Re: 4 week meeting

[Guest guest]

WHY would you not do the anti-depressant? they are not that expensive,, and believe me ,, you will need it while on tx,, it IS a BAD IDEA... You are not whining hon,, and we all have been there before!!! Fatigue can be helped somewhat with Provigil,, it usually is for ppl who have narcolepsy but they are using it for other things like fatigue.. if I didnt have it, I'd be in bed all the time instead of 14 hours per day... ask your doc about it... it is indicated for fatigue,, jaxglennshehorn <drdigger@...> wrote: I had a meeting with the Nurse Who Would Be In Charge today in Reference 1st 4 weeks of treatment In a nutshellThe VA will not test for VL until after 12 weeks, so I won't have any definitive results to laugh or cry about till then, but all indicators are on the correct trends(ALT, AST, blood counts, hemogobulin, etcTrying to do this without anti D's seems to be a really BAD IDEA, but I guess the cost savings are worth the BAD times I've gone through and will continue to go through until the beaurocracy catches up to me with some meds. I don't understand the reason for not treating up front, but if it's a cash flow thing or some shrinks personal little test, I would have been more than amenable to some cash on or under the table to have missed this precious little bit of life experience.( I know that is whiney, crybaby kind of thinking but I think the

the plan is some kind of Crappy Idea and false economy)Plan to deal with the spinal pain appears to be Narcotics as needed. Some days that ain't a bad plan.The biggest question I have at this point is how to deal with the fatigue factor. I would never have known there is such a difference between being extremely tired and being fatigued to the point that it is too much to even try to think clearly. The NWWBIC said there is no medical treatment, but the Anti D's might help, drink lots of water, (seems to be a reoccuring answer) and learn to deal with it. I guess that is doable, but if any of ya'll have any better ideas, I would not be against some serious discussion with my BCLD and/or My PC.I think it was about as good a report as could be expected.Thanks for listening to the rant and letting me tell my tale.Dog listens pretty well, but she doesn't contribute muc but

hair.DrDiggerJackie

[Guest guest]

Personally I think the use of anti depressants is a choice . I didn't take any and was fine , not everyone gets the depression . Especially if you have a good support system at home . But I agree the antidepressants are not that expensive and a lot of pharmaceutical companies are now participating by helping to supply this type of med for free . You just have to ask

Re: 4 week meeting

WHY would you not do the anti-depressant? they are not that expensive,, and believe me ,, you will need it while on tx,, it IS a BAD IDEA...

You are not whining hon,, and we all have been there before!!!

Fatigue can be helped somewhat with Provigil,, it usually is for ppl who have narcolepsy but they are using it for other things like fatigue.. if I didnt have it, I'd be in bed all the time instead of 14 hours per day... ask your doc about it... it is indicated for fatigue,,

jaxglennshehorn <drdiggersbcglobal (DOT) net> wrote:

I had a meeting with the Nurse Who Would Be In Charge today in Reference 1st 4 weeks of treatment In a nutshellThe VA will not test for VL until after 12 weeks, so I won't have any definitive results to laugh or cry about till then, but all indicators are on the correct trends(ALT, AST, blood counts, hemogobulin, etcTrying to do this without anti D's seems to be a really BAD IDEA, but I guess the cost savings are worth the BAD times I've gone through and will continue to go through until the beaurocracy catches up to me with some meds. I don't understand the reason for not treating up front, but if it's a cash flow thing or some shrinks personal little test, I would have been more than amenable to some cash on or under the table to have missed this precious little bit of life experience.( I know that is whiney, crybaby kind of thinking but I think the the plan is some kind of Crappy Idea and false economy)Plan to deal with the spinal pain appears to be Narcotics as needed. Some days that ain't a bad plan.The biggest question I have at this point is how to deal with the fatigue factor. I would never have known there is such a difference between being extremely tired and being fatigued to the point that it is too much to even try to think clearly. The NWWBIC said there is no medical treatment, but the Anti D's might help, drink lots of water, (seems to be a reoccuring answer) and learn to deal with it. I guess that is doable, but if any of ya'll have any better ideas, I would not be against some serious discussion with my BCLD and/or My PC.I think it was about as good a report as could be expected.Thanks for listening to the rant and letting me tell my tale.Dog listens pretty well, but she doesn't contribute muc but hair.DrDiggerJackie

