The Fibrosure is not accurate in total,, its> only> > > good at the extreme ends of the test,, meaning> its> > > accurate in the 0-1 stage and in stage 4, but> > > inbetween stage 1 and 4 , its not accurate. I> > speak> > > from experience because my fibrosure said I was> > > stage 0-1 when in all reality, I was stage 2-3..> > > thats a big difference.. > > > I'd have his ammonia levels checked because if> > > that rises high enough, it can cause confusion,> > and> > > all sorts of emotional issues... > > > > > > kathypfmp <kathypfmp > wrote:> > > My husband has Hep C and is not on> > > treatment because of his platelet > > > count. In the past few weeks, he has become> > > increasing more difficult, > > > including accusing me of having an affair, etc.> He> > > is on again, off > > > again rational. I sense he is deteriorating> rather> > > quickly and I do > > > not know what to do. Can anyone give me their> > > thoughts? Has this > > > happened to you or a loved one?> > > > > > Thank you in advance!> > > Kathy> > > > > > > > > > > > > > > > > > > > > Jackie> > > >>__________________________________________________________> > Shape in your own image. Join our Network> > Research Panel today!> >>http://surveylink./gmrs/_panel_invite.asp?a=7> > > > > > > > > > > > > > > > Jackie> >__________________________________________________________> Building a website is a piece of cake. Small> Business gives you all the tools to get online.> http://smallbusiness./webhosting > > > > > > Jackie__________________________________________________________Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.http://get.games./proddesc?gamekey=monopolyherenow Jackie Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more. Jackie Check out the hottest 2008 models today at Autos. Jackie Check out the hottest 2008 models today at Autos. Jackie oneSearch: Finally, mobile search that gives answers, not web links. Jackie Shape in your own image. Join our Network Research Panel today! Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 A delightful nag --- Jackie on <redjaxjm@...> wrote: > yep,, I CAN be a nag,, thats for sure! lol > > Sheena <mom4possums2002@...> wrote: > Still here, thanks to your non-stop hollering, and > back at ya! > > > > > Jackie on <redjaxjm@...> wrote: > well IM GLAD that you are not in deep doo > doo,, haha,, love you Sheena! > > Sheena <mom4possums2002@...> wrote: I > can second that 100+%, and I would have been in deep > doo > had you not kept pushing me.. > > > > > Jackie on <redjaxjm@...> wrote: > Yep,,, I have learned that I MUST be > responsible for MY OWN health,, I learned that a > long time ago,, but its so nice to have this group > to fall back upon,, because no one person can > remember everything.. > > Sheena <mom4possums2002@...> wrote: No > one knows us better than we do, or cares more, > either, lol, > and why it is best not to put all of one's trust > in any doctor, best to > do that research and ask for what you feel you > need.. > > > > > > Jackie on <redjaxjm@...> wrote: > You are right,, docs can miss lots of things,, > even my own doc whom I love to death didnt check me > for hcv until I asked him too, even tho my alt/ast > were askew for years,, we both just thought that > they were off depending upon where my weight was,, > when I was fat, my labs were high,, when I was > skinny, they were normal,, and he always felt very > very bad for not finding it sooner,,, > > Sheena <mom4possums2002@...> wrote: I > wish that had been the only problem I had.. > That's why I am ever telling everyone to do their > own > research, they may have a " really nice " doc, but > if > he/she misses something critical, it could cause > them > many problems, or worse.. > > > > Jackie on <redjaxjm@...> wrote: > Sheena, I remember those iron pills and how > worried I was about you... you are right ,, > sometimes the docs really DONT know what the heck > they are doing,, or they are not looking at > everything pertaining to your own medical > background.. you know what I mean? lol > > Sheena <mom4possums2002@...> wrote: I > have to tell you that I had my former GI give me > iron pills, > which did cause me some harm, and even more > recently, > the doctor that first diagnosed my Hep C, give me > antibiotics > that were clearly identified as hepatoxic or sure > not liver friendly. > It is a wonder many of us are still walking > around.. > Everyone really needs to do their own research > with meds.. > > Sheena > > > Jackie on <redjaxjm@...