Donovans levels

[Guest guest]

So, , now that we have the right kid, looking at those levels,

what do you think? would you think that is low enough to start?

I guess Im just trying to be prepared in case he(dr) says yes, just

bring him on down with the others this month on infusion day.

Now, I see a lot of people have had little success with sinus

infections since beginning IVIG. We have had the opposite

experience--Brennan typically would start with sinus infections

leading to bronchial infections (and he has severe asthma,

tracheobroncholaryngomalacia) in August and thru multiple antibiotics

and constant prednisone, would usually remain sick until June. the

ONLY thing that ever helped him was the two times he had a bronch and

was " vacuumed " out clean and then restarted on a different abx.

Obviously, we cant just keep doing that.

But since starting IVIG, he hasnt been on pred ONCE--not since

MAY--that is the longest stretch of time in his ENTIRE life--and

typically, most of his sinus infections have cleared with one round of

abx. this last infection has been a bugger but all of us got it and we

all have had a hard time getting rid of it, so I tend to think its

more the strain than his CVID. I would LOVE to see that kind of

improvement with Donovan.

Its just that IVIG day is so difficult to begin with ........and with

Savannah and her issues.........its just such a draining day already.

But I would do it if it would help him the way it has brennan.

thanks,

valarie

mom to

olivia, asthma

savannah, cvid, asthma, spd,(on IVIG)

donovan, cvid, asthma, tbm

brennan, cvid, asthma, tblm, spd(on IVIG)