[Guest guest]

well hon, you are one of the lucky rare ones because the Interferon depletes the seretonin which causes depression,, I had a wonderful support system but I KNOW I'd NEVER have been able to complete tx without having been on antidepressants.. everyone is different, but you are the lucky rare one tho,,elizabethnv1 <elizabethnv1@...> wrote: Personally I think the use of anti depressants is a choice . I didn't take any and was fine , not everyone gets the depression . Especially if you have

a good support system at home . But I agree the antidepressants are not that expensive and a lot of pharmaceutical companies are now participating by helping to supply this type of med for free . You just have to ask Re: 4 week meeting WHY would you not do the anti-depressant? they are not

that expensive,, and believe me ,, you will need it while on tx,, it IS a BAD IDEA... You are not whining hon,, and we all have been there before!!! Fatigue can be helped somewhat with Provigil,, it usually is for ppl who have narcolepsy but they are using it for other things like fatigue.. if I didnt have it, I'd be in bed all the time instead of 14 hours per day... ask your doc about it... it is indicated for fatigue,, jaxglennshehorn <drdiggersbcglobal (DOT) net> wrote: I had a meeting with the Nurse Who Would Be In Charge today in Reference 1st 4 weeks of treatment In a nutshellThe VA will not test for VL until after 12 weeks, so I won't have any definitive results to laugh or cry about till then, but all indicators are on the correct trends(ALT, AST, blood counts,

hemogobulin, etcTrying to do this without anti D's seems to be a really BAD IDEA, but I guess the cost savings are worth the BAD times I've gone through and will continue to go through until the beaurocracy catches up to me with some meds. I don't understand the reason for not treating up front, but if it's a cash flow thing or some shrinks personal little test, I would have been more than amenable to some cash on or under the table to have missed this precious little bit of life experience.( I know that is whiney, crybaby kind of thinking but I think the the plan is some kind of Crappy Idea and false economy)Plan to deal with the spinal pain appears to be Narcotics as needed. Some days that ain't a bad plan.The biggest question I have at this point is how to deal with the fatigue factor. I would never have known there is such a difference between being extremely tired and being fatigued to the point that it

is too much to even try to think clearly. The NWWBIC said there is no medical treatment, but the Anti D's might help, drink lots of water, (seems to be a reoccuring answer) and learn to deal with it. I guess that is doable, but if any of ya'll have any better ideas, I would not be against some serious discussion with my BCLD and/or My PC.I think it was about as good a report as could be expected.Thanks for listening to the rant and letting me tell my tale.Dog listens pretty well, but she doesn't contribute muc but hair.DrDiggerJackie Jackie

[Guest guest]

I went through treatment without anti-depressants and am glad that I

didn't take them. I was taking enough presciptions and don't think I

needed to add them to the mix. I'm not saying that I didn't feel some

changes, I was more emotional than usual, but nothing that I couldn't

control.

I think that if you already are on them or are prone to depression

you should take them because it will get worse, but if you don't have

any history of depression you should wait and see what happens.

Beleive me I would have taken them if I thought that I needed them

but I really didn't. Like most things about this treatment everyone

is different.

As far as not testing viral load at four weeks, I don't think that

many doctors do. I didn't get mine until week 12, I sure wish I knew

where I was at at week 4 though.

Lee

> I had a meeting with the Nurse Who Would Be In Charge today

in

> Reference 1st 4 weeks of treatment

> In a nutshell

> The VA will not test for VL until after 12 weeks, so I won't have

any

> definitive results to laugh or cry about till then, but all

> indicators are on the correct trends(ALT, AST, blood counts,

> hemogobulin, etc

> Trying to do this without anti D's seems to be a really BAD IDEA,

but

> I guess the cost savings are worth the BAD times I've gone through

> and will continue to go through until the beaurocracy catches up to

> me with some meds. I don't understand the reason for not treating

up

> front, but if it's a cash flow thing or some shrinks personal

little

> test, I would have been more than amenable to some cash on or under

> the table to have missed this precious little bit of life

experience.

> ( I know that is whiney, crybaby kind of thinking but I think the

the

> plan is some kind of Crappy Idea and false economy)

> Plan to deal with the spinal pain appears to be Narcotics as

needed.

> Some days that ain't a bad plan.

