Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 Hi Kathy, I did some searching for you on the possibilities of his personality changes. First of all has he had a biopsy to see what stage he is in. It is a possibility that he is advancing in his Hep C like you said and cirrhosis is advancing. First of all you need to protect yourself. Is he abusive to you during these episodes? Verbally,Emotional (I know he is emotionally abusing you with his accusing you of having a affair.) and Physically. Get out of the house if anything is happening like above. Call a friend, a relative or so forth. Don't allow yourself to get hurt. That being said. Second contact his doctor and explain what is going on. There can be things that the doctor can do to help if it is the hepatitis c. Honey, I know this is frightening to you, and you are at your wits end. If you ever need to call me, my number is in the database here at the group, just go to the homepage and then look on the menu bar on the left side of the page. You will see database. When you call if I don't answer the phone let my family members know that you are someone from the group. You can call me 24/7. If it is late at night, I might not answer because I am a sound sleeper. LOL But usually the phone wakes me. And I will call you back. I am here for you. Love Janet What Are the Symptoms of Cirrhosis? The symptoms of cirrhosis vary with the stage of the illness. In the beginning stages, there may not be any symptoms. As the disease worsens, symptoms may include: Loss of appetite. Lack of energy (fatigue) which may be debilitating. Weight loss or sudden weight gain. Bruises. Yellowing of skin or the whites of eyes (jaundice). Itchy skin. Fluid retention (edema) and swelling in the ankles, legs and abdomen (often an early sign). A brownish or orange tint to the urine. Light colored stools. Confusion, disorientation, personality changes. Blood in the stool. Fever. kathypfmp <kathypfmp@...> wrote: My husband has Hep C and is not on treatment because of his platelet count. In the past few weeks, he has become increasing more difficult, including accusing me of having an affair, etc. He is on again, off again rational. I sense he is deteriorating rather quickly and I do not know what to do. Can anyone give me their thoughts? Has this happened to you or a loved one?Thank you in advance!Kathy It is a beautiful day, go out and enjoy it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 Thank you Janet! His last biopsy was a urine test I think is called Fibrosure. It was taken about 4 years ago. Since then, his cancer tumor markers have been out of this world and he has had regular CT scans to eliminate cancer. His last CT was 9 months ago. The verbal/emotional abuse is very new. He is due to have labwork for his CT. I am hoping that will open the door for the doctor to take next steps. I can verify all of the symptoms you gave me with the exception of blood in the stool. Your support means a tremendous amount and I will sort this out in my head. Thank you! Love, Kathy --- Janet <doc_jade@...> wrote: > Hi Kathy, I did some searching for you on the > possibilities of his personality changes. First of > all has he had a biopsy to see what stage he is in. > It is a possibility that he is advancing in his > Hep C like you said and cirrhosis is advancing. > First of all you need to protect yourself. Is he > abusive to you during these episodes? > Verbally,Emotional (I know he is emotionally abusing > you with his accusing you of having a affair.) and > Physically. > Get out of the house if anything is happening like > above. Call a friend, a relative or so forth. Don't > allow yourself to get hurt. > That being said. > Second contact his doctor and explain what is > going on. There can be things that the doctor can do > to help if it is the hepatitis c. > Honey, I know this is frightening to you, and you > are at your wits end. > If you ever need to call me, my number is in the > database here at the group, just go to the homepage > and then look on the menu bar on the left side of > the page. You will see database. When you call if I > don't answer the phone let my family members know > that you are someone from the group. You can call me > 24/7. If it is late at night, I might not answer > because I am a sound sleeper. LOL But usually the > phone wakes me. And I will call you back. > I am here for you. > Love > Janet > What Are the Symptoms of Cirrhosis? The > symptoms of cirrhosis vary with the stage of the > illness. In the beginning stages, there may not be > any symptoms. As the disease worsens, symptoms may > include: > > Loss of appetite. > Lack of energy (fatigue) which may be > debilitating. > Weight loss or sudden weight gain. > Bruises. > Yellowing of skin or the whites of eyes > (jaundice). > Itchy skin. > Fluid retention (edema) and swelling in the > ankles, legs and abdomen (often an early sign). > A brownish or orange tint to the urine. > Light colored stools. > Confusion, disorientation, personality changes. > > Blood in the stool. > Fever. > > > kathypfmp <kathypfmp@...> wrote: My > husband has Hep C and is not on treatment because of > his platelet > count. In the past few weeks, he has become > increasing more difficult, > including accusing me of having an affair, etc. He > is on again, off > again rational. I sense he is deteriorating rather > quickly and I do > not know what to do. Can anyone give me their > thoughts? Has this > happened to you or a loved one? > > Thank you in advance! > Kathy > > > > > > > It is a beautiful day, go out and enjoy it. > ________________________________________________________________________________\ ____ Check out the hottest 2008 models today at Autos. http://autos./new_cars.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 Kathy, Honey that is what I am here for to support you and what you are going through. I might not be a bad idea to contact the doctor before the blood test and tell him or his nurse about the current situations. Be sure to impress upon them that this is something new to him. I am going to be honest with you, alot of time doctors pooh-pooh our concerns. But with this change in his personality well I think it needs attention. I am a person with Hep C and I know that if my husband was going through what you were going through. I would want him to call my Dr. and let him know that this is not usually for me. And just to let you know, I am going to give my husband and family the authority to do so, just in case that happens. Already I have signed a form letting my husband and daughter discuss my case with my doctor. Full disclosure. I am going to add my son also, as he is around me more than my oldest daughter. You have gotten me to thinking of what could happen. And once again, I am here for you anytime you need me. Love Janet It is a beautiful day, go out and enjoy it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 Kathy the fibrosure is a blood test, not a urine test,, just fyi,,, you really do need to talk with his doc because this kind of change in his behavior and emotions is his body's way of saying that things are not right,, the sooner you guys get to this, the better,, its not right for you to be in this situation,, please let his doc knowkathy przybyla kloth <kathypfmp@...> wrote: Thank you Janet!His last biopsy was a urine test I think is calledFibrosure. It was taken about 4 years ago. Sincethen, his cancer tumor markers have been out of thisworld and he has had regular CT scans to eliminatecancer. His last CT was 9 months ago.The verbal/emotional abuse is very new. He is due tohave labwork for his CT. I am hoping that will openthe door for the doctor to take next steps. I canverify all of the symptoms you gave me with theexception of blood in the stool. Your support means a tremendous amount and I will sortthis out in my head.Thank you!Love,Kathy--- Janet <doc_jade > wrote:> Hi Kathy, I did some searching for you on the> possibilities of his personality changes. First of> all has he had a biopsy to see what stage he is in.> It is a possibility that he is advancing in his> Hep C like you said and cirrhosis is advancing.> First of all you need to protect yourself. Is he> abusive to you during these episodes?> Verbally,Emotional (I know he is emotionally abusing> you with his accusing you of having a affair.) and> Physically.> Get out of the house if anything is happening like> above. Call a friend, a relative or so forth. Don't> allow yourself to get hurt.> That being said. > Second contact his doctor and explain what is> going on. There can be things that the doctor can do> to help if it is the hepatitis c.> Honey, I know this is frightening to you, and you> are at your wits end.> If you ever need to call me, my number is in the> database here at the group, just go to the homepage> and then look on the menu bar on the left side of> the page. You will see database. When you call if I> don't answer the phone let my family members know> that you are someone from the group. You can call me> 24/7. If it is late at night, I might not answer> because I am a sound sleeper. LOL But usually the> phone wakes me. And I will call you back.> I am here for you.> Love> Janet> What Are the Symptoms of Cirrhosis? The> symptoms of cirrhosis vary with the stage of the> illness. In the beginning stages, there may not be> any symptoms. As the disease worsens, symptoms may> include:> > Loss of appetite. > Lack of energy (fatigue) which may be> debilitating. > Weight loss or sudden weight gain. > Bruises. > Yellowing of skin or the whites of eyes> (jaundice). > Itchy skin. > Fluid retention (edema) and swelling in the> ankles, legs and abdomen (often an early sign). > A brownish or orange tint to the urine. > Light colored stools. > Confusion, disorientation, personality changes. > > Blood in the stool. > Fever. > > > kathypfmp <kathypfmp > wrote: My> husband has Hep C and is not on treatment because of> his platelet > count. In the past few weeks, he has become> increasing more difficult, > including accusing me of having an affair, etc. He> is on again, off > again rational. I sense he is deteriorating rather> quickly and I do > not know what to do. Can anyone give me their> thoughts? Has this > happened to you or a loved one?