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Hello

I was just allowed to post in this group and I hope to gain some

knowledge about PID.

I have four children but only two are sick. I have a boy who is 9

and a girl who is 6 who get many infections. They also have adrenal

insufficiency. My son has bronchiectasis. My daughter gets

recurrent pneumonia and sinus infections. She is on her 16

antibiotic this year for infections.

They have seen an immunologist but they don't seem to fit totally in

the PID catagory. This has been our problem throughout. They don't

seem to fit anywhere. They don't know why he has bronchiectasis.

They don't know why they are adrenally insufficient. They don't

seem to know why they have no HIB antibodies (my son also has no

antibodies for tetanus and low for dip). All of their Ig levels

seem normal.

I actually do not know if I belong here looking for answers but I

would like to know what you all think. What road do I need to

travel to get some answers?

Thanks for listening (or should I say reading),

Theresa

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