> wrote: > Oh NO Kathy,, it clearly has a warning for > those WITH LIVER DISEASE,, I wonder why she gave it > to begin with.... especially with hep c... Its > designed for depression and the body pain depression > can cause,, but sheesh... well he has to wean off of > it slowly and then start with the correct ssri that > does not have the same damaging effects to the > liver... please know that I will be keeping you and > your husband in my prayers and hope that this > cymbalta has not damaged his liver in a way that is > irreversible..but remember the liver CAN and DOES > regenerate itself so hopefully she will take him off > before he has fulminant liver failure... whatever > you do tho, do not stop any drug immediately and > rapidly,, it has to be done slowly or else he will > have a rebound problem,, > please let me know > jax > > kathy przybyla kloth <kathypfmp@...> wrote: > Jax, > > That is exactly what he has been taking for the past > 2 > months!!!! I will be calling the doctor first thing > in the morning! I am just sick about this! She gave > it to him to help with his neuropathy too... > --- Jackie on <redjaxjm@...> wrote: > > > Are you meaning Cymbalta???? THAT is NOT for those > > with liver disease honey,,, that could be why he > is > > going downhill so quickly,,, its got a black box > > warning on it for those with liver disease.... > > Please double check if that is what he is taking,, > > > there are other ssri's that do not carry that same > > risk as cymbalta,, > > > > kathy przybyla kloth <kathypfmp@...> wrote: > > Jax, > > > > Thank you for your email! He is already on an > > antidepressant called cyambsil (spelling wrong). > He > > is deteriorating rather quickly. I did call the > dr's > > office yesterday and had ammonia added to his > > labwork. > > As far as diet, I have to sneak vegetables in > > wherever possible since he is a meat and potatoes > > type > > of guy. Fortunately, I have been able to modify > his > > diet and he eats alot more salads and we have > pretty > > much eliminated potatoes. I push as much fish and > > chicken as I can. > > > > In the past two weeks, he is noticably different. > > His > > ankles have swollen up like balloons and his 2 big > > toenails have turned black. The pain in his right > > shoulder is unbearable for him. He has said things > > completely out of turn. We both sense his > bloodwork > > will not be good. I just pray that God is merciful > > and takes him quickly if that is what is meant to > > be. > > In the meantime, we will have by far the best > > Halloween, Thanksgiving and Christmas ever! > > > > Thank you so incredibly much for caring! > > Love, > > Kathy > > --- Jackie on <redjaxjm@...> wrote: > > > > > Good Kathy,, I hope its not his ammonia because > > that > > > would mean his virus is moving along quickly and > > > seriously harming his liver,, but IF it is, they > > > will give him a nasty medication to fix that > tho,, > > > so it is controllable by medications along with > > > watching the amount of protein he consumes... > its > > > really a difficult mix because most tx requires > > one > > > to be on a protein based diet to help it work > > > better,, and then if you have ammonia problems , > > > then you have to reduce and watch the amount of > > > protein you eat,, so treatment is less > effective.. > > I > > > know several ppl who advocate a vegetarian or > > vegan > > > diet which is really not a good thing when you > are > > > on tx,, you need the protein for many things,, > to > > > help control nausea, to help you keep from > burning > > > up your muscle tissue , there are many reasons > for > > > the protein based diet while on tx.. so lets > hope > > > its not that,, but if it is, they can help with > > > lactulose.. The other thing is that the > Interferon > > > depletes the brain stores of > > > seretonin and can cause serious depression and > > > psych problems,, is he on an antidepressant? If > he > === message truncated === ________________________________________________________________________________\ ____ Check out the hottest 2008 models today at Autos. http://autos./new_cars.