> > Thank you in advance!> Kathy> > > > > > > It is a beautiful day, go out and enjoy it.> __________________________________________________________Check out the hottest 2008 models today at Autos.http://autos./new_cars.htmlJackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 Kathy, I forgot to add this to the other post to you, but has his ammonia levels been checked? The Fibrosure is not accurate in total,, its only good at the extreme ends of the test,, meaning its accurate in the 0-1 stage and in stage 4, but inbetween stage 1 and 4 , its not accurate. I speak from experience because my fibrosure said I was stage 0-1 when in all reality, I was stage 2-3.. thats a big difference.. I'd have his ammonia levels checked because if that rises high enough, it can cause confusion, and all sorts of emotional issues... kathypfmp <kathypfmp@...> wrote: My husband has Hep C and is not on treatment because of his platelet count. In the past few weeks, he has become increasing more difficult, including accusing me of having an affair, etc. He is on again, off again rational. I sense he is deteriorating rather quickly and I do not know what to do. Can anyone give me their thoughts? Has this happened to you or a loved one?Thank you in advance!KathyJackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 Kathy, It sounds like to me that his amonia level is up. My huaband didn't do things like that but he did get disorintated. He would get out of the car and head for the road owhen I asked him where he was going he would say in the house.. He started dong the old man shuffle ....we got ahold of his dr and they put him on some meds untill they found something that worked ..He is now back to being my husband again.....Just a thought !!!!! tricia in oregon SAVE A LIFE https://www.donatelifenw.org/register/ TODAY IS GOD'S GIFT TO YOU, WHAT YOU DO WITH IT IS YOUR GIFT TO HIM ! "I am responsible for my own well-being,my own happiness.The choices and decicions I make regarding my lifedirectly influences the quality of my days." Kathleen Andrus Check out our site: http://www.shepswoodncrafts.com/home.htmlhtt http://rslaserkits.com/ Need a vacation? Get great deals to amazing places on Travel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2007 Report Share Posted October 3, 2007 Hi, Kathy, Rick here. I too have high ammonia levels, as does , co-owner of this site. I was given a prescreption of liquid Enulose (Lactulose solution), and I still take it 3 times per day. Every time my wife thinks I'm acting goofy or not with if, she reminds be to take more of this drug. Ammonia level has gone down some, but is still high. It realy does aid your brain's ability to react more normally. The ammonia level is something to be carefully monitored, due to possible adverse side effects. > > Kathy, > It sounds like to me that his amonia level is up. My huaband didn't do things like that but he did get disorintated. He would get out of the car and head for the road owhen I asked him where he was going he would say in the house.. He started dong the old man shuffle ....we got ahold of his dr and they put him on some meds untill they found something that worked ..He is now back to being my husband again.....Just a thought !!!!! > > tricia in oregon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2007 Report Share Posted October 3, 2007 Hello Everyone! Thank you for the floods of support I have gotten! I will have his ammonia checked with his labwork. Yesterday, my wonderful husband was normal again and I don't think he recalls the past few days, or would rather not. I know he is as scared as I am. You guys are the best! Kathy --- Rick Kipp <rickkipp@...> wrote: > Hi, Kathy, Rick here. I too have high ammonia > levels, as does > , co-owner of this site. I was given a > prescreption of > liquid Enulose (Lactulose solution), and I still > take it 3 times per > day. Every time my wife thinks I'm acting goofy or > not with if, she > reminds be to take more of this drug. Ammonia level > has gone down > some, but is still high. It realy does aid your > brain's ability to > react more normally. The ammonia level is something > to be carefully > monitored, due to possible adverse side effects. > > > > > > Kathy, > > It sounds like to me that his amonia level is > up. My huaband > didn't do things like that but he did get > disorintated. He would get > out of the car and head for the road owhen I asked > him where he was > going he would say in the house.. He started dong > the old man > shuffle ....we got ahold of his dr and they put him > on some meds > untill they found something that worked ..He is now > back to being my > husband again.....Just a thought !!!!! > > > > tricia in oregon > > > ________________________________________________________________________________\ ____ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games. http://get.games./proddesc?gamekey=monopolyherenow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2007 Report Share Posted October 3, 2007 Jackie, I will have his ammonia checked with this round of bloodwork. I am concerned the Fibrosure is not quite so accurate-so I will be checking into that too! Thank you so much for your support! It means more than you know! Kathy --- Jackie on <redjaxjm@...> wrote: > Kathy, I forgot to add this to the other post to > you, but has his ammonia levels been checked? > The Fibrosure is not accurate in total,, its only > good at the extreme ends of the test,, meaning its > accurate in the 0-1 stage and in stage 4, but > inbetween stage 1 and 4 , its not accurate. I speak > from experience because my fibrosure said I was > stage 0-1 when in all reality, I was stage 2-3.. > thats a big difference.. > I'd have his ammonia levels checked because if > that rises high enough, it can cause confusion, and > all sorts of emotional issues... > > kathypfmp <kathypfmp@...> wrote: > My husband has Hep C and is not on > treatment because of his platelet > count. In the past few weeks, he has become > increasing more difficult, > including accusing me of having an affair, etc. He > is on again, off > again rational. I sense he is deteriorating rather > quickly and I do > not know what to do. Can anyone give me their > thoughts? Has this > happened to you or a loved one? > > Thank you in advance! > Kathy > > > > > > > Jackie ________________________________________________________________________________\ ____ Shape in your own image. Join our Network Research Panel today! http://surveylink./gmrs/_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2007 Report Share Posted October 3, 2007 Good Kathy,, I hope its not his ammonia because that would mean his virus is moving along quickly and seriously harming his liver,, but IF it is, they will give him a nasty medication to fix that tho,, so it is controllable by medications along with watching the amount of protein he consumes... its really a difficult mix because most tx requires one to be on a protein based diet to help it work better,, and then if you have ammonia problems , then you have to reduce and watch the amount of protein you eat,, so treatment is less effective.. I know several ppl who advocate a vegetarian or vegan diet which is really not a good thing when you are on tx,, you need the protein for many things,, to help control nausea, to help you keep from burning up your muscle tissue , there are many reasons for the protein based diet while on tx.. so lets hope its not that,, but if it is, they can help with lactulose.. The other thing is that the Interferon depletes the brain stores of seretonin and can cause serious depression and psych problems,, is he on an antidepressant? If he is on one like wellbutrin, that is more for dopamine and not seretonin which is the one that gets depleted on tx.. maybe he needs his antidepressant if he is on one to have the dose increased... some ppl can get very suicidal and homicidal on tx.. thats why I asked.. let us know,, we are concerned hugs jaxkathy przybyla kloth <kathypfmp@...> wrote: Jackie,I will have his ammonia checked with this round ofbloodwork. I am concerned the Fibrosure is not quiteso accurate-so I will be checking into that too!Thank you so much for your support! It means morethan you know!Kathy--- Jackie on <redjaxjm > wrote:> Kathy, I forgot to add this to the other post to> you, but has his ammonia levels been checked?> The Fibrosure is not accurate in total,, its only> good at the extreme ends of the test,, meaning its> accurate in the 0-1 stage and in stage 4, but> inbetween stage 1 and 4 , its not accurate. I speak> from experience because my fibrosure said I was> stage 0-1 when in all reality, I was stage 2-3..> thats a big difference.. > I'd have his ammonia levels checked because if> that rises high enough, it can cause confusion, and> all sorts of emotional issues... > > kathypfmp <kathypfmp > wrote:> My husband has Hep C and is not on> treatment because of his platelet > count. In the past few weeks, he has become> increasing more difficult, > including accusing me of having an affair, etc. He> is on again, off > again rational. I sense he is deteriorating rather> quickly and I do > not know what to do. Can anyone give me their> thoughts? Has this > happened to you or a loved one?