RE: Switching IVIG brands AGAIN

[Guest guest]

Carie,

I remember reading about a way around this. I'll try to look or perhaps

someone else remembers what I'm talking about. I think it was in an

archived post from this list that I read over the weekend. Anyone?

Mom to , 7 unaffected

, 4 GSD, hypogam, pneumococcal AD

Meredith, 2 GSD, ?PI

Huntsville, AL

Switching IVIG brands AGAIN

Can someone please tell me how to obtain a particular brand of IVIG that

they say is not available? This will be the third time they switch products

on my son, and he has done so great on Gammagard! How do I tell my doctor

how to get this? The hospital says they only have one brand right now, and

he is very allergic to the maltose that is in the new product. No one seems

to care, and have told me to not bother coming for the next infusion if I

won't use the new brand. He gets very sick for at least 10 days after the

infusions- severe headaches, throwing up, nonstop crying. With his infusion

of gammagard that he just got he has had no side effects! I am so very very

upset about switching! What can I do, I have an appointment with my doctor

soon and would like to know what I can ask him to do. Thanks Carie

[Guest guest]

If you do find out please let me know because I am desperate. Thank you.

---- Hobbs <hobbsfamily@...> wrote:

> Carie,

>

> I remember reading about a way around this. I'll try to look or perhaps

> someone else remembers what I'm talking about. I think it was in an

> archived post from this list that I read over the weekend. Anyone?

>

>

>

>

>

> Mom to , 7 unaffected

>

> , 4 GSD, hypogam, pneumococcal AD

>

> Meredith, 2 GSD, ?PI

>

> Huntsville, AL

>

>

>

> Switching IVIG brands AGAIN

>

>

>

> Can someone please tell me how to obtain a particular brand of IVIG that

> they say is not available? This will be the third time they switch products

> on my son, and he has done so great on Gammagard! How do I tell my doctor

> how to get this? The hospital says they only have one brand right now, and

> he is very allergic to the maltose that is in the new product. No one seems

> to care, and have told me to not bother coming for the next infusion if I

> won't use the new brand. He gets very sick for at least 10 days after the

> infusions- severe headaches, throwing up, nonstop crying. With his infusion

> of gammagard that he just got he has had no side effects! I am so very very

> upset about switching! What can I do, I have an appointment with my doctor

> soon and would like to know what I can ask him to do. Thanks Carie

>

>

>

>

>

>

[Guest guest]

Carie,

I just spoke with someone at Baxter that I know and he would like to see if he

can help your pharmacist get some gammaguard. Please email me off list at

dfladhammer@... so I can give you more info

Dayna S Fladhammer

Sent from T-Mobil MDA

RE: Switching IVIG brands AGAIN

If you do find out please let me know because I am desperate. Thank you.

---- Hobbs <hobbsfamily@...> wrote:

> Carie,

>

> I remember reading about a way around this. I'll try to look or perhaps

> someone else remembers what I'm talking about. I think it was in an

> archived post from this list that I read over the weekend. Anyone?

>

>

>

>

>

> Mom to , 7 unaffected

>

> , 4 GSD, hypogam, pneumococcal AD

>

> Meredith, 2 GSD, ?PI

>

> Huntsville, AL

>

>

>

[Guest guest]

Carie -- that is great that you found a brand for him (looking on the bright

side!). We do home infusions as you know and the pharmacy sends us the

medication. Could you not find a pharmacy thru Gammagard and have your

insurance company pay the pharmacy directly (who then sends it to you)?

-

itsallaboutkreed@... wrote:

Can someone please tell me how to obtain a particular brand of IVIG

that they say is not available? This will be the third time they switch products

on my son, and he has done so great on Gammagard! How do I tell my doctor how to

get this? The hospital says they only have one brand right now, and he is very

allergic to the maltose that is in the new product. No one seems to care, and

have told me to not bother coming for the next infusion if I won't use the new

brand. He gets very sick for at least 10 days after the infusions- severe

headaches, throwing up, nonstop crying. With his infusion of gammagard that he

just got he has had no side effects! I am so very very upset about switching!

What can I do, I have an appointment with my doctor soon and would like to know

what I can ask him to do. Thanks Carie

---------------------------------

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[Guest guest]

Carie,

I can't find what I was looking for but I'll keep trying. My suggestion for

now would be to contact the manufacturer of the brand Kreed does well with

and see if they can help and/or call the Immune Deficiency Foundation for

suggestions.

Mom to , 7 unaffected

, 4 GSD, hypogam, pneumococcal AD

Meredith, 2 GSD, ?PI

Huntsville, AL

Re: Switching IVIG brands AGAIN

Carie -- that is great that you found a brand for him (looking on the bright

side!). We do home infusions as you know and the pharmacy sends us the

medication. Could you not find a pharmacy thru Gammagard and have your

insurance company pay the pharmacy directly (who then sends it to you)?

-

itsallaboutkreed@ <mailto:itsallaboutkreed%40cox.net> cox.net wrote:

Can someone please tell me how to obtain a particular brand of IVIG that

they say is not available? This will be the third time they switch products

on my son, and he has done so great on Gammagard! How do I tell my doctor

how to get this? The hospital says they only have one brand right now, and

he is very allergic to the maltose that is in the new product. No one seems

to care, and have told me to not bother coming for the next infusion if I

won't use the new brand. He gets very sick for at least 10 days after the

infusions- severe headaches, throwing up, nonstop crying. With his infusion

of gammagard that he just got he has had no side effects! I am so very very

upset about switching! What can I do, I have an appointment with my doctor

soon and would like to know what I can ask him to do. Thanks Carie

---------------------------------

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Try the free Beta.

[Guest guest]

Yes, I have done this, and hopefully have solved my problem. thank you.

---- Hobbs <hobbsfamily@...> wrote:

> Carie,

>

> I can't find what I was looking for but I'll keep trying. My suggestion for

> now would be to contact the manufacturer of the brand Kreed does well with

> and see if they can help and/or call the Immune Deficiency Foundation for

> suggestions.

>

>

>

>

>

> Mom to , 7 unaffected

>

> , 4 GSD, hypogam, pneumococcal AD

>

> Meredith, 2 GSD, ?PI

>

> Huntsville, AL

>

>

>

> Re: Switching IVIG brands AGAIN

>

>

>

> Carie -- that is great that you found a brand for him (looking on the bright

> side!). We do home infusions as you know and the pharmacy sends us the

> medication. Could you not find a pharmacy thru Gammagard and have your

> insurance company pay the pharmacy directly (who then sends it to you)?

>

> -

>

> itsallaboutkreed@ <mailto:itsallaboutkreed%40cox.net> cox.net wrote:

> Can someone please tell me how to obtain a particular brand of IVIG that

> they say is not available? This will be the third time they switch products

> on my son, and he has done so great on Gammagard! How do I tell my doctor

> how to get this? The hospital says they only have one brand right now, and

> he is very allergic to the maltose that is in the new product. No one seems

> to care, and have told me to not bother coming for the next infusion if I

> won't use the new brand. He gets very sick for at least 10 days after the

> infusions- severe headaches, throwing up, nonstop crying. With his infusion

> of gammagard that he just got he has had no side effects! I am so very very

> upset about switching! What can I do, I have an appointment with my doctor

> soon and would like to know what I can ask him to do. Thanks Carie

>

> ---------------------------------

> Sucker-punch spam with award-winning protection.

> Try the free Beta.

>

>