Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 We were just granted a wish through MAW... the criteria is for children under the age of 18 with life threating illnessess or conditions... We were not granted our wish based on Conans CVID, or pseudo- obstructions, GERD, elecare only for feedings... it was based on his MITO dx, along with all the rest...our Neurogeneticist was who reffered us.. There are other organizations out there that can help a family obtain a wish.. MAW is just one of them.... and have been fabulous to us.. This is a very special opportunity for a family to have, and to enjoy, it is a once in a life time opportunity, to fulfill a dream for a child that has been struggling, fighting,living with an illness for so long.... I am grateful we were approved, and hope this trip creates the memories I am hoping for.... Kathleen Mom to Conan...3 Quote Link to comment Share on other sites More sharing options...
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