> > Thank you in advance!> Kathy> > > > > > > Jackie__________________________________________________________Shape in your own image. Join our Network Research Panel today! http://surveylink./gmrs/_panel_invite.asp?a=7 Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2007 Report Share Posted October 3, 2007 you are very welcome Kathy! Please talk with the doc about an antidepressant too,, either getting one if he's not on one or upping the dose if he is,, kathy przybyla kloth <kathypfmp@...> wrote: Hello Everyone!Thank you for the floods of support I have gotten! Iwill have his ammonia checked with his labwork. Yesterday, my wonderful husband was normal again and Idon't think he recalls the past few days, or wouldrather not. I know he is as scared as I am. You guysare the best!Kathy--- Rick Kipp <rickkippearthlink (DOT) net> wrote:> Hi, Kathy, Rick here. I too have high ammonia> levels, as does > , co-owner of this site. I was given a> prescreption of > liquid Enulose (Lactulose solution), and I still> take it 3 times per > day. Every time my wife thinks I'm acting goofy or> not with if, she > reminds be to take more of this drug. Ammonia level> has gone down > some, but is still high. It realy does aid your> brain's ability to > react more normally. The ammonia level is something> to be carefully > monitored, due to possible adverse side effects.> > > >> > Kathy,> > It sounds like to me that his amonia level is> up. My huaband > didn't do things like that but he did get> disorintated. He would get > out of the car and head for the road owhen I asked> him where he was > going he would say in the house.. He started dong> the old man > shuffle ....we got ahold of his dr and they put him> on some meds > untill they found something that worked ..He is now> back to being my > husband again.....Just a thought !!!!!> > > > tricia in oregon > > > __________________________________________________________Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.http://get.games./proddesc?gamekey=monopolyherenow Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 Rick, I know this is a side topic, but isn't the lactulose solution also something that they give liver transplant patients to help reduce the liquid build-up in the abdomen and legs after the transplant? Just curious! Oh, btw, I am also new to the group, male, 43, have Hep C and had a liver transplant on Thanksgiving of 2006. Not a good way to spend the holidays. The body is not rejecting the new liver as much, so the docs are starting on the Interferon/Ribviron treatment to try to get rid of the Hep C. Unfortunately, even though I am a 3e genotype, I have been through the same treatment on four (4) previous occasions with no luck. For those curious, I had fibrosis for about five (5) years previous to the transplant and the cirrhosis only popped up within a few months of the transplant. My bilirubin levels were normal until approximately 25 days prior to the transplant when they started going up. I sold after 30, so I am not sure how high the bilirubin got. Got on the transplant list on a Monday, went home and then back to the hospital on Wednesday, and had the liver transplant on Thursday. One month before the transplant, I felt fine, except for the Hep C effects. It took 30 days for me to have a relatively normal blood test to complete liver shutdown and a meld score that put at the top of the transplant list in the Southwest US. My point is, if there is anyone out there who is not doing what there doctor is telling them to do regarding diet, exercise, meds, etc., get with the program fast. Hep C is not something that you want to mess around with. Thanks for letting me rant! Tony Graber > > > > Kathy, > > It sounds like to me that his amonia level is up. My huaband > didn't do things like that but he did get disorintated. He would get > out of the car and head for the road owhen I asked him where he was > going he would say in the house.. He started dong the old man > shuffle ....we got ahold of his dr and they put him on some meds > untill they found something that worked ..He is now back to being my > husband again.....Just a thought !!!!! > > > > tricia in oregon > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 Jax, Thank you for your email! He is already on an antidepressant called cyambsil (spelling wrong). He is deteriorating rather quickly. I did call the dr's office yesterday and had ammonia added to his labwork. As far as diet, I have to sneak vegetables in wherever possible since he is a meat and potatoes type of guy. Fortunately, I have been able to modify his diet and he eats alot more salads and we have pretty much eliminated potatoes. I push as much fish and chicken as I can. In the past two weeks, he is noticably different. His ankles have swollen up like balloons and his 2 big toenails have turned black. The pain in his right shoulder is unbearable for him. He has said things completely out of turn. We both sense his bloodwork will not be good. I just pray that God is merciful and takes him quickly if that is what is meant to be. In the meantime, we will have by far the best Halloween, Thanksgiving and Christmas ever! Thank you so incredibly much for caring! Love, Kathy --- Jackie on <redjaxjm@...> wrote: > Good Kathy,, I hope its not his ammonia because that > would mean his virus is moving along quickly and > seriously harming his liver,, but IF it is, they > will give him a nasty medication to fix that tho,, > so it is controllable by medications along with > watching the amount of protein he consumes... its > really a difficult mix because most tx requires one > to be on a protein based diet to help it work > better,, and then if you have ammonia problems , > then you have to reduce and watch the amount of > protein you eat,, so treatment is less effective.. I > know several ppl who advocate a vegetarian or vegan > diet which is really not a good thing when you are > on tx,, you need the protein for many things,, to > help control nausea, to help you keep from burning > up your muscle tissue , there are many reasons for > the protein based diet while on tx.. so lets hope > its not that,, but if it is, they can help with > lactulose.. The other thing is that the Interferon > depletes the brain stores of > seretonin and can cause serious depression and > psych problems,, is he on an antidepressant? If he > is on one like wellbutrin, that is more for dopamine > and not seretonin which is the one that gets > depleted on tx.. maybe he needs his antidepressant > if he is on one to have the dose increased... some > ppl can get very suicidal and homicidal on tx.. > thats why I asked.. > let us know,, we are concerned > hugs > jax > > kathy przybyla kloth <kathypfmp@...> wrote: > Jackie, > > I will have his ammonia checked with this round of > bloodwork. I am concerned the Fibrosure is not quite > so accurate-so I will be checking into that too! > > Thank you so much for your support! It means more > than you know! > Kathy > --- Jackie on <redjaxjm@...> wrote: > > > Kathy, I forgot to add this to the other post to > > you, but has his ammonia levels been checked? > > The Fibrosure is not accurate in total,, its only > > good at the extreme ends of the test,, meaning its > > accurate in the 0-1 stage and in stage 4, but > > inbetween stage 1 and 4 , its not accurate. I > speak > > from experience because my fibrosure said I was > > stage 0-1 when in all reality, I was stage 2-3.. > > thats a big difference.. > > I'd have his ammonia levels checked because if > > that rises high enough, it can cause confusion, > and > > all sorts of emotional issues... > > > > kathypfmp <kathypfmp@...> wrote: > > My husband has Hep C and is not on > > treatment because of his platelet > > count. In the past few weeks, he has become > > increasing more difficult, > > including accusing me of having an affair, etc. He > > is on again, off > > again rational. I sense he is deteriorating rather > > quickly and I do > > not know what to do. Can anyone give me their > > thoughts? Has this > > happened to you or a loved one? > > > > Thank you in advance! > > Kathy > > > > > > > > > > > > > > Jackie > > __________________________________________________________ > Shape in your own image. Join our Network > Research Panel today! > http://surveylink./gmrs/_panel_invite.asp?a=7 > > > > > > > > Jackie ________________________________________________________________________________\ ____ Building a website is a piece of cake. Small Business gives you all the tools to get online. http://smallbusiness./webhosting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 Hey, Tony: As far as I know, the lactulose is really for the brain. I also take Lasix 3 times a day for the swelling of the extremities and stomach. I had to go once a week to have my stomach drained for a few months before it stabilized. Yes, I not only follow my Doc's orders, but I also have put into place a lot of info from this board. I also see a " holistic " type guy for herbs and vitamins. He's really helped me a lot in the past 4 months. At least you got your transplant quickly. My Doc keeps thinking I'm getting close, and it just terrifies me. Good luck. > > Rick, > > I know this is a side topic, but isn't the lactulose solution also > something that they give liver transplant patients to help reduce the > liquid build-up in the abdomen and legs after the transplant? Just > curious! > > Oh, btw, I am also new to the group, male, 43, have Hep C and had a > liver transplant on Thanksgiving of 2006. Not a good way to spend > the holidays. The body is not rejecting the new liver as much, so > the docs are starting on the Interferon/Ribviron treatment to