Guest guest Posted March 17, 2002 Report Share Posted March 17, 2002 --- Tamar Chansky wrote: > Date: Sun, 17 Mar 2002 13:36:20 +0000 > > Reply-to: chanskt@... > To: Louis Harkins > Subject: Re: Fwd: Ask Dr Chansky > > Hi Millie, > In general children and adults with OCD do not carry > out their > obsessions. This is what makes the disorder so > torturous- one is goaded > by vivid thoughts which one would never act on, but > feels guilty and > afraid for the possibility. So the child who > pictures stabbing himself > or others would never hurt a fly but is scared to > death, etc. Some kids > have other disorders in the alphabet- ADD, ODD, TS > which makes them more > impulsive. In these cases kids do things which they > may later regret- > breaking something, saying something mean- but this > is generally not an > OCD thing. You may be thinking, it doesn't matter > what the cause, I want > to know if my child is safe. That's the right > question. What has your > child acted on before? Was it directly related to > OCD or something > else? The best strategy is to talk to your child's > therapist about > those past behaviors and your current concerns. It > may be that what > happened in the past had to do with regular > experimentation that kids > do, but if there are other disorders present, then > identifying them will > be the first step in getting them under control. > > Best wishes, > Tamar Chansky, Ph.D. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2007 Report Share Posted March 9, 2007 I have twin sons 15 with OCD with psychotic features and food issues.Our story is very long, complicated and heartbreaking, but i will try to condense.This all started after a move across country(Ohio to Texas) 2 and a half years ago in which they never adjusted to a totally different environment.They were perfectionist, overachievers with genius IQs. About a year and a half ago they became obsessed about eating healthy food and became very restricted in their eating, which led to eventually stop eating and was being fed through a NG tube. He also had alot of bedtime , light flicking ,rituals etc. that he was doing. No one could help us. We finally found a well known psychiatric hospital in Ca. that would take him with a feeding tube where he was inpatient for 9 months. He was very withdrawn almost catatonic.He was put on numerous meds with little improvement.After almost dying he finally started eating with assistance(hand over hand), but to this day has never been able to verbalize why. CBT therapy could never be done because he would not open up to anyone. He was sent home because they could not do anymore for him although everyone involved stated he needed to be inpatient and insurance would not pay more than 45 days, the 7 and a half months is our responsibility. I moved to Ca with his twin and older sister for the 9 months he was hospitalized to be near him. There is no one in our city with any expertise in this area and even his pediatrician will not see him anymore because he is too " complicated " We have a psychiatrist who sees him and monitors meds, but admits this is over his head. His diagnoses was OCD( severe) and Psychotic Disorder NOS. He is currently on clomimprimine 200 mg, lexapro 45 mg and seroquel 400 mg.He was an clozaril 300 mg, but had to be stopped , blood count down to 2.8 and seroquel just started as replacement .We have an aide come in 3 times a day to help him eat because he will not eat for us. He spends his days in his room doing rituals,except for the 2 hors a day he spends in a special classroom at school. He needs help and prompting from me with his ADL's. Will not watch TV, play games, read ,listen to music, socialize with us,doesn't talk to us in more than simple yes no to questions. wears the same pants shirt and shoes, even though they have holes. Rituals consume every waking second.This is not a life it is an existence. In 30 days he can be hospitalized again. We will take him anywhere, do anything to help our son. Everyone states he is a very unique case and needs expert help.The hospital he was in states he has the most severe case of OCD they have ever seen. This poor child is in dire need of help. I'm so afraid he will stop eating again.His twin is now inpatient at a psych hospital in Texas with OCD. They are testing for a possible thought disorder such as Schizophrenia or other psychotic disorder. He was also hospitalized in the summer at the same place was on the eating disorder unit.His OCD got to the point that he could only eat turkey sandwiches on a specific wheat bread and nothing else. He also had problems with thinking smells and loud noises caused brain damage.After inpatient he continued on with weekly outpatient therapy at the OCD clinic at the hospital. His therapist told me he didn't know what Chris's illness would progress into.The difference is that is very vocal about what he feels. He went from being very studious and conservative to not caring about anything,refusing to go to school and developing strange thoughts about alternate realities. He wants to be emancipated and doesn't care about being homeless. He has rages and uses drugs where before he wouldn't even take a tylenol.He has become devious and conniving and I do not trust him. My sons are not the same boys we raised for 13 years before this happened.This illness is destroying our family and our daughter went to live with her aunt in New Jersey because Chris and her together made each other worse. Please any advice on treatment centers or hope you can give us things right now seem very bleak. We just would like to see our sons have their lives back and we do not know where to find the right help. Thank you. I know this was long and I appreciate your time. Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2007 Report Share Posted March 9, 2007 Michele - I read your story last night and I have thought about you all day. I am praying that you and your family get the help they need. I am so sorry for you. Please know you are in my thoughts and please keep posting. This is a great place for comfort, support, compassion and the list goes on. Sending my thoughts, prayers and hugs your way. > > I have twin sons 15 with OCD with psychotic features and food > issues.Our story is very long, complicated and heartbreaking, but i > will try to condense.This all started after a move across country (Ohio > to Texas) 2 and a half years ago in which they never adjusted to a > totally different environment.They were perfectionist, overachievers > with genius IQs. About a year and a half ago they became obsessed > about eating healthy food and became very restricted in their eating, > which led to eventually stop eating and was being fed through a > NG tube. He also had alot of bedtime , light flicking ,rituals etc. > that he was doing. No one could help us. We finally found a well known > psychiatric hospital in Ca. that would take him with a feeding tube > where he was inpatient for 9 months. He was very withdrawn almost > catatonic.He was put on numerous meds with little improvement.After > almost dying he finally started eating with assistance(hand over > hand), but to this day has never been able to verbalize why. CBT > therapy could never be done because he would not open up to anyone. He > was sent home because they could not do anymore for him although > everyone involved stated he needed to be inpatient and insurance would > not pay more than 45 days, the 7 and a half months is our > responsibility. I moved to Ca with his twin and older sister for the 9 > months he was hospitalized to be near him. There is no one in our city > with any expertise in this area and even his pediatrician will not see > him anymore because he is too " complicated " We have a psychiatrist who > sees him and monitors meds, but admits this is over his head. His > diagnoses was OCD( severe) and Psychotic Disorder NOS. He is currently > on clomimprimine 200 mg, lexapro 45 mg and seroquel 400 mg.He was an > clozaril 300 mg, but had to be stopped , blood count down to 2.8 and > seroquel just started as replacement .We have an aide come in 3 times > a day to help him eat because he will not eat for us. He spends his > days in his room doing rituals,except for the 2 hors a day he spends > in a special classroom at school. He needs help and prompting from me > with his ADL's. Will not watch TV, play games, read ,listen to music, > socialize with us,doesn't talk to us in more than simple yes no to > questions. wears the same pants shirt and shoes, even though they have > holes. Rituals consume every waking second.This is not a life it is an > existence. In 30 days he can be hospitalized again. We will take him > anywhere, do anything to help our son. Everyone states he is a very > unique case and needs expert help.The hospital he was in states he has > the most severe case of OCD they have ever seen. This poor child is in > dire need of help. I'm so afraid he will stop eating again.His twin > is now inpatient at a psych hospital in Texas with OCD. They are > testing for a possible thought disorder such as Schizophrenia or other > psychotic disorder. He was also hospitalized in the summer at the same > place was on the eating disorder unit.His OCD got to the point > that he could only eat turkey sandwiches on a specific wheat bread and > nothing else. He also had problems with thinking smells and loud > noises caused brain damage.After inpatient he continued on with weekly > outpatient therapy at the OCD clinic at the hospital. His therapist > told me he didn't know what Chris's illness would progress into.The > difference is that is very vocal about what he feels. He went > from being very studious and conservative to not caring about > anything,refusing to go to school and developing strange thoughts > about alternate realities. He wants to be emancipated and doesn't care > about being homeless. He has rages and uses drugs where before he > wouldn't even take a tylenol.He has become devious and conniving and I > do not trust him. My sons are not the same boys we raised for 13 > years before this happened.This illness is destroying our family and > our daughter went to live with her aunt in New Jersey because Chris > and her together made each other worse. Please any advice on treatment > centers or hope you > can give us things right now seem very bleak. We just would like to > see our sons have their lives back and we do not know where to find > the right help. Thank you. I know this was long and I appreciate your > time. Michele > Quote Link to comment Share on other sites More sharing options...
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