> The biggest question I have at this point is how to deal with the

> fatigue factor. I would never have known there is such a difference

> between being extremely tired and being fatigued to the point that

it

> is too much to even try to think clearly. The NWWBIC said there is

no

> medical treatment, but the Anti D's might help, drink lots of

water,

> (seems to be a reoccuring answer) and learn to deal with it. I

guess

> that is doable, but if any of ya'll have any better ideas, I would

> not be against some serious discussion with my BCLD and/or My PC.

> I think it was about as good a report as could be expected.

> Thanks for listening to the rant and letting me tell my tale.

> Dog listens pretty well, but she doesn't contribute muc but hair.

> DrDigger

>

>

>

>

>

>

> Jackie

>

>

>

>

>

>

> Jackie

>

[Guest guest]

thats great Lee,, that you didnt need them and perhaps you are correct that if you have no history of depression that you might not need them,, Yeah, I would have liked to know what my vl was at week 4 too,, my insurance wouldnt do the PCR vl until week 12 tooLee <leecuate@...> wrote: I went through treatment without anti-depressants and am glad that I didn't take them. I was taking enough presciptions and don't think I needed to add them to the mix. I'm not saying that I didn't feel some

changes, I was more emotional than usual, but nothing that I couldn't control.I think that if you already are on them or are prone to depression you should take them because it will get worse, but if you don't have any history of depression you should wait and see what happens. Beleive me I would have taken them if I thought that I needed them but I really didn't. Like most things about this treatment everyone is different.As far as not testing viral load at four weeks, I don't think that many doctors do. I didn't get mine until week 12, I sure wish I knew where I was at at week 4 though.Lee> I had a meeting with the Nurse Who Would Be In Charge today in > Reference 1st 4 weeks of treatment > In a nutshell> The VA will not test for VL until after 12 weeks, so I won't have any > definitive results to laugh or cry about till then, but all > indicators are on the correct trends(ALT, AST, blood counts, > hemogobulin, etc> Trying to do this

without anti D's seems to be a really BAD IDEA, but > I guess the cost savings are worth the BAD times I've gone through > and will continue to go through until the beaurocracy catches up to > me with some meds. I don't understand the reason for not treating up > front, but if it's a cash flow thing or some shrinks personal little > test, I would have been more than amenable to some cash on or under > the table to have missed this precious little bit of life experience.> ( I know that is whiney, crybaby kind of thinking but I think the the > plan is some kind of Crappy Idea and false economy)> Plan to deal with the spinal pain appears to be Narcotics as needed. > Some days that ain't a bad plan.> The biggest question I have at this point is how to deal with the > fatigue factor. I would never have known there is such a difference > between being extremely

tired and being fatigued to the point that it > is too much to even try to think clearly. The NWWBIC said there is no > medical treatment, but the Anti D's might help, drink lots of water, > (seems to be a reoccuring answer) and learn to deal with it. I guess > that is doable, but if any of ya'll have any better ideas, I would > not be against some serious discussion with my BCLD and/or My PC.> I think it was about as good a report as could be expected.> Thanks for listening to the rant and letting me tell my tale.> Dog listens pretty well, but she doesn't contribute muc but hair.> DrDigger> > > > > > > Jackie > > > > > > > Jackie>Jackie

[Guest guest]

yeah baby, you are rare and very special! I love ya so much ya know,, and perhaps you didnt need the anti-depressants because you didnt have any sign of depression before you started tx,, I had a very low grade depression for years, not knowing that I had hep and living with that very abusive fireman caused my stress level to go skyhigh and Im sure that caused my hep to kick into overdrive... so I finally was put on meds for the depression when going through my divorce,, so maybe you didnt need the meds cuz you were just fine before tx,, depression wise that is,, yep, you are very rare honey!elizabethnv1 <elizabethnv1@...> wrote: I am rare huh ? lol Re: 4 week meeting WHY would you not do the anti-depressant? they are not that expensive,, and believe me ,, you will need it while on tx,, it IS a BAD IDEA... You are not whining hon,, and we all have been there before!!! Fatigue can be helped somewhat with Provigil,, it usually is for ppl who have narcolepsy but they are using it for other things like fatigue.. if I