try to > get rid of the Hep C. Unfortunately, even though I am a 3e genotype, > I have been through the same treatment on four (4) previous occasions > with no luck. For those curious, I had fibrosis for about five (5) > years previous to the transplant and the cirrhosis only popped up > within a few months of the transplant. My bilirubin levels were > normal until approximately 25 days prior to the transplant when they > started going up. I sold after 30, so I am not sure how high the > bilirubin got. Got on the transplant list on a Monday, went home and > then back to the hospital on Wednesday, and had the liver transplant > on Thursday. One month before the transplant, I felt fine, except > for the Hep C effects. It took 30 days for me to have a relatively > normal blood test to complete liver shutdown and a meld score that > put at the top of the transplant list in the Southwest US. My point > is, if there is anyone out there who is not doing what there doctor > is telling them to do regarding diet, exercise, meds, etc., get with > the program fast. Hep C is not something that you want to mess > around with. > > Thanks for letting me rant! > > Tony Graber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 Tony , I would love to hear more about your transplant , what to expect after & ect.. My husband is on the list here in the pacific northwest. He is at the top of the list but that is a no brainer since he is the only one on the list with his blood type.. I would love to know what we aare getting ourselves into ... the surgen told my husband that he had one patient who was sent hom on the 3rd day and he was out snowblowing that afternoon.... I am afraid that my husband is not prepared for what is going to happen....He seems to have the idea the it is going to be a walk in the park ..the worse he has been trhough is the testing that he went though to get on the list ..it took us 6 months from start to being on the list .. He has never had any surgeries or anything like that .. I am afraid that he will not do as well as he thinks and will not have what it will take to pull him through ... So anything that you can tell me about some of the things to expect or that can happen would be greatly apreciated ....either through the group or private emails ... trishdish13 p.a. oh YEA i have hep c also SAVE A LIFE https://www.donatelifenw.org/register/ TODAY IS GOD'S GIFT TO YOU, WHAT YOU DO WITH IT IS YOUR GIFT TO HIM ! "I am responsible for my own well-being,my own happiness.The choices and decicions I make regarding my lifedirectly influences the quality of my days." Kathleen Andrus Check out our site: http://www.shepswoodncrafts.com/home.htmlhtt http://rslaserkits.com/ Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 > "Got on the transplant list on a Monday, went home and > then back to the hospital on Wednesday, and had the liver transplant > on Thursday. " WOW !!!!!! it took over 6 months for us to get the testing all done and on the list ....and we have been on the list since the middle of june ...and still waiting !!!! they told us the advrage wait was 120 days .....my husband it #1 on the list in this region ...but he is the only one of his blood type ...go figure ......tricia ..oregon . SAVE A LIFE https://www.donatelifenw.org/register/ TODAY IS GOD'S GIFT TO YOU, WHAT YOU DO WITH IT IS YOUR GIFT TO HIM ! "I am responsible for my own well-being,my own happiness.The choices and decicions I make regarding my lifedirectly influences the quality of my days." Kathleen Andrus Check out our site: http://www.shepswoodncrafts.com/home.htmlhtt http://rslaserkits.com/ Don't let your dream ride pass you by. Make it a reality with Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 well Rick, we are here for ya honey,, and will be here with you through your transplant if and when that becomes necessaryRick Kipp <rickkipp@...> wrote: Hey, Tony: As far as I know, the lactulose is really for the brain. I also take Lasix 3 times a day for the swelling of the extremities and stomach. I had to go once a week to have my stomach drained for a few months before it stabilized. Yes, I not only follow my Doc's orders, but I also have put into place a lot of info from this board. I also see a "holistic" type guy for herbs and vitamins. He's really helped me a lot in the past 4 months. At least you got your transplant quickly. My Doc keeps thinking I'm getting close, and it just terrifies me. Good luck.>> Rick,> > I know this is a side topic, but isn't the lactulose solution also > something that they give liver transplant patients to help reduce the > liquid build-up in the abdomen and legs after the transplant? Just > curious! > > Oh, btw, I am also new to the group, male, 43, have Hep C and had a > liver transplant on Thanksgiving of 2006. Not a good way to spend > the holidays. The body is not rejecting the new liver as much, so > the docs are starting on the Interferon/Ribviron treatment to try to > get rid of the Hep C. Unfortunately, even though I am a 3e genotype, > I have been through the same treatment on four (4) previous occasions > with no luck. For those curious, I had fibrosis for about five (5) > years previous to the transplant and the cirrhosis only popped up > within a few months of the transplant. My bilirubin levels were > normal until approximately 25 days prior to the transplant when they > started going up. I sold after 30, so I am not sure how high the > bilirubin got. Got on the transplant list on a Monday, went home and > then back to the hospital on Wednesday, and had the liver transplant > on Thursday. One month before the transplant, I felt fine, except > for the Hep C effects. It took 30 days for me to have a relatively > normal blood test to complete liver shutdown and a meld score that > put at the top of the transplant list in the Southwest US. My point > is, if there is anyone out there who is not doing what there doctor > is telling them to do regarding diet, exercise, meds, etc., get with > the program fast. Hep C is not something that you want to mess > around with.> > Thanks for letting me rant!> > Tony GraberJackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 Are you meaning Cymbalta???? THAT is NOT for those with liver disease honey,,, that could be why he is going downhill so quickly,,, its got a black box warning on it for those with liver disease.... Please double check if that is what he is taking,, there are other ssri's that do not carry that same risk as cymbalta,, kathy przybyla kloth <kathypfmp@...> wrote: Jax,Thank you for your email! He is already on anantidepressant called cyambsil (spelling wrong). Heis deteriorating rather quickly. I did call the dr'soffice yesterday and had ammonia added to his labwork.As far as diet, I have to sneak vegetables inwherever possible since he is a meat and potatoes typeof guy. Fortunately, I have been able to modify hisdiet and he eats alot more salads and we have prettymuch eliminated potatoes. I push as much fish andchicken as I can.In the past two weeks, he is noticably different. Hisankles have swollen up like balloons and his 2 bigtoenails have turned black. The pain in his rightshoulder is unbearable for him. He has said thingscompletely out of turn. We both sense his bloodworkwill not be good. I just pray that God is mercifuland takes him quickly if that is what is meant to be. In the meantime, we will have by far the bestHalloween, Thanksgiving and Christmas ever!Thank you so incredibly much for caring!Love,Kathy--- Jackie on <redjaxjm > wrote:> Good Kathy,, I hope its not his ammonia because that> would mean his virus is moving along quickly and> seriously harming his liver,, but IF it is, they> will give him a nasty medication to fix that tho,,> so it is controllable by medications along with> watching the amount of protein he consumes... its> really a difficult mix because most tx requires one> to be on a protein based diet to help it work> better,, and then if you have ammonia problems ,> then you have to reduce and watch the amount of> protein you eat,, so treatment is less effective.. I> know several ppl who advocate a vegetarian or vegan> diet which is really not a good thing when you are> on tx,, you need the protein for many things,, to> help control nausea, to help you keep from burning> up your muscle tissue , there are many reasons for> the protein based diet while on tx.. so lets hope> its not that,, but if it is, they can help with> lactulose.. The other thing is that the Interferon> depletes the brain stores of> seretonin and can cause serious depression and> psych problems,, is he on an antidepressant? If he> is on one like wellbutrin, that is more for dopamine> and not seretonin which is the one that gets> depleted on tx.. maybe he needs his antidepressant> if he is on one to have the dose increased... some> ppl can get very suicidal and homicidal on tx..> thats why I asked.. > let us know,, we are concerned> hugs> jax> > kathy przybyla kloth <kathypfmp > wrote:> Jackie,> > I will have his ammonia checked with this round of> bloodwork. I am concerned the Fibrosure is not quite> so accurate-so I will be checking into that too!> > Thank you so much for your support! It means more> than you know!> Kathy> --- Jackie on <redjaxjm > wrote:> > > Kathy, I forgot to add this to the other post to> > you, but has his ammonia levels been checked?> > The Fibrosure is not accurate in total,, its only> > good at the extreme ends of the test,, meaning its> > accurate in the 0-1 stage and in stage 4, but> > inbetween stage 1 and 4 , its not accurate. I> speak> > from experience because my fibrosure said I was> > stage 0-1 when in all reality, I was stage 2-3..