People with history of Migraines Please Read

[Guest guest]

I am just wondering for those of you who have had migraines even

before Still's- how many of you have experienced worsening migraines

since becoming ill with Still's? I had experienced several bad

migraines before being dx with Still's, but since being sick, every

migraine I have had has been absolutely horrible! I am just wondering

if it is just me, or is there maybe a connection to all this? I am

currently recovering from a bad one; have had a headache for about

the whole week, then today it kept getting worse and worse until I

was vomiting and to the point of pain that you consider getting out

the shot gun and just ending it all. Thankfully, I was finally able

to keep down some pain reliever long enough that it is now back to a

tolerable level of pain. Have any of you had these severely painful

Migraines since Still's?

Love and hugs...... Traci

[Guest guest]

Traci,

I never had migraines before the STills, when I had a headache, I usually ended

up in the hospital having brain surgery for my hydrocephalus. For me, having

headaches is a major problem. If I get to the point of vomiting or have one for

too long I need to go to the hospital and have a CAT scan at 3-4 grand. Since I

have been on the MTX and had STills I have major headache issues. I have

recently had them for the past 2 weeks on and off. My doctor prescribed MIgrin

A capsules, which work sometimes but at other times only the percocet works.

Hugs

People with history of Migraines Please Read

I am just wondering for those of you who have had migraines even

before Still's- how many of you have experienced worsening migraines

since becoming ill with Still's? I had experienced several bad

migraines before being dx with Still's, but since being sick, every

migraine I have had has been absolutely horrible! I am just wondering

if it is just me, or is there maybe a connection to all this? I am

currently recovering from a bad one; have had a headache for about

the whole week, then today it kept getting worse and worse until I

was vomiting and to the point of pain that you consider getting out

the shot gun and just ending it all. Thankfully, I was finally able

to keep down some pain reliever long enough that it is now back to a

tolerable level of pain. Have any of you had these severely painful

Migraines since Still's?

Love and hugs...... Traci

[Guest guest]

