Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 We are taking off, too... ph is staying on. Keep us posted. Peace be with you, Pattie Our family-- just the right mix of chaos and love. (age 13, Healthy), (age 10, SDS) and ph (age 9, SDS) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Good luck to the both of you. I hope that they stay well! Cheryl RE: I'm Nervous but happy We are taking off, too... ph is staying on. Keep us posted. Peace be with you, Pattie Our family-- just the right mix of chaos and love. (age 13, Healthy), (age 10, SDS) and ph (age 9, SDS) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Misty, I am so glad that Jake has been doing better. I will pray that he continues to get better while not taking the IVIG. (mom to Hope,6,undiagnosed immune deficiency,dilated cardiomyopathy)(((HUGS))) Misty <mistycmathis@...> wrote: Jake's immunologist called me today and we have decided to take him off of IVIG for the spring/summer to see how he does. He has been doing so well for the past year his infections have dropped dramaticaly. I took him to the Dr. Last week and asked her when was the last time that he had an infection and she told me September! That was the whole winter well! I had kinda lost sight of the last time he was sick because he has been doing so well. Our hopes are to keep him off 6 months so that he can be re vaccinated with the Pneumovax(SP) and then redraw his titers to see if he is holding a response. He has been on IVIG 3yrs now and I am really comfortable taking a " break " to see how he does but I am just so nervous that he is going to start getting really really sick again.....I just hope I made the right decision taking him off of IVIG. I will feel just awful if I made the wrong decision. Misty-mom to Jake age 5 --------------------------------- Ahhh...imagining that irresistible " new car " smell? Check outnew cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Misty, We are trialling of SCIG too...but we haven't had as good of a winter as last winter...time will tell. , Mom to , age 4 PID, nos Quoting Misty <mistycmathis@...>: > Jake's immunologist called me today and we have decided to take him > off of IVIG for the spring/summer to see how he does. He has been > doing so well for the past year his infections have dropped > dramaticaly. I took him to the Dr. Last week and asked her when was > the last time that he had an infection and she told me September! That > was the whole winter well! I had kinda lost sight of the last time he > was sick because he has been doing so well. Our hopes are to keep him > off 6 months so that he can be re vaccinated with the Pneumovax(SP) > and then redraw his titers to see if he is holding a response. He has > been on IVIG 3yrs now and I am really comfortable taking a " break " to > see how he does but I am just so nervous that he is going to start > getting really really sick again.....I just hope I made the right > decision taking him off of IVIG. I will feel just awful if I made the > wrong decision. > > Misty-mom to Jake age 5 > > Quote Link to comment Share on other sites More sharing options...
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