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 thanks hon,, I try not to be a cranky nag but sometimes, I just can't help myself, haha!kathy przybyla kloth <kathypfmp@...> wrote: A delightful nag --- Jackie on <redjaxjm > wrote:> yep,, I CAN be a nag,, thats for sure! lol> > Sheena <mom4possums2002 > wrote: > Still here, thanks to your non-stop hollering, and> back at ya!> > > > > Jackie on <redjaxjm > wrote:> well IM GLAD that you are not in deep doo> doo,, haha,, love you Sheena!> > Sheena <mom4possums2002 > wrote: I> can second that 100+%, and I would have been in deep> doo> had you not kept pushing me..> > > > > Jackie on <redjaxjm > wrote:> Yep,,, I have learned that I MUST be> responsible for MY OWN health,, I learned that a> long time ago,, but its so nice to have this group> to fall back upon,, because no one person can> remember everything..> > Sheena <mom4possums2002 > wrote: No> one knows us better than we do, or cares more,> either, lol,> and why it is best not to put all of one's trust> in any doctor, best to> do that research and ask for what you feel you> need..> > > > > > Jackie on <redjaxjm > wrote:> You are right,, docs can miss lots of things,,> even my own doc whom I love to death didnt check me> for hcv until I asked him too, even tho my alt/ast> were askew for years,, we both just thought that> they were off depending upon where my weight was,,> when I was fat, my labs were high,, when I was> skinny, they were normal,, and he always felt very> very bad for not finding it sooner,,, > > Sheena <mom4possums2002 > wrote: I> wish that had been the only problem I had..> That's why I am ever telling everyone to do their> own> research, they may have a "really nice" doc, but> if> he/she misses something critical, it could cause> them > many problems, or worse..> > > > Jackie on <redjaxjm > wrote:> Sheena, I remember those iron pills and how> worried I was about you... you are right ,,> sometimes the docs really DONT know what the heck> they are doing,, or they are not looking at> everything pertaining to your own medical> background.. you know what I mean? lol> > Sheena <mom4possums2002 > wrote: I> have to tell you that I had my former GI give me> iron pills,> which did cause me some harm, and even more> recently, > the doctor that first diagnosed my Hep C, give me> antibiotics> that were clearly identified as hepatoxic or sure> not liver friendly.> It is a wonder many of us are still walking> around..> Everyone really needs to do their own research> with meds..> > Sheena> > > Jackie on <redjaxjm > wrote:> Oh NO Kathy,, it clearly has a warning for> those WITH LIVER DISEASE,, I wonder why she gave it> to begin with.... especially with hep c... Its> designed for depression and the body pain depression> can cause,, but sheesh... well he has to wean off of> it slowly and then start with the correct ssri that> does not have the same damaging effects to the> liver... please know that I will be keeping you and> your husband in my prayers and hope that this> cymbalta has not damaged his liver in a way that is> irreversible..but remember the liver CAN and DOES> regenerate itself so hopefully she will take him off> before he has fulminant liver failure... whatever> you do tho, do not stop any drug immediately and> rapidly,, it has to be done slowly or else he will> have a rebound problem,, > please let me know> jax> > kathy przybyla kloth <kathypfmp > wrote:> Jax,> > That is exactly what he has been taking for the past> 2> months!!!! I will be calling the doctor first thing> in the morning! I am just sick about this! She gave> it to him to help with his neuropathy too...> --- Jackie on <redjaxjm > wrote:> > > Are you meaning Cymbalta???? THAT is NOT for those> > with liver disease honey,,, that could be why he> is> > going downhill so quickly,,, its got a black box> > warning on it for those with liver disease....> > Please double check if that is what he is taking,,> > > there are other ssri's that do not carry that same> > risk as cymbalta,, > > > > kathy przybyla kloth <kathypfmp > wrote:> > Jax,> > > > Thank you for your email! He is already on an> > antidepressant called cyambsil (spelling wrong).> He> > is deteriorating rather quickly. I did call the> dr's> > office yesterday and had ammonia added to his> > labwork.