Hi It's Dave,

I hope everyone is have a somewhat a pain free day? Before I was Dx: With

Stills I got Migraines to to the extreme. Now That I have stills I still get

them

once in a while. But I get a headache everyday It's like a migraine but it's

on my left side and runs down to the back of my head to my neck. I take my

Pain Meds and now My new PCP gave me a muscle relaxent it works wonders also it

usually takes them away sometimes I just Have to live with it. Well I gotta go

I hope everyone has a PAIN FREE day! Take care guy's

~~~~~D

[Guest guest]

Hi Traci, I had migraines before Stills and still have them.. During the

process of finding out the diagnosis of Stills, one of the dr's I was sent to

was

the Neurologist. They put me on Topomax, 50 mgs a night. This has helped me

a lot. I still get the migraines, but not as bad or as much as I used to. I

used to get them either daily or three to four times a week. Now it maybe

once a month or every other month.. and not to the extreme they were. Please

try and go see a dr and see what they have to say. I am just telling you what

has worked for me. But check with the dr and see what they can do to help

you. You have been through alot these last few month.. I send lots of love and

Hugs your way..

I will not be making it to Vegas this year.. I wish I could go, but money and

my body isn't going to let me.. I have an appointment in a few with the dr

and will post again to let you all know how it goes.. Love to all..

Kelley in Colorado

[Guest guest]

Hi Traci, I had migraines before Stills and still have them.. During the

process of finding out the diagnosis of Stills, one of the dr's I was sent to

was

the Neurologist. They put me on Topomax, 50 mgs a night. This has helped me

a lot. I still get the migraines, but not as bad or as much as I used to. I

used to get them either daily or three to four times a week. Now it maybe

once a month or every other month.. and not to the extreme they were. Please

try and go see a dr and see what they have to say. I am just telling you what

has worked for me. But check with the dr and see what they can do to help

you. You have been through alot these last few month.. I send lots of love and

Hugs your way..

I will not be making it to Vegas this year.. I wish I could go, but money and

my body isn't going to let me.. I have an appointment in a few with the dr

and will post again to let you all know how it goes.. Love to all..

Kelley in Colorado

[Guest guest]

Traci, mine have gotten more frequent over the years with Stills but are not

triggered from food but from stressful situations. I do not get the auras

either or the vision problems but very much sick and not able to even move.

I had the whole work up with brain scans etc. a few years back and my doctor

prescribed the Neurontin daily. I no longer have the daily headaches and

the migraines are less frequent. Imatrex works for me but only in the spray

form because of the nausea. You know I live 30 miles down a windy mountain

road for the nearest hospital so have to have something that works at home

if the doctor office is closed. I hope any of my sharing helps. I know you

have been sick lately and that may be a contributing factor. Much love,

Sister

People with history of Migraines Please Read

>

> I am just wondering for those of you who have had migraines even

> before Still's- how many of you have experienced worsening migraines

> since becoming ill with Still's? I had experienced several bad

> migraines before being dx with Still's, but since being sick, every

> migraine I have had has been absolutely horrible! I am just wondering

> if it is just me, or is there maybe a connection to all this? I am

> currently recovering from a bad one; have had a headache for about

> the whole week, then today it kept getting worse and worse until I

> was vomiting and to the point of pain that you consider getting out

> the shot gun and just ending it all. Thankfully, I was finally able

> to keep down some pain reliever long enough that it is now back to a

> tolerable level of pain. Have any of you had these severely painful

> Migraines since Still's?

>

> Love and hugs...... Traci

>

>

>

>

[Guest guest]

Traci, mine have gotten more frequent over the years with Stills but are not

triggered from food but from stressful situations. I do not get the auras

either or the vision problems but very much sick and not able to even move.

I had the whole work up with brain scans etc. a few years back and my doctor

prescribed the Neurontin daily. I no longer have the daily headaches and

the migraines are less frequent. Imatrex works for me but only in the spray

form because of the nausea. You know I live 30 miles down a windy mountain

road for the nearest hospital so have to have something that works at home

if the doctor office is closed. I hope any of my sharing helps. I know you

have been sick lately and that may be a contributing factor. Much love,

Sister

People with history of Migraines Please Read

>

> I am just wondering for those of you who have had migraines even

> before Still's- how many of you have experienced worsening migraines

> since becoming ill with Still's? I had experienced several bad

> migraines before being dx with Still's, but since being sick, every

> migraine I have had has been absolutely horrible! I am just wondering

> if it is just me, or is there maybe a connection to all this? I am

> currently recovering from a bad one; have had a headache for about

> the whole week, then today it kept getting worse and worse until I

> was vomiting and to the point of pain that you consider getting out

> the shot gun and just ending it all. Thankfully, I was finally able

> to keep down some pain reliever long enough that it is now back to a

> tolerable level of pain. Have any of you had these severely painful

> Migraines since Still's?

>

> Love and hugs...... Traci

>

>

>

>

[Guest guest]

Traci,

I'm sorry that you are feeling so awful.

I have had the opposite effect with Stills. My migraines were a lot worse

before I came down with this lovely thing. However, there may be other

factors at work for me. I used to get my migraines at that time of the

month. Menopause and the onset of Stills coincided, and so I get very few

migraines now, and they are all controllable with just Excedrin.

Unfortunately I can't always take Excedrin (depending on what other meds I

am on at the time. Excedrin has aspirin in it and that doesn't always work

together) and Tylenol doesn't do much.

Hope you recover soon. In the meantime stay in a cool, dark room, with as

little sound as you can deal with.

Ann K

On LI NY

People with history of Migraines Please Read

>

> I am just wondering for those of you who have had migraines even

> before Still's- how many of you have experienced worsening migraines

> since becoming ill with Still's? I had experienced several bad

> migraines before being dx with Still's, but since being sick, every

> migraine I have had has been absolutely horrible! I am just wondering

> if it is just me, or is there maybe a connection to all this? I am

> currently recovering from a bad one; have had a headache for about

> the whole week, then today it kept getting worse and worse until I

> was vomiting and to the point of pain that you consider getting out

> the shot gun and just ending it all. Thankfully, I was finally able

> to keep down some pain reliever long enough that it is now back to a

> tolerable level of pain. Have any of you had these severely painful

> Migraines since Still's?

>

> Love and hugs...... Traci

>

>

>

[Guest guest]

Hi Traci, Judy here,

I have had migraines since I was a little girl. Spent most of my

early years (teens) hang over the tiolet at least once a week. (My 18

yr old daughter also has had them since 14 yrs.) But I must say they

have been better since the Still's. Don't know if it is all the

medications or what but I'm not complaining. Have you tried Imtrex? I

have been using it since it came out. However, only the injection

form works for me. Sorry this is so late I am behind on reading the

posts.

Wishing you well

Judy, Collegeville, PA

Have any of you had these severely painful

> Migraines since Still's?

>

> Love and hugs...... Traci

[Guest guest]

Hi Traci, Judy here,

I have had migraines since I was a little girl. Spent most of my

early years (teens) hang over the tiolet at least once a week. (My 18

yr old daughter also has had them since 14 yrs.) But I must say they

have been better since the Still's. Don't know if it is all the

medications or what but I'm not complaining. Have you tried Imtrex? I

have been using it since it came out. However, only the injection

form works for me. Sorry this is so late I am behind on reading the

posts.

Wishing you well

Judy, Collegeville, PA

Have any of you had these severely painful

> Migraines since Still's?

>

> Love and hugs...... Traci

[Guest guest]

Hi Traci, Judy here,

I have had migraines since I was a little girl. Spent most of my

early years (teens) hang over the tiolet at least once a week. (My 18

yr old daughter also has had them since 14 yrs.) But I must say they

have been better since the Still's. Don't know if it is all the

medications or what but I'm not complaining. Have you tried Imtrex? I

have been using it since it came out. However, only the injection

form works for me. Sorry this is so late I am behind on reading the

posts.

Wishing you well

Judy, Collegeville, PA

Have any of you had these severely painful

> Migraines since Still's?

>

> Love and hugs...... Traci