> > thats a big difference.. > > I'd have his ammonia levels checked because if> > that rises high enough, it can cause confusion,> and> > all sorts of emotional issues... > > > > kathypfmp <kathypfmp > wrote:> > My husband has Hep C and is not on> > treatment because of his platelet > > count. In the past few weeks, he has become> > increasing more difficult, > > including accusing me of having an affair, etc. He> > is on again, off > > again rational. I sense he is deteriorating rather> > quickly and I do > > not know what to do. Can anyone give me their> > thoughts? Has this > > happened to you or a loved one?> > > > Thank you in advance!> > Kathy> > > > > > > > > > > > > > Jackie> >__________________________________________________________> Shape in your own image. Join our Network> Research Panel today!>http://surveylink./gmrs/_panel_invite.asp?a=7> > > > > > > > Jackie__________________________________________________________Building a website is a piece of cake. Small Business gives you all the tools to get online.http://smallbusiness./webhosting Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 Lactalose is for ammonia buildup Tony... I hope that helps,, jaxTony <books64@...> wrote: Rick,I know this is a side topic, but isn't the lactulose solution also something that they give liver transplant patients to help reduce the liquid build-up in the abdomen and legs after the transplant? Just curious! Oh, btw, I am also new to the group, male, 43, have Hep C and had a liver transplant on Thanksgiving of 2006. Not a good way to spend the holidays. The body is not rejecting the new liver as much, so the docs are starting on the Interferon/Ribviron treatment to try to get rid of the Hep C. Unfortunately, even though I am a 3e genotype, I have been through the same treatment on four (4) previous occasions with no luck. For those curious, I had fibrosis for about five (5) years previous to the transplant and the cirrhosis only popped up within a few months of the transplant. My bilirubin levels were normal until approximately 25 days prior to the transplant when they started going up. I sold after 30, so I am not sure how high the bilirubin got. Got on the transplant list on a Monday, went home and then back to the hospital on Wednesday, and had the liver transplant on Thursday. One month before the transplant, I felt fine, except for the Hep C effects. It took 30 days for me to have a relatively normal blood test to complete liver shutdown and a meld score that put at the top of the transplant list in the Southwest US. My point is, if there is anyone out there who is not doing what there doctor is telling them to do regarding diet, exercise, meds, etc., get with the program fast. Hep C is not something that you want to mess around with.Thanks for letting me rant!Tony Graber> >> > Kathy,> > It sounds like to me that his amonia level is up. My huaband > didn't do things like that but he did get disorintated. He would get > out of the car and head for the road owhen I asked him where he was > going he would say in the house.. He started dong the old man > shuffle ....we got ahold of his dr and they put him on some meds > untill they found something that worked ..He is now back to being my > husband again.....Just a thought !!!!!> > > > tricia in oregon>Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 I take Effexor XR and it is very helpful. And it is liver friendly. Love JanetJackie on <redjaxjm@...> wrote: Are you meaning Cymbalta???? THAT is NOT for those with liver disease honey,,, that could be why he is going downhill so quickly,,, its got a black box warning on it for those with liver disease.... Please double check if that is what he is taking,, there are other ssri's that do not carry that same risk as cymbalta,, kathy przybyla kloth <kathypfmp > wrote: Jax,Thank you for your email! He is already on anantidepressant called cyambsil (spelling wrong). Heis deteriorating rather quickly. I did call the dr'soffice yesterday and had ammonia added to his labwork.As far as diet, I have to sneak vegetables inwherever possible since he is a meat and potatoes typeof guy. Fortunately, I have been able to modify hisdiet and he eats alot more salads and we have prettymuch eliminated potatoes. I push as much fish andchicken as I can.In the past two weeks, he is noticably different. Hisankles have swollen up like balloons and his 2 bigtoenails have turned black. The pain in his rightshoulder is unbearable for him. He has said thingscompletely out of turn. We both sense his bloodworkwill not be good. I just pray that God is mercifuland takes him quickly if that is what is meant to be. In the meantime, we will have by far the bestHalloween, Thanksgiving and Christmas ever!Thank you so incredibly much for caring!Love,Kathy--- Jackie on <redjaxjm > wrote:> Good Kathy,, I hope its not his ammonia because that> would mean his virus is moving along quickly and> seriously harming his liver,, but IF it is, they> will give him a nasty medication to fix that tho,,> so it is controllable by medications along with> watching the amount of protein he consumes... its> really a difficult mix because most tx requires one> to be on a protein based diet to help it work> better,, and then if you have ammonia problems ,> then you have to reduce and watch the amount of> protein you eat,, so treatment is less effective.. I> know several ppl who advocate a vegetarian or vegan> diet which is really not a good thing when you are> on tx,, you need the protein for many things,, to> help control nausea, to help you keep from burning> up your muscle tissue , there are many reasons for> the protein based diet while on tx.. so lets hope> its not that,, but if it is, they can help with> lactulose.. The other thing is that the Interferon> depletes the brain stores of> seretonin and can cause serious depression and> psych problems,, is he on an antidepressant? If he> is on one like wellbutrin, that is more for dopamine> and not seretonin which is the one that gets> depleted on tx.. maybe he needs his antidepressant> if he is on one to have the dose increased... some> ppl can get very suicidal and homicidal on tx..> thats why I asked.. > let us know,, we are concerned> hugs> jax> > kathy przybyla kloth <kathypfmp > wrote:> Jackie,> > I will have his ammonia checked with this round of> bloodwork. I am concerned the Fibrosure is not quite> so accurate-so I will be checking into that too!> > Thank you so much for your support! It means more> than you know!> Kathy> --- Jackie on <redjaxjm > wrote:> > > Kathy, I forgot to add this to the other post to> > you, but has his ammonia levels been checked?> > The Fibrosure is not accurate in total,, its only> > good at the extreme ends of the test,, meaning its> > accurate in the 0-1 stage and in stage 4, but> > inbetween stage 1 and 4 , its not accurate. I> speak> > from experience because my fibrosure said I was> > stage 0-1 when in all reality, I was stage 2-3..> > thats a big difference.. > > I'd have his ammonia levels checked because if> > that rises high enough, it can cause confusion,> and> > all sorts of emotional issues... > > > > kathypfmp <kathypfmp > wrote:> > My husband has Hep C and is not on> > treatment because of his platelet > > count. In the past few weeks, he has become> > increasing more difficult, > > including accusing me of having an affair, etc. He> > is on again, off > > again rational. I sense he is deteriorating rather> > quickly and I do > > not know what to do. Can anyone give me their> > thoughts? Has this > > happened to you or a loved one?> > > > Thank you in advance!> > Kathy> > > > > > > > > > > > > > Jackie> >__________________________________________________________> Shape in your own image. Join our Network> Research Panel today!>http://surveylink./gmrs/_panel_invite.asp?a=7> > > > > > > > Jackie__________________________________________________________Building a website is a piece of cake. Small Business gives you all the tools to get online.http://smallbusiness./webhosting Jackie It is a beautiful day, go out and enjoy it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 I will be calling the doctor tomorrow morning!!! Thank you for the suggestion and I will recommend it to her tomorrow! Thank you! Love, Kathy --- Janet <doc_jade@...> wrote: > I take Effexor XR and it is very helpful. And it is > liver friendly. > Love > Janet > > Jackie on <redjaxjm@...> wrote: > Are you meaning Cymbalta???? THAT is NOT > for those with liver disease honey,,, that could be > why he is going downhill so quickly,,, its got a > black box warning on it for those with liver > disease.... Please double check if that is what he > is taking,, > there are other ssri's that do not carry that same > risk as cymbalta,, > > kathy przybyla kloth <kathypfmp@...> wrote: > Jax, > > Thank you for your email! He is already on an > antidepressant called cyambsil (spelling wrong). He > is deteriorating rather quickly. I did call the dr's > office yesterday and had ammonia added to his > labwork. > As far as diet, I have to sneak vegetables in > wherever possible since he is a meat and potatoes > type > of guy. Fortunately, I have been able to modify his > diet and he eats alot more salads and we have pretty > much eliminated potatoes. I push as much fish and > chicken as I can. > > In the past two weeks, he is noticably different. > His > ankles have swollen up like balloons and his 2 big > toenails have turned black. The pain in his right > shoulder is unbearable for him. He has said things > completely out of turn. We both sense his bloodwork > will not be good. I just pray that God is merciful > and takes him quickly if that is what is meant to > be. > In the meantime, we will have by far the best > Halloween, Thanksgiving and Christmas ever! > > Thank you so incredibly much for caring! > Love, > Kathy > --- Jackie on <redjaxjm@...