> > As far as diet, I have to sneak vegetables in> > wherever possible since he is a meat and potatoes> > type> > of guy. Fortunately, I have been able to modify> his> > diet and he eats alot more salads and we have> pretty> > much eliminated potatoes. I push as much fish and> > chicken as I can.> > > > In the past two weeks, he is noticably different.> > His> > ankles have swollen up like balloons and his 2 big> > toenails have turned black. The pain in his right> > shoulder is unbearable for him. He has said things> > completely out of turn. We both sense his> bloodwork> > will not be good. I just pray that God is merciful> > and takes him quickly if that is what is meant to> > be. > > In the meantime, we will have by far the best> > Halloween, Thanksgiving and Christmas ever!> > > > Thank you so incredibly much for caring!> > Love,> > Kathy> > --- Jackie on <redjaxjm > wrote:> > > > > Good Kathy,, I hope its not his ammonia because> > that> > > would mean his virus is moving along quickly and> > > seriously harming his liver,, but IF it is, they> > > will give him a nasty medication to fix that> tho,,> > > so it is controllable by medications along with> > > watching the amount of protein he consumes...> its> > > really a difficult mix because most tx requires> > one> > > to be on a protein based diet to help it work> > > better,, and then if you have ammonia problems ,> > > then you have to reduce and watch the amount of> > > protein you eat,, so treatment is less> effective..> > I> > > know several ppl who advocate a vegetarian or> > vegan> > > diet which is really not a good thing when you> are> > > on tx,, you need the protein for many things,,> to> > > help control nausea, to help you keep from> burning> > > up your muscle tissue , there are many reasons> for> > > the protein based diet while on tx.. so lets> hope> > > its not that,, but if it is, they can help with> > > lactulose.. The other thing is that the> Interferon> > > depletes the brain stores of> > > seretonin and can cause serious depression and> > > psych problems,, is he on an antidepressant? If> he> === message truncated ===__________________________________________________________Check out the hottest 2008 models today at Autos.http://autos./new_cars.htmlJackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 I am the same way with my son You are a good egg! --- Jackie on <redjaxjm@...> wrote: > thanks hon,, I try not to be a cranky nag but > sometimes, I just can't help myself, haha! > > kathy przybyla kloth <kathypfmp@...> wrote: > A delightful nag > --- Jackie on <redjaxjm@...> wrote: > > > yep,, I CAN be a nag,, thats for sure! lol > > > > Sheena <mom4possums2002@...> wrote: > > Still here, thanks to your non-stop hollering, and > > back at ya! > > > > > > > > > > Jackie on <redjaxjm@...> wrote: > > well IM GLAD that you are not in deep doo > > doo,, haha,, love you Sheena! > > > > Sheena <mom4possums2002@...> wrote: I > > can second that 100+%, and I would have been in > deep > > doo > > had you not kept pushing me.. > > > > > > > > > > Jackie on <redjaxjm@...> wrote: > > Yep,,, I have learned that I MUST be > > responsible for MY OWN health,, I learned that a > > long time ago,, but its so nice to have this group > > to fall back upon,, because no one person can > > remember everything.. > > > > Sheena <mom4possums2002@...> wrote: No > > one knows us better than we do, or cares more, > > either, lol, > > and why it is best not to put all of one's trust > > in any doctor, best to > > do that research and ask for what you feel you > > need.. > > > > > > > > > > > > Jackie on <redjaxjm@...> wrote: > > You are right,, docs can miss lots of things,, > > even my own doc whom I love to death didnt check > me > > for hcv until I asked him too, even tho my alt/ast > > were askew for years,, we both just thought that > > they were off depending upon where my weight was,, > > when I was fat, my labs were high,, when I was > > skinny, they were normal,, and he always felt very > > very bad for not finding it sooner,,, > > > > Sheena <mom4possums2002@...