Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 Missy, How did the xray go yesterday? has a port, too, and we get his flushed every 2 weeks - once at home and once at the hospital with IVIG. They have suspected a clot or dislodgement before due to infiltration but it turned out to be a nurse that didn't access him right. When the radiologist did it, everything looked perfect. I hope that is the case for you guys! Mom to , 7 unaffected , 4 GSD, primary ID Meredith, 2 GSD Huntsville, AL PORT A CATH problems My son is 9 and has had his port for 4 years. He has history of a clot on the end so we flush his port with TPA with every access. Since last Wed(thWell actually since the friday before that he complained about his chest hurting but he also had a headache and sore throat, strep test was neg so we thought it was an IVIG reaction) he has been complaining of chest pain and arm pain (radiating and only in the arm on the side his port is on). His port site is puffy but no redness or warmth noted. His white count was up a little but still low (3.7) and he has had no fever, although he NEVER gets a fever. All his other labs are fine and the heart ultrasound showed no obvious blood clot and that the port is in the right place. He says he didn't fall and hurt himself, so I don't think there is an injury. Any thoughts on what this could be? We are going to go tomorrow to get his arm X-Rayed to MAKE SURE he didn't do anything to it(he is 9) and if it's ok he'll need to have it replaced ASAP. This all started after his last IVIG infusion on the 22nd. I'm nervous also about any complications from taking the port out, it was hard getting it in as it took twice as long as it should. Anyone have any experience with this or with removing of ports??? Missy --------------------------------- It's here! Your new message! Get new email alerts with the free Toolbar. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2007 Report Share Posted March 7, 2007 Hi , My son Lucas is 11 now and is also on a lot of meds. We use Advair and Zyrtec his anxiety really improved. We found that all the other antihistamines made him crazy in one way or another. ( agiatated, hyper, mean, irritable violent) We tried each one of them since the insurance did not want us to switch to zyrtec bec ause of the cost. It can be very confusing when we pile several meds on top of each other. Lucas at 9 was admitted to the psychiatric hospital for a month because of a 3 week course of prednisone. He became homicidal and sucidal. I do believe that consistent counseling and someone coming to our house 1x a week to work with him has helped more than anything other than making contracts around his behavior. We choose a behavior and set up a contract of what he needs to do and for how long. Usually atleast a month by do it week by week and then he earns a reward. He feels like he then has control over his behavior. I think what I finally figured out is that there are going to be all kinds of things in life that our kids are going to be stressed by but they still cannot act that way. So, I see my job as to help him change his reactions to situations. So I try to identify the behavior, help him see it, let him know how it impacts me, us, and him and then we problem solve a strategy and put a contract together. We cannot change his situation necessarily but I can help him change his reactions to it. It has been eyeopening, this simple strategy has totally changed our relationship. I do not spend my time feeling sorry for him or angry with but matter of factly we work on the behaviors. BARBIE , Lucas 11 CVID, SCIg,Bipolar? Barbie Jimenez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2007 Report Share Posted March 19, 2007 I have heard of this happening with another mom almost sounds similar to hers. They had taken her in and she had out grown the port they couldn't get theirs to flush properly either. Child was very fussy. I didn't know if this would help. > > My son is 9 and has had his port for 4 years. He has history of a clot on the end so we flush his port with TPA with every access. Since last Wed(thWell actually since the friday before that he complained about his chest hurting but he also had a headache and sore throat, strep test was neg so we thought it was an IVIG reaction) he has been complaining of chest pain and arm pain (radiating and only in the arm on the side his port is on). His port site is puffy but no redness or warmth noted. His white count was up a little but still low (3.7) and he has had no fever, although he NEVER gets a fever. All his other labs are fine and the heart ultrasound showed no obvious blood clot and that the port is in the right place. He says he didn't fall and hurt himself, so I don't think there is an injury. > > Any thoughts on what this could be? We are going to go tomorrow to get his arm X-Rayed to MAKE SURE he didn't do anything to it(he is 9) and if it's ok he'll need to have it replaced ASAP. This all started after his last IVIG infusion on the 22nd. > I'm nervous also about any complications from taking the port out, it was hard getting it in as it took twice as long as it should. Anyone have any experience with this or with removing of ports??? > > Missy > > > --------------------------------- > It's here! Your new message! > Get new email alerts with the free Toolbar. > > Quote Link to comment Share on other sites More sharing options...
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