> wrote: > > > Good Kathy,, I hope its not his ammonia because > that > > would mean his virus is moving along quickly and > > seriously harming his liver,, but IF it is, they > > will give him a nasty medication to fix that tho,, > > so it is controllable by medications along with > > watching the amount of protein he consumes... its > > really a difficult mix because most tx requires > one > > to be on a protein based diet to help it work > > better,, and then if you have ammonia problems , > > then you have to reduce and watch the amount of > > protein you eat,, so treatment is less effective.. > I > > know several ppl who advocate a vegetarian or > vegan > > diet which is really not a good thing when you are > > on tx,, you need the protein for many things,, to > > help control nausea, to help you keep from burning > > up your muscle tissue , there are many reasons for > > the protein based diet while on tx.. so lets hope > > its not that,, but if it is, they can help with > > lactulose.. The other thing is that the Interferon > > depletes the brain stores of > > seretonin and can cause serious depression and > > psych problems,, is he on an antidepressant? If he > > is on one like wellbutrin, that is more for > dopamine > > and not seretonin which is the one that gets > > depleted on tx.. maybe he needs his antidepressant > > if he is on one to have the dose increased... some > > ppl can get very suicidal and homicidal on tx.. > > thats why I asked.. > > let us know,, we are concerned > > hugs > > jax > > > > kathy przybyla kloth <kathypfmp@...> wrote: > > Jackie, > > > > I will have his ammonia checked with this round of > > bloodwork. I am concerned the Fibrosure is not > quite > > so accurate-so I will be checking into that too! > > > > Thank you so much for your support! It means more > > than you know! > > Kathy > > --- Jackie on <redjaxjm@...> wrote: > > > > > Kathy, I forgot to add this to the other post to > > > you, but has his ammonia levels been checked? > > > The Fibrosure is not accurate in total,, its > only > > > good at the extreme ends of the test,, meaning > its > > > accurate in the 0-1 stage and in stage 4, but > > > inbetween stage 1 and 4 , its not accurate. I > > speak > > > from experience because my fibrosure said I was > > > stage 0-1 when in all reality, I was stage 2-3.. > > > thats a big difference.. > > > I'd have his ammonia levels checked because if > > > that rises high enough, it can cause confusion, > > and > > > all sorts of emotional issues... > > > > > > kathypfmp <kathypfmp@...> wrote: > > > My husband has Hep C and is not on > > > treatment because of his platelet > > > count. In the past few weeks, he has become > > > increasing more difficult, > > > including accusing me of having an affair, etc. > He > > > is on again, off > > > again rational. I sense he is deteriorating > rather > > > quickly and I do > > > not know what to do. Can anyone give me their > > > thoughts? Has this > > > happened to you or a loved one? > > > > > > Thank you in advance! > > > Kathy > > > > > > > > > > > > > > > > > > > > > Jackie > > > > > __________________________________________________________ > > Shape in your own image. Join our Network > > Research Panel today! > > > http://surveylink./gmrs/_panel_invite.asp?a=7 > > > > > > > > > > > > > > > > Jackie > > __________________________________________________________ > Building a website is a piece of cake. Small > Business gives you all the tools to get online. > http://smallbusiness./webhosting > > > > > > Jackie > > > > > It is a beautiful day, go out and enjoy it. > ________________________________________________________________________________\ ____ oneSearch: Finally, mobile search that gives answers, not web links. http://mobile./mobileweb/onesearch?refer=1ONXIC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 Jax, That is exactly what he has been taking for the past 2 months!!!! I will be calling the doctor first thing in the morning! I am just sick about this! She gave it to him to help with his neuropathy too... --- Jackie on <redjaxjm@...> wrote: > Are you meaning Cymbalta???? THAT is NOT for those > with liver disease honey,,, that could be why he is > going downhill so quickly,,, its got a black box > warning on it for those with liver disease.... > Please double check if that is what he is taking,, > there are other ssri's that do not carry that same > risk as cymbalta,, > > kathy przybyla kloth <kathypfmp@...> wrote: > Jax, > > Thank you for your email! He is already on an > antidepressant called cyambsil (spelling wrong). He > is deteriorating rather quickly. I did call the dr's > office yesterday and had ammonia added to his > labwork. > As far as diet, I have to sneak vegetables in > wherever possible since he is a meat and potatoes > type > of guy. Fortunately, I have been able to modify his > diet and he eats alot more salads and we have pretty > much eliminated potatoes. I push as much fish and > chicken as I can. > > In the past two weeks, he is noticably different. > His > ankles have swollen up like balloons and his 2 big > toenails have turned black. The pain in his right > shoulder is unbearable for him. He has said things > completely out of turn. We both sense his bloodwork > will not be good. I just pray that God is merciful > and takes him quickly if that is what is meant to > be. > In the meantime, we will have by far the best > Halloween, Thanksgiving and Christmas ever! > > Thank you so incredibly much for caring! > Love, > Kathy > --- Jackie on <redjaxjm@...> wrote: > > > Good Kathy,, I hope its not his ammonia because > that > > would mean his virus is moving along quickly and > > seriously harming his liver,, but IF it is, they > > will give him a nasty medication to fix that tho,, > > so it is controllable by medications along with > > watching the amount of protein he consumes... its > > really a difficult mix because most tx requires > one > > to be on a protein based diet to help it work > > better,, and then if you have ammonia problems , > > then you have to reduce and watch the amount of > > protein you eat,, so treatment is less effective.. > I > > know several ppl who advocate a vegetarian or > vegan > > diet which is really not a good thing when you are > > on tx,, you need the protein for many things,, to > > help control nausea, to help you keep from burning > > up your muscle tissue , there are many reasons for > > the protein based diet while on tx.. so lets hope > > its not that,, but if it is, they can help with > > lactulose.. The other thing is that the Interferon > > depletes the brain stores of > > seretonin and can cause serious depression and > > psych problems,, is he on an antidepressant? If he > > is on one like wellbutrin, that is more for > dopamine > > and not seretonin which is the one that gets > > depleted on tx.. maybe he needs his antidepressant > > if he is on one to have the dose increased... some > > ppl can get very suicidal and homicidal on tx.. > > thats why I asked.. > > let us know,, we are concerned > > hugs > > jax > > > > kathy przybyla kloth <kathypfmp@...> wrote: > > Jackie, > > > > I will have his ammonia checked with this round of > > bloodwork. I am concerned the Fibrosure is not > quite > > so accurate-so I will be checking into that too! > > > > Thank you so much for your support! It means more > > than you know! > > Kathy > > --- Jackie on <redjaxjm@...> wrote: > > > > > Kathy, I forgot to add this to the other post to > > > you, but has his ammonia levels been checked? > > > The Fibrosure is not accurate in total,, its > only > > > good at the extreme ends of the test,, meaning > its > > > accurate in the 0-1 stage and in stage 4, but > > > inbetween stage 1 and 4 , its not accurate. I > > speak > > > from experience because my fibrosure said I was > > > stage 0-1 when in all reality, I was stage 2-3.. > > > thats a big difference.. > > > I'd have his ammonia levels checked because if > > > that rises high enough, it can cause confusion, > > and > > > all sorts of emotional issues... > > > > > > kathypfmp <kathypfmp@...> wrote: > > > My husband has Hep C and is not on > > > treatment because of his platelet > > > count. In the past few weeks, he has become > > > increasing more difficult, > > > including accusing me of having an affair, etc. > He > > > is on again, off > > > again rational. I sense he is deteriorating > rather > > > quickly and I do > > > not know what to do. Can anyone give me their > > > thoughts? Has this > > > happened to you or a loved one? > > > > > > Thank you in advance! > > > Kathy > > > > > > > > > > > > > > > > > > > > > Jackie > > > > > __________________________________________________________ > > Shape in your own image. Join our Network > > Research Panel today! > > > http://surveylink./gmrs/_panel_invite.asp?a=7 > > > > > > > > > > > > > > > > Jackie > > __________________________________________________________ > Building a website is a piece of cake. Small > Business gives you all the tools to get online. > http://smallbusiness./webhosting > > > > > > Jackie ________________________________________________________________________________\ ____ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games. http://get.games./proddesc?gamekey=monopolyherenow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 Oh NO Kathy,, it clearly has a warning for those WITH LIVER DISEASE,, I wonder why she gave it to begin with.... especially with hep c... Its designed for depression and the body pain depression can cause,, but sheesh... well he has to wean off of it slowly and then start with the correct ssri that does not have the same damaging effects to the liver... please know that I will be keeping you and your husband in my prayers and hope that this cymbalta has not damaged his liver in a way that is irreversible..but remember the liver CAN and DOES regenerate itself so hopefully she will take him off before he has fulminant liver failure... whatever you do tho, do not stop any drug immediately and rapidly,, it has to be done slowly or else he will have a rebound problem,, please let me know jaxkathy przybyla kloth <kathypfmp@...