> wrote: I > > wish that had been the only problem I had.. > > That's why I am ever telling everyone to do their > > own > > research, they may have a " really nice " doc, but > > if > > he/she misses something critical, it could cause > > them > > many problems, or worse.. > > > > > > > > Jackie on <redjaxjm@...> wrote: > > Sheena, I remember those iron pills and how > > worried I was about you... you are right ,, > > sometimes the docs really DONT know what the heck > > they are doing,, or they are not looking at > > everything pertaining to your own medical > > background.. you know what I mean? lol > > > > Sheena <mom4possums2002@...> wrote: I > > have to tell you that I had my former GI give me > > iron pills, > > which did cause me some harm, and even more > > recently, > > the doctor that first diagnosed my Hep C, give me > > antibiotics > > that were clearly identified as hepatoxic or sure > > not liver friendly. > > It is a wonder many of us are still walking > > around.. > > Everyone really needs to do their own research > > with meds.. > > > > Sheena > > > > > > Jackie on <redjaxjm@...> wrote: > > Oh NO Kathy,, it clearly has a warning for > > those WITH LIVER DISEASE,, I wonder why she gave > it > > to begin with.... especially with hep c... Its > > designed for depression and the body pain > depression > > can cause,, but sheesh... well he has to wean off > of > > it slowly and then start with the correct ssri > that > > does not have the same damaging effects to the > > liver... please know that I will be keeping you > and > > your husband in my prayers and hope that this > > cymbalta has not damaged his liver in a way that > is > > irreversible..but remember the liver CAN and DOES > > regenerate itself so hopefully she will take him > off > > before he has fulminant liver failure... whatever > > you do tho, do not stop any drug immediately and > > rapidly,, it has to be done slowly or else he will > > have a rebound problem,, > > please let me know > > jax > > > > kathy przybyla kloth <kathypfmp@...> wrote: > > Jax, > > > > That is exactly what he has been taking for the > past > > 2 > > months!!!! I will be calling the doctor first > thing > > in the morning! I am just sick about this! She > gave > > it to him to help with his neuropathy too... > > --- Jackie on <redjaxjm@...> wrote: > > > > > Are you meaning Cymbalta???? THAT is NOT for > those > > > with liver disease honey,,, that could be why he > > is > > > going downhill so quickly,,, its got a black box > > > warning on it for those with liver disease.... > > > Please double check if that is what he is > taking,, > > > > > there are other ssri's that do not carry that > same > > > risk as cymbalta,, > > > > > > kathy przybyla kloth <kathypfmp@...> > wrote: > > > Jax, > > > > > > Thank you for your email! He is already on an > > > antidepressant called cyambsil (spelling wrong). > > He > > > is deteriorating rather quickly. I did call the > > dr's > > > office yesterday and had ammonia added to his > > > labwork. > > > As far as diet, I have to sneak vegetables in > > > wherever possible since he is a meat and > potatoes > > > type > > > of guy. Fortunately, I have been able to modify > > his > > > diet and he eats alot more salads and we have > > pretty > > > much eliminated potatoes. I push as much fish > and > > > chicken as I can. > > > > > > In the past two weeks, he is noticably > different. > > > His > > > ankles have swollen up like balloons and his 2 > big > > > toenails have turned black. The pain in his > right > > > shoulder is unbearable for him. He has said > things > > > completely out of turn. We both sense his > > bloodwork > > > will not be good. I just pray that God is > merciful > > > and takes him quickly if that is what is meant > to > > > be. > > > In the meantime, we will have by far the best > > > Halloween, Thanksgiving and Christmas ever! > > > > > > Thank you so incredibly much for caring! > > > Love, > > > Kathy > > > --- Jackie on <redjaxjm@...> wrote: > > > > > > > Good Kathy,, I hope its not his ammonia > because > > > that > > > > would mean his virus is moving along quickly > and > === message truncated === ________________________________________________________________________________\ ____ Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. http://surveylink./gmrs/_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
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