Beckett Home Eval tomorrow

[Guest guest]

Well...tomorrow is our big day. The nursing staff from the

representatives of the Beckett program are doing our home visit

tomorrow. She is very dedicated to making the most she can of the

application process for us as she owuld like to see us succeed at

getting the waiver for the girls. I would like to get some feedback

from anyone who has successfully navigated the Beckett program

to make sure we cover all of our bases. The biggest concern I

have...one that we have all faced....is that so many people expect to

see really " sick " looking kids....but that is not the case with

immune disorders. My children look as healthy as horses (so did the

beautiful little girl at the MAW party that has just 2 months to

live....that we met last night....you would never have guessed that

she was sick). I want to see this succeed....not just for my

children, but because we have several families waiting in the wings

to see how it goes for us before they apply.

So anyone who has feedback...to make sure that I don't miss things

that I should make a point of...please chime in. I know I need to

make a point fo their dietary needs....their sleeping habints due to

sinus issues....their bowel habits.....their SCIG.....I fear that

because I have chosen not to use a nurse in our home, that we will be

faulted.

Thanks in advance for everyones feedback. This is HUGE for us.

Terri (mom and both daughters, 4 and 6, CID/PIDD)