> wrote: Jax,That is exactly what he has been taking for the past 2months!!!! I will be calling the doctor first thingin the morning! I am just sick about this! She gaveit to him to help with his neuropathy too...--- Jackie on <redjaxjm > wrote:> Are you meaning Cymbalta???? THAT is NOT for those> with liver disease honey,,, that could be why he is> going downhill so quickly,,, its got a black box> warning on it for those with liver disease....> Please double check if that is what he is taking,, > there are other ssri's that do not carry that same> risk as cymbalta,, > > kathy przybyla kloth <kathypfmp > wrote:> Jax,> > Thank you for your email! He is already on an> antidepressant called cyambsil (spelling wrong). He> is deteriorating rather quickly. I did call the dr's> office yesterday and had ammonia added to his> labwork.> As far as diet, I have to sneak vegetables in> wherever possible since he is a meat and potatoes> type> of guy. Fortunately, I have been able to modify his> diet and he eats alot more salads and we have pretty> much eliminated potatoes. I push as much fish and> chicken as I can.> > In the past two weeks, he is noticably different.> His> ankles have swollen up like balloons and his 2 big> toenails have turned black. The pain in his right> shoulder is unbearable for him. He has said things> completely out of turn. We both sense his bloodwork> will not be good. I just pray that God is merciful> and takes him quickly if that is what is meant to> be. > In the meantime, we will have by far the best> Halloween, Thanksgiving and Christmas ever!> > Thank you so incredibly much for caring!> Love,> Kathy> --- Jackie on <redjaxjm > wrote:> > > Good Kathy,, I hope its not his ammonia because> that> > would mean his virus is moving along quickly and> > seriously harming his liver,, but IF it is, they> > will give him a nasty medication to fix that tho,,> > so it is controllable by medications along with> > watching the amount of protein he consumes... its> > really a difficult mix because most tx requires> one> > to be on a protein based diet to help it work> > better,, and then if you have ammonia problems ,> > then you have to reduce and watch the amount of> > protein you eat,, so treatment is less effective..> I> > know several ppl who advocate a vegetarian or> vegan> > diet which is really not a good thing when you are> > on tx,, you need the protein for many things,, to> > help control nausea, to help you keep from burning> > up your muscle tissue , there are many reasons for> > the protein based diet while on tx.. so lets hope> > its not that,, but if it is, they can help with> > lactulose.. The other thing is that the Interferon> > depletes the brain stores of> > seretonin and can cause serious depression and> > psych problems,, is he on an antidepressant? If he> > is on one like wellbutrin, that is more for> dopamine> > and not seretonin which is the one that gets> > depleted on tx.. maybe he needs his antidepressant> > if he is on one to have the dose increased... some> > ppl can get very suicidal and homicidal on tx..> > thats why I asked.. > > let us know,, we are concerned> > hugs> > jax> > > > kathy przybyla kloth <kathypfmp > wrote:> > Jackie,> > > > I will have his ammonia checked with this round of> > bloodwork. I am concerned the Fibrosure is not> quite> > so accurate-so I will be checking into that too!> > > > Thank you so much for your support! It means more> > than you know!> > Kathy> > --- Jackie on <redjaxjm > wrote:> > > > > Kathy, I forgot to add this to the other post to> > > you, but has his ammonia levels been checked?> > > The Fibrosure is not accurate in total,, its> only> > > good at the extreme ends of the test,, meaning> its> > > accurate in the 0-1 stage and in stage 4, but> > > inbetween stage 1 and 4 , its not accurate. I> > speak> > > from experience because my fibrosure said I was> > > stage 0-1 when in all reality, I was stage 2-3..> > > thats a big difference.. > > > I'd have his ammonia levels checked because if> > > that rises high enough, it can cause confusion,> > and> > > all sorts of emotional issues... > > > > > > kathypfmp <kathypfmp > wrote:> > > My husband has Hep C and is not on> > > treatment because of his platelet > > > count. In the past few weeks, he has become> > > increasing more difficult, > > > including accusing me of having an affair, etc.> He> > > is on again, off > > > again rational. I sense he is deteriorating> rather> > > quickly and I do > > > not know what to do. Can anyone give me their> > > thoughts? Has this > > > happened to you or a loved one?> > > > > > Thank you in advance!> > > Kathy> > > > > > > > > > > > > > > > > > > > > Jackie> > > >>__________________________________________________________> > Shape in your own image. Join our Network> > Research Panel today!> >>http://surveylink./gmrs/_panel_invite.asp?a=7> > > > > > > > > > > > > > > > Jackie> >__________________________________________________________> Building a website is a piece of cake. Small> Business gives you all the tools to get online.> http://smallbusiness./webhosting > > > > > > Jackie__________________________________________________________Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.http://get.games./proddesc?gamekey=monopolyherenow Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 Jax, The doctor's office dropped him from 60mg Cymbalta to 30mg a day. His dr was out but the nurse gave me the samples for 4 weeks. My husband has an appt with his doctor in 2 weeks so perhaps she can take him off then. --- Jackie on <redjaxjm@...> wrote: > Oh NO Kathy,, it clearly has a warning for those > WITH LIVER DISEASE,, I wonder why she gave it to > begin with.... especially with hep c... Its designed > for depression and the body pain depression can > cause,, but sheesh... well he has to wean off of it > slowly and then start with the correct ssri that > does not have the same damaging effects to the > liver... please know that I will be keeping you and > your husband in my prayers and hope that this > cymbalta has not damaged his liver in a way that is > irreversible..but remember the liver CAN and DOES > regenerate itself so hopefully she will take him off > before he has fulminant liver failure... whatever > you do tho, do not stop any drug immediately and > rapidly,, it has to be done slowly or else he will > have a rebound problem,, > please let me know > jax > > kathy przybyla kloth <kathypfmp@...> wrote: > Jax, > > That is exactly what he has been taking for the past > 2 > months!!!! I will be calling the doctor first thing > in the morning! I am just sick about this! She gave > it to him to help with his neuropathy too... > --- Jackie on <redjaxjm@...> wrote: > > > Are you meaning Cymbalta???? THAT is NOT for those > > with liver disease honey,,, that could be why he > is > > going downhill so quickly,,, its got a black box > > warning on it for those with liver disease.... > > Please double check if that is what he is taking,, > > > there are other ssri's that do not carry that same > > risk as cymbalta,, > > > > kathy przybyla kloth <kathypfmp@...> wrote: > > Jax, > > > > Thank you for your email! He is already on an > > antidepressant called cyambsil (spelling wrong). > He > > is deteriorating rather quickly. I did call the > dr's > > office yesterday and had ammonia added to his > > labwork. > > As far as diet, I have to sneak vegetables in > > wherever possible since he is a meat and potatoes > > type > > of guy. Fortunately, I have been able to modify > his > > diet and he eats alot more salads and we have > pretty > > much eliminated potatoes. I push as much fish and > > chicken as I can. > > > > In the past two weeks, he is noticably different. > > His > > ankles have swollen up like balloons and his 2 big > > toenails have turned black. The pain in his right > > shoulder is unbearable for him. He has said things > > completely out of turn. We both sense his > bloodwork > > will not be good. I just pray that God is merciful > > and takes him quickly if that is what is meant to > > be. > > In the meantime, we will have by far the best > > Halloween, Thanksgiving and Christmas ever! > > > > Thank you so incredibly much for caring! > > Love, > > Kathy > > --- Jackie on <redjaxjm@...> wrote: > > > > > Good Kathy,, I hope its not his ammonia because > > that > > > would mean his virus is moving along quickly and > > > seriously harming his liver,, but IF it is, they > > > will give him a nasty medication to fix that > tho,, > > > so it is controllable by medications along with > > > watching the amount of protein he consumes... > its > > > really a difficult mix because most tx requires > > one > > > to be on a protein based diet to help it work > > > better,, and then if you have ammonia problems , > > > then you have to reduce and watch the amount of > > > protein you eat,, so treatment is less > effective.. > > I > > > know several ppl who advocate a vegetarian or > > vegan > > > diet which is really not a good thing when you > are > > > on tx,, you need the protein for many things,, > to > > > help control nausea, to help you keep from > burning > > > up your muscle tissue , there are many reasons > for > > > the protein based diet while on tx.. so lets > hope > > > its not that,, but if it is, they can help with > > > lactulose.. The other thing is that the > Interferon > > > depletes the brain stores of > > > seretonin and can cause serious depression and > > > psych problems,, is he on an antidepressant? If > he > > > is on one like wellbutrin, that is more for > > dopamine > > > and not seretonin which is the one that gets > > > depleted on tx.. maybe he needs his > antidepressant > > > if he is on one to have the dose increased... > some > > > ppl can get very suicidal and homicidal on tx.. > > > thats why I asked.. > > > let us know,, we are concerned > > > hugs > > > jax > > > > > > kathy przybyla kloth <kathypfmp@...