didnt have it, I'd be in bed all the time instead of 14 hours per day... ask your doc about it... it is indicated for fatigue,, jaxglennshehorn <drdiggersbcglobal (DOT) net> wrote: I had a meeting with the Nurse Who Would Be In Charge today in Reference 1st 4 weeks of treatment In a nutshellThe VA will not test for VL until after 12 weeks, so I won't have any definitive results to laugh or cry about till then, but all indicators are on the correct trends(ALT, AST, blood counts, hemogobulin, etcTrying to do this without anti D's seems to be a really BAD IDEA, but I guess the cost savings are worth the BAD times I've gone through and will continue to go through until the beaurocracy catches up to me with some meds. I don't understand the reason for not treating up front,

but if it's a cash flow thing or some shrinks personal little test, I would have been more than amenable to some cash on or under the table to have missed this precious little bit of life experience.( I know that is whiney, crybaby kind of thinking but I think the the plan is some kind of Crappy Idea and false economy)Plan to deal with the spinal pain appears to be Narcotics as needed. Some days that ain't a bad plan.The biggest question I have at this point is how to deal with the fatigue factor. I would never have known there is such a difference between being extremely tired and being fatigued to the point that it is too much to even try to think clearly. The NWWBIC said there is no medical treatment, but the Anti D's might help, drink lots of water, (seems to be a reoccuring answer) and learn to deal with it. I guess that is doable, but if any of ya'll have any better ideas, I would not be against some serious

discussion with my BCLD and/or My PC.I think it was about as good a report as could be expected.Thanks for listening to the rant and letting me tell my tale.Dog listens pretty well, but she doesn't contribute muc but hair.DrDiggerJackie Jackie Jackie

[Guest guest]

To be honest Jackie I had my depressive time back in 85 when I was diagnosed . The yrs and my family have made it easier for me to cope . I am so sorry you had to go through all that crap with your ex . I am glad you have now

Re: 4 week meeting

WHY would you not do the anti-depressant? they are not that expensive,, and believe me ,, you will need it while on tx,, it IS a BAD IDEA...

You are not whining hon,, and we all have been there before!!!

Fatigue can be helped somewhat with Provigil,, it usually is for ppl who have narcolepsy but they are using it for other things like fatigue.. if I didnt have it, I'd be in bed all the time instead of 14 hours per day... ask your doc about it... it is indicated for fatigue,,

jaxglennshehorn <drdiggersbcglobal (DOT) net> wrote:

I had a meeting with the Nurse Who Would Be In Charge today in Reference 1st 4 weeks of treatment In a nutshellThe VA will not test for VL until after 12 weeks, so I won't have any definitive results to laugh or cry about till then, but all indicators are on the correct trends(ALT, AST, blood counts, hemogobulin, etcTrying to do this without anti D's seems to be a really BAD IDEA, but I guess the cost savings are worth the BAD times I've gone through and will continue to go through until the beaurocracy catches up to me with some meds. I don't understand the reason for not treating up front, but if it's a cash flow thing or some shrinks personal little test, I would have been more than amenable to some cash on or under the table to have missed this precious little bit of life experience.( I know that is whiney, crybaby kind of thinking but I think the the plan is some kind of Crappy Idea and false economy)Plan to deal with the spinal pain appears to be Narcotics as needed. Some days that ain't a bad plan.The biggest question I have at this point is how to deal with the fatigue factor. I would never have known there is such a difference between being extremely tired and being fatigued to the point that it is too much to even try to think clearly. The NWWBIC said there is no medical treatment, but the Anti D's might help, drink lots of water, (seems to be a reoccuring answer) and learn to deal with it. I guess that is doable, but if any of ya'll have any better ideas, I would not be against some serious discussion with my BCLD and/or My PC.I think it was about as good a report as could be expected.Thanks for listening to the rant and letting me tell my tale.Dog listens pretty well, but she doesn't contribute muc but hair.DrDiggerJackie

Jackie

Jackie

[Guest guest]

I think we are both very lucky with our marrages ......finally lol And good love and support make allot of difference during treatment or after it .

[Guest guest]

Oh Boy, YOU got that right honey... we are both so blessed!elizabethnv1 <elizabethnv1@...> wrote: I think we are both very lucky with our marrages ......finally lol And good love and support make allot of difference during treatment or after it . Jackie

[Guest guest]

Oh Boy, YOU got that right honey... we are both so blessed!elizabethnv1 <elizabethnv1@...> wrote: I think we are both very lucky with our marrages ......finally lol And good love and support make allot of difference during treatment or after it . Jackie