> > wrote: > > > Jackie, > > > > > > I will have his ammonia checked with this round > of > > > bloodwork. I am concerned the Fibrosure is not > > quite > > > so accurate-so I will be checking into that too! > > > > > > Thank you so much for your support! It means > more > > > than you know! > > > Kathy > > > --- Jackie on <redjaxjm@...> wrote: > > > > > > > Kathy, I forgot to add this to the other post > to > > > > you, but has his ammonia levels been checked? > > > > The Fibrosure is not accurate in total,, its > > only > > > > good at the extreme ends of the test,, meaning > > its > > > > accurate in the 0-1 stage and in stage 4, but > > > > inbetween stage 1 and 4 , its not accurate. I > > > speak > > > > from experience because my fibrosure said I > was > > > > stage 0-1 when in all reality, I was stage > 2-3.. > > > > thats a big difference.. > > > > I'd have his ammonia levels checked because if > > > > that rises high enough, it can cause > confusion, > > > and > > > > all sorts of emotional issues... > > > > > > > > kathypfmp <kathypfmp@...> wrote: > > > > My husband has Hep C and is not on > > > > treatment because of his platelet > > > > count. In the past few weeks, he has become > > > > increasing more difficult, > > > > including accusing me of having an affair, > etc. > > He > > > > is on again, off > > > > again rational. I sense he is deteriorating > > rather > > > > quickly and I do > > > > not know what to do. Can anyone give me their > > > > thoughts? Has this > > > > happened to you or a loved one? > > > > > > > > Thank you in advance! > > > > Kathy > > > > > > > > > > > > > > > > > > > > > > > > > > > > Jackie > > > > > > > > > __________________________________________________________ > > > Shape in your own image. Join our Network > > > Research Panel today! > > > > > > http://surveylink./gmrs/_panel_invite.asp?a=7 > > > > > > > > > > > > > === message truncated === ________________________________________________________________________________\ ____ Looking for a deal? Find great prices on flights and hotels with FareChase. http://farechase./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 well good, at least you are moving in the right direction.. I just dont understand WHY they gave that to him in the first place unless they didnt know he had hcv... keep us posted honey,, I hope by getting him on a different ssri he will get better. hugs, jaxkathy przybyla kloth <kathypfmp@...> wrote: Jax,The doctor's office dropped him from 60mg Cymbalta to30mg a day. His dr was out but the nurse gave me thesamples for 4 weeks. My husband has an appt with hisdoctor in 2 weeks so perhaps she can take him offthen.--- Jackie on <redjaxjm > wrote:> Oh NO Kathy,, it clearly has a warning for those> WITH LIVER DISEASE,, I wonder why she gave it to> begin with.... especially with hep c... Its designed> for depression and the body pain depression can> cause,, but sheesh... well he has to wean off of it> slowly and then start with the correct ssri that> does not have the same damaging effects to the> liver... please know that I will be keeping you and> your husband in my prayers and hope that this> cymbalta has not damaged his liver in a way that is> irreversible..but remember the liver CAN and DOES> regenerate itself so hopefully she will take him off> before he has fulminant liver failure... whatever> you do tho, do not stop any drug immediately and> rapidly,, it has to be done slowly or else he will> have a rebound problem,, > please let me know> jax> > kathy przybyla kloth <kathypfmp > wrote:> Jax,> > That is exactly what he has been taking for the past> 2> months!!!! I will be calling the doctor first thing> in the morning! I am just sick about this! She gave> it to him to help with his neuropathy too...> --- Jackie on <redjaxjm > wrote:> > > Are you meaning Cymbalta???? THAT is NOT for those> > with liver disease honey,,, that could be why he> is> > going downhill so quickly,,, its got a black box> > warning on it for those with liver disease....> > Please double check if that is what he is taking,,> > > there are other ssri's that do not carry that same> > risk as cymbalta,, > > > > kathy przybyla kloth <kathypfmp > wrote:> > Jax,> > > > Thank you for your email! He is already on an> > antidepressant called cyambsil (spelling wrong).> He> > is deteriorating rather quickly. I did call the> dr's> > office yesterday and had ammonia added to his> > labwork.> > As far as diet, I have to sneak vegetables in> > wherever possible since he is a meat and potatoes> > type> > of guy. Fortunately, I have been able to modify> his> > diet and he eats alot more salads and we have> pretty> > much eliminated potatoes. I push as much fish and> > chicken as I can.> > > > In the past two weeks, he is noticably different.> > His> > ankles have swollen up like balloons and his 2 big> > toenails have turned black. The pain in his right> > shoulder is unbearable for him. He has said things> > completely out of turn. We both sense his> bloodwork> > will not be good. I just pray that God is merciful> > and takes him quickly if that is what is meant to> > be. > > In the meantime, we will have by far the best> > Halloween, Thanksgiving and Christmas ever!> > > > Thank you so incredibly much for caring!> > Love,> > Kathy> > --- Jackie on <redjaxjm > wrote:> > > > > Good Kathy,, I hope its not his ammonia because> > that> > > would mean his virus is moving along quickly and> > > seriously harming his liver,, but IF it is, they> > > will give him a nasty medication to fix that> tho,,> > > so it is controllable by medications along with> > > watching the amount of protein he consumes...> its> > > really a difficult mix because most tx requires> > one> > > to be on a protein based diet to help it work> > > better,, and then if you have ammonia problems ,> > > then you have to reduce and watch the amount of> > > protein you eat,, so treatment is less> effective..> > I> > > know several ppl who advocate a vegetarian or> > vegan> > > diet which is really not a good thing when you> are> > > on tx,, you need the protein for many things,,> to> > > help control nausea, to help you keep from> burning> > > up your muscle tissue , there are many reasons> for> > > the protein based diet while on tx.. so lets> hope> > > its not that,, but if it is, they can help with> > > lactulose.. The other thing is that the> Interferon> > > depletes the brain stores of> > > seretonin and can cause serious depression and> > > psych problems,, is he on an antidepressant? If> he> > > is on one like wellbutrin, that is more for> > dopamine> > > and not seretonin which is the one that gets> > > depleted on tx.. maybe he needs his> antidepressant> > > if he is on one to have the dose increased...> some> > > ppl can get very suicidal and homicidal on tx..> > > thats why I asked.. > > > let us know,, we are concerned> > > hugs> > > jax> > > > > > kathy przybyla kloth <kathypfmp >> wrote:> > > Jackie,> > > > > > I will have his ammonia checked with this round> of> > > bloodwork. I am concerned the Fibrosure is not> > quite> > > so accurate-so I will be checking into that too!> > > > > > Thank you so much for your support! It means> more> > > than you know!> > > Kathy> > > --- Jackie on <redjaxjm > wrote:> > > > > > > Kathy, I forgot to add this to the other post> to> > > > you, but has his ammonia levels been checked?> > > > The Fibrosure is not accurate in total,, its> > only> > > > good at the extreme ends of the test,, meaning> > its> > > > accurate in the 0-1 stage and in stage 4, but> > > > inbetween stage 1 and 4 , its not accurate. I> > > speak> > > > from experience because my fibrosure said I> was> > > > stage 0-1 when in all reality, I was stage> 2-3..> > > > thats a big difference.. > > > > I'd have his ammonia levels checked because if> > > > that rises high enough, it can cause> confusion,> > > and> > > > all sorts of emotional issues... > > > > > > > > kathypfmp <kathypfmp > wrote:> > > > My husband has Hep C and is not on> > > > treatment because of his platelet > > > > count. In the past few weeks, he has become> > > > increasing more difficult, > > > > including accusing me of having an affair,> etc.> > He> > > > is on again, off > > > > again rational. I sense he is deteriorating> > rather> > > > quickly and I do > > > > not know what to do. Can anyone give me their> > > > thoughts? Has this > > > > happened to you or a loved one?> > > > > > > > Thank you in advance!> > > > Kathy> > > > > > > > > > > > > > > > > > > > > > > > > > > > Jackie> > > > > >> >>__________________________________________________________> > > Shape in your own image. Join our Network> > > Research Panel today!> > >> >>http://surveylink./gmrs/_panel_invite.asp?a=7> > > > > > > > > > > > > === message truncated ===__________________________________________________________Looking for a deal? Find great prices on flights and hotels with FareChase.http://farechase./Jackie Quote Link to comment